Peer Researchers Research Articles

Styrene-Butadiene-Styrene polymer modified bitumen: A review on compatibility and physico-chemical properties

Abstract The triblock elastomeric copolymer Styrene-Butadiene-Styrene (SBS) improves the engineering properties of bitumen and the performance parameters of flexible pavements. Although research investigations have been conducted worldwide, the literature lacks a comprehensive review to provide the up-to-date research status in this field. The current review summarizes the research findings on the compatibility, stability, physical properties, microscopic characterization, and chemical characterization of SBS modified bitumen. Quantitative analysis of physical test results concerning major pavement distresses shows improvement, particularly in high-temperature zones. The interlocked state of phase transition can be achieved at SBS content between 5-6% and the optimum SBS content has been reported to lie within this range. The blending temperature of SBS modified bitumen varies between 140℃-210℃ out of which 180℃ is the most frequently used by researchers. In addition, physical and chemical characteristics of aged binder have been reviewed. Aging indices (residual penetration ratio, change in softening point, viscosity aging ratio, residual ductility ratio) didn’t show any consistent trend, which establishes the need of exploring the co-additives to substantially improve the aging deterioration. Preliminary research on nano-additives showed the improved storage stability at high temperature and the performance of aged modified bitumen. This review has drawn essential conclusions and highlights existing research gaps for peer researchers and field engineers.

Cost-of-living: the impact on emotional support for young Londoners

Purpose The purpose of this study is to explore the ways in which the cost-of-living crisis affected emotional support access and availability among multiply-marginalised UK-based youth. Design/methodology/approach This study reports findings from early stages of a multiphase youth participatory action research (YPAR) project. In all, 12 young residents of Tower Hamlets London (ages 16–22 years) employed as peer researchers conducted 14 focus groups with 44 residents of Tower Hamlets over a six-month period. Data were analysed using principles of reflective thematic analysis. Findings Analyses produced salient themes that identified barriers to obtaining emotional support from parents and carers, described the utility of diverse support networks and elucidated the impact of the cost-of-living crisis on emotional support and youth well-being. Research limitations/implications This study has several limitations pertaining primarily to study design, sample size and sample composition that limit generalizability of findings. The findings indicate that the cost-of-living crisis markedly constrained the participants’ access to and availability of formal and informal support from others. Practical implications The findings from this research will influence the design and delivery of policy and services to better meet the needs and experiences of UK-based young people and their families. Social implications This project has the potential to increase understanding of how families can provide effective emotional support to young people and so improve the lives of Londoners now and in the future. Originality/value To the best of the authors’ study, this study is the first to use a YPAR approach to exploring the impact of the cost-of-living crisis on UK-based youth.

“They talk about it like it's an overdose crisis when in fact it's basically genocide”: The experiences of Indigenous peoples who use illicit drugs in Vancouver's Downtown Eastside neighbourhood

Indigenous Peoples who use illicit drugs (IPWUID) are disproportionately represented among toxic drug poisoning deaths in Canada. These drug-related harms are framed by the historical and ongoing trauma related to settler colonialism and are acutely visible in Vancouver, Canada's Downtown Eastside - a low-income neighbourhood that is an epicenter of the drug poisoning crisis and characterized by entrenched poverty, substance use, violence, and homelessness. This study was undertaken to examine the experiences and perspectives of IPWUID in the Downtown Eastside regarding the drug poisoning crisis and the responsiveness of harm reduction programs within the context of settler colonialism. Indigenous-led qualitative interviews were conducted with 16 IPWUID recruited by Indigenous peer researchers. Indigenous ways of knowing were embedded throughout the entire research design to ensure research was culturally congruent. Interview transcripts were analyzed thematically and interpreted by drawing on concepts of social violence and racial capitalism. Our analysis reviewed three key themes that centered the experiences of IPWUID in Vancouver's Downtown Eastside in relation to the drug poisoning crisis: (1) that the drug poisoning crisis is understood as a form of genocide toward Indigenous Peoples; (2) that the crisis is experienced within the context of pervasive distrust and adversarial relationships with police rooted in structurally racist experiences of place-based policing practices; and (3) that there is a desire for culturally-safe harm reduction care with Indigenous representation, cultural integration, and that addresses inequities and injustice stemming from colonialism and structural racism. Findings demonstrate how responses to the drug poisoning crisis among IPWUID need to respond to social and materials conditions perpetuated by colonialism and racial capitalism, while also centering IPWUID through the development and implementation of Indigenous-led and culturally safe harm reduction approaches.

