Perceptions Of Chronic Kidney Disease Research Articles

Experience and Daily Burden of Patients with Chronic Kidney Disease Not Receiving Maintenance Dialysis or Renal Transplantation.

Daily burden of patients with chronic kidney disease (CKD) who have not received maintenance dialysis or renal transplantation has not been well reported compared with patients receiving dialysis. We conducted a patient survey and an advisory board in Japan to investigate the experience and perception of CKD and its treatments from the patient's perspective. An anonymous web survey (n = 342) was conducted in October and November 2020. Participants, who were recruited through multiple panels, aged 20years or older, diagnosed with any stage of CKD, and who had neither received nor planned maintenance dialysis or renal transplantation were included. A questionnaire prepared under the medical advisor's guidance was used to collect the background information, burden of disease and treatments, and needs and expectations for future treatments. An advisory board with five patients nominated from a patient group was conducted in December 2020. Additional insights to interpret the results of the preceding survey were collected using pre-identified discussion topics. Establishing a diagnosis of CKD generally took a long time; approximately 20% of the patients waited more than 5years before diagnosis. In daily life, patients were burdened with CKD-related symptoms (e.g., tinnitus, leg cramps) and behavioral restrictions, including diet. They also felt psychological burdens, such as concerns about possible future dialysis and/or renal transplantation, lack of awareness and understanding of disease among the other people in their lives, and financial burdens related to medical expenses. Furthermore, they felt a lack of communication in daily interactions with health care professionals and others around them, and they desired interaction with patients with CKD. Understanding the burdens and the thoughts of patients with CKD could inform discussions about the ways to improve communication with patients in daily practice, the role of the patient community, and new therapeutic options to address patients' expectations. UMIN000042300.

Community Perception of Chronic Kidney Disease in Supebeda, Chhattisgarh

Community Perception of Chronic Kidney Disease in Supebeda, Chhattisgarh

The awareness and perception of chronic kidney disease in Jeddah, Saudi Arabia.

Chronic kidney disease (CKD) is a serious worldwide health problem with a rising incidence and prevalence. CKD can lead to end-stage renal failure that increases the risk of death and requires dialysis or kidney transplantation. Patients' adherence, attitude, and knowledge are important to prevent and control CKD. The aim of this study was to investigate the awareness and knowledge about CKD and attitude toward kidney donation among the general population in Saudi Arabia. A cross-sectional study based on a questionnaire survey was conducted in Jeddah, Saudi Arabia. We surveyed the awareness about CKD among adult residents of Jeddah, Saudi Arabia. We used a self-administrated questionnaire that consisted of three sections; socio-demographic information, awareness about CKD, and attitude towards kidney donation. Simple descriptive statistics was employed using IBM SPSS Statistics version 24.0 software. The number of survey respondents was 268. More than half (53.7%) of the included participants knew that the use of non-steroidal anti-inflammatory drugs is a risk factor for CKD, whereas 54% thought that CKD could be diagnosed from a simple urine analysis, and 45% believed that lifestyle modifications can alter the course of the disease. Interestingly, most participants (57.4%) were ready to donate their kidney to a patient with end-stage renal disease, and 68.6% knew that patient can live with one kidney. The present study identifies a low rate of CKD awareness and calls for a need for awareness campaigns and other tools to strengthen knowledge dissemination. Improving public awareness about CKD needs to be addressed to help facilitate disease identification and prevention.

Perceptions of chronic kidney disease among at-risk adults in rural Guatemala

ABSTRACT This qualitative study explores perceptions of chronic kidney disease (CKD) among adults with abnormal estimated glomerular filtration rate (eGFR) in Guatemala, where the burden of CKD is rising. Qualitative semi-structured interviews were conducted with 39 individuals screened for CKD and found to have abnormal eGFR (defined as <90 mL/min/1.73 m2, per Kidney Disease Improving Global Outcomes [KDIGO] guidelines). Interviews occurred in participants’ homes in Spanish or Kaqchikel Mayan. Interview notes were coded for dominant themes through an inductive approach. Interviewees had limited awareness of diabetes and hypertension as CKD risk factors, but appreciated the progressive nature of the disease. While most reported willingness to pursue renal replacement therapies, if necessary, they anticipated economic and geographic barriers. Public health interventions should focus on the association between diabetes, hypertension, and CKD. Improvement of primary care and screening infrastructure is imperative in CKD prevention in low- and middle-income countries (LMICs).

