Online Consumer Health Research Articles

Dietary and herbal supplement consumer health information for pain: A cross-sectional survey and quality assessment of online content

BackgroundPatients are increasingly utilizing the internet to learn about dietary and herbal supplements (DHSs) for various diseases/conditions, including pain management. Online health information has been found to be inconsistent and of poor quality in prior studies, which may have detrimental effects on patient health. This study assessed the quality of online DHSs consumer health information for pain. MethodsSix search items related to DHSs and pain were used to generate the first 20 websites on Google across four English-speaking countries. The identified 480 webpages produced 68 eligible websites, which were then evaluated using the DISCERN tool. The mean scores and standard deviations (SD) of the reviewers’ ratings on each of the 15 DISCERN instrument items as well as the overall total score were calculated. ResultsThe mean summed score for the 68 eligible websites was 46.6 (SD = 10.1), and the mean overall rating was 3.3 (SD = 0.8). Websites lacked information regarding areas of uncertainty, the effects of no treatment being used, and how treatments affect the overall quality of life. These shortcomings were especially apparent across commercial websites, which frequently displayed bias, failed to report the risks of DHS products, and lacked support for shared decision-making regarding the use of DHSs. ConclusionVariability exists in the quality of online consumer health information regarding DHS use for pain. Healthcare providers should be aware of and provide guidance to patients regarding the identification of reliable online resources so that they can make informed decisions about DHS use for pain management.

Impact and perceived value of iGeriCare e-learning amongst dementia care partners and others: Pilot evaluation using the IAM4all questionnaire.

Care partners of people living with dementia may benefit from online education. We developed iGeriCare, an award-winning internet-based platform with 12 multimedia e-learning lessons about dementia. Our objective was to evaluate users' perceptions of impact. From March 17, 2021-May 16, 2022, data were collected upon lesson completion. We used the content-validated Information Assessment Method for patients and the public (IAM4all) adapted for dementia care partners. The IAM4all questionnaire assesses outcomes of online consumer health information. Responses were collected using SurveyMonkey and data was analyzed using IBM SPSS Statistics (v.28). 409 responses were collected, with 95% of survey respondents completing the survey. 179 of 409 (43.8%) identified as a family or friend care partner, and 84 of 409 (20.5%) as an individual concerned they may have mild cognitive impairment (MCI) or dementia. 380 of 409 (92.9%) identified the lesson as relevant or very relevant, and 403 of 409 (98.5%) understood the lesson well or very well. Over half of respondents felt they were motivated to learn more, taught something new, or validated in what they do, while some felt reassured or that the lesson refreshed their memory. 401 of 409 (98.0%) said they would use the information; in particular, to better understand something, discuss the information with someone else, do things differently, or do something. Users identified iGeriCare as relevant, beneficial, and that they would use the information. To our knowledge, this is the first time the IAM4all has been used to assess patient and caregiver feedback on internet-based dementia education resources. A randomized controlled trial to study feasibility and impact on caregiver knowledge, self-efficacy, and burden is in progress.

EHealth literacy among online health consumers in Jordan

PurposeThis study aims to examine the eHealth literacy level among online health consumers (OHC) in Jordan and identified variables predicting their eHealth literacy level as well.Design/methodology/approachA quantitative study was conducted to achieve the study objectives. A purposeful sample of 262 OHC completed an electronic version of the eHealth literacy scale (eHEALS). eHEALS is the most cited scale in the literature, which includes eight items (measured on a 5-point Likert scale, ranging from strongly disagree to strongly agree).FindingsResults showed that OHC in Jordan had a moderate level of overall eHealth literacy. Specifically, the eHEALS formed two conceptually sound factors. Gender, occupation, perceived usefulness and perceived importance of the internet, and more frequent online health information seeking were significant positive predictors of overall eHealth literacy and/or its two identified dimensions.Research limitations/implicationsThis study represents a humble contribution to the field. Several recommendations were suggested to maintain and improve eHealth literacy among OHC in Jordan.Originality/valueThe internet has changed the landscape of health information. There is an increase in the provision and availability of health information to all users. OHC should be skillful in locating, using and evaluating online health information. Although many researchers have increasingly studied the concept of eHealth literacy among various groups in the past decade, little research has been devoted to focus on eHealth literacy among OHC, particularly in Jordan.