Using artificial intelligence to address mental health inequalities: co-creating machine learning algorithms with key stakeholders and citizen engagement

Purpose Artificial intelligence (AI) is poised to reshape mental health practices, policies and research in the coming decade. Simultaneously, mental health inequalities persist globally, imposing considerable costs on individuals, communities and economies. This study aims to investigate the impact of AI technologies on future citizenship for individuals with mental health challenges (MHCs). Design/methodology/approach This research used a community-based participatory approach, engaging peer researchers to explore the perspectives of adults with MHCs from a peer-led mental health organisation. This study evaluated potential threats and opportunities presented by AI technologies for future citizenship through a co-created film, depicting a news broadcast set in 2042. Data were gathered via semi-structured interviews and focus groups and were analysed using a reflexive thematic approach. Findings The analysis identified four key themes: Who holds the power? The divide, What it means to be human, and Having a voice. The findings indicate that adults with living experiences of MHCs are eager to influence the development of AI technologies that affect their lives. Participants emphasised the importance of activism and co-production while expressing concerns about further marginalisation. Originality/value This study provides new insights into the intersection of AI, technology and citizenship, highlighting the critical need for inclusive practices in technological advancement. By incorporating the perspectives of individuals with living experiences, this study advocates for participatory approaches in shaping AI technologies in mental health. This includes the co-creation of machine learning algorithms and fostering citizen engagement to ensure that advancements are equitable and empowering for people with MHCs.

Using the Person-Based Approach to Co-Create and Optimize an App-Based Intervention to Support Better Sleep for Adolescents in the United Kingdom: Mixed Methods Study.

Poor sleep is a common problem in adolescents aged 14 to 18 years. Difficulties with sleep have been found to have a bidirectional link to mental health problems. This new research sought to involve young people in the co-creation of a new app, particularly those from underserved communities. The Sleep Solved app uses science-based advice to improve sleep-related behaviors and well-being. The app was developed using the person-based approach, underpinned by the social cognitive theory and the social-ecological model of sleep health. Young people (aged 14-18 y) were recruited from across the United Kingdom to contribute to patient and public involvement (PPI) activities. In partnership with our peer researcher (MHJ), we used a multitude of methods to engage with PPI contributors, including web-based workshops, surveys, think-aloud interviews, focus groups, and app beta testing. A total of 85 young people provided PPI feedback: 54 (64%) young women, 27 (32%) young men, 2 (2%) genderfluid people, 1 (1%) nonbinary person, and 1 (1%) who reported "prefer not to say." Their levels of deprivation ranged from among the 40% most deprived to the 20% least deprived areas. Most had self-identified sleep problems, ranging from 2 to 3 times per week to >4 times per week. Attitudes toward the app were positive, with praise for its usability and use of science-based yet accessible information. Think-aloud interviews and a focus group identified a range of elements that may influence the use of the app, including the need to pay attention to language choices and readability. User experiences in the form of narrated audio clips were used to normalize sleep problems and provide examples of how the app had helped these users. Young people were interested in using an app to better support their sleep and mental health. The app was co-created with strong links to theory- and evidence-based sleep hygiene behaviors. Future work to establish the effectiveness of the intervention, perhaps in a randomized controlled trial, would provide support for potential UK-wide rollout.