Diagnostic Status of Chronic Kidney Disease in China – Results from 976,409 Individuals with Electronic Health Records

Background: As a major public health challenge, the diagnostic status of chronic kidney disease (CKD) in developing countries, such as China, remains unclear. Methods: Adults with electronic health records (EHRs) from May 1st, 2008 to December 31st, 2019 in Yinzhou, China were included. CKD was defined as having persistently reduced estimated glomerular filtration rate (eGFR), albuminuria/proteinuria, hematuria, or a history of CKD. The CKD stage (G1-G5) was defined by eGFR. The diagnosis showing primary cause or CKD with stage was analyzed through relevant international classification of diseases-10(ICD-10) codes. The specialty of doctors who administered the serum creatinine (SCr) tests and who made the primary-cause/CKD-staging diagnosis was analyzed. The performance of each CKD-staging code was assessed through sensitivity, specificity, and accuracy. Findings: Altogether 75,147 CKD patients with complete data were identified from 976,409 individuals. Of these patients, 46,150(61·4%) had no any CKD-related codes; 6,857(35·7%) were merely labelled with primary-cause codes; and only 2,140(2·9%) were labelled with CKD-staging codes. The majority of CKD patients received SCr tests from non-nephrologists (51·6%-91·1%) whereas CKD-staging diagnoses were mainly from nephrologists (52·3%-64·8%). Only 3 of 42 general hospitals had nephrologists. The CKD-staging codes had high specificity (>99·0%) but low sensitivity even in the advanced stages(G3-G4: <10·0%). Interpretation: Under-diagnosis of CKD is substantial in China. The lower utilization of CKD-staging codes compared with primary-cause codes indicated the lacking perception of CKD among doctors with different specialties. CKD education should be comprehensively intensified because CKD patients are largely cared by non-nephrologists. Funding Statement: This study was supported by Grants from the National Natural Science Foundation of China [Grant Nos.81771938, 91846101], Peking University [Grant Nos. BMU2018MX020, PKU2017LCX05], the National Key Technology R&D Program of the Ministry of Science and Technology of the People’s Republic of China [2016YFC1305400], the University of Michigan Health System-Peking University Health Science Center Joint Institute for Translational and Clinical Research [BMU20160466, BMU2018JI012, BMU2019JI005, BMU2020JI011], and Beijing advanced discipline construction project [BMU2019GJJXK001]. Declaration of Interests: Luxia Zhang reports grants from AstraZeneca, independent from the present study. The remaining authors have no competing financial interests to declare. Ethics Approval Statement: The present study has been approved by the ethics committee of Peking University First Hospital.

Knowledge and Perception of Chronic Kidney Disease in a Semi-urban Community in North-east Nigeria

Of the nine million individuals on dialysis worldwide, more than 90% are in developed countries with lower figures reported from lower to middle-income countries. This is mainly due to Unaffordability of this therapy by the great majority of people who are poor and living in rural areas. There is, therefore, the need for effective preventive measures to reduce the progression of patients to End-Stage Kidney Disease (ESKD). This can only be achieved by properly educating the people. This community-based cross-sectional study was conducted on World Kidney day 2018 at Bayara a semi-urban community near Bauchi metropolis. Interviewer-assisted questionnaires were administered to all individuals to assess the knowledge and perception of the participants. A total of 132 individuals completed the questionnaire out of which 81.8% were females. The mean age of the participants was 39.98±12.5 years and a range of 15-65 years. About 27.3% of the respondents didn’t know the correct number and position of the kidney. 65% didn’t know any risk factor for kidney disease while 4.5% and 1.5% could mention hypertension and diabetes mellitus.

Awareness of Chronic Kidney Disease among Patients Attending Tertiary Care Hospital in Bangladesh

