Parental Perceptions Research Articles

Parent experiences with genetic testing for pediatric hearing loss.

The purpose of the current study was to assess parent perceptions and experiences of genetic testing, as well as barriers for not undergoing testing in a sample of families of children with hearing loss. A 44-item questionnaire, The Parent Perception of Genetic Testing Questionnaire developed by the research study team was administered. Participants were recruited from a pediatric otolaryngology/audiology practice and social media. A total of 146 parents of children with hearing loss participated. Approximately 47.6% of the children in our sample underwent genetic testing, 44.8% did not, and 7.6% of parents were unsure. For those that did not undergo testing, reasons included: unaware (6.2%), not interested (8.9%), cost (8.9%), time (3.4%), fearful of results (2.7%), and never offered (15.1%). For those that did undergo testing, over half of the parents reported that they did not receive counseling before (55.1%) and 41.7% reported they received counseling after the testing. Furthermore, parents were confused about the results with 18.3% reporting they were Very Confused, 28.3% Somewhat Confused, 20% A Little Confused, and 33.3% Not Confused at All about the variant of uncertain or unknown significance. Notably, less than half of parents (43.4%) remembered what they were told about the mode of inheritance. Overall, our study highlighted the low adoption rate of genetic testing and lack of integration into standard of care for otology/audiology practices. Collaboration between hearing healthcare professionals and geneticists is warranted to determine how to reduce barriers to access while improving pre- and post-counseling.

The effect of trust in neighbourhood on parents' decision to drive their children to school: Insights from a hybrid choice model

IntroductionThe growing trend of children being driven to school has become a cause of concern in developed countries, with parents' perception of trust in neighbourhoods emerging as a key determinant. Previous research has mainly investigated the influence of either the mother's or the father's perception on children's school travel. While the contribution of each parent's perception to the final decision, and the factors affecting this contribution, remains unclear. MethodsThis study leverages data from the Longitudinal Study of Australian Children (LSAC) to examine the distinct roles of mothers' and fathers' perceptions of trust in the neighbourhood on their children's school travel mode. It proposes a hybrid choice model (HCM) to measure the contribution of each parent's perception as a function of their socio-economic status (SES) in the school travel mode decision. ResultsThe results indicate that a higher parental perception of trust in the neighbourhood significantly reduces the likelihood of using private car to take children to school. The study also identifies several factors that influence parental perception of trust, highlighting differing impacts on mothers and fathers. Neighbourhood SES has a more pronounced positive impact on mothers’ perceptions of trust, whereas homeownership and urban residency exhibit stronger effects on fathers' perceptions. The analysis further delineates the contribution of individual parents to the overall parental perception of trust, demonstrating that higher levels of income decrease this contribution. ConclusionThis study highlights the significant role of parental perception of neighbourhood trust in children's school travel mode, with both mothers' and fathers' perceptions playing crucial roles. Neighbourhood SES, homeownership, urban residence, and ethnic diversity shape parents' perceptions, with differing effects on mothers and fathers. Future policy initiatives should focus on fostering trust and social inclusion through community events, multicultural programs, and social activities to enhance neighbourhood cohesion and support sustainable school travel choices.

Longitudinal Relationships among Parenting, Prosocial Behaviors, and Emotional Problems: Examining Between- and Within-Person Associations in Adolescents.

Although bidirectional associations between parenting and adolescents' social and emotional outcomes have been investigated, how parental warmth and harsh parenting as two different parenting dimensions, adolescents' prosocial behaviors, and emotional problems were longitudinally and bidirectionally related at between- and within-person levels remains unclear. With a three-wave longitudinal design, the present study examined these associations by employing the random-intercept cross-lagged panel model. Data from 606 Chinese adolescents (Mage = 13.80 years, SD = 0.52, at T1; 45.7% girls) were collected at six-month intervals over one year, and participants completed questionnaires assessing their perception of parenting, prosocial behaviors, and emotional problems online. The results indicated that parental warmth and harsh parenting were significantly associated with adolescents' prosocial behaviors and emotional problems at the between-person level. At the within-person level, adolescents' more prosocial behaviors at T1 predicted later within-person decreases in their emotional problems at T2, which in turn predicted subsequent increased prosocial behaviors and more parental warmth at T3. Additionally, a higher level of harsh parenting at T2 unidirectionally predicted more adolescents' emotional problems at T3. These findings highlighted the developmental cascade processes among adolescents' prosocial behaviors, emotional problems, and parenting and the importance of fostering adolescents' prosocial behaviors in reducing their emotional problems and then promoting subsequent psychosocial adjustment and parent-child bonding.

