Participation Of Multidisciplinary Team Research Articles

Is telehealth useful in the management of placenta accreta spectrum in low-resource settings? Results of an exploratory survey.

The optimal management of placenta accreta spectrum (PAS) requires the participation of multidisciplinary teams that are often not locally available in low-resource settings. Telehealth has been increasingly used to manage complex obstetric conditions. Few studies have explored the use of telehealth for PAS management, and we aimed evaluate the usage of telehealth in the management of PAS patients in low-resource settings. Between March and April 2023, an observational, survey-based study was conducted, and obstetricians-gynecologists with expertise in PAS management in low- and middle-income countries were contacted to share their opinion on the potential use of telehealth for the diagnosis and management of patients at high-risk of PAS at birth. Participants were identified based on their authorship of at least one published clinical study on PAS in the last 5 years and contacted by email. This is a secondary analysis of the results of that survey. From 158 authors contacted we obtained 65 responses from participants in 27 middle-income countries. A third of the participants reported the use of telehealth during the management obstetric emergencies (38.5%, n = 25) and PAS (36.9%, n = 24). Over 70% of those surveyed indicated that they had used "informal" telemedicine (phone call, email, or text message) during PAS management. Fifty-nine participants (90.8%) reported that recommendations given remotely by expert colleagues were useful for management of patients with PAS in their setting. Telehealth has been successfully used for the management of PAS in middle-income countries, and our survey indicates that it could support the development of specialist care in other low resource settings.

Clinical and surgical effectiveness of the multi-disciplinary standardized management model in the treatment of retroperitoneal liposarcoma: Evidence-based clinical practice experience from Fudan Zhongshan

BackgroundTo assess the correlation between clinical outcomes and diagnostic accuracy of evaluations carried out by a preoperative multidisciplinary team versus standard surgical care for patients with retroperitoneal liposarcoma undergoing surgery. MethodsThis comparative study was conducted retrospectively at a specialist assessment center within Zhongshan Hospital, Fudan University, China, between April 2011 and March 2021. Patients were assigned to a multidisciplinary team or nonmultidisciplinary team cohort based on referral to the multidisciplinary team. The primary outcome measured was long-term clinical prognosis, with other outcomes including diagnostic accuracy, 30-day reoperation, duration of stay, perioperative mortality, and medical complications. To mitigate selection bias, we conducted propensity-score matching. Uni- and multivariable Cox proportional hazard models were then used to evaluate the effect of multidisciplinary teams on postoperative survival. The previously specified questionnaire was used to measure the enhancement of awareness and treatment adherence facilitated by multidisciplinary team management. Data analysis was carried out between January 2023 and August 2023. ResultsOf the 521 records that were screened, 139 patients were deemed eligible for inclusion and defined as the multidisciplinary team cohort. At the same time, 382 patients without multidisciplinary team management were also included during that period and defined as the nonmultidisciplinary team cohort. The multidisciplinary team cohort exhibited lower numbers of primary retroperitoneal liposarcoma but a higher tumor grade and a greater proportion of R2 resection. After propensity-score matching, the 1-, 3-, and 5-year overall survival rates were 89.5%, 70.5%, and 62.9%, respectively, in the multidisciplinary team cohort, and 77.1%, 49.8%, and 45.1% in the nonmultidisciplinary team cohort. The diagnostic consistency of the multidisciplinary team group was significantly superior to that of the nonmultidisciplinary cohort (92.5% vs 83.6%, P = .042). Although no significant links were shown with duration of stay (P = .232) and 30-day reoperation (P = .447), the multidisciplinary team participation was linked to a substantial decrease in perioperative mortality (P = .036) and postoperative complications (P = .002). Additionally, the multidisciplinary team group indicated stronger illness awareness and postoperative adherence among individuals with retroperitoneal liposarcoma. ConclusionThe study’s findings indicate that multidisciplinary team management could result in improved clinical outcomes, higher diagnostic accuracy, and reduced duration of postoperative stays, complications, and perioperative mortality. The intervention may also enhance disease awareness and postoperative compliance in retroperitoneal liposarcoma patients who undergo surgery. However, evidence quality was deemed low, and prospective studies with robust designs are required. Nonetheless, these results are worth considering.

Designing and maintaining a rescue extracorporeal life support program: A holistic simulation approach.

