Oregon Project Research Articles

Improving representation of Hispanic adults in a population-based cancer genetics cohort: Qualitative findings from the Healthy Oregon Project

Improving representation of Hispanic adults in a population-based cancer genetics cohort: Qualitative findings from the Healthy Oregon Project

Novel recruitment approaches and operational results for a statewide population Cohort for cancer research: The Healthy Oregon Project.

Cancer health research relies on large-scale cohorts to derive generalizable results for different populations. While traditional epidemiological cohorts often use costly random sampling or self-motivated, preselected groups, a shift toward health system-based cohorts has emerged. However, such cohorts depend on participants remaining within a single system. Recent consumer engagement models using smartphone-based communication, driving projects, and social media have begun to upend these paradigms. We initiated the Healthy Oregon Project (HOP) to support basic and clinical cancer research. HOP study employs a novel, cost-effective remote recruitment approach to effectively establish a large-scale cohort for population-based studies. The recruitment leverages the unique email account, the HOP website, and social media platforms to direct smartphone users to the study app, which facilitates saliva sample collection and survey administration. Monthly newsletters further facilitate engagement and outreach to broader communities. By the end of 2022, the HOP has enrolled approximately 35,000 participants aged 18-100 years (median = 44.2 years), comprising more than 1% of the Oregon adult population. Among those who have app access, ∼87% provided consent to genetic screening. The HOP monthly email newsletters have an average open rate of 38%. Efforts continue to be made to improve survey response rates. This study underscores the efficacy of remote recruitment approaches in establishing large-scale cohorts for population-based cancer studies. The implementation of the study facilitates the collection of extensive survey and biological data into a repository that can be broadly shared and supports collaborative clinical and translational research.

Population screening shows risk of inherited cancer and familial hypercholesterolemia in Oregon

The Healthy Oregon Project (HOP) is a statewide effort that aims to build a large research repository and influence the health of Oregonians through providing no-cost genetic screening to participants for a next-generation sequencing 32-gene panel comprising genes related to inherited cancers and familial hypercholesterolemia. This type of unbiased population screening can detect at-risk individuals who may otherwise be missed by conventional medical approaches. However, challenges exist for this type of high-throughput testing in an academic setting, including developing a low-cost high-efficiency test and scaling up the clinical laboratory for processing large numbers of samples. Modifications to our academic clinical laboratory including efficient test design, robotics, and a streamlined analysis approach increased our ability to test more than 1,000 samples per month for HOP using only one dedicated HOP laboratory technologist. Additionally, enrollment using a HIPAA-compliant smartphone app and sample collection using mouthwash increased efficiency and reduced cost. Here, we present our experience three years into HOP and discuss the lessons learned, including our successes, challenges, opportunities, and future directions, as well as the genetic screening results for the first 13,670 participants tested. Overall, we have identified 730 pathogenic/likely pathogenic variants in 710 participants in 24 of the 32 genes on the panel. The carrier rate for pathogenic/likely pathogenic variants in the inherited cancer genes on the panel for an unselected population was 5.0% and for familial hypercholesterolemia was 0.3%. Our laboratory experience described here may provide a useful model for population screening projects in other states.

Oregon Project Firstline: A needs assessment of healthcare personnel infection prevention knowledge and training preferences

Background: Infection prevention and control (IPC) competency is critical for healthcare personnel (HCP) and patient safety. In collaboration with the CDC new national IPC training collaborative called Project Firstline, the Oregon Health Authority’s (OHA) Healthcare Associated Infection (HAI) Program established a state-level program in 2021. The goal of Oregon Project Firstline is to provide relevant, accessible, and engaging IPC training materials for our state’s HCP. We assessed the IPC learning needs of Oregon’s healthcare workforce, and to understand the preferred methods and formats of training across the various HCP roles. Methods: OHA’s HAI program recruited HCP by distributing electronic surveys through multiple healthcare, regulatory, and public health partners’ email listservs and HCP-targeted newsletters. Survey responses were recorded from September 23 to December 10, 2021. The HAI program assessed respondents’ IPC knowledge, online and in-person job training preferences, frequently used training devices, and trusted sources for IPC information. An individual’s understanding of an IPC topic was categorized based on their self-assessed confidence in their knowledge and ability to teach the topic to others. In total, 6,382 surveyed responses were analyzed. Results: The average understanding among HCP was lowest in IPC topics relating to triage and isolation of contagious patients and fit testing of respiratory protection devices. For these topics, 3,208 HCP (66.21%) and 3,657 HCP (75.48%) HCP, respectively, did not understand the topic well enough to teach others (Fig. 1). The highest number of HCP (n = 2,512, 39.36%) requested additional training in methods on how to educate others about IPC topics (ie, “train the trainer”). Surveyed respondents most frequently used personal computers for job trainings in both work and at-home settings (n = 4,603, 72.12%) and 3,437 HCP (53.85%) were open to either in-person or remote formats for job education. The CDC and OHA were the most frequented and trusted IPC sources among surveyed HCP: 4,124 HCP (64.62%) and 3,584 HCP (56.16%), respectively. Conclusions: IPC is a critical topic in HCP training across all healthcare facility types and employee roles. Effective educational planning includes understanding the learners’ knowledge needs and preferred methods of learning. Our learning needs assessment identified important IPC knowledge gaps and will help ensure that our training courses will be offered in effective educational formats for Oregon’s diverse HCP. Future training will include appropriate triage of potentially infectious patients, respiratory fit testing, and general IPC “train the trainer” sessions. Additionally, we will offer both in-person and remote options.Disclosures: None