Mapping Pregnancy Resources Available Online to LGBTQIA+ Health Consumers

LGBTQIA+ people building families face many health service barriers, often turning to online consumer health information in addition to or instead of navigating heteronormative and cisnormative health care systems. This research evaluated available online resources about family building for LGBTQIA + health consumers, in order to improve awareness of quality resources among librarians, while also highlighting an existing information research and services gap. Librarians located resources that explicitly addressed pregnancy and assisted reproduction information needs of the LGBTQIA + community. Included resources focused on pregnancy and assisted reproduction; excluded resources focused on sexual health, contraception, or unwanted pregnancies. Identified resources were assessed by findability (ease of locating), readability, accessibility, understandability, actionability, and inclusivity.

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COVID-19 information-related digital literacy among online health consumers in a low-income country

Outcomes of searching for online health and parenting information on behalf of others: A mixed methods research study.

Context: Use of trustworthy online consumer health information (OCHI) is generally associated with benefits, yet barriers such as low health literacy may reduce these benefits. One of the largest groups of OCHI consumers is parents of young children. In addition to OCHI, parents reach out to their social circle for tailored advice, emotional support, and culturally relevant parenting information. However, little is known, about the use of parenting OCHI by the parents' social circle. Objective: To uncover OCHI outcomes when members of parents' social circle search for OCHI. Study Design: Convergent mixed methods study. Setting: Online parenting and child health information newsletter and magazine, available at naitreetgrandir.com (N&G). Population studied: Participants who completed a questionnaire about the information presented by N&G between April 13th, 2019 to March 30th, 2021. Instrument: The validated Information Assessment Method (IAM) questionnaire, implemented by N&G since 2015. Main outcome measures: IAM responses on OCHI outcomes by participants were analyzed using descriptive statistics, and responses compared between parents and their entourage (grandparents, family, friends and neighbours). Qualitative component: 14 parents' entourage members were interviewed to uncover perceived OCHI outcomes (up to saturation) and thematic analysis was conducted. Quantitative and qualitative components were conducted and analysed separately; results were compared using a joint display to provide a complete picture. Results: 51,320 completed IAM questionnaires (81% by parents) were included in the analysis, pertaining to 1079 N&G webpages (mean 47.6; range 1-637). Entourage members were more likely than parents to report using the information in a discussion with someone else and this led them to being better able to make a decision with those persons. Interviewees described sharing the information they found in some situations or not sharing it to avoid conflict. They used the information to provide support or do something for the parent(s) or child. Sharing information led to improved decision making, improved relationships, less worry and better health outcomes, or in some cases led to tensions. Conclusion: By better understanding how people use information together, health information can be adapted to meet both individual and group needs. Public health interventions aimed at supporting parents can do so by facilitating shared decision making.

Personalized content recommendation in online health communities

PurposeRecommending suitable content for users of online health communities (OHCs) is critical for overcoming information overload problem and facilitate medical decision making, but remains not fully investigated. This study aims to provide a content recommendation approach to automatically match valuable health-related information for OHC members.Design/methodology/approachA framework of health-related content recommendation was proposed by leveraging rich social information in online communities. The authors constructed user influence relationship (UIR) utilizing users' interaction records, user profiles and user-generated content. The initial user rating matrix and the user post matching matrix were then created by analyzing text content of posts. Finally, the user rating matrix and the recommended content were generated for community members. Datasets were collected from an OHC to evaluate the effectiveness of the proposed approach.FindingsThe experimental results revealed that the proposed method statistically outperformed baseline models in content recommendation for users of OHCs.Research limitations/implicationsThe incorporation of social information can significantly enhance the performance of content recommendation in OHCs. The user post matching degree based on text analysis can improve the effectiveness of recommendation.Practical implicationsThis study potentially contributes to the social support exchange and medical decision making of community members and the sustainable prosperity of OHCs.Originality/valueThis study proposes a novel social content recommendation method for online health consumers based on UIRs by leveraging social information in OHCs. The results indicate the significance of social information in content recommendation of healthcare social media.

Dietary and herbal supplements for fatigue: A quality assessment of online consumer health information

BackgroundThe Internet is increasingly utilized by patients to acquire information about dietary and herbal supplements (DHSs). Previously published studies assessing the quality of websites providing consumer health information about DHSs have been found to contain inaccuracies and misinformation that may compromise patient safety.. The present study assessed the quality of online DHSs consumer health information for fatigue. MethodsSix unique search terms were searched on Google, each relating to fatigue and DHSs, across four countries. Across 480 websites identified, 48 were deemed eligible and were quality assessed using the DISCERN instrument, a standardized index of the quality of consumer health information. ResultsAcross 48 eligible websites, the mean summed score was 47.64 (SD = 10.38) and the mean overall rating was 3.06 (SD = 0.90). Commercial sites were the most numerous in quantity, but contained information of the poorest quality. In general, websites lacked discussion surrounding uncertainty of information, describing what would happen if no treatment was used, and how treatment choices affect overall quality of life. ConclusionPhysicians and other healthcare professionals should be aware of the high variability in the quality of online information regarding the use of DHSs for fatigue and facilitate open communication with patients to guide them towards reliable online sources.