Background: Patients with chronic kidney disease (CKD) are at increased risk of morbidity & mortality. Educational interventions aimed at empowering patients are successful in chronic disease management including CKD. Objective: To explore the awareness regarding CKD among patients attending in a tertiary care hospital in Bangladesh. Methodology: This was a descriptive observational study, which includes 100 adult patients attending the department of Medicine in Bangabandhu Sheikh Mujib Medical University (BSMMU), Dhaka, Bangladesh from January 2013 to June 2013. Data were collected on a pre-tested questionnaire by face-to-face interview to investigate awareness toward: 1) basic knowledge of personal health; 2) perceptions of factors increasing the risk of CKD; 3) knowledge of therapies to slow CKD progression; 4) perceptions of CKD increasing the risk of other medical conditions and 5) demographic information. Main outcome variables were demographic parameters, socio-economic status and awareness about chronic kidney disease. Data were analyzed and compared by statistical tests. Results: Almost one third (32.0%) respondents were in 3rd decade and male to female ratio was 1:1.5. Majority (43.0%) patients came from lower-middle income family. In all age groups, the majority (60%) respondents had low knowledge of CKD. Among the study population, 44.0% believe that smoking increases risk of CKD; 42.0% believe that restricting salt intake reduces the progression of CKD; 34.0% mention that CKD increases the risk for hypertension and 82.0% mention that renal transplantation is the treatment of choice in CKD. Among the participants, 32.8% had knowledge of increasing risk factor of CKD, 30.8% had knowledge of the method of slow progression of CKD, 30.3% had knowledge of conditions for increase risk of CKD and 41.7% respondent had knowledge of treatment of CKD. Conclusion: Most of the study participants had inadequate knowledge of CKD. Lack of CKD screening and educational programs have contributed to the inadequate patient knowledge about the condition.

A enfermagem e o ser no mundo em terapia hemodialítica: estudo fenomenológico

Aims: to comprehend the being-in-the-world while undergoing haemodialysis, aiming the offer of human care in its aesthetic dimension; to catalogue the perceptions of Chronic Kidney Disease (CKD) patients on the aesthetic dimension of their bodies regarding the care received while on haemodialysis; to suggest nursing care actions based on perceptions of the corporeity of the being-in-the-world during haemodialysis in an aesthetic dimension. Method: This is a phenomenological, descriptive-exploratory and qualitative study. Study setting: a haemodialysis clinic located in the state of Rio de Janeiro. Population of the study: 163 patients of the clinic. Patients who are over eighteen years old and undergoing haemodialysis, performed using the rope-ladder technique for at least two years, will be included in the study. A sample of 80 subjects is estimated, which is the corresponding number to the total of patients being submitted to the rope-ladder technique. They will be personally invited to take part of the research. Data will be collected through phenomenological interviews and analysed according to Amedeo Giorgio's method.

Identifying perceptions of chronic kidney disease in a hemodialysis population in Guatemala

Identifying perceptions of chronic kidney disease in a hemodialysis population in Guatemala

Patient's perceptions of chronic kidney disease and their association with psychosocial and clinical outcomes: a narrative review.

Patients with chronic kidney disease (CKD) form organized beliefs regarding their illness and treatment. These perceptions influence the coping strategies employed by an individual to manage his/her illness and may act as a predictor for his/her willingness to engage in self-management behaviours. While illness perceptions have been identified as predictors of non-adherence, depression and mortality in dialysis patients, there is a paucity of research in CKD patients not requiring renal replacement therapy. This narrative review synthesizes the existing literature regarding the role of illness perceptions and associated clinical and psychosocial outcomes in non-dialysis CKD patients. Studies were identified following database searches of AMED, BNI, CINAHL, EMBASE, Health Business Elite, HMIC, Medline, PsycINFO and Google Scholar in January 2016. Despite the small evidence base, existing studies indicate that negative illness perceptions are associated with disease progression and a number of psychosocial outcomes in non-dialysis CKD patients. Evidence from other clinical populations suggests that illness perceptions are modifiable through psychological intervention, which may be most effective if delivered early before beliefs have the chance to become more established. Therefore, targeting illness perceptions in the earlier stages of CKD may be optimal. Further studies are now required to ascertain the mechanisms through which illness perceptions predict psychosocial and clinical outcomes in CKD patients and to ultimately test the efficacy of illness perception–based interventions.

Awareness, knowledge and perception of chronic kidney disease in a rural community of South-West Nigeria.

Awareness and education on kidney disease impact on its effective management and will reduce the significant economic and public health burden. Knowledge of CKD and risk factors increases the perception of being at high risk and increasing health seeking behavior. We conducted a cross-sectional descriptive study to assess the level of awareness, knowledge and conventional risk factors of CKD in the community to strategize on preventive modalities using the information gathered from this population. We used a pretested structured questionnaire to draw information on sociodemography, knowledge and risk factors of CKD from 563 residents aged >18 years. A total of 454 residents completed this study, mainly farmers, with a mean age of 45.8 ± 19.0 years and male: female ratio of 0.8:1. Only 33.7% had heard of kidney disease with 59.3% from the media and 35.3% from health workers; the level of knowledge of CKD was good in 27.1%. The majority (67.0%) do not know the correct location of the kidneys. Only 10.6% could mention at least one function of the kidneys with only 24.5% agreeing that NSAIDs can cause kidney disease. A laboratory test for kidney function was known by 4.4%; 45.9% and 47.8% believe that CKD can be cured by spiritual means and herbal concoctions respectively. Only 11.1% agreed that CKD can be hereditary. Abdominal obesity and cigarette smoking were seen in 14.6% and 16.6% respectively. Hypertension was seen in 26.5% while 17.8% actually knew they were hypertensive. Diabetes mellitus was found in 3.4%. None of the patients with CKD who had diabetes or hypertension was aware of kidney disease. There are a misconception and low level of awareness and knowledge of CKD, including those with risk factors, in the community. Efforts should be made to create awareness and educate people on CKD and prevention of its risk factors.