Locating Young Women in Public Space

Young women have largely been left out of public space design and planning processes. There is a need for meaningful knowledge production to be centred on, and grounded within, this group. In this viewpoint, we propose and evaluate our feminist spatial researcher-in-residence methodology for engaging young women in design and planning processes. We developed this model for a series of peer research projects on gender and perceptions of public space, with individuals who identify as girls and young women in the UK from April 2022 to October 2023. We first give an overview of our method which focuses on peer research – notably the researcher-in-residence model – and subsequently go on to discuss two central aspects: (un)learning and visual methods. We argue that such approaches contrast traditional methods of doing research with young people (e.g. surveying), by giving us ways of exploring the banality (eg. benches) and complexity (feelings of safety) of young women’s experiences of the public realm; and by allowing research participants to have greater agency in representing their own lifeworlds. It is our view that this methodology makes the case for why it is essential to value the tacit knowledge that young women and girls have in meaningful and attentive ways if we are to create an inclusive public realm.

Access to transition-related health care among transmasculine people in India: A mixed-methods investigation.

Little research has examined the health care experiences of transmasculine people in India, where government initiatives to improve access to transition-related (also called gender-affirmative) care have recently been announced. We draw on data from 'Our Health Matters', a mixed-methods community-based participatory research project, to characterize the transition-related care experiences of transmasculine people in India. Peer researchers conducted 40 virtual qualitative interviews in Hindi or Marathi from July to September 2021. Between November 2022 and January 2023, 377 transmasculine people participated in a multi-mode survey available in five languages. Qualitative data were analysed with a combination of framework analysis and grounded theory techniques. Data were mixed using a convergent parallel approach. Transmasculine persons' care journeys began with information-seeking, relying on peers and internet searches. In choosing between the public and private healthcare systems, they weighed issues of quality and affordability: the public system was perceived as lower-quality and difficult to access but most could not afford private care, leading to delays in care. Indeed, unmet need was common; 36.4% of survey participants were planning but had not begun to receive transition-related care and 80.2% wanted at least one transition-related surgery. Although some participants encountered stigma and refusal of care when seeking hormones, survey participants reported largely positive experiences with their hormone prescribers, which may reflect the influence of peer referrals. Participants underwent psychological assessments prior to transition-related care, which some experienced as disempowering and a barrier to disclosing mental health challenges. Finally, participants who were able to access care reported improved well-being, although surgical dissatisfaction was not uncommon (26.2%). Trans-inclusive medical training and continuing education are critical to enhancing access to high-quality transition-related care. Transmasculine people generally relied on peers and grassroots organizations for information, system navigation, and financial assistance. Strengthening these existing community resources may improve access to care.

Co-designed study with the Traveller Community in Ireland to determine cancer awareness & attitudes

Abstract Background Irish Travellers are a distinct ethnic minority group (formal recognition March 2017). They experience higher mortality than the general population at all ages for all causes of death. Study Aim To determine cancer awareness and attitudes among the Traveller Community in Ireland, and to identify barriers/enablers to cancer risk reduction behaviours and early diagnosis of cancer. Methods A co-designed multi-method study was developed in collaboration with Pavee Point, a national NGO for Travellers, the National Social Inclusion Office (NSIO) and the National Cancer Control Programme (NCCP) including: 1. Consultation with Pavee Point and NSIO representatives to inform the study proposal and methodology. 2. Co-design of methodology for ethics applications and subsequent data collection plan including interview topic guides and the development of a culturally appropriate version of the NCCP’s 2022 National Survey on Cancer Awareness, adding questions on social determinants of health and screening participation. 3. Collaboration with 12 peer-led Primary Health Care for Travellers Projects (PHCTPs), to provide in-person training for Traveller Community Health Workers to undertake a cross-sectional survey of 380 adult Travellers. 4. Collaboration with PHCTPs to undertake 20 semi-structured interviews with Travellers. 5. Conduct of semi-structured interviews with healthcare professionals to explore perceptions of barriers/enablers for Travellers engaging with the health system. Lessons Learned Working closely and collaboratively with our study partners, we gained valuable insights which enabled effective and efficient data collection across 8 counties, while exceeding our survey target sample size. Implications for Research: Collaborative, trusting, and respectful relationships are critical for all studies, but particularly when working with minority groups. Conclusions The study findings will inform policy for improved cancer outcomes among Travellers in Ireland. Key messages • Formation of a collaborative and respectful relationship with the Traveller community has facilitated successful research. • Traveller Community Health Workers (peer researchers) were key to the success of data collection.