O32: The Healthy Oregon Project: A successful statewide model for low-cost genetic screening for inherited cancer and familial hypercholesterolemia*

O32: The Healthy Oregon Project: A successful statewide model for low-cost genetic screening for inherited cancer and familial hypercholesterolemia*

Cross-sectional Observations on the Natural History of Mucolipidosis Type IV.

Background and ObjectivesMucolipidosis type IV (MLIV) is an ultra-rare lysosomal disorder initially described as a static neurodevelopmental condition. However, patient caregivers frequently report progressive muscular hypertonicity and functional decline. We evaluated a cohort of patients with MLIV to determine whether neurologic disability correlates with age.MethodsWe performed a cross-sectional, observational study of 26 patients with MLIV in the United States and Israel ranging in age from 2 to 40 years. Medical history was obtained from caregivers, and patients underwent a full neurologic examination. The Brief Assessment of Motor Function (BAMF), Gross Motor Function Classification System, and modified Ashworth scales were applied. Caregivers identified developmental skills on the Oregon Project for Visually Impaired and Blind Children checklist that their child had lost the ability to perform.ResultsThree patients were clinically classified as mildly affected and the remaining 23 patients as typical, severely affected cases. Timing of first symptom onset ranged from 1.5 months to 8 years of age (median 7.25 months). Across typical patients, modified Ashworth scores demonstrated a positive age dependence illustrating worsening spasticity across the lifespan. Signs of extrapyramidal motor dysfunction were also qualitatively observed. In parallel, gross and fine motor function assessed with the BAMF and Gross Motor Function Classification System scales declined across age. All typical patients had restricted tongue mobility and lacked rotary jaw movement when chewing, but BAMF scores for deglutition declined only in the oldest patients. In contrast, scores for articulation were low in all patients and did not correlate with age. Finally, loss of developmental skills frequently occurred in early adolescence.DiscussionThis cross-sectional natural history study of MLIV demonstrates worse motor function in older patients. These data support a neurodegenerative component of MLIV that manifests as developmental regression in the second decade of life. Whether the emergence of functional decline results from the cumulative, nonlinear interactions of steadily progressive neurodegenerative processes or reflects an inflection from impaired CNS development to degeneration is uncertain. However, understanding the relationship between CNS pathology and clinical course of disease will be imperative to guiding future interventional trials and optimizing patient care.

WHEN A LITTLE GOES A LONG WAY: EXPANDING HOME CARE SERVICES TO ADULTS WITH DISABILITIES

Policy makers are increasingly interested in reducing public spending while maintaining quality of life. Since 1975, Oregon Project Independence (OPI) has supported community-based adults aged 60 and older to avoid or delay the need for residential long-term care services by increasing access to personal and home care services. The program also aims to prevent the need for Medicaid by optimizing personal resources and natural supports. In 2014, the OPI Expansion (OPI-E) pilot project began to serve adults aged 18-59 with disabilities in seven of Oregon’s seventeen Area Agencies on Aging (AAAs). This poster describes the evaluation of the expansion using three data sources: administrative data about consumer characteristics compiled by the AAAs and State of Oregon from 2015-2017 (N=3,824 traditional consumers, N= 581 OPI-E consumers), qualitative interviews conducted with AAA directors and OPI-E case managers (N=23), and a survey of current OPI-E consumers (N=126). Compared to traditional OPI consumers, OPI-E consumers were somewhat more likely to be men and people of color. Interviews with AAA staff highlighted the need for outreach, lack of service provider capacity, unique characteristics of younger consumers, and issues related to data management and rural access. Staff reported valuing the program, noting how “even low levels of service go a long way.” Qualitative and quantitative consumer responses showed consumers found OPI-E services invaluable. The majority stressed their appreciation for the program, with several describing it as “lifesaving.” These three sources informed recommendations for expanding the OPI-E program statewide.