PP317 Topic: AS07–Family Care: Patient and Family Centered Care, Family Presence, Patient and Family Engagement in Research and Care/Patient Diaries/Other: FAMILY PARTICIPATION DURING THE FAMILY-CENTERED ROUNDS IN THE PEDIATRIC INTENSIVE CARE UNIT: PERCEPTIONS OF PARENTS AND HEALTH CARE PROVIDRES

PP317 Topic: AS07–Family Care: Patient and Family Centered Care, Family Presence, Patient and Family Engagement in Research and Care/Patient Diaries/Other: FAMILY PARTICIPATION DURING THE FAMILY-CENTERED ROUNDS IN THE PEDIATRIC INTENSIVE CARE UNIT: PERCEPTIONS OF PARENTS AND HEALTH CARE PROVIDRES

PP537 Topic: AS07–Family Care: Patient and Family Centered Care, Family Presence, Patient and Family Engagement in Research and Care/Patient Diaries/Other: FAMILY PARTICIPATION DURING THE FAMILY-CENTERED ROUNDS IN THE PEDIATRIC INTENSIVE CARE UNIT: PERCEPTIONS OF PARENTS AND HEALTH CARE PROVIDRES

PP537 Topic: AS07–Family Care: Patient and Family Centered Care, Family Presence, Patient and Family Engagement in Research and Care/Patient Diaries/Other: FAMILY PARTICIPATION DURING THE FAMILY-CENTERED ROUNDS IN THE PEDIATRIC INTENSIVE CARE UNIT: PERCEPTIONS OF PARENTS AND HEALTH CARE PROVIDRES

PP302 Topic: AS05–End of Life: Palliative Care/Organ Donation/Ethics/Spirituality & Wellness/Other: PARENTAL PERCEPTIONS ON WITHHOLDING AND WITHDRAWING LIFE-SUSTAINING TREATMENT FOR THEIR CHILDREN IN THE PAEDIATRIC INTENSIVE CARE UNIT: A QUALITATIVE INTERVIEW STUDY

PP302 Topic: AS05–End of Life: Palliative Care/Organ Donation/Ethics/Spirituality & Wellness/Other: PARENTAL PERCEPTIONS ON WITHHOLDING AND WITHDRAWING LIFE-SUSTAINING TREATMENT FOR THEIR CHILDREN IN THE PAEDIATRIC INTENSIVE CARE UNIT: A QUALITATIVE INTERVIEW STUDY

Perceptions of Parents of Children With Disabilities Toward Physical Education: A Systematic Review

Physical education (PE) has a unique opportunity in not only supporting children with disabilities but also their parents’ physical-activity knowledge and support behaviors. Therefore, the purpose of this systematic literature review was to synthesize published studies regarding parent perspectives toward physical education (PE) for their children with disabilities. A total of 19 articles met inclusion criteria. Three themes emerged: (a) parents’ understanding of adapted PE (A/PE), (b) parents’ expectations of A/PE teachers, and (c) parents’ undeveloped relationships with A/PE teachers. There exists a disconnection between parent expectations and PE teachers’ abilities to accommodate their children and develop lines of communication. Additionally, parental value toward PE was often lower compared with other areas of need for their children. Future research suggests exploring teacher perspectives in understanding the relationships with parents. Furthermore, exploring the origins of parental values for PE and its impact on their perspectives warrants further investigation.

Participation and Well-Being of Chinese Mothers Who Have Children With Disabilities.

High stress and compromised mental health are well-documented among mothers of children with disabilities, but less is known about the factors that influence their participation and well-being, especially among Chinese mothers. Identifying these factors could lead to strategies to mitigate potential risks to maternal well-being. To explore the relationships among participation in health-promoting activities, perceived stigma, perceived support, and well-being of ethnic Chinese mothers who have children with disabilities. Cross-sectional survey. Community. Ethnic Chinese mothers (N = 261) with children with disabilities of any age residing in Australia, Singapore, or Taiwan. Health Promoting Activities Scale, Personal Wellbeing Index, Warwick-Edinburgh Mental Wellbeing Scale; Kessler Psychological Distress Scale, Parental Perceptions of Public Attitudes Scale, and Multidimensional Scale of Perceived Social Support. Moderate to strong correlations were found between mental well-being and all measures. The frequency of participation in health-promoting activities was a predictor of mental well-being (β = .21, p = .001). Perceived support was the strongest predictor of participation in health-promoting activities (β = .25, p = .005), mental well-being (β = .39, p < .001), and personal well-being (β = .45, p < .001). Perceived stigma predicted psychological distress (β = .32, p < .001) and mental well-being (β = -0.29, p < .001). Perceived support and stigma affected mothers' participation in health-promoting activities and well-being. Therapists can facilitate mothers' engagement in health-promoting activities and develop strategies to address stigma and enhance support. Plain-Language Summary: This research highlights factors that affect the well-being of ethnic Chinese mothers who have children with disabilities and provides cultural insights for occupational therapists who work with Chinese families. The article also encourages pediatric occupational therapists to address the occupational needs and well-being of mothers in parallel with therapy for their children. We discuss occupation-focused strategies, family-centered perspectives, and health promotion approaches in relation to improving the participation and well-being of ethnic Chinese mothers in their cultural context.

