Adult Partner Research Articles

Neighbourhood-based participatory action research with older adults: Facilitating participation through virtual and remote methods

Participatory action research (PAR) is an effective means of collaborating with older adults to support community change. Limited PAR literature exists in which older adults catalyse social change within neighbourhoods, particularly using virtual methods. In this paper, we discuss a virtual PAR process with older adults that occurred during the COVID-19 pandemic, and the results of inquiry into our application of PAR principles. We conducted PAR in a collective involving university researchers, older adult residents and community partners in an urban core neighbourhood in a mid-sized Canadian city and focused on enhancing daily life for older adults. The PAR project emerged through reflection on previous ethnographic findings regarding older adults’ daily life in neighbourhoods. Our PAR collective collaboratively identified a need among older adults for more accessible information about community resources. To support older adults’ participation and access to community information, the PAR collective created and distributed a free neighbourhood resource booklet, in print and digital formats, to promote equitable access. We evaluated the impact of the booklet through a survey and discussions with community partners. During our PAR process we found challenges and solutions related to using technology, engaging in discussion during virtual meetings, and making collaborative decisions. A combination of in-person, remote and online interactions seemed to facilitate relationship development amongst co-researchers and completion of the project. Future PAR projects would benefit from incorporating in-person, remote and online methods from the outset, as well as ways to support older adults in using and accessing technology. We further noted the value of a local resource booklet, in print and digital formats, in promoting neighbourhood information sharing.

Feasibility and acceptability of a telehealth, individually-tailored healthy lifestyle intervention for adolescent and young adult pediatric cancer survivors.

Poor nutrition and physical activity pose negative health risks for adolescent and young adult pediatric cancer survivors (AYACS). Our pilot randomized controlled trial (RCT) evaluated feasibility and acceptability of a telehealth intervention (ENHANCE) supporting AYACS' nutrition and physical activity. We randomized 58 AYACS and their adult care partner, when applicable, to the ENHANCE or control condition. Inclusion required an age of 15-25 years, previous chemotherapy or radiation therapy, and no eating disorder history. We utilized a 2:1 (ENHANCE [n = 35]: control [n = 23]) double-blind block randomization protocol in blocks of 6. ENHANCE comprised 12 (60-min) sessions that included education, skill-building, and values-based healthy lifestyle decision-making. The first five sessions included motivational interviewing and the final seven sessions included problem-solving training/goal setting. We evaluated feasibility based on eligibility, enrollment, attrition, and study completion percentages. We assessed fidelity using the Session Content-Fidelity Rating Tool and the Motivational Interviewing Treatment Integrity Coding form. We assessed acceptability using the Abbreviated Acceptability Rating Profile, the Revised Helping Alliance Questionnaire, and participants' exit interviews. ENHANCE was feasible and highly acceptable; all but one participant who started the intervention completed all 12 sessions and all participants reported enjoying the intervention via objective assessment and during exit interviews. Interventionists delivered ENHANCE with high fidelity. ENHANCE was highly acceptable among AYACS and care partners. The telehealth study design was feasible, suggesting benefits and feasibility of a future, larger, multisite RCT. Promising findings support our methodological decisions as important considerations to inform a larger RCT.

Childhood histories of family violence and adult intimate partner violence use among U.S. military veterans.

Childhood histories of family violence and adult intimate partner violence use among U.S. military veterans.

Patterns of Technology-Based Abuse Among Adult Intimate Partner Violence Survivors and Associations with Offline Abuse.

Research about technology-based abuse (TBA) has primarily relied on youth-focused survey research, leading to gaps in knowledge about the experiences of TBA among adult populations. However, studies among adult intimate partner violence (IPV) survivors suggest that TBA is a pervasive problem warranting attention. This study builds on the limited existing literature about adult experiences of TBA by examining patterns of TBA among adult abuse survivors (n = 377). Latent class analysis showed three distinct patterns of TBA: technology-based emotional abuse, technology-based monitoring, and technology-based control. Multinomial regression analyses demonstrated that TBA co-occurs with offline IPV. Findings reinforce the significant role of TBA in adult IPV survivors' lives and highlight the importance of assessing for TBA among survivors.