Being made visible: Responding to complex needs created by child removal in the Family Court

ABSTRACT The transfer of residence (aka child removal) when domestic abuse is a factor appears to have increased as a practice to resolve challenging child arrangements in public and private law proceedings. Minimal data exists regarding the transfer of residence in public law and the number of private law orders made each year is less clear. Serious concerns about the safety of the family courts continue to be raised, including expert reports recommending the transfer of residency. Following, often harrowing, removals mothers report how they are left to manage complex needs while still being expected to ‘fight’ for their child’s return. In 2022, Project Lighthouse was founded in response to the growing population of mothers who have endured domestic abuse and child removal The charity is beginning to understand the impact and lifelong trauma caused by child removal and, often, is a mechanism of coercive control hidden in plain sight of the family court. Focusing mainly on doctoral and peer research, this paper discusses how mothers’ lived experiences suggest that child removal in private law proceedings is increasing. The paper concludes by calling for urgent research focusing on the impact of child removal, which will help increase much needed awareness.

A framework to guide the commissioning of healthcare services for people seeking asylum in England

Abstract The increasing number of people seeking asylum (PSA) in England, compounded by delays in processing their cases, has led to an urgent need for tailored practices to overcome barriers to healthcare access. While local examples of excellence in healthcare provision for PSA exist, a national framework to guide healthcare for these groups is lacking, leading to fragmentation and inconsistency in service provision. This collaborative research project with the British Red Cross took a co-production approach, involving three peer researchers with lived experience from the outset. From a literature review of case studies on improving access to healthcare for PSA, a preliminary framework of good practice was developed and explored with participants with lived experience of seeking asylum during three in-person workshops refined this. Finally, two focus groups with policymakers and healthcare professionals (HCPs) explored challenges in commissioning services, ensuring final framework relevance to the policy context. In total, 60 participants with lived experience attended three workshops and 19 policymakers and HCPs attended focus groups. Workshop participants emphasised the critical role of improving communication in healthcare settings and educating HCPs and PSA on entitlements and the NHS system. Policymakers highlighted the importance of robust leadership and a standardised national approach that can be adapted locally. Capacity constraints within the NHS and primary care system were highlighted as barriers to good quality care provision. Findings were collated into a practical framework, describing five pillars of good practice; 1)Working in partnership; 2) Upskilling the healthcare workforce; 3) Including lived experience voices; 4) Improving data on local needs; and 5) Strengthening pathways into healthcare. The framework provides guidance to enhance the accessibility, consistency and quality of healthcare services for PSA, addressing critical gaps in the current system. Key messages • A novel framework to guide commissioning and provision of healthcare for people seeking asylum has been developed, drawing from existing pockets of excellence to aid a consistent national approach. • The framework presents five pillars of systemic good practice, highlighting the importance of strategic partnerships, workforce training and data collection in providing good quality care.

Uptake of cervical screening and acceptability of HPV self-sampling in Irish Traveller women

Abstract Introduction Irish Travellers are a minority ethnic group. The 2010 All-Ireland Traveller Health Study noted the life expectancy of Traveller women was 11 years shorter than women in the general population. Coverage of the CervicalCheck, the Irish cervical screening programme, is 78.7% overall, however, there is no recently published data on the attendance of Traveller women. This study sought to determine participation by eligible Traveller women in CervicalCheck and the acceptability of HPV self-sampling. Methodology A face-to-face cross-sectional survey, adapted from the National Cancer Control Programme’s 2022 National Survey on Cancer Awareness, was disseminated to Irish Travellers via Primary Health Care Travellers Project peer researchers, following ethical approval, May to December 2023. Results 451 Travellers participated; 286 (63.4%) were female. Of these, 178 (62.2%) were in the eligible age group for cervical screening. 134 (75.3%) advised they had received an invitation to screening; 121 (68% of all eligible; 90% of all receiving an invitation) advised they had attended at least once (regular attenders 88 (49.4%); 27 (15.2%) irregular attenders). Of all responders in the screening eligible age group, 36 (20.2%) reported HPV self-sampling as acceptable; 18 (50%) of these were non or irregular attenders at screening. Similar proportions of 25-45 year-olds (20.4%) and 46-65 year-olds (20%) reported HPV self-sampling as acceptable. Conclusions Irish Traveller women face barriers to accessing mainstream health services. Uptake of cervical screening overall is lower compared to the general population in this study; one issue may be unreliable postal service to Travellers and non-receipt of invitations. While the overall acceptability of HPV self-sampling was low at 20.2%, half of those who would self-sample did not attend or attended irregularly. HPV self-sampling has the potential to improve cervical screening rates among Traveller women. Key messages • Irish Traveller women’s uptake of cervical screening is lower than general population. • HPV self sampling has potential to improve cervical screening rates in Travellers.