Parents Perception on use of Antibiotics in Children

Objective: To determine parents’ perception on use of antibiotics in children. Study Design: Cross-sectional study. Place and Duration of Study: Department of Paediatrics, Combined Military Hospital, Kharian Pakistan, from Jul 2022 to Mar 2023. Methodology: Fifty parents aged 18-50 years were included in the study. Their parity, education levels, knowledge and attitudes on antibiotic use, including basic concepts of antibiotics, indications of antibiotic, administration of antibiotics, Antimicrobial Resistance and other side effects; parental experiences and practices around buying antibiotics without a prescription and parental experiences regarding using antibiotics to treat their children themselves were noted. Result: Sixteen respondents (32%) were male and 34(68%) were female. It was found that most parents used Cefixime 28(56%), followed by Amoxicillin, and Azithromycin. Twenty-three (46%) participants stated that antibiotics could cure infections caused by viruses. Eighty-eight percent participants knew that antibiotics should only be taken according to doctor’s prescription. Almost half of parents believed that antibiotics should be withdrawn as soon as the symptoms disappear. About 26% of parents believed that antibiotics could prevent the common cold. Thirty-six (72%) parents agreed that overuse of antibiotics exists in Pakistan. Conclusion: Poor knowledge or understanding of antibiotic usage persists among parents in Pakistan. A doctor's prescription for antibiotics may have an impact on how parents use those medicines on their children.

Parental Feeding Practices, Weight Perception, and Children’s Appetitive Traits Are Associated with Weight Trajectories in Preschoolers: A Longitudinal Study in China

Parental Feeding Practices, Weight Perception, and Children’s Appetitive Traits Are Associated with Weight Trajectories in Preschoolers: A Longitudinal Study in China

The Influence of Marketing Communication Via Instagram at the Al Amjad Islamic School in Medan on the Perceptions and Educational Preferences of Students' Parents

The purpose of this study was to analyze the influence of marketing communication of Al Amjad Islamic School through Instagram on the perception and educational preferences of students' parents. The study used a quantitative approach with a correlation method. The sampling technique used stratified random sampling with 325 student samples at Al Amjad Islamic School Medan. The results showed that the advertising dimension obtained a value of 88%, the facility dimension obtained a value of 87.1% and the peer dimension obtained a value of 87.7%. The results of simultaneous calculations showed that the H0 hypothesis was rejected and Ha was accepted so that simultaneous marketing communication had a significant effect on educational perceptions and preferences

Perception of parents on barriers and facilitators of treatment outcomes among children and adolescents attending psychotherapy services in a primary health care centre in Belize

Background: The study assessed the perception of parents on barriers and facilitators treatment outcomes among children and adolescents attending psychotherapy services in a primary health care centre. Methods: A cross sectional descriptive study using both quantitative and qualitative methods. The quantitative method used retrospective review of records of 65 children and adolescent clients who accessed psychotherapy services between January 2022 and December 2023 at Port Loyola Health Centre in Belize city. The qualitative method used in-depth interviews of twenty parents of the patients randomly selected from the clinic registers. Univariate and bivariate analyses was used for the quantitative data while thematic analysis was used for the qualitative data. Results: 25 (38.5%) of the patients completed their treatment and 34 (52.3%) dropped out, with half dropped out after the first visit. The identified parental perceived barriers and facilitators are organized into four main themes. The first theme was related to knowledge and understanding of mental health problems by the parents which showed that respondents had good knowledge about mental health problems. The second theme identified attitudes towards treatment as a major factor to completion of treatment. The third theme was related to structural factors like transportation cost and parents’ work schedule identified as key barriers. The fourth theme was related to inconvenient appointment time and lack of flexibility in the scheduling of appointment at the clinic. Conclusions: The study highlights key areas of interventions to minimize barriers to completion of treatment among children accessing mental health services.

Quantifying Parental Perceptions of Their Experiences With Their Young Children's Use of Power Mobility Devices.