Adoption of Artificial Intelligence-Enabled Robots in Long-Term Care Homes by Health Care Providers: Scoping Review.

Long-term care (LTC) homes face the challenges of increasing care needs of residents and a shortage of health care providers. Literature suggests that artificial intelligence (AI)-enabled robots may solve such challenges and support person-centered care. There is a dearth of literature exploring the perspectives of health care providers, which are crucial to implementing AI-enabled robots. This scoping review aims to explore this scant body of literature to answer two questions: (1) what barriers do health care providers perceive in adopting AI-enabled robots in LTC homes? (2) What strategies can be taken to overcome these barriers to the adoption of AI-enabled robots in LTC homes? We are a team consisting of 3 researchers, 2 health care providers, 2 research trainees, and 1 older adult partner with diverse disciplines in nursing, social work, engineering, and medicine. Referring to the Joanna Briggs Institute methodology, our team searched databases (CINAHL, MEDLINE, PsycINFO, Web of Science, ProQuest, and Google Scholar) for peer-reviewed and gray literature, screened the literature, and extracted the data. We analyzed the data as a team. We compared our findings with the Person-Centered Practice Framework and Consolidated Framework for Implementation Research to further our understanding of the findings. This review includes 33 articles that met the inclusion criteria. We identified three barriers to AI-enabled robot adoption: (1) perceived technical complexity and limitation; (2) negative impact, doubted usefulness, and ethical concerns; and (3) resource limitations. Strategies to mitigate these barriers were also explored: (1) accommodate the various needs of residents and health care providers, (2) increase the understanding of the benefits of using robots, (3) review and overcome the safety issues, and (4) boost interest in the use of robots and provide training. Previous literature suggested using AI-enabled robots to resolve the challenges of increasing care needs and staff shortages in LTC. Yet, our findings show that health care providers might not use robots because of different considerations. The implication is that the voices of health care providers need to be included in using robots. RR2-doi:10.1136/bmjopen-2023-075278.

Social reward predicts false belief understanding in Namibian Hai||om children

AbstractSocial motivation is theorized to promote Theory of Mind development in childhood, but research testing this link is scarce and largely limited to urban middle‐class milieus of the Global North. Here, we investigated the link between social motivation (i.e., social reward responsivity) and Theory of Mind (i.e., false belief understanding) among N = 59 Hai||om children (AgeRange = 2.3–8.0 years) from rural Namibia, an indigenous community where children's social experience with peers and adults differs much from urban middle‐class milieus typically sampled in developmental science research. Children's preference for adult, but not peer faces predicted their false belief performance. Moreover, their false belief performance increased with age, showing mastery of the current false belief task by the preschool years. These results accommodate universalist claims on the link between social motivation and Theory of Mind while suggesting a particular contribution of the social reward responsivity to adult social partners.

NAO robot promoting sensorimotor synchronization in high-functioning autism spectrum disorder children

Objectives Sensorimotor synchronization (SMS) refers to an individual’s motor rhythm is temporally coordinated with a predictable external rhythm. Autism spectrum disorder (ASD) children have weakened SMS performance than typically developing (TD) children, which may affect their relationship with peers and caregivers, and social cognition abilities. Synchronization referent (e.g. an adult or a non-social beat) and the length of inter-stimulus interval (ISI) would influence SMS performance. Methods In this study, we adapted a tapping task to investigate the SMS ability in twenty-one 5–8-year-old high-functioning ASD and twenty-one age-, gender- and IQ-matched TD children. Children were asked to tap on a computer keyboard with videos of a woman or a robot tapping with one finger. We compared the synchronization performance of the two groups when they synchronized with different partners (an adult or an NAO robot) and under different ISIs (800 ms or 1500 ms). The relationships with participants’ autistic traits (Social Responsiveness Scale (SRS-2) and Autism Spectrum Quotient), and cognitive ability (IQ) were also examined. Results We found that ASD children had an overall attenuated synchronizing accuracy and stability than TD children only when ISI was longer than one second. Both groups performed better when synchronized with the NAO robot than the adult partner. The synchronization performance was correlated with the cognitive ability of ASD children when ISI was 1500 ms. Conclusions Results show that tapping with the robot could improve the SMS performance of ASD children since it promoted a higher motivation level. ASD children have an attenuated SMS ability, which may be caused by abnormal temporal perceptions when ISI is longer than one second, while their SMS ability may be intact in sub-second ISIs.

