Searching For Health Information Online Research Articles

Predictors of Cyberchondria During the COVID-19 Pandemic: Cross-sectional Study Using Supervised Machine Learning.

Cyberchondria is characterized by repeated and compulsive online searches for health information, resulting in increased health anxiety and distress. It has been conceptualized as a multidimensional construct fueled by both anxiety and compulsivity-related factors and described as a "transdiagnostic compulsive behavioral syndrome," which is associated with health anxiety, problematic internet use, and obsessive-compulsive symptoms. Cyberchondria is not included in the International Classification of Diseases 11th Revision or the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, and its defining features, etiological mechanisms, and assessment continue to be debated. This study aims to investigate changes in the severity of cyberchondria during the COVID-19 pandemic and identify the predictors of cyberchondria at this time. Data collection started on May 4, 2020, and ended on June 10, 2020, which corresponds to the first wave of the COVID-19 pandemic in Europe. At the time the study took place, French-speaking countries in Europe (France, Switzerland, Belgium, and Luxembourg) all implemented lockdown or semilockdown measures. The survey consisted of a questionnaire collecting demographic information (sex, age, education level, and country of residence) and information about socioeconomic circumstances during the first lockdown (eg, economic situation, housing, and employment status) and was followed by several instruments assessing various psychological and health-related constructs. Inclusion criteria for the study were being at least 18 years of age and having a good understanding of French. Self-report data were collected from 725 participants aged 18-77 (mean 33.29, SD 12.88) years, with females constituting the majority (416/725, 57.4%). The results showed that the COVID-19 pandemic affected various facets of cyberchondria: cyberchondria-related distress and compulsion increased (distress z=-3.651, P<.001; compulsion z=-5.697, P<.001), whereas the reassurance facet of cyberchondria decreased (z=-6.680, P<.001). In addition, COVID-19-related fears and health anxiety emerged as the strongest predictors of cyberchondria-related distress and interference with functioning during the pandemic. These findings provide evidence of the impact of the COVID-19 pandemic on cyberchondria and identify factors that should be considered in efforts to prevent and manage cyberchondria at times of public health crises. In addition, they are consistent with a theoretical model of cyberchondria during the COVID-19 pandemic proposed in 2020. These findings have implications for the conceptualization and future assessment of cyberchondria.

Question-aware transformer models for consumer health question summarization.

Searching for health information online is becoming customary for more and more consumers every day, which makes the need for efficient and reliable question answering systems more pressing. An important contributor to the success rates of these systems is their ability to fully understand the consumers' questions. However, these questions are frequently longer than needed and mention peripheral information that is not useful in finding relevant answers. Question summarization is one of the potential solutions to simplifying long and complex consumer questions before attempting to find an answer. In this paper, we study the task of abstractive summarization for real-world consumer health questions. We develop an abstractive question summarization model that leverages the semantic interpretation of a question via recognition of medical entities, which enables generation of informative summaries. Towards this, we propose multiple Cloze tasks (i.e. the task of filing missing words in a given context) to identify the key medical entities that enforce the model to have better coverage in question-focus recognition. Additionally, we infuse the decoder inputs with question-type information to generate question-type driven summaries. When evaluated on the MeQSum benchmark corpus, our framework outperformed the state-of-the-art method by 10.2 ROUGE-L points. We also conducted a manual evaluation to assess the correctness of the generated summaries.

What are the information needs and concerns of individuals with Polycystic Kidney Disease? Results of an online survey using Facebook and social listening analysis

BackgroundPolycystic Kidney Disease (PKD) is a hereditary disorder that has no cure and can result in end stage kidney failure. Searching for health information online and via social media is a common phenomenon in many medical conditions. However, no recent studies have documented the information needs, online behaviours, and concerns of people with PKD. The aim of this study was to explore the information needs of individuals with PKD and their carers by documenting (i) the information needs (ii) online information health seeking behaviours (iii) the perceived challenges of living with PKD and (iv) dietary concerns.MethodsA 17-item survey was constructed by undertaking a social listening analysis. This survey was then distributed via PKD related social media groups on Facebook. Seven groups distributed the survey with permission from the group owners. Open free text survey questions were analysed thematically using content analysis.ResultsA total of 536 respondents completed the online survey (70.9 % female, 77 % aged 35–70, 70.2 % diagnosed more than 10 years ago). The major information need expressed by participants with PKD was for dietary information. Information regarding medications, medical management and symptom control were also desired. The overarching themes arising from the free text responses to the major challenge of living with PKD included ‘learning to navigate dietary ambiguities’; ‘managing social, psychological and emotional needs’; and ‘accepting an uncertain future’. In addition to a strong desire for practical and specific dietary information, participants expressed a need for more online information pertaining to management of fatigue, pain, complications and how to manage mental health. Online peer support was also highly regarded and desired.ConclusionsThis study provides contemporary insights into the type of information desired by people with PKD. The results indicated that there was a strong desire for unambiguous information and guidance from health professionals to facilitate self-management, alleviate concerns, and address the complexities of living with Polycystic Kidney Disease. While diet is an important and frequently expressed need, there also remains a large demand for information on how to support psychological needs, and on medical management in order to support treatment decision making. Future work is required to develop specific, actionable and evidence-based resources for patients that are available online and through health professionals. Increased access to renal dietitians, peer support and additional training for health professionals could also improve patient-centered care and support self-management.