To quantify and explore parental perceptions of their experiences with their child's use of the Explorer Mini (EM) and a modified ride-on car (mROC) in young children with cerebral palsy. Data were gathered throughout a multisite, randomized, counterbalanced AB crossover 16-week clinical trial, wherein all participants used device A (EM) and device B (mROC) for 8-weeks each. Semistructured parent interviews were conducted at baseline (T0), post-intervention period 1 (T1), and post-intervention period 2 (T2). The Linguistic Inquiry and Word Count program was used to objectively analyze the transcribed interviews. Twenty-four child-parent dyads participated in the study. Parental perceptions were related to children's gross motor abilities, cognitive development scores, and device use order (EM-mROC or mROC-EM). Parents were positive about a potential means of helping their children. While most preferred the EM, opinions were contingent on the PM device, device use order, and child-centered factors.

Impact of gender-biased parental perceptions on under-immunization in Eastern Sudan: a cross-sectional study

BackgroundDespite global efforts, inequities in vaccine uptake remain, influenced by socioeconomic, geographic, cultural, and gender-related factors. In Eastern Sudan, gender disparities are acknowledged, particularly in livelihoods, but their impact on vaccination uptake is unclear. This study aimed to assess the effect of gender-biased parental perceptions on under-immunization among children in Kassala, Eastern Sudan.MethodsThis study was a community-based cross-sectional in rural and urban districts of Kassala locality in Kassala State, Eastern Sudan in November 2022. Data were collected from parents using a pre-tested, structured questionnaire. The Chi-square or Fisher's exact test was conducted to assess the factors associated with under-immunization among children.ResultsData were collected from 400 parents. Our data reveal that most children were fully vaccinated with the three doses of the pentavalent vaccine (83%), while 14% were partially vaccinated. Findings showed that about one in five parents perceived male vaccination as more important than female vaccination. This parental perception of gender-based importance in vaccination was significantly associated with under-immunization among children (p-value = 0.049). Additionally, males in our study are fully vaccinated 5% more often than females. Socio-economic factors, including mothers’ education and households’ income level, were also significantly associated with the vaccination status of the children.ConclusionThis study shed light on the effect of gender norms and related determinants on equitable access to vaccinations for boys and girls alike. More research is needed to gain a better understanding of the gender norms related to vaccination and their long-term impact on immunization demand and resilience in this region.

Early Childhood Education and Care Services, and Parents’ Work–Life Balance

Parents’ work–life balance represents a major challenge, especially for those who have young children. The present article aims to identify the perceptions of parents relating to the purpose of early childhood education and care (ECEC) services, care responsibilities, and factors that affect the balance between caring responsibilities for children and the professional career of parents. Using a database with 825 parents, who have children aged between 0 and 6 years enrolled in the ECEC system (nurseries, kindergartens), we performed a descriptive statistical analysis and a logistic regression to identify factors that affect the balance between caring responsibilities and career. The results indicate an appreciation of the usefulness of ECEC services (nurseries/kindergartens) by parents and underline the importance of parents’ involvement in the activities of ECEC services. Results also show that three factors affect the balance between caring responsibilities for children and professional career as follows: the residence area, the educational level, and the proximity to ECEC services. The need to develop ECEC services in Romania is correlated with the work–family balance field. Policymakers should focus more on structural changes and the development of early childhood education and care services, as well as the expansion of such services in both rural and urban areas.

Parent Perceptions of Behavior Analytic Interventions

Parent Perceptions of Behavior Analytic Interventions

Parents' color-conscious racial socialization and adolescents' racial attitudes: the moderating role of parental psychological control

IntroductionThe present two-wave longitudinal study examined the relation between White U.S. parents' color-conscious racial socialization for African Americans and adolescents' racial attitudes, and explored how parental psychological control might moderate this relation.MethodParticipants included 412 White U.S. adolescents (42% girls; Mage = 15.63 years, SD = 1.24) and their primary caregivers (52% mothers). They completed online questionnaires, with parents reporting on their color-conscious racial socialization at Time 1, and adolescents providing measures of their perception of parents' psychological control at Time 1, color-blind attitudes, and racial prejudice at both time points, ~16 months apart.ResultsOur findings revealed that parents' color-conscious racial socialization for African Americans was negatively associated with adolescents' negative racial attitudes. Additionally, parental psychological control moderated this relation: the negative association was evident only when parents exhibited low or average levels of psychological control.DiscussionThis study highlights the crucial role parents play in shaping their adolescents' racial attitudes and underscores the necessity of an autonomy-supportive environment to enhance the success of parents' color-conscious socialization practices. Understanding these dynamics is essential for developing effective interventions to reduce racial biases and foster inclusive attitudes among adolescents.