Shared Access to Adults' Patient Portals: A Secret Shopper Exercise.

Millions of Americans manage their health care with the help of a trusted individual. Shared access to a patient's online patient portal is one tool that can assist their care partner(s) in gaining access to the patient's health information and allow for easy exchange with the patient's care team. Shared access provides care partners with a validated and secure method for accessing the patient's portal account using their own login credentials. Shared access provides extra privacy protection and control to the patient, who designates which individuals can view their record. It also reduces confusion for the care team when interacting with the care partner via the portal. Shared access is underutilized among adult patients' care partners. Investigate the process of granting or receiving shared access at multiple health care organizations in the United States to learn about barriers and facilitators experienced by patients and care partners. The Shared Access Learning Collaborative undertook a "Secret Shopper" exercise. Participants attempted to give or gain shared access to another adult's portal account. After each attempt they completed a 14-question survey with a mix of open- and closed-ended questions. Eighteen participants attempted to grant or receive shared access a total of 24 times. Fifteen attempts were successful. Barriers to success included requiring paper forms with signatures, lack of knowledgeable staff, lack of access to technical support, and difficult-to-navigate technology. Facilitators included easy-to-navigate online processes and accessible technical help. Participants who were successful in gaining shared access reported feeling more informed and able to engage in shared decision-making. The outcomes of our secret shopper exercise underscore the importance of collaboration aimed at learning from diverse encounters and disseminating the best practices. This is essential to address technical, informational, and organizational obstacles that may impede the widespread and accessible adoption of shared access.

Public Engagement in Health Policy-Making for Older Adults: A Systematic Search and Scoping Review.

As the world's population ages, there has been increasing attention to developing health policies to support older adults. Engaging older adults in policy-making is one way to ensure that policy decisions align with their needs and priorities. However, ageist stereotypes often underestimate older adults' ability to participate in such initiatives. This scoping review aims to describe the characteristics and impacts of public engagement initiatives designed to help inform health policy-making for older adults. A systematic search of peer-reviewed and grey literature (English only) describing public engagement initiatives in health policy-making for older adults was conducted using six electronic databases, Google and the Participedia website. No geographical, methodological or time restrictions were applied to the search. Eligibility criteria were purposefully broad to capture a wide array of relevant engagement initiatives. The outcomes of interest included participants, engagement methods and reported impacts. This review included 38 papers. The majority of public engagement initiatives were funded or initiated by governments or government agencies as a formal activity to address policy issues, compared to initiatives without a clear link to a specific policy-making process (e.g., research projects). While most initiatives engaged older adults as target participants, there was limited reporting on efforts to achieve participant diversity. Consultation-type engagement activities were most prevalent, compared to deliberative and collaborative approaches. Impacts of public engagement were frequently reported without formal evaluations. Notably, a few articles reported negative impacts of such initiatives. This review describes how public engagement practices have been conducted to help inform health policy-making for older adults and the documented impacts. The findings can assist policymakers, government staff, researchers and seniors' advocates in supporting the design and execution of public engagement initiatives in this policy sector. Older adult partners from the McMaster University Collaborative for Health and Aging provided strategic advice throughout the key phases of this review, including developing a review protocol, data charting and synthesis and interpreting and presenting the review findings. This collaborative partnership was an essential aspect of this review, enhancing its relevance and meaningfulness for older adults.