Stories of Southern Oregon = Communities + Libraries + Museums + University

Collaborations often have the best outcomes because conversations among those with diverse experiences, varied institutional affiliations, and cross-discipline training bring breadth and depth of perspective. The Stories of Southern Oregon project was a good example of how libraries, museums, and academics can work together to surface important historical content, build community, and strengthen relationships. Thanks to a 2017 grant from the National Endowment for the Humanities’ Common Heritage program, Southern Oregon University faculty partnered with the Eagle Point and Ruch branches of the Jackson County Library District and local museums to collect stories and images of heritage work-life like logging, mining, farming, and ranching. Memories of a different time are very much alive in the rural towns of Jackson and Josephine counties, and public libraries and museums are central to the collective heritage of our small communities. This article describes the Stories of Southern Oregon project and how public libraries in Ruch and Eagle Point engaged their communities to bring history to life, and make a real difference to those they serve every day.

Las Historias de Latinos en Oregón: Canby, Oregón An Oral History Project Collaboration Between A Librarian and an Archivist

In the spring of 2015, I began the oral history project Latinos en Oregon to document the stories of Oregon’s Latino/a communities. As the curator and archivist of the Oregon Multicultural Archives (OMA) at the Oregon State University (OSU) Special Collections and Archives Research Center, my job is to assist in preserving the histories and sharing the stories that document Oregon’s African American, Asian American, Latino/a, and Native American communities (Oregon Multicultural Archives, 2005). There are gaps in the historical record as it pertains to people of color in Oregon, and the OMA seeks to address those gaps and empower communities to share their stories. Because oral histories are the recorded life stories of the people who lived them, they are a unique addition to the historical record. Oral histories enable interviewees to share their perspectives, thoughts, and opinions about their lives and the communities in which they live. Latinos en Oregon began in Jefferson County as a collaboration between the OMA and OSU’s Juntos Program, an after-school program that aims to prepare Latino/a high school students and their families for college. The project expanded to Yamhill County in 2016 as part of a yearlong county grant project. The grant included partnerships between the local historical society and the community-based, non-profit organization, Unidos Bridging Community. It was in the spring of 2016 that I embarked on a small, short-term oral history project in collaboration with the Canby Public Library, a collaboration that began through REFORMA Oregon. In this article, I will share the background history about the Natalia Fernandez Natalia is the Curator and Archivist of the Oregon Multicultural Archives (OMA) and the OSU Queer Archives (OSQA) at the Oregon State University Special Collections and Archives Research Center. Fernandez’s mission for directing the OMA and the OSQA is to work in collaboration with Oregon’s African American, Asian American, Latino/a, Native American, and OSU’s LGBTQ+ communities to support them in preserving their histories and sharing their stories. Her scholarship relates to her work as an archivist, specifically best practices for working with communities of color. Fernandez has been published in the Oregon Historical Quarterly, Journal of Western Archives, The by Natalia Fernandez Curator and Archivist, Oregon Multicultural Archives & OSU Queer Archives, OSU Libraries: Special Collections and Archives Research Center natalia.fernandez@oregonstate.edu American Archivist, and Multicultural Perspectives. Fernandez holds an M.A. in Information Resources and Library Science from the University of Arizona (U of A). She graduated from the U of A Knowledge River Program, a program that focuses on communitybased librarianship and partnerships with traditionally under-served communities. 13 Latinos en Oregon project, detail the collaboration between the OMA and the Canby Public Library, and provide information about the Canby oral history interviews and the stories the interviewees shared.

Project Spotlight: Grade 80 steel reinforcement a success in Oregon project

The benefits of Grade 80 reinforcing bar were put to the test in 2016, with the building of the Chehalem Creek Bridge near Newberg, Ore. “The higher strength of Grade 80 bars resulted in a smaller quantity of rebar and less congestion in the rebar cages,” says Tanarat Potisuk, prestressed concrete standards engineer for the Oregon Department of Transportation, which permits its use in drilled shafts and other applications.

Cross-Cultural Adaptation of a Developmental Assessment for Arabic-Speaking Children With Visual Impairment

Developmental screening has become an established component of child health programs in many developed countries. The research objective of this project was to translate and adapt a developmental assessment (Oregon Project Skills Inventory) for use with young children with visual impairments who speak Arabic. The study was prompted by the lack of developmental screening tools in Arabic and to determine whether young children with visual impairments in Qatar were meeting developmental milestones within normal limits. This project has the potential to make significant contributions to the field of cross-cultural assessment.