Social Media, Grindr, and PrEP: Sexual Health Literacy for Men Who Have Sex with Men in the Internet Age

Despite continued improvements to HIV/AIDS treatment and awareness, HIV transmission rates remain high among men who have sex with men (MSM). Online consumer health information targeting high-risk MSM through social media and geosocial networking (GSN) apps have shown to be successful HIV intervention strategies. This review article addresses the efficacy and acceptance of delivering consumer health information about pre-exposure prophylaxis (PrEP) and HIV prevention through GSN apps, the impact of online and social media communities in the discussion and delivery of information about PrEP and HIV interventions, and ongoing and possible future research and the role of information professionals.

The quality of online consumer health information at the intersection of complementary and alternative medicine and arthritis

BackgroundComplementary and alternative medicine (CAM) use is prevalent among patients living with arthritis. Such patients often seek information online, for the purpose of gaining a second opinion to their healthcare provider or even self-medication. Little is known about the quality of web-based consumer health information at the intersection of CAM and arthritis; thus, investigating the quality of websites containing this information was the purpose of this study.MethodsFour unique search terms were searched on Google across four English-speaking countries. We assessed the first 20 results of each search, including them if they contained CAM consumer health information for the treatment and/or management of arthritis. Eligible websites were assessed in duplicate using the DISCERN instrument, which consists of 16-items designed to assess quality.ResultsOf total of 320 webpages, 239 were duplicates, and a total of 38 unique websites were deemed eligible and assessed using the DISCERN instrument. The mean summed DISCERN scores across all websites was 55.53 (SD = 9.37). The mean score of the overall quality of each website was 3.71 (SD = 0.63), thus the majority of websites are ranked as slightly above ‘fair’ quality.ConclusionEligible websites generally received scores better than ‘moderate’ in terms of overall quality. Several shortcomings included a lack of transparency surrounding references used and underreporting of risks associated with treatment options. These results suggest that health providers should be vigilant of the variable quality of information their patients may be accessing online and educate them on how to identify high quality resources.

COVID-19 information-related digital literacy among online health consumers in a low-income country

BackgroundThe internet has become an important source of health information among people across the globe. However, the novel coronavirus outbreak has led to a broader dissemination of fake and misleading health information. While health professionals may be able to critically evaluate internet-based information, the skills at finding, appraising, and using COVID-19-related online information may be problematic for laypeople in low-income countries. The purpose of this study was to examine the digital literacy of lay consumers of online COVID-19-related information in Ghana. MethodA cross-sectional survey was conducted among online health consumers across five regions in Ghana. Participants were conveniently recruited through social media, and the survey was based on the eHealth Literacy Scale (eHeals) and administered through Qualtricsxm software. We calculated the overall mean eHeals score to determine the literacy levels and performed descriptive statistics to describe the characteristics of the sample. Linear regression analysis was performed to determine the factors associated with respondents' digital literacy. ResultOut of 700 respondents sent with a survey link, 325 responded (46.4 % response rate). The majority of the respondents were: younger than 31 years (M = 28.42, SD = 6.98), males (59.7 %), use the internet daily (94.4 %), engaged in social media activities (65 %), and frequently search the internet for information related to COVID-19. The overall eHealth literacy was quite high (M = 4.01, SD = 0.95), but respondents' scores on items 1 and 6 were relatively low. Sex, age, frequently searching the internet for COVID-19 information, using the internet for educational purposes, and having a little/adequate knowledge of COVID-19 was predictive of digital literacy. ConclusionThe study revealed a high overall digital literacy as well as sex and age differences in literacy levels among online health consumers in Ghana. However, respondents’ ability to locate COVID-19 related informaion and their skills in differentiating scientific from unscientific internet-based information remain relatively low. These findings offer useful insight that can inform the design of inclusive internet-based preventive resources that would be accessible and understandable to laypeople across all age groups and sexes in low-income countries.