Pubertal stress in male rats: Effects on juvenile play behavior and adult sexual partner preference

Puberty is a period of brain organization impacting the expression of social and sexual behaviors. Here, we assessed the effects of an acute pubertal stressor (immune challenge) on the expression of juvenile play (short-term) and sexual partner preference (long-term) in male rats. Juvenile play was assessed over ten trials at postnatal days (PND) (31–40) with age- and sex-matched conspecifics, and at PND35 males received a single injection of lipopolysaccharide (LPS, 1.5 mg/kg i.p.) or saline. Then, sexual partner preference was assessed at PND 60, 64, and 68, in a three-compartment chamber with a sexually receptive female and a male as potential partners simultaneously. The results confirmed that a single injection of LPS during puberty induced sickness signs indicative of an immune challenge. However, juvenile play was not affected by LPS treatment during the following days (PND36–40), nor was sexual behavior and partner preference for females in adulthood. These findings highlight that, while other studies have shown that LPS-induced immunological stress during puberty affects behavior and neuroendocrine responses, it does not affect juvenile play and sexual behavior in male rats. This suggests a remarkable resilience of these behavioral systems for adaptation to stressful experiences mediated by immune challenges during critical periods of development. These behaviors, however, might be affected by other types of stress.

A Scoping Review of Stigma Related to Prostate Cancer in Black Men.

Prostate cancer (CaP) disproportionately affects 1-in-4 Black men and is a stigmatised disease within their communities. Yet, Black men are underrepresented in CaP research concerning stigma, which necessitates a scoping review to map available evidence on this topic to inform future research. To map published literature on stigma related to CaP in Black men to understand their experiences and/or perceptions and identify directions for future research. A scoping review was conducted using the five-step framework by Arksey and O'Malley. Studies published in English addressing stigma related to CaP from the perspectives of Black men and/or their families were included. We searched six databases including Medline, Embase, PsycInfo, CINAHL, Web of Science Core Collection and Google Scholar, from inception to April 2023. Citation searches were also conducted. Two independent reviewers conducted screening and data extraction. Data was synthesised using descriptive content analysis. Thirty-four eligible studies conducted in the USA, UK, Trinidad and Tobago, South Africa, Cameroon and Canada from 1995 to 2023 were included. A total of 1867 Black men with/without a CaP diagnosis and 145 adult partners were included. Review findings showed a complex intersection of self-stigma, public stigma and structural stigma impacted Black men's perceptions of their masculinity. While men's experiences/perceptions of stigma varied depending on their illness status, there were commonalities in their masculinity concerns (underpinned by stigma), which influenced their attitude towards digital rectal examination, post-treatment side effects and social interactions on CaP. These have implications for public health messaging on CaP within Black communities, as well as patient-provider interactions with the men. This novel review highlights the need to pay attention to how CaP is presented to Black men and their communities using avenues and languages that are culturally acceptable and empower them to negotiate self-stigma, public stigma and structural stigma related to CaP. Directions for further research were also identified.

Understanding benefits of a college student-homebound adult partnership program to support aging in place: An exploratory study

The need for effective approaches to support aging and homebound adults is recognized internationally and domestically. This exploratory study sought to understand the proximal benefits of an intergenerational program in Delaware, USA that connected homebound individuals with college students. The primary goal was to describe program impacts on home-bound community residents to inform future research, program planning, and implementation. Outcomes of interest included quality of life, well-being, and independence. Semi-structured interviews were conducted with 19 participants recruited from a nonprofit partner. Findings yielded seven unique themes: emotional fulfillment, special feelings of support from a rare “unconditional” relationship, assistance with tasks, close connection with someone not ordinarily met, intergenerational understanding, someone to talk to, and appreciation. Additionally, the research team applied the RE-AIM (Reach, Effectiveness, Adoption, Implementation, Maintenance) framework, to contextualize the approach and findings. Results inform future evaluation efforts of homebound visiting programs, which may seek to incorporate outcome indicators aligned with these themes and serve as a foundation for future quantitative measures of impact.