Rescue Extracorporeal Life Support Programs based at non-cardiac surgery centers have unique needs to be able to ensure successful outcomes despite low patient volumes. In this paper we describe the important role simulation had in each stage of development, implementation, and maintenance of our pediatric Rescue ECLS Program. Systems-focused simulations were used to develop robust workflows, processes, and bundles. Simulation-based education targeted the acquisition and maintenance of clinical skills for individual team members, bringing together a multidisciplinary team of local clinicians who do not routinely perform pediatric cannulation related tasks. Translational simulation ensured continued improvement by addressing adverse events or latent safety threats observed during system-focused or educational simulations. Realism of all simulations was our priority, and was achieved through in situ simulations, participation of multidisciplinary teams, use of real equipment and medical supplies, and use of a high-fidelity cannulation manikin. This holistic simulation approach allowed us to overcome the barriers to high quality care, and maintain outcomes comparable to high volume centers. A similar approach can help other centers design simulation for their own Rescue ECLS Program, and can be translated to other high-risk and high-acuity critical care programs.

Beyond the boundaries of ward-based services – exploring the scope of “non-traditional” clinical pharmacy practice in a tertiary referral teaching hospital

Abstract Introduction Hospital clinical pharmacy practice in the UK has developed beyond traditional boundaries of ward-based inpatient services. Royal Pharmaceutical Society Hospital Pharmacy Standards recommend pharmacy team members are integrated into multidisciplinary teams across the organisation to ensure safe and appropriate medicines use whatever the setting1. Pharmacy professionals provide pharmaceutical care and specialist services in outpatient and ambulatory settings and through participation in multidisciplinary team (MDT) meetings. Within the outpatient setting, research typically focusses on single outpatient clinics within specific disciplines, little evidence describes the overall contribution to patient care across whole pharmacy services2. Aim To describe the scope of clinical pharmacy services occurring beyond traditional ward-based services in a tertiary hospital; including quantification of outpatient clinics and MDT meetings provided by pharmacy professionals. Methods The Deputy Chief Pharmacist invited clinical Principal Pharmacists to participate in semi-structured interviews exploring the scope of “non-traditional” services across the Trust during March 2023. Non-traditional services were defined as direct clinical care outside of ward-based inpatient clinical pharmacy services. Indirect clinical care activities such as guideline writing, drug expenditure and governance activities were excluded. Inpatient board rounds/ward rounds and any service not currently provided due to vacancy were excluded. Participants were asked to quantify services provided, advise who provided the services and to describe contributions provided by the pharmacy team. The study was deemed service evaluation and ethical approval waived. Results 100% invited pharmacists participated. Pharmacists attended and contributed to over 150 MDT meetings monthly across 24 sub-specialities; 80% were for outpatients. In tertiary/quaternary services, these frequently covered patients beyond local geography. MDT meetings were typically attended by specialist, principal or consultant pharmacists. Common contributions included: provision of pro-active advice/responding to queries; medicines optimisation; monitoring; income or compliance assurance; prescribing/deprescribing. Specialist pharmacists provided 80-100 outpatient clinic sessions across 17 sub-specialities through a mix of face-to-face and virtual appointments, advanced pharmacy technicians provided on-treatment and counselling clinics. Activities included: initiation, monitoring, adjustment and cessation of medicines; patient counselling and MDT referral. Medicines prescribed were typically high cost, complex and higher risk. Pharmacists prescribed and clinically verified homecare medicines and provided ongoing annual review of outpatient medicines, including prescribing/deprescribing. Teams described medicines reconciliation and counselling in ambulatory haematology settings, off-site units and infusion suites. The team organised, optimised and provided advice and counselling for patients requiring antimicrobial therapies at home. Clinical pharmacists and pharmacy technicians provided medicines information to patients, internal and external healthcare professionals. Discussion/Conclusion This study provides evidence of the broad scope of clinical pharmacy practice beyond the boundaries of traditional ward-based services in a tertiary teaching hospital. This study was limited to a single organisation, specific clinical pharmacy activities and outcomes of these services were not fully quantified. Formal collation of clinical pharmacy activities within “non-traditional” outpatient and ambulatory settings is limited because activity data collection forms in hospital pharmacy are typically validated in traditional ward-based pharmacy services. We recommend further studies to validate activity collection tools to benchmark the activities of clinical pharmacy professionals providing services in outpatient and ambulatory settings both within and between hospital Trusts.