"Without IPS I Think I Would Really Fall Apart": Individual Placement and Support as Experienced by People With Mental Illness-Phenomenological Peer Research Study.

Having a job is an important component of recovery from mental illness and a source of economic, social, and health benefits. Most people experiencing severe mental illness (SMI) want to work but are excluded from employment opportunities. Employment specialists (ESs) working in individual placement and support (IPS) teams help persons struggling with SMI obtain competitive employment. This study is a qualitative phenomenological study of 10 IPS participants in the Norwegian context, serving to develop a deeper understanding of the IPS phenomenon as it is experienced in the everyday life of IPS participants. The study was designed as a peer research project including four members of a competence group with experience in IPS and SMI. The results, analyzed using the reflective lifeworld research approach, revealed four constituents: "Having a safety net along the way toward employment," "Feeling more like a person, not just a patient," "Brighter future," and "Going above and beyond employment support." IPS functions as an anchor in participants' journey toward employment. Strong and meaningful relationships with an ES seem crucial for IPS participants to gain the strength and confidence essential to engage in the job search. IPS participants experience various challenges in everyday life, resulting in ESs exceeding their vocational role to cover the unmet needs that health services seem unable to fully address. Closer coordination between vocational and health services, as well as a deeper focus on everyday life issues, will positively affect IPS participants' vocational outcomes and quality of life.

Enhancing benefits for peer researchers: towards a flexible and needs-based approach to participatory research

ABSTRACT The involvement of peer researchers has recently gained popularity in social research, and the incentives for using participatory methodologies are well recognised. However, as we argue, the sole presence of peer researchers does not equate to their immediate empowerment, and more attention should be given to the roles they play in the research and the ways in which they can tangibly benefit from such collaborations. We explore the seemingly mundane aspects of work such as recruitment, training, conducting research, dissemination and the afterlife of the project, to suggest that meaningful engagement of peer researchers demands a tailored approach that is receptive to their particular needs and motivations, and is supportive of their individual growth. Our critical reflection stems from a two-year-long collaboration with peer researchers in Poland undertaken as part of a Horizon 2020 project, which explored the lives of young migrants and refugees in Europe.

Using participatory and inclusive methodologies to explore inclusive education in Africa.

This paper presents researchers' experiences using participatory, inclusive research methodologies to explore aspects of inclusive education, with children with disabilities, parents, and teachers in Nigeria and Kenya. The objective is to describe working with children and adults with disabilities, as research collaborators, alongside local INGO staff and OPD partners. In Kenya we worked with 9 peer researchers with disabilities to run focus groups and interviews with children with disabilities, parents and teachers about inclusive pre-school education. In Nigeria we ran participatory workshops with children with disabilities, and their parents discussing what makes school and community settings inclusive, to inform the design of a Wellbeing and Inclusion checklist. The studies were based in pilot primary schools and Early Childhood Development and Education (ECDE or pre-school) classes in Nigeria and Kenya respectively. The data produced were recordings and notes from focus group discussions, interviews and activities and reflections from the peer researchers. Data analysis was an inclusive participatory process of thematic analysis carried out in person and online. These innovative approaches demonstrate that with careful planning and support, both adults and children with disabilities can be involved very directly in research processes not just as participants but as researchers. We argue that using participatory, disability-inclusive approaches helps to make the findings more nuanced and genuine and the data and outputs generated uniquely grounded in people's realities and perspectives. These methods can potentially inform the mainstreaming of a disability inclusion approach into international development debates and activities.