Reflections on a Decade of Promoting Consumer Health Resources at Remote Area Medical Clinics

Librarians at the East Tennessee State University (ETSU) Quillen College of Medicine Library have provided consumer health outreach services to rural and underserved populations at Remote Area Medical (RAM) clinics since 2009. These outreach services heavily depend upon and promote consumer health websites and National Library of Medicine (NLM) resources in order to reach the largest number of people at the lowest possible cost. This article will provide a brief overview of RAM clinics in Wise, VA, and Gray, TN, served by ETSU librarians for years. Additionally, this article will discuss the evolution of ETSU QCoM librarian outreach initiatives relating to these clinics over the past decade. This article includes a list of online consumer health resources used to support these initiatives as well as a list of most commonly addressed consumer health topics.

Developing an Online Consumer Health Course for Public Library Staff

The National Network of Libraries of Medicine, Greater Midwest Region (NNLM GMR) received funding to support the evaluation and development of an asynchronous consumer health information course. Requirements of this project included: incorporating recommendations from NNLM instructors, National Library of Medicine staff and public library staff; piloting the revised course with a nationwide cohort; incorporating feedback from the pilot; and delivering a second instance of the revised course. The revised course meets existing requirements for public library certification and for Level 1 certification of the Medical Library Association’s Consumer Health Information Specialization.

Teaching high school students to use online consumer health resources on mobile phones: outcome of a pilot project in Oyo State, Nigeria.

ObjectiveThis project evaluated the outcomes of training high school students to deliver consumer health information to their peers.MethodsA total of 120 students selected from 7 high schools in Oyo state, Nigeria, received 8 hours of training on consumer health literacy and peer education, which is a process of training volunteers to deliver health information to their peers. The training included hands-on activities using the students’ own mobile phones. After the training, peer educators distributed leaflets, showed consumer health information (CHI) websites to others, counseled and referred fellow students, and submitted forms describing these activities. All peer educators completed pre- and post-tests, and 10 were interviewed 4 months after training.ResultsAfter the training, the authors found improvement in the trainees’ knowledge of CHI resources and understanding of their roles as peer educators. Most peer educators (72.5%) delivered CHI to their peers after the training, primarily through sharing websites on teen health and other CHI resources. In the interviews, all peer educators reported direct benefits from participating in the project, and many stated that they knew where to find reliable health information.ConclusionVolunteer high school students can be trained to deliver CHI to their peers using mobile phones.

Patient Information Aid: An innovative educational program to improve outcomes of online consumer health information

Patient Information Aid: An innovative educational program to improve outcomes of online consumer health information

Is online consumer health information only beneficial for the wealthy and the educated? A commentary

Online consumer health information (OCHI) is being used at an unprecedented rate, and this trend is expected to continue. Most people have used OCHI, and many may have seen the outcomes of this use (either positive or negative or both). Education and income, as indicators of socioeconomic status, a re important contextual factors influencing OCHI outcomes. Much of the literature states that individuals with higher income and education are more likely to access OCHI and with this, experience better health outcomes. On the other hand, our research shows that when OCHI websites offer high-quality information that is accessible to those with low literacy levels, individuals with low socioeconomic status report as many benefits as those with higher income and education. In this commentary, we will describe the context of our research and present our findings. This work is relevant to information professionals (librarians) working with health professionals and the public, those teaching information literacy and health literacy, as well as researchers interested in information literacy and information use.

Health outcomes of online consumer health information: A systematic mixed studies review with framework synthesis.

The Internet has become the first source of consumer health information. Most theoretical and empirical studies are centered on information needs and seeking, rather than on information outcomes. This review's purpose is to explore and explain health outcomes of Online Consumer Health Information (OCHI) in primary care. A participatory systematic mixed studies review with a framework synthesis was undertaken. Starting from an initial conceptual framework, our specific objectives were to (a) identify types of OCHI outcomes in primary care, (b) identify factors associated with these outcomes, and (c) integrate these factors and outcomes into a comprehensive revised framework combining an information theory and a psychosocial theory of behavior. The results of 65 included studies were synthesized using a qualitative thematic data analysis. The themes derived from the literature underwent a harmonization process that produced a comprehensive typology of OCHI outcomes. The revised conceptual framework specifies four individual and one organizational level of OCHI outcomes, while including factors such as consumers' information needs and four interdependent contextual factors. It contributes to theoretical knowledge about OCHI health outcomes, and informs future research, information assessment methods, and tools to help consumers find and use health information.