Factors Related to Internet Adoption and Its Use to Seek Health Information in Mexico

ABSTRACT The Internet has the potential to be a valuable resource for the dissemination of health promotion information to the general population, mainly in conditions with well-developed health and digital literacy. Few studies have been undertaken on the adoption of the Internet by the Mexican population and its use to seek health information. The aim of this paper was to identify the factors that determine Internet adoption and its use by the heads of Mexican households for obtaining health information. This study used data taken from a probabilistic and cross-sectional national survey (National Survey on the Availability and Use of Information Technologies in Households, or ENDUTIH), applying an economic approach based on utility maximization theory. We estimated a univariate probit model for Internet adoption and a consecutive bivariate probit model with sample selection for the use of the Internet to seek health information. The software package was used to adjust and estimate the proposed models. The first model (Internet adoption) identified several factors related to digital divides in the country, while the second (Internet use to seek health information) identified various factors influencing online searches for health information, such as the following: being a woman; being an adult; having a higher level of education; having a higher income; having superior digital skills; and, living in an urban area. This study highlights the need to strengthen digital policy in order to improve access to and the adoption and efficient use of the Internet, particularly in terms of improving an individual’s engagement with their own health.

E-health. Patterns of use and perceived benefits and barriers among people living with HIV and their physicians. Part 1: Information retrieval on the Internet and social networks

ObjectivesTo identify patterns of use, perceived benefits, and barriers among people living with HIV (PLHIV) of online searches for health information and via social media. MethodsOnline multicentre observational survey (October 15th–19th, 2018). ResultsStudy participation was accepted by 838/1377 PLHIV followed in 46 centres, of which 325 (39%) responded online: 181 (56%) had already used the Internet to search for health information; 88/181 (49%) on HIV infection and 78 (43%) on nutrition. These 56% were characterised by a higher educational level (OR=1.82±0.50; P=0.028) and more often consulted other specialists (OR=3.14±1.26; P=0.004). A subset of 87/180 (48%) PLHIV had changed the way they looked after their health based on their online research, and were more often in material/social deprivation (P=0.02) and diabetic (P=0.02). A small subset of 19/180 (11%) had already asked or answered a question on a forum; these people tended to be women (P=0.03) in material/social deprivation (P=0.009). 296/322 (92%) PLHIV trusted their physician whereas only 206 (64%) trusted information sourced on medical websites. 238/323 (74%) PLHIV expected their physicians to recommend websites if asked, whereas only 23/323 (7%) had actually been given this guidance. ConclusionMore than half of PLHIV surveyed had already searched for health information on the Internet, and one in two had changed their behaviour based on the online search. PLHIV did not see the Internet as an alternative to physicians but they wanted their physicians to guide them on how to find quality health information to better self-manage their condition.

Somebody Google a Doctor! Urgent Health Information Seeking Habits of Young Adults

Introduction: While much scholarship has been done on health information-seeking habits, comparatively little has been done on these habits among young adults. Objective: The primary objective of this study was to determine to which media young adults turn during an urgent health crisis, which factors correspond to their choice, and if information-seeking corresponded to visiting a health professional. Method: A survey method was used, sampling students from two large universities. Results: Credibility was the most consistent factor in predicting respondent media choice for an urgent health matter. Whether respondents were socially conservative or liberal affected media choice, as did perceptions of online and traditional media credibility. Searching for health information online corresponded to more frequently visiting health professionals. Conclusion: This study supports that young adults turn to a variety of media sources, traditional and online, during health crisis and that this information-seeking does correspond to visiting health professionals after.