Affective Touch in Adult Relationships in the Light of Psychological Research. Excerpts

Touch is one of our love languages. In addition to the fact that we use touch to express love, I explore its role and significance in our lives. In the present work, drawing on the growing literature, I focus on affective touch, including received touch, in the context of adult romantic relationships. After defining affective touch, I discuss its beneficial effects. Based on research results, I show that affective touch in the context of relationships is related to physical, mental, and relational health and well-being. But not always and not for everyone. Thus, I cover some of the factors affecting touch behaviour and attitude. I discuss separately the phenomenon where, still within the couple relationship and remaining in the field of affective touch, the touch itself becomes a source of stress. We have all experienced the effects of measures taken to control the epidemic, such as social distancing and avoidance of touch. In this context, I present some of the results of our research on COVID. All of these are excerpts. I hope they will inspire others to further research. Keywords: affective touch, adult partnership, well-being

Youth–adult partnerships for youth activism: a critique of the utility of empowerment theory

This article examines empowerment theory (ET) for its applicability to adult work with youth activists. It argues that despite ET’s prominence within both youth activism and social work broadly, the theory lacks a universally accepted conceptual grounding. As such, adults working to support youth activists have interpreted ET’s tenets in significantly divergent ways, with implications for their work and its ultimate viability. By exploring the difficulties in delineating the substance of ET as a practical theory and outlining some of the common tenets of the theory, we make the case for adults working in partnership with youth activists to be more explicit about the ways in which they are drawing upon ET in their work.

Symptoms of burnout in Whanau (Family) in an Older Adult Physical Rehabilitation Ward in New Zealand - differences between adult children's and partners' experience

Symptoms of burnout in Whanau (Family) in an Older Adult Physical Rehabilitation Ward in New Zealand - differences between adult children's and partners' experience

Behavioral pathways from sibling relationships in adolescence to romantic partnerships in adulthood.

Sibling relationships in adolescence provide rich and relevant socializing opportunities for developing early adult romantic relationships, but much less is known regarding the effect of siblings on future romantic partnerships. Using a prospective, longitudinal design, we investigated the association between observed positive behaviors (warmth, support, positive communication), sibling pairs during adolescence (7th, 8th, 9th, and 10th grades), and the same observed behaviors between adult romantic partners nearly two decades later (M age = 31 years old). In structural equation models (SEMs), we tested four dyadic pathways of interest: (1) individual behavioral continuity; (2) evocative partner effects; (3) sibling modeling; and (4) sibling-to-partner matching. In multiple group analyses, we also investigated gendered socialization effects for different sibling dyads (i.e., brother-brother; sister-sister; and mixed-sex sibling pairs). Results showed strong continuity from adolescent behavior toward their sibling to the same behavior toward their romantic partner in early adulthood, but there was no evidence for sibling modeling effects nor for sibling matching. We also found significant differences between sister-sister sibling dyads compared to brother-brother and mixed-sex sibling dyads for the evocative pathway. Findings highlight the "long view" of positive adolescent behavior in sibling relationships for shaping future romantic partnerships in adulthood.

Drug use and condomless sex among sexual minority men in relationships: Whether relationship quality is a risk or protective factor depends upon what they believe their partners do

Sexual minority male (SMM) couples tend toward behavioral similarity around cannabis use, illicit drug use, and sex with casual partners. Similarity in these behaviors may contextualize associations with relationship quality. This study tested the hypotheses that perceptions of partner (cannabis and illicit) drug use and sexual behavior would predict personal drug use and sexual behavior as well as moderate the association between relationship quality and these health outcomes. Recruitment via social networking applications yielded a sample of 5511 cisgender SMM aged 18–85 (M = 38.21, SD = 12.16) who were in a relationship with an adult cisgender male main partner. Respondents completed an online survey assessing their own cannabis use, illicit drug use, and condomless anal sex (CAS) with casual partners during the past 30 days as well as their belief about their partner's engagement in these behaviors. Three subscales of the Perceived Relationship Quality Components (PRQC) scale assessed relationship quality. Across the observed range of PRQC scores participants who reported their partner used cannabis, used other illicit drugs, and had recent CAS with a casual partner were more likely to report engaging in these activities themselves. Among participants who indicated their partner did not engage in these activities, relationship quality was negatively associated with personal cannabis use (OR = 0.985, p < 0.001), illicit drug use (OR = 0.973, p < 0.001), and CAS with casual partners (OR = 0.979, p < 0.001); meanwhile, among those who reported their partner engaged in these behaviors – relationship quality was positively associated with the odds of these behaviors (OR = 1.018, p < 0.001; OR = 1.015, p < 0.001; OR = 1.019, p = 0.015 for cannabis, illicit drug use and CAS with casual partners respectively). These findings suggest that perceptions of a partner's behavior contextualize associations between relationship quality and personal behavioral risk. Results emphasize the importance of integrating components that support relationship quality into behavioral health interventions for SMM couples and SMM in relationships.