P049 The need for a funded, national HLH service: a scoping survey assessing the provision of specialist HLH services across the UK

Abstract Background/Aims Haemophagocytic lymphocytosis (HLH) is a multi-system hyperinflammatory syndrome with high mortality. Early treatment and multi-disciplinary team (MDT) management improves outcomes. In 2021, NHS England released guidelines for HLH treatment with anakinra; these mandate MDT discussion prior to treatment. HLH is rare and expertise varies throughout the UK, causing potential inequality in access to care. This scoping study aimed to assess HLH service provision across the UK. Methods An online survey was designed and disseminated via professional networks, including Hyperinflammation and HLH across specialty collaboration (HiHASC) members (www.hihasc.org) and contacts at individual hospitals. Quantitative data were analysed using SurveyMonkeyTM analysis. The survey was created to inform national service development, response was voluntary and data have been anonymized. Results 93 survey responses were obtained from 80 healthcare trusts, including three in Scotland and two in Wales. Responses covered 39/42 integrated care boards (ICBs) in England, representing all 7 clinical commissioning regions. Respondent’s specialties included Rheumatology, Haematology, Paediatrics, and Intensive Care. In 33% (13/39) of ICBs, Scotland and Wales no formal HLH provision existed; management relied on individual practice or informal discussions. 36% (14/39) of ICBs utilised ad hoc MDTs to manage HLH. Formal provision of HLH MDTs existed in 31% (12/39) of ICBs although these did not cover all trusts in the ICB. Only one MDT had a paid administrator.20% (n = 16) of trusts had an agreed HLH guideline; 7 were developed locally and 9 utilised external guidelines. Anakinra had been prescribed for HLH in 31% of trusts since 2021. Prescribing requirements were satisfied via ad hoc discussions in 33% of trusts, local Haematology or Rheumatology MDTs in 24% of trusts, and involvement of tertiary centres in 7% of trusts. A further 25% of trusts used a single HLH MDT for anakinra discussions. Only 10% (n = 8) of consultants had HLH included in job plans. A further 36% (n = 29) wanted this. 96% (n = 69) of respondents would value a national or regional HLH MDT. 20% (n = 14) of respondents offered to lead an MDT, with a further 53% (n = 37) willing to offer expertise. The most frequently proposed model for this MDT was a regular, online meeting with advance referrals. The largest barrier to MDT participation was lack of time. Other barriers included limited exposure to HLH and lack of funding or paid administrative support. Conclusion Specialist HLH services are inconsistently provided throughout the UK, suggesting inequitable access to care. Many ICBs rely on ad hoc HLH provision or have no formal HLH service. In areas providing HLH MDT services, these are often outside of job plans and lack administrative support. There is unsustainable reliance on a single centre. Strong support exists for national or regional HLH MDTs, which will require funding. Disclosure M.F. Cox: None. J.J. Manson: None. R.S. Tattersall: None.

Digital twin concept: Healthcare, education, research

Introducing the concept of digital twins in healthcare, medical education, and research is a complex multistage challenge requiring participation of multidisciplinary teams. In pursuing this goal, we have created a validated database of scans of colorectal tumor slides associated with relevant clinical and histological information. This database is also linked to the blood bank, which opens a wide range of opportunities for further research. Herein, we present our experience within the scope of the digital twins initiative.

Pharmacological Management of Postpartum Haemorrhage

Despite improvements in healthcare technologies, massive postpartum haemorrhage is still the leading cause of maternal morbidity and mortality worldwide. Delayed and poo r-q uality obstetric care can result in irreversible consequences. Wel l-t imed assessment of blood loss, effective management of the peripartum period, and participation of multidisciplinary teams are essential to provide a specialized care. This review presents the evidenc e-b ased management of patients with the development of obstetric haemorrhage. The article presents existing contradictions in the methods of diagnosis and treatment as well as new advances in this field of medicine which require continuation of research in this direction.

