Life Of Leprosy Patients Research Articles

Correlation Between Stigma and Quality of Life in Leprosy Patients in Mehrab Khan Region of Mashhad

Leprosy is one of the oldest chronic diseases, and similar to other infectious diseases, it causes long-term physical and social effects on the lives of patients and their families. This was a cross-sectional study conducted with 103 patients with leprosy in Mashhad in the Mehrab Khan region in March 2016. The sampling method was convenience sampling. The data was analyzed using SPSS version 19. Descriptive statistics (frequency, percentage, mean and standard deviation) and inferential tests (ANOVA, Pearson correlation, and independent t-test) were used. The results showed that the mean age of patients was 65.2±8.1 years and the mean age of developing leprosy was 15.3±7.03. There was an inverse correlation between the score of overall stigma, internal stigma, and all dimensions of quality of life that was statistically significant, except for the social dimension (r= -0.181…; P=0.067). There was an inverse correlation between the psychological dimension of quality of life and experienced stigma. The highest score of the overall quality of life was related to divorced patients with a mean score of 79.7, which was statistically significant (P=0.016) from those who were not divorced. In post-hoc test, just the difference between widow and divorced were significant regarding quality of life. According to results, there was a negative correlation between the quality of life and all aspects of stigma using the SARI tool.

Peningkatan Kualitas Hidup Penderita Kusta Dengan Menggunakan Metode Self Help Group (SHG)

Leprosy is one of the infectious diseases that cause a very complex problem, not only from a medical point of view. In addition there is a negative stigma from the community tends to cause the quality of life of people with leprosy decline. Quality of life is the concept of individual ability analysis to get a normal life associated with individual perceptions of goals and expectations, one of the measures to improve the quality of life of leprosy is by doing Self Help Group (SHG) therapy. This study aims to determine the quality of life in people with leprosy. The design of this research using pra experiment with pretest-posttest design approach. The samples were taken with the techniques of cluster random sampling as much as 15 respondents. Tool used WHOQOL-BREF questionnaire containing 26 questions. Patients with leprosy prior to being given Self Help Group (SHG) from 15 respondents mostly experience poor quality of life 7 people (46,7%), leprosy patient after given Self Help Group (SHG) that from 15 respondents mostly experience quality of life is 5 people (33.3%). The test used is using Wilcoxon Signed Rank Test. p value = 0,007 and α = 0,05 so Ha is accepted, it means there is influence Self Help Group therapy (SHG) to quality of life in leprosy patients in tanjungkenongo village sumberglagah kec. Pacet kab. Mojokerto. Self Help Group (SHG) is a group or peer where each member share the same physical or emotional issues or specific issues where they work together to share problems and choose what will be the focus of solving group members, helping each other in motivating to create a sense of prosperity.

KUALITAS HIDUP PENDERITA KUSTA BERBASIS TEORI HEALTH BELIEF MODELS (HBM)

Introduction: Leprosy was a chronic infectious disease that affects the quality of life of patients. Many factors could affect the quality of life of people with leprosy, but there was no specific research that analyzed factors related to quality of life of people with leprosy based on Health Belief Models theory (HBM). This study aimed to analyze factors that related to quality of life of people with leprosy based on Health Belief Model theory (HBM) in Public Health Center in North Surabaya. Methode: This study used descriptive analytic correlational with cross-sectional approach. Sample in this study were 30 patients with leprosy at public health center in North Surabaya. The independent variabels were individual perceived depend on HBM theory and dependent variabel was Quality of Life of Leprosy patients. Data were collected by interviews and using questionnaire. The instrument for collecting Quality of life using WHOQOL BREF and