Internet addiction and cyberchondria - Their relationship with Well-Being

The current paper presents the results from some research on the relationship between In-ternet addiction, cyberchondria, and different aspects of well-being. The information available on the Internet, which is not necessarily truthful and accurate, can unreasonably amplify users health concerns. Problematic Internet use, health anxiety aroused by online searches for health information and escalation of health concerns as an indicator of cyberchondria, are all associated with a decrease in subjective and eudaimonic well-being as well as in self-esteem. The analyses indicate positive relationships between depressive symptoms on the one hand, and Internet ad-diction and health anxiety, on the other. A conclusion regarding the existence of a relationship between Internet addiction, cyberchondria and decreased levels of well-being could be drawn from the research. Furthermore, the results suggest that self-esteem and eudaimonic well-being correlate positively with the number of people with whom users communicate online.

Cyberchondria and its Relationships with Related Constructs: a Network Analysis.

Cyberchondria denotes repeated online searches for health information that are associated with increasing levels of health anxiety. The aims of this study were to apply network analysis to investigate the extent to which cyberchondria is a distinct construct, ascertain which of the related constructs have the strongest relationships with cyberchondria and investigate whether some of the symptoms of cyberchondria are more central to the construct of cyberchondria. Questionnaires assessing the severity of cyberchondria, health anxiety, obsessive-compulsive disorder symptoms, intolerance of uncertainty, problematic Internet use, anxiety, depression and somatic symptoms were administered to 751 participants who searched for health information online during a previous 3-month period and were recruited from an online crowdsourcing platform. Network analyses were used to compute the networks, perform community detection tests and calculate centrality indices. Results suggest that cyberchondria is a relatively specific syndrome-like construct, distinct from all related constructs and consisting of interrelated symptoms. It has the strongest relationships with problematic Internet use and health anxiety. No symptom of cyberchondria emerged clearly as more central to the construct of cyberchondria. Future research should aim to deepen our understanding of cyberchondria and its links with psychopathology, especially its close relationship with problematic Internet use.

Searching for Information on the Risks of Combined Hormonal Contraceptives on the Internet: A Qualitative Study Across Six European Countries.

BackgroundSearching for health information online is increasingly common and is an obvious source of information about oral combined hormonal contraceptives (CHCs) and their risks. However, little is known about how publicly available websites address the risks of CHCs, particularly venous thromboembolism (VTE).ObjectiveThe aim was to explore the information available to women about VTE and other risks of CHCs on websites available through commonly used search engines.MethodsA qualitative study was conducted to explore whether and how websites about CHCs in Denmark, Germany, Netherlands, Slovakia, Spain, and the United Kingdom make reference to VTE and other CHC risks. A systematic search procedure was adopted across the six countries, based on relevant keywords. The search was carried out using the Google search engine by fluent/native speakers of each language. A content analysis approach was conducted to extract information from the selected websites.ResultsA total of 357 websites were reviewed. Nearly all (343/357, 96.1%) the websites mentioned VTE as a risk of CHCs, with approximately half referring to other side effects as well. One-fifth (92/357, 25.8%) of the websites provided suggestions about the best contraceptive method to use, and only a minority (23/357, 6.4%) recommended women discuss CHCs with their health professionals. Sites were generally run by the media (110/357 30.8%) or medical services from nongovernmental organizations (140/357, 39.2%). Only a minority of websites referred to organizations such as the European Medicines Agency (11/357, 3.1%).ConclusionsDespite the large number of websites containing information about oral CHCs and their risks, particularly VTE, only a limited number referred to information from accredited health agency sources. We argue this is a missed opportunity for accredited health agencies to share high-quality information to assist women using CHCs to make informed decisions about contraception.

Individuals with Chronic Conditions Want More Guidance from Health Professionals in Finding Quality Online Health Sources

Objective – To explore how and when individuals with chronic health conditions seek out health information online, and the challenges they encounter when doing so.&#x0D; &#x0D; Design – Qualitative study employing thematic analysis.&#x0D; &#x0D; Setting – Urban Western Australia.&#x0D; &#x0D; Subjects – 17 men and women between 19 and 85 years of age with at least 1 chronic health condition.&#x0D; &#x0D; Methods – Participants were recruited in late 2013 at nine local pharmacies, through local radio, media channels, and a university's social media channels. Participants were adult English speakers who had looked for information on their chronic health condition(s) using the Internet. Semi-structured face-to-face interviews were conducted with each participant, audio recorded, and transcribed. The transcripts were coded in QSR Nvivo using two different processes – an initial data-driven inductive approach to coding, followed by a theory driven analysis of the data. &#x0D; &#x0D; Main Results – Three major themes emerged: trust, patient activation, and relevance. Many of the participants expressed trust both in health professionals and in the efficacy of search engines like Google. However, there was uncertainty about the quality of some of the health information sources found. Searching for information online was seen by some participants as a way to feel more empowered about their condition(s) and treatment, but they reported frustration in finding information that was relevant to their specific condition(s) given the volume of information available. Low health literacy emerged in participant interviews as an intrinsic barrier to effective online searches for health information, along with low patient motivation and lack of time. The many extrinsic barriers identified included difficulty determining the quality of information found, the accessibility of the information (e.g., journal paywalls), and poor relationships with health care providers.&#x0D; &#x0D; Conclusion – Individuals look for online health information to help manage their chronic illnesses, but their ability to do so is influenced by their levels of health literacy and other external barriers to effective online navigation. Consumers may prefer to receive recommendations from health professionals for high quality health websites rather than training in how to navigate and identify these resources themselves.