Integrating addiction medicine training into medical school and residency curricula

Background: The Affordable Care Act (2010) brings an opportunity to increase the integration of addiction treatment into the health care system. With the anticipated expansion of addiction care services in primary care, challenges, such as workforce training, can be expected. This presentation discusses challenges and opportunities for addiction medicine training of primary care professionals in Ireland, Canada and Portland, OR. Objectives: To explore ideas for integrating addiction medicine education into medical school, fellowship and residency curricula and to consider how implementation barriers can be addressed. Method: The presentation will outline the set up and content of some of the current addiction medicine education in medical schools and residency programs in Ireland, Canada and Portland, Oregon. Examples from three educational initiatives will be used to generate ideas applicable to each setting and help overcome integration barriers: the St. Paul’s Hospital Goldcorp Addiction Medicine Fellowship (http://www.addictionmedicinefellowship.org), the feasibility study on alcohol SBIRT for opioid agonist patients in Ireland (PINTA), and the team-based SBIRT Oregon project (http://www.sbirtoregon.org). Scenarios that illustrate implementation strategies, such as educational outreach visits to practitioners - based on overcoming obstacles to change - and facilitators of integrating addiction medicine education into medical school and residency curricula, will be described. Conclusion: The presentation will conclude with an overview of how initiatives in which the authors have been involved may be used to improve addiction medicine education.

Tilling the Soil While Sowing the Seeds: Combining Resident Education with Medical Home Transformation

ABSTRACT In order to successfully integrate screening, brief intervention, and referral to treatment (SBIRT) into primary care, education of clinicians must be paired with sustainable transformation of the clinical settings in which they practice. The SBIRT Oregon project adopted this strategy in an effort to fully integrate SBIRT into 7 primary care residency clinics. Residents were trained to assess and intervene in their patients’ unhealthy substance use, whereas clinic staff personnel were trained to carry out a multistep screening process. Electronic medical record tools were created to further integrate and track SBIRT processes. This article describes how a resident training curriculum complemented and was informed by the transformation of workflow processes within the residents’ home clinics.

Ecological scenario building guides policy in North America

The Pacific Northwest Ecosystem Research Consortium (funded primarily by the US Environmental Protection Agency) is soon to release an atlas of ecological scenarios for Oregon. The project maps out current land use and land cover at the quarter acre resolution, and then produces three different maps of the future assuming different ecological trajectories (http://www.fsl.orst.edu/pnwerc/wrb/atlas/atlas_toc.html). The three alternative scenarios are an aggressive development scenario, a conservation scenario and a business-as-usual scenario. These ‘future maps’ make clear to both the public and decision-makers that choices available now will have consequences in the future.In addition, the project also produces a map depicting conditions in 1850. All the maps are then interpreted in terms of what they imply for effects on ecological conditions. The Oregon project is noteworthy because it is probably the finest-scale scenario analysis yet completed, and the one most soundly based on measured data. The use of alternative scenarios is becoming increasingly popular in environmental decision making, because scenarios bundle together assumptions and values in coherent packages that are easier to understand than are complex models with innumerable permutations of parameters. PK