Consultants & Trainees Active Participation in Multi-Disciplinary Team (MDT): Tumor Boards can Play a Major Role in the Achievement of their Academic Professional Development Goals

We wish to share with the readers of this scientific journal our experiences and observations regarding educational gains achieved by the consultant faculty and trainee postgraduate residents via active participation in multidisciplinary team (MDT) Tumor Boards. The rapid modernization of teaching methodologies is being observed in both postgraduate residents and faculty professional education learning processes. Contemporary literature is increasingly depicting academic work which is being directed towards the exploration of both educational and social determinants of health care [1]. Several socio-economic factors have been discussed across the globe which have an impact on the health care systems [2]. Researchers argued over the fact that the leading factor for a positive outcome is socioeconomic wellbeing especially for patients with diseases, like cancer, diabetes mellitus, etc. If we critically evaluate the curriculums designed on the principles of traditional problem-based learning and case-based learning, they are very well-established students centre approaches, but on their merit, they failed to provide a holistic picture of the patient care [3].

Expert consensus on standardized process of imaging examination and diagnosis of gastric cancer (2022 edition)

Following with the development of individualized treatment of gastric cancer, the standardized radiological evaluation of gastric cancer is becoming more and more important. However,as a hollow viscera, the stomach is not fixed in shape and has a complex relationship with adjacent organs in the upper abdomen, which lead to the challenges in the radiological detection, localization, diagnosis and differential diagnosis, classification and staging, and evaluation of treatment response of gastric cancer. To deal with the challenges and address to clinical concerns, this consensus included the domestic experts on the frontline of clinical diagnosis and treatment of gastric cancer, and invited medical and surgical experts to participate in the inspection. The whole process was sorted out around five key points of gastric cancer radiological evaluation, including the selection of modalities, predisposal specification, examination standardization, reporting regulation and procedure in the participation of multidisciplinary team. All the experts voted by secret ballot to determine the level of evidence and recommendation. It is hoped that it can be used as a standard reference for radiological examination and diagnosis of gastric cancer.

P72 Research experience across the paediatric rheumatology multi-disciplinary team

P72 Research experience across the paediatric rheumatology multi-disciplinary team

Introducing clinical nurse specialists (CNS) in the ambulatory setting: the experience of a Research Cancer Center in Italy.

In 2018 the role of clinical nurse specialist (CNS) was implemented in an ambulatory setting at our cancer institute. To describe the CNS role implementation and the indicators to measure and the impact of the CNS after one year. Indicators for the implementation: CNS interface mapping in disease pathways, participation in multidisciplinary team (MDT) meetings, and number of training hours per CNS on specific cancers. Indicators for the impact: patient satisfaction with CNS (survey), compliance with for waiting times for the first visit, number of documented CNS-patient communications and number of improvement projects in which CNSs were involved. One year after CNS introduction, pathway mapping was 100%; MDT meeting participation 95%; training hours 40.5/CNS vs. standard 30 hours; 83.2% of interviewed patients were very satisfied with CNSs. On average 27 face to face and 126 phone interviews per month were performed. The number of first visits increased of 13% componed to the previous year. CNSs were successfully introduced into disease pathways and played an active role in the MDTs. The positive impact observed suggests that this new role could represent a response to the need to design patient centered services for cancer diseases. Measuring the CNSs activities and their impact on the patient outcomes and on system efficiency is the key for defining nursing staffing standards in the disease pathways, tailored on patients and organization characteristics.

Notifiable diseases interoperable framework toward improving Iran public health surveillance system: Lessons learned from COVID-19 pandemic.

BACKGROUND:Direct transmission of notifiable disease information in a real-time and reliable way to public health decision-makers is imperative for early identification of epidemiological trends as well as proper response to potential pandemic like ongoing coronavirus disease 2019 crisis. Thus, this research aimed to develop of semantic-sharing and collaborative-modeling to meet the information exchange requirements of Iran's notifiable diseases surveillance system.MATERIALS AND METHODS:First, the Iran's Notifiable diseases Minimum Data Set (INMDS) was determined according to a literature review coupled with agreements of experts. Then the INMDS was mapped to international terminologies and classification systems, and the Health Level seven-Clinical Document Architecture (HL7-CDA) standard was leveraged to define the exchangeable and machine-readable data formats.RESULTS:A core dataset consisting of 15 classes and 96 data fields was defined. Data elements and response values were mapped to Systematized Nomenclature of Medicine-Clinical Terms (SNOMED-CT) reference terminology. Then HL7-CDA standard for interoperable data exchange were defined.CONCLUSION:The notifiable disease surveillance requires an integrative participation of multidisciplinary team. In this field, data interoperability is more essential due to the heterogeneous nature of health information systems. Developing of INMDS based on HL7-CDA along with SNOMED-CT codes offers an inclusive and interoperable dataset that can help make notifiable diseases data more comparable and reportable across studies and organizations. The proposed data model will be further modifications in the future according probable changes in Iran's notifiable diseases list.