Chronic Kidney Failure: Knowledge of Kidney Disease, Perception of Causes and Symptomatology in Uyo, Nigeria

Background: Chronic kidney disease (CKD) is now regarded as a global public health epidemic. Management of chronic kidney disease is often beyond the reach of some patients especially in resource-poor countries of sub-Saharan Africa where patients have to bear the funding. Many Nigerians do not know the functions of the kidney, the symptoms of kidney diseases and the causes of kidney failure. Aims: This study was designed to assess the awareness and knowledge of the kidney and kidney diseases among the people of Akwa Ibom State of Nigeria and their perception of the causes of kidney failure. Method: This was a cross-sectional survey of the Uyo residents in Akwa Ibom State for their knowledge, awareness and perception of CKD. A well structured but simple questionnaire was administered on all medically na?ve participants by trained personnel. Data were analyzed using STATA 10, StataCorp, Texas, USA. Categorical data were presented as frequencies and percentages. A p-value of <0.05 was considered statistically significant. Results: A total of 500 questionnaires were distributed, but 410 were returned. There were 214 (52.2%) females and 196 (47.8%) males with an age range of 18 to 60 years and a mean age of 25.97 ± 8.60 years. About ninety five percent (95.1%) of respondents had heard about CKD with their major source of knowledge being from doctors (29.4%) and media (28.9%). Only 43.3% of respondents knew the correct location of the kidneys. With regards to the knowledge and perception of the causes of kidney failure and body swelling, (11%) agreed that it was because of patient’s wrongdoing, Hypertension (38.9%), False oath taking (20.8%), Witchcraft (12.7%), Diabetes (46.9%), Parent’s wrongdoing (6.4%), Sickle cell disease (47.3%), Familial (19.8%), Herbal medicine (27.9%), Drug abuse (38.9%) and Fake drugs (42.1%). The well educated had better knowledge of hypertension and diabetes as the causes of kidney failure. In conclusion, knowledge of kidney disease is still poor among our populace and more education and public enlightenment is therefore needed.

Health care provider perception of chronic kidney disease: knowledge and behavior among African American patients.

BackgroundChronic Kidney disease (CKD) is prevalent in the population, but also disproportionately affects African Americans. Disparities in care of chronic kidney disease and transplant for African Americans have also been reported. The purpose of this study is to determine the knowledge and reactions of chronic kidney disease patients regarding their disease, as perceived by nephrologists and clinic nurses in South Carolina.MethodsUsing a qualitative approach, key informant interviews were conducted with nephrologists, and three focus groups were held with nurses who specialize in chronic kidney disease. The results were recorded, transcribed, and analyzed using Qualrus software and the Grounded Theory Method.ResultsDominant themes in the interviews and focus groups include: reaction to chronic kidney disease, differences in race, patient thoughts on dialysis, patient knowledge of types of treatment available, information availability, compliance to treatment, information source, and thoughts on kidney transplantation. The study found that the majority of clinicians agreed that there is typically a wide range of reactions in patients with chronic kidney disease.ConclusionsThe majority of chronic kidney disease patients remain in denial of their diagnosis and do not want to agree to the necessary treatment to improve their condition. In addition, the clinicians reported that the incidence of chronic kidney disease is highest in the African American population and this population of patients typically gets their information on the disease from peers, others they have known that have had renal failure. We find clinicians report that patients typically do not remain compliant to recommended treatment regimens due to lack of knowledge and feelings of denial and fear, and frequently use religiosity as a coping mechanism. Silent progression and complexity of chronic kidney disease frequently result in many patients lacking essential knowledge and developing poor coping mechanisms to seek appropriate follow-up care and prevent progression and optimize outcome. Health care providers are aware of the barriers but may lack the tools and resources to overcome them.