Assessing and Improving the Use of Online Information About Child Development, Education, Health, and Well-Being in Low-Education, Low-Income Parents: Protocol for a Mixed-Methods Multiphase Study.

BackgroundThis study is born from a partnership between Web editors of Naître et grandir (N&G) and AboutKidsHealth (AKH) and researchers who developed and validated the Information Assessment Method (IAM). N&G and AKH are popular Canadian websites with high-quality comprehensive information about child development, education, health, and well-being. IAM allows parents to assess online information and provide feedback to Web editors. High-quality online consumer health information improves knowledge, self-efficacy, and health. However, low-socioeconomic status (SES) parents underuse N&G and IAM, despite these parents being more likely to report decreased worries and increased confidence as outcomes from N&G information.ObjectiveThe study is aimed to improve low-SES parents’ use of online child information and interaction with Web editors and explore subsequent health outcomes for parents and children.MethodsMultiphase mixed-methods design. Our general approach is centered on organizational participatory research. In phase 1, we will conduct a qualitative interpretive study to identify barriers and facilitators to using N&G information and to interacting with N&G editors via IAM; interview more than 10 low-SES parents about their experience with N&G and IAM and more than 10 nonusers of N&G and IAM; and use thematic analysis to identify main barriers and facilitators. In phase 2, we will integrate parents’ views (phase 1 findings) in N&G and IAM and implement a new version: IAM+N&G+. In phase 3, we will conduct a quantitative prospective longitudinal study (pre-/postimplementation monitoring of knowledge use and outcomes). We will compare the use of original (IAM and N&G) and new (IAM+ and N&G+) versions using Google Analytics variables, IAM variables, a material and social deprivation index, and demographics. We anticipate increased use post implementation (linear mixed modeling). In phase 4, we will conduct a qualitative descriptive study on outcomes of information use. We will interview more than 30 low-SES parents who receive and rate the N&G+ newsletter using IAM+ and analyze data in the form of life histories to describe how parents and children experience perceived outcomes.ResultsThe project was funded in 2017 by the Canadian Institutes of Health Research and received an ethics approval by the McGill University’s institutional review board. Data collection for phase 1 was completed in 2018. Phases 2 to 4 will be conducted until 2020. Findings from this study will also be used to develop a free toolkit, useful to all Web editors, with recommendations for improving health information for low-SES persons and interactions with them using IAM.ConclusionsThe results of this study will provide a deep understanding of how low-SES parents use online child information and interact with Web editors. Following the implementation of IAM+N&G+, results will also elucidate subsequent health outcomes for low-SES parents and children after interaction with Web editors has been optimized.International Registered Report Identifier (IRRID)PRR1-10.2196/9996

Evaluation of Online Consumer Health Information for Idiopathic Scoliosis Identified by a Google Search

This study sought to assess the quality of online consumer health information about idiopathic scoliosis. Previous studies showed that quality of online health information varies and often lacks adherence to expert recommendations and guidelines. Nevertheless, 72% of internet users seek health information online. A 2005 analysis of online scoliosis information found that the information was limited and of poor quality. Two reviewers vetted the top 10 websites resulting from a GoogleTM search for "scoliosis." Content was organized into categories and rated by three physician evaluators using a 1 - 5 scale based on quality, accuracy, completeness of information, readability, and willingness to recommend. Additional information, such as number of ads and Flesch-Kinkaid reading level, also was collected. The average overall physician score was 47.6 (75 possible). All websites included content that was mostly accurate but varied in completeness. Physicians unanimously recommended Mayo Clinic, MedicineNet, and Kids Health; none recommended the GoogleTM Knowledge Graph. The Scoliosis Research Society website reached the highest overall physician score. Readability ranged from 7th grade to college level; only that of Kids Health was below 10th grade level. Most essential information provided by the websites was accurate and generally well rated by physicians. Website ranking by physicians was inconsistent with the ranking order by GoogleTM, indicating that health seekers reviewing the top GoogleTM-ranked websites may not be viewing the websites rated highest by physicians. Physicians should consider patient literacy in website recommendations, as many have an above average literacy level.

Performance of Crowdsourcing to Monitor and Filter Relevant S c ien tific L iterature

With the ever-growing volume of scientific literature, it is challenging for researchers to stay up-to-date. This prospective study aims to engage a heterogeneous group of participants in monitoring and filtering articles on online consumer health information and measure the “crowd’s” performance to determine whether crowdsourcing could be a reliable solution.