Chinese expert consensus statement on the clinical diagnosis and treatment of breast cancer bone metastasis and bone related disease

: Breast cancer is one of the most common malignancy in Chinese women. Up to 80% of patients with metastatic breast cancer develop bone metastasis resulting in local bone destruction and skeletal-related events such as pathological fracture and spinal cord compression. Skeletal-related events pose an enormous impact on patients' motor function and quality of life. Therefore, prevention of skeletal-related events is one of the treatment objectives of breast cancer bone metastasis, which often requires participation of multidisciplinary team to optimize therapeutic regimen for individual. Standard anti-tumor therapy includes chemotherapy, endocrine therapy, targeted therapy, immunotherapy, etc. Bone-modifying agents are the basic treatment after the occurrence of bone metastases in addition to anti-tumor therapy. As the disease progresses, patients may receive bone radiotherapy and orthopedic surgery. The purpose of this expert’s consensus is to standardize diagnosis and treatment of breast cancer bone metastasis and improve the quality of life of patients.

RCP soins de support : 12 ans d’expérience d’un centre de lutte contre le cancer

In 2006, in response to DHOS Circular 2005/101, we have created a multidisciplinary supportive care meeting. As available literature covering this subject is rare, we report here our own experience. For this purpose, available files from the six initial months of 2006, 2008, 2010, 2012, 2014, 2016and 2018were analyzed, representing 405situations corresponding to 352patients. The majority of patients were women (55,7%, n=196) and the median age was 66years old [20-93]. Treatment was curative in 8% (n=32) of the situations, palliative in 58% (n=233), exclusively palliative in 31.3% (n=128) and concerned post-cancer situations in 2.7% (n=11). The median number of participants in multidisciplinary team meeting was 10, with a regular presence of oncologists, palliative care team members, social workers, dietician, physiotherapist and psychologist. The two most common reasons for case presentation were advice on follow-up and support on a precise palliative situation. Multidisciplinary support care meeting decisions were relatively well implemented, with a compliance rate of 81.8%. Nevertheless, cases were presented late with a median time of 1.5months from presentation to patient death. The creation of a cross-supportive care department has increased this meeting relevance and it would be important in the near future to evaluate whether this organization allows a better foresight of supportive care.

Exploring scientific research with the participation of multidisciplinary team in the clinical management of portal hypertension

The etiological factors of portal hypertension are different. Therefore, there are many types of esophagogastric varices and the combined diseases are serious. However, with the continuous development of treatment technology, the importance of multidisciplinary team in the management of portal hypertension has gradually become well-known. Importantly, finding problems from the case discussion, summarizing the characteristics, conducting further clinical studies to evaluate the effect of endoscopic treatment on varicose veins, improving the safety of tissue adhesives therapy through the technological innovation, summarizing the treatment experience from treatment failure, and paying attention to the pathological examination of unexplained portal hypertension, and the comprehensive diagnosis and treatment under special circumstances through multidisciplinary team has provided us high-quality clinical research evidence for different phases and different treatment plan, and recognized the risk assessment and personalized precise diagnosis and treatment in patients with portal hypertension.

57 Improving Patient Centred Care On An Acute Older Persons Unit: A Quality Improvement Project

Abstract Topic Improving patient centred care through the implementation of an occupational therapy assessment that is framed by ‘gold standard’ intervention of comprehensive geriatric assessment (CGA) and Canadian Model of Occupational Performance and Engagement (CMOP-E). Occupational therapy staff had limited knowledge of the CGA process. Intervention Implementation of an adapted occupational therapy assessment form that reflects the CMOP-E and addresses the domains of the CGA; using the Plan, Do, Study, Act methodology to support a sequential cycle of change over a three month period (Dec 2019 – Feb 2019). The form also addresses patient centred care and personalised care planning. An education session was undertaken with occupational therapy staff to increase the knowledge and understanding of the CGA process resulting in more effective participation in multidisciplinary team (MDT) meetings. Improvement The above intervention resulted in successful implementation of an adapted occupational therapy assessment form for older people addressing the domains of the CGA within the CMOP-E framework and encompassing patient centred care. Occupational therapy staff had increased confidence with their knowledge of the CGA and participation in MDT meetings and patients felt more involved in their care. Discussion It is possible to have both an evidenced MDT model of practice and a uni-professional occupational therapy model working alongside each other to provide patient centred care and effectively address the complex needs of frail, older people.