What Is the (Lack Of) Integration? An Intergroup Perspective Using the Photovoice Methodology

Photovoice is a participatory action research (PAR) method that employes photographic language to explore individuals’ stories and living contexts. This study explores the representations of young participants, both immigrants and non-immigrants, concerning integration—defined within Berry’s (1997) framework as a bidirectional process of cultural and social adaptation between migrants and host communities—and the lack of integration within their neighborhood in Reggio Emilia, Italy. The participants included 12 young individuals (6 migrants and 6 locals) aged 19 to 29, two peer researchers, and one researcher. Over the course of two weekly three-hour meetings, participants captured and discussed photos depicting their perspectives on integration. The findings highlighted diverse conceptualizations of integration. Participants emphasized the reciprocal relationship between migrants and locals, illustrating how positive interactions with schools, workplaces, and public spaces facilitate integration. Additionally, successful migrants were seen as models of empowerment. Conversely, themes such as poverty, loneliness, discrimination, and the impact of war emerged as significant barriers to integration. This study underscores the dynamic and interactive nature of integration, as experienced by young people in multicultural settings. It highlights how Photovoice methodology can effectively capture nuanced perspectives on integration, foster mutual understanding, and facilitate intergroup relationships. The method fosters personal and community reflection, actively engaging its audience in critical discussions about integration.

Creative writing as critical fieldwork methodology

This article examines creative writing (CW) as a place-based methodology for doing and analysing fieldwork. Drawing insights from CW scholarship and workshops as part of a collaborative project, we contribute new empirically-informed insights from peer researchers about the significance of leveraging emotional connections, detailed attention to lived experiences, and the researcher's experiences in executing and reporting fieldwork. While attending to tensions between ‘academic’ and ‘creative’ writing, we examine how adopting different and alternative writing approaches can express diverse complexities of the field research process. We contribute to an understanding of CW as a dialectical catalyst, serving as a mode for reflecting on the relationships between the researcher and the researched within the field as well as a mode for analysing and disseminating fieldwork findings. By doing so, our study presents opportunities and limitations of CW as a critical methodology for generating situated knowledges about the field and for reimagining fieldwork.

Round 'Ere: Developing a novel method to engage community on the design of wellbeing data hubs

The promise of community benefit from health data linked at scale is often missing the perspective of communities themselves. This paper outlines a recent project on developing a peer research and public engagement methodology to build community-designed linked and open wellbeing data hubs. Drawing on action research and appreciative inquiry, we aimed to develop a novel method to engage community on the use of linked local data. In Spring 2023 we recruited and trained 15 community researchers in Widnes, UK to co-design and run a project on what feeling well meant for their community. We trained our community researchers in listening skills, methods, and data concepts. Over Summer 2023, they interviewed over 200 of their fellow residents. We then ran three design workshops to analyse their findings and co-design a data and community insights hub with local policymakers and voluntary sector representatives. Through repeated, comparative semi-structured interviews we tracked the community researchers’ progress. We used thematic analysis to explore the benefits and challenges at each stage of the project: recruitment, training, and field work. Benefits ranged from the practical value of capacity building through the research training to the key role of confidence in how community researchers perceived their own success during the project. Challenges ranged from more esoteric concepts like managing expectations of impact to practical concerns around diversity and interview recruitment. Overall, the project evidenced the value of peer research methodologies in involving public in data science both for the participants but also to wider community.