Perception of unfamiliar caregivers during sickness – Using the new Caregiver Perception Task (CgPT) during experimental endotoxemia

Social withdrawal is a well-established part of sickness behavior, but in some contexts sick animals might gain from keeping close instead of keeping away. For instance, sick individuals are more willing to be near known individuals who can provide care and safety (close others) compared to when healthy. Yet, interactions with some strangers might also be beneficial (i.e., healthcare professionals), but it is not known how sickness interplay with social behavior towards such individuals. Here, we assessed if sickness affects perception of caregivers, and developed a new task, the Caregiver Perception Task (CgPT). Twenty-six participants performed the CgPT, once after an injection of lipopolysaccharide (LPS, 0.8 ng/kg body weight, n = 24), and once after an injection of saline (n = 25), one hour and forty-five minutes post-injection. During the task, participants watched short video clips of three types of caregivers: a healthcare professional taking care of a sick individual, a healthcare professional not taking care of a sick individual, and a non-healthcare professional taking care of their sick adult child or partner. After each video clip, the likability, trustworthiness, professionalism, and willingness to interact with and receive care from the caregiver were rated on visual analogue scales. Results showed that participants injected with saline rated healthcare professionals who did not take care of a sick individual less positively on all aspects compared to healthcare professionals who took care of a sick individual. Moreover, compared to saline, LPS increased the participants’ willingness to receive care from healthcare professionals and non-healthcare professionals providing care, but not from healthcare professionals not providing care. Thus, our results indicate that sick individuals may approach unknown individuals with potential to provide care and support.

Psychometric evaluation of the Chinese version of the service user psychological empowerment scale in a sample of youth service users

ABSTRACT This study aimed to evaluate the psychometric properties of the translated Chinese version of the Service User Psychological Empowerment Scale (C-SUPES) in a youth service setting in Hong Kong. Data were collected from a cross-sectional survey of 381 youth residing in Hong Kong and participating in services provided by community-based children and youth services centres. The results of confirmatory factor analysis indicate a good fit for the proposed threefold factor structure with the original Positive Attitude and Involved Attitude subscales combined. The scale’s criterion validity was supported by significant correlations between creative self-efficacy, youth – adult partnerships, and civic engagement in the community, and its internal consistency reliability was satisfactory. Overall, youth service users with a higher level of participation in youth services reported a higher level of psychological empowerment. Altogether, the results suggest that C-SUPES is a reliable, valid instrument for measuring psychological empowerment among youth service users in Hong Kong.

Child Abuse Exposure, Internalizing and Externalizing Trauma Sequelae, and Partner Violence Perpetration Among Young Adult Men

ABSTRACT Partner violence is a major public health concern. Theory and research connect exposure to abuse in childhood to partner violence in adulthood. The present study examined internalizing and externalizing trauma sequelae as mediators in the association between child abuse exposure and adult partner violence perpetration. Young U.S. adult men (N = 423) completed background measures assessing exposure to psychological, physical, and sexual child abuse, internalizing (symptoms of anxiety and depression) and externalizing (problems with anger and alcohol use) sequelae, psychological and physical partner violence perpetration, and follow‐up assessments regarding sexual violence perpetration over the course of 3 months. Negative binomial regression showed that problems with anger mediated the associations between child psychological abuse exposure and adult psychological violence perpetration and between child physical abuse exposure and adult psychological violence perpetration. Problems from alcohol use mediated the associations between child psychological abuse exposure and adult psychological, physical, and sexual violence perpetration. Although child abuse exposure was associated with internalizing sequelae, none of the indirect effects from child abuse exposure to adult violence perpetration via internalizing sequelae were statistically significant. These findings add to the extant literature supporting an intergenerational transmission of violence and underscore that men who experience trauma early in life may attempt to cope with such experiences via maladaptive acting out behaviors. Partner violence interventions may benefit from incorporating strategies that address trauma and provide healthy alternatives for coping with distress.