Abdominal flap for penis augmentation in extrophy-epispadia complex: A case report

The exstrophy-epispadias complex is a rare and difficult to treat condition, whose best management involves the participation of multidisciplinary teams. Because those patients’ penis is short, with a broad basis and, usually, with dorsal chordee, there is an important demand to improve its esthetical appearance and to enlarge it. We present the case of a patient who underwent the construction of an abdominal wall flap that considerably improved the penile appearance and enlarged it by approximately 4 cm.

Designing a communication protocol for acquired immunodeficiency syndrome information exchange.

INTRODUCTION:Interoperability will provide similar understanding on the meaning of communicated messages to intelligent systems and their users. This feature is essential for controlling and managing contagious diseases which threaten public health, such as acquired immunodeficiency syndrome (AIDS). The aim of this study was also designing communication protocols for normalizing the content and structure of intelligent messages in order to optimize the interoperability.MATERIALS AND METHODS:This study used a checklist to extract information content compatible with minimum data set (MDS) of AIDS. After coding information content through selected classification and nomenclature systems, the reliability and validity of codes were evaluated by external agreement method. The MindMaple software was used for mapping the information content to Systematized Nomenclature of Medicine-Clinical Terminology (SNOMED-CT) integrated codes. Finally, the Clinical Document Architecture (CDA) format was used for standard structuring of information content.RESULTS:The information content standard format, compatible selected classification, or nomenclature system and their codes were determined for all information contents. Their corresponding codes in SNOMED-CT were structured in the form of CDA body and title.CONCLUSION:The complex and multidimensional nature of AIDS requires the participation of multidisciplinary teams from different organizations, complex analyzes, multidimensional and complex information modeling, and maximum interoperability. In this study, the use of CDA structure along with SNOMED-CT codes is completely compatible with optimal interoperability needs for AIDS control and management.

Chinese guidelines for diagnosis and treatment of HIV/AIDS (2018)

(AIDS) is an important public health problem in China. In 2005, the first edition of the guidelines for the diagnosis and treatment of AIDS was formulated by the AIDS Professional Group of Society of Infectious Diseases of Chinese Medical Association, which was updated twice in 2011 and 2015. The fourth edition of the guidelines in 2018 is revised on the basis of national clinical practice and the latest research studies. The new research progress in opportunistic infections and human immunodeficency virus(HIV) associated cancers, antiretroviral therapy, HIV post-exposure prophylaxis, and prevention of mother to child transmission were updated in these guidelines. In the 2018 edition, pre-exposure prophylaxis is mentioned for the first time. The strategy of whole course management of HIV infection is put forward in the current version, which needs the participation of multidisciplinary team in prophylaxis, early diagnosis, individualized treatment and humanistic care.

"Immersion in an Ocean of Psychological Tension:" The Voices of Mothers with Children Undergoing Hemodialysis.

Background:Compared with other renal replacement therapies, hemodialysis treatment can impose restrictions on children with chronic renal failure and their mothers. Such pediatric illness can also lead to negative effects on mothers’ physical and mental health. Knowledge about mothers’ experiences can aid medical teams to support mothers in playing their roles as care managers. Providing supports to mothers can exert significant effects on mothers’ health status and indirectly improve patient outcomes and whole family functioning. This study was aimed at understanding the meanings of care for children undergoing hemodialysis based on mothers’ lived experiences.Materials and Methods:This study is a qualitative research using hermeneutic phenomenology. A total of 17 interviews were conducted with 11 mothers of children undergoing hemodialysis. The interview sessions were recorded and transcribed, after which the data were analyzed using van Manen's methodology.Results:The main themes identified in this study was “immersion in an ocean of psychological tension,” which suggests that the mothers of the children undergoing hemodialysis are overwhelmed by the numerous psychological pressures that they encounter during their children's treatment. This theme was constituted by the subthemes “bewilderment between hope and despair,” “endless concerns,” “agony and sorrow,” and “a sense of being ignored.”Conclusions:The findings indicated the need to implement multilateral support measures that align with the educational, emotional–psychological, and financial needs of mothers with children receiving hemodialysis treatment. Such measures should be taken with the participation of multidisciplinary teams.