Assessing The Quality of Trust Features on Website Content of Top Hospitals for Medical Tourism Consumers

Searching for health information online is one of the most common activities on the internet; therefore, continuous evaluation of the quality of information provided in these health websites is indeed important. In the context of medical tourism, trust is a particularly important feature of quality information. This becomes even more significant online as customers have to trust the information on the website, since tourism products are characterized by high intangibility before consumption. Although trust plays an essential role among health care providers and individuals who are seeking health care information; there is a question about what happens to trust once health information goes online. One possible reason is that people who seek information from web sites figure a sense of trust in the web sites they visited. As such, this research will assess the quality of trust features of the top 10 medical tourism website. Findings of the research showed variation in the level of quality of trust features on the web site with Gleneagles Hospital fulfilling the highest score of trust features, while the Asklepios Klinik Barmbek website scored the least. The findings of this study have significant implications for web site developers and medical tourism consumers.

Trustworthy guidelines - excellent; customized care tools - even better.

BackgroundThe ability to do online searches for health information has led to concerns that patients find the results confusing and that they often lead to expectations for treatments that have little supportive evidence. At the same time, the science of summarizing research evidence has advanced to the point where it is increasingly possible to quantify treatment tradeoffs and to describe the balance between harms and benefits for individual patients.DiscussionTrustworthy clinical practice guidelines provide evidence-based recommendations to health care practitioners based on assessments of study-level averages. In an effort to customize the use of evidence and ensure that choices are consistent with their personal preferences, tools for patients have been developed. Gradually, there is recognition that the audience for high quality evidence is much wider than merely health care professionals – and that there is a case to be made for creating tools that translate existing evidence into tools to help patients and clinicians work together to decide next steps.SummaryWe observe two processes occurring: first, is the recognition that decision making in healthcare requires collaboration and deliberation, and second, to achieve this, we need tools designed to customize care at the level of individuals.

Searching for health information online: characteristics of online health seekers

To investigate the use of, and willingness to use, the internet for health information purposes in Ireland, with a particular focus on the demographic and mental health of users and non-users. Data from the Health Research Board National Psychological Wellbeing and Distress Survey were analyzed. This telephone survey included 2711 adults aged 18 years and over living in private households in Ireland. Internet use was measured using three items: past use, use specifically for health information, and willingness to use the internet in the future. Current psychological wellbeing was measured using the 12-item General Health Questionnaire. In addition, mental health problems in the previous year were measured. Sociodemographic variables examined included age, gender, employment status, and education. Online health-seeking differed significantly by gender, age, employment status, and educational level. A substantial proportion of internet users with poor mental health were found to have searched for health information online. A high willingness to use the internet for health information in the future by non-users was reported. This study has shown that those with mental health problems use the internet to search for health information more often than those who have not experienced such problems. It has also shown that there is still a digital divide in terms of online health seeking, which is influenced by age, gender, education, and employment status. These findings highlight the need to address access, technological, psychological, and perceptual issues that may present barriers to the use of online health seeking.

Development of Theory-based, Online Health Learning Modules for Older Adults

Recently, the number of older adult online users has increased rapidly. In 2004, 22% of Americans aged 65 years or older (about 8 million) used the Internet, and 66% of them performed online searches for health information. The Web, therefore, can serve as a useful medium to educate older adults on selected health topics. In this study, the researchers developed four Web-based learning modules related to hip fracture prevention and tested the usability of these modules employing eight older adult online users. The findings from the usability tests demonstrated that the online learning modules were usable to the older adult participants. Additionally, these individuals could acquire health knowledge using these online modules. The important lessons learned through the research process will assist the researchers in conducting further studies in using health Web learning modules for older adults. A further study will be conducted to test the effects of these modules on preventing hip fractures.