Radio-TV Journalism Curriculum: First Jobs and Career Preparation

It has been more than a decade since the heralded Oregon project Planning Curricular Change in Journalism Education-commonly referred to as the Oregon Report (1983)-drove a deep wedge between the concepts of a general journalism education and a professionally education. In late 1996, to help bridge the gap between mass communication programs and the profession, a task force of the Society of Professional Journalists funded by NBC news reporter Jane Pauley made numerous recommendations regarding broadcast education. However, the study primarily used broadcast executives as resources to study the principal question of the preparedness of entry-level journalists (Tomorrow's Broadcast Journalists: A Report and Recommendations from the Jane Pauley Task Force on Mass Communication Education, 1996). This study is unique because it provides a nationwide examination of the opinions of both industry professionals and educators specifically regarding broadcast curriculum. Furthermore, this study reveals the first time an agreement between academics and professionals on the approach to the best broadcast journalism education. Literature review On one side of the curriculum debate are the proponents of skills-oriented education-a professional method of training students that resembles a trade school (Dorfman, 1984; Friendly, 1984). On the other side are advocates of a broad-scoped liberal arts education (Planning For Curricular Change in Journalism Education, 1984; Planning For Curricular Change in Journalism Education, 1987; Mullins,1987; Dickson and Sellmeyer, 1992). Their beliefs are grounded in neohumanism, the founding principles of the university. Neohumanism was a direct descendent of humanism stemming from the study of classical culture and culture during the Middle Ages and was one of the driving forces behind the Renaissance. Neohumanists view the human being as a learner, recognizing the primacy of cultivating the intellect but assuming a dualism of mind and body, thought and action, and reason and emotion (Crookston, 1975; Knock, Rentz and Penn, 1989, p. 117). Based on this, neohumanists would argue that some college students are not receiving education at all. Instead, they are participating in a lower order of study in a university environment (Gossman,1990). This lower order cultivates human capacities for the useful knowledge and practical skills required by the majority the dayto-day business of life, trade, industry or agriculture (Gossman, 1990, p. 105). Neohumanist theory still drives the concept of liberal arts education today. Students who focus their attention on liberal arts disciplines such as philosophy or history are engaged, according to Neohumanists, in a true order of study. Some students, however, aspire to pursue careers in skills-oriented professions, such as broadcast journalism. To prepare students these disciplines, many universities or colleges offer skillsoriented courses in the respective areas of study. The debate over university education, in a sense, surrounds the issue of which capacities should be developed in the university-the lower order; both the lower and order; or, as it was originally intended, only the order capacities of students. Most scholars argue that broadcast curricular should not remain at status quo, but that a change is coming or is desperately needed (Planning For Curricular Change in Journalism Education, 1983; Dorfman,1984; Friendly, 1984; Planning For Curricular Change in Journalism Education, 1987; Mullins, 1987; Dickson and Sellmeyer, 1992; Tomorrow's Broadcast Journalists: A Report and Recommendations from the Jane Pauley Task Force on Mass Communication Education, 1996). Prior to the release of the Oregon Report (1983), McBath and Burhans contradicted the persisting myth that higher education is largely non-career oriented while arguing that, regardless of the educational system, the most viable program would satisfy requirements both liberal perspective and professional competence (McBath and Burhans,1978, p. …

Oregon's experiment.

Oregon's systematic design for universal access to health care, known as the Oregon Basic Health Services Act, has provoked heated debate over its rationale, plan and process. It is a novel attempt to address inequities in the distribution of health care for those below the federal poverty level. Its controversial nature compels more informed discussion to guide further analysis. Accordingly, this report is primarily descriptive, aiming to provide a clear synopsis of the Oregon project's history, complex methodology, and strengths and weaknesses.

The Oregon project for visually impaired and blind preschool children (or. project). Revised edition

Infant Mental Health JournalVolume 4, Issue 2 p. 126-127 Test Critique The Oregon project for visually impaired and blind preschool children (or. project). Revised edition Sanda Pfander S. Psy. S., Sanda Pfander S. Psy. S. School Psychologist, Carrollton Public Schools Carrollton, MISearch for more papers by this author Sanda Pfander S. Psy. S., Sanda Pfander S. Psy. S. School Psychologist, Carrollton Public Schools Carrollton, MISearch for more papers by this author First published: Summer 1983 https://doi.org/10.1002/1097-0355(198322)4:2<126::AID-IMHJ2280040207>3.0.CO;2-WAboutPDF ToolsRequest permissionExport citationAdd to favoritesTrack citation ShareShare Give accessShare full text accessShare full-text accessPlease review our Terms and Conditions of Use and check box below to share full-text version of article.I have read and accept the Wiley Online Library Terms and Conditions of UseShareable LinkUse the link below to share a full-text version of this article with your friends and colleagues. Learn more.Copy URL Share a linkShare onFacebookTwitterLinked InRedditWechat No abstract is available for this article. Volume4, Issue2Summer 1983Pages 126-127 RelatedInformation

Permanency Planning: An Overview

Most of the pioneering work in relation to permanency planning has been carried out in Oregon by the Regional Research Institute for Human Services and the State Children's Services Department. As the Oregon project has been documented in great detail in five excellent volumes: 1. Barriers to Planning for Children in Foster Care (1976) Regional Research Institute for Human Services Portland State University;2. Overcoming Barriers for Children in Care, (Emlen et al. 1977);3. Permanent Planning for Children in Foster Care: A Handbook for Social Workers (Pike et al.) 1977);4. Permanent Planning in Foster Care: A Guide for Programme Planners (Dreyer, 1978);5. Permanent Planning in Foster Care: Resources for Training (Downs &amp; Taylor, 1978); and as the utilisation of the Oregon model has been encouraged by the allocation of federal funds to those States wishing to develop it for their own use, it seems appropriate to examine the model and its operation in some detail. Following this, efforts to develop permanency planning elsewhere will be examined and analysed.