Preventing unintentional injuries in children: the parents’ beliefs matters (CHILD Vigilance)

Abstract The CHILD Vigilance project is a European study supported by the Injury Prevention &amp; Safety Promotion Section of the European Public Health Association (EUPHA INJ) and aims at assessing parenting knowledge and attitudes that are relevant to supervision and risk taking in children. For children the majority of these injuries occur in or around the home when their safety is the responsibility of a parent or other caregiver. The study aims contribute to the epidemiological knowledge of injuries through the study of the perceptions of parents and caregivers of children and adolescents. A descriptive, observational, cross-sectional study was developed under the CHILD Vigilance project, developed at European level within the scope of the Injury Prevention &amp; Safety Promotion Section of the European Public Health Association. The information was collected by survey, from parents’ associations and schools in the EU countries represented in the EUPHA INJ Section. A total of 916 valid responses were obtained, involving 1229 children (51,4% male; mean age 7,8 years). Falls were perceived as the most common type of unintentional injuries in pre-schoolers and school-age children (47,8% in Greece; 63,5% in Portugal; 74,8% in Lithuania). However it was found differences in these countries as to the most common type of injury in adolescents, pointing out road traffic crashes (41.2% in Greece vs 39.5% in Portugal) and poisonings in Lithuania (38,1%). Some differences were also observed between these countries as to the most common causes of death. In Greece and Lithuania diseases were reported the main cause in the pre-schoolers (62,5%; 35,1%) and in primary education (55,1%; 29,7%), being injuries pointed as the most frequent cause only in the oldest. The study emphasizes the need to invest in the identification of appropriate determinants of child unintentional injuries and harmonised injury outcomes across global initiatives. Key messages • The lack of data regarding to parents’ knowledge on injury prevention involving children highlight the need to conduct this type of studies. • The need for adequate epidemiological data on the burden of child injuries and validated tools to accurately measure injuries.

Mission FEEL! A novel emotion understanding intervention for preschoolers: A proof-of-concept study

Emotion understanding is an important competency that children begin to develop during the first years of life and serves as an essential building block for lifelong learning. Emotion understanding is linked to developmental outcomes including academic, cognitive, and social-emotional skills. Not surprisingly, efficacious interventions to promote children's social emotional skills have been developed. Scale-up of these interventions is challenging because they are time and resource intensive. Brief, fully automated interventions are promising alternatives to overcome implementation barriers. Mission FEEL! is a two-session, fully automated intervention grounded in cognitive-behavioral theory aimed at promoting emotion understanding among preschoolers. This proof-of-concept study examined the acceptability and feasibility of Mission FEEL!. We recruited 52 preschool children and their parents/guardians across Florida. Participants completed four virtual study visits: a baseline emotion understanding assessment, two intervention sessions, and a one-month follow-up emotion understanding assessment. We established a priori benchmarks to determine feasibility, acceptability, and clinical meaningfulness. The results indicated that Mission FEEL! is both feasible and acceptable. All outcomes, except two that were in the acceptable range, met the benchmarks for good or excellent. The clinical meaningfulness of the intervention was supported by parental perceptions of the program's influence on emotion-related parent-child interactions, perceived value of the program in children's daily lives, and observed difference in emotion understanding scores between baseline and follow-up. The ease of scale-up, low cost, and potential practical implications also contributed to the clinical meaningfulness. Findings from this proof-of-concept study suggest that Mission FEEL! merits advancing to the next phase of intervention development testing.

Parent and adolescent perceptions of parent–child developmental relationships: The role of family routines

AbstractObjectiveThis study examined family routines in relation to the strength of parent–child developmental relationships and discordant perceptions among parents and their adolescent children.BackgroundPositive parent–child relationships and regular engagement in family routines are known to create a positive environment in which adolescents can thrive. Yet both parents and their children hold unique perspectives on family structure and functioning. Agreement between parent and child reports tend to be low and often become increasingly discrepant during adolescence. Engaging in consistent and predictable family routines may not only strengthen parent–child relationships but also result in more concordant perceptions of the quality of their shared relationship.MethodUsing data from 633 matched parents and their children, we examined the association between engagement in family routines and the strength of parent–adolescent relationships including discrepant reports using a latent congruence model.ResultsFamily routines were positively associated with stronger parent–adolescent relationships and less discrepant reports of this critical relationship.ConclusionEngagement in family routines plays an important role in parent–adolescent developmental relationships.ImplicationsFindings have important implications for practices and research focused on improving adolescent outcomes through family structures and parent–child relationships.