Abstract IA013: Increasing Diversity in Pediatric Cancer Clinical Trials: Challenges and Opportunities

Abstract Although childhood cancer is the leading cause of death by disease past infancy in the US, with 17,000 children younger than 21 years being diagnosed annually, survival has improved dramatically, and is now greater than 80% overall. Because of unequal access to services and adverse Social Determinants of Health (SDOH) affecting underserved populations, disparities in survival exist among minoritized youth with cancer. For example, Hispanic children have higher incidence of certain cancers and poorer survival rates than non-Hispanic White children. Minorities are severely under-represented in research. This means that cancer outcomes data are largely based on data from non-Hispanic White participants, and there is incomplete information to adequately assess treatment benefits for minorities. We showed that 53% of Latino parents declined research participation, compared to 20% of non-Hispanic White parents, in our institution. There are several barriers to informed consent for clinical trials. First, there are no mandates to ensure comprehension, and informed consent forms are complex, long, and difficult to understand. This leaves parents of children with cancer with an incomplete understanding of risks, procedures, randomization, alternative treatments, and the voluntary nature of clinical trial participation. Furthermore, pediatric cancer often requires urgent treatment, leaving little time for decision-making. We developed COMPRENDO (ChildhOod Malignancy Peer REsearch NavigatiOn), a peer-navigation intervention to improve research literacy and diversity in pediatric cancer clinical trials. In this intervention, trained peer-navigators, who have the lived experience of having a child diagnosed with cancer, provide in-hospital support. The goals of COMPRENDO are to improve parents’ informed consent experience and comprehension of informed consent for cancer treatment, to explain to parents terms to be discussed by the oncologist during the treatment conference, to introduce to parents concepts of clinical trials and research, and to facilitate and empower shared decision-making. In a pilot study at Rady Children’s Hospital-San Diego, this intervention showed a significant increase in comprehension of therapeutic trials, particularly in Hispanic and Spanish-speaking parents. The demographics of children with cancer enrolled in clinical trials should be comparable to the US population, and approaches to improve enrollment must also be tailored to specific settings. Structural barriers for participation of minorities should be considered during study and informed consent design and planning. Strategies to increase clinical trial enrollment of minority individuals include: Provider-level training on patient-provider communication, development of linguistically appropriate tools, and promotion of culturally aware staff. Key strategies at the patient-level include building trust; education and awareness of clinical trials; implementation of culture, language, and health literacy-concordant interventions; and initiatives to address adverse SDOH. Citation Format: Paula Aristizabal. Increasing Diversity in Pediatric Cancer Clinical Trials: Challenges and Opportunities [abstract]. In: Proceedings of the AACR Special Conference in Cancer Research: Advances in Pediatric Cancer Research; 2024 Sep 5-8; Toronto, Ontario, Canada. Philadelphia (PA): AACR; Cancer Res 2024;84(17 Suppl):Abstract nr IA013.

Peering Deeper: Student Perspectives on School Well-being and Youth Engagement

We examined students’ perspectives on well-being and youth engagement in schools using a Youth Participatory Action Research approach. Students (N = 11) trained as peer researchers and then interviewed their peers. Interviews (N = 21) were analyzed using reflexive thematic analysis and six themes were developed: desire for versus reality of a healthy school, insufficient school strategies to promote well-being and mitigate harm, listening to and actioning students’ ideas, diverse opportunities for student engagement, pre-conceived ideas of student capability, and importance of a support role. Through this project, we peered deeper into students’ viewpoints about well-being and youth engagement in their schools.

‘It Will Start With Me’: A Documentary Film Exploring the Benefits and Challenges of Participatory Research

‘It will start with me’ documents the experiences of six peer researchers (Virginie Clayton, Gislaine Mbayi, Lydia Gitamvu, Syeda Sadaf, Lill Casas Tortoledo, Weam Al Zaidi), one professional researcher (Lisa Garnham), and one post-graduate research student (Lily Owens-Crossman), who came together to design, develop, and deliver an evaluation of a community project (Our Rights, Our Communities) in Glasgow, Scotland in 2022. The ambitions and priorities of the peer researchers drove both the evaluation and the film, which was facilitated by film-maker Bircan Birol. The film was created to describe the power of research through co-production, to both professional and community-based researchers, and demonstrates the importance of ‘holding space’ for marginalised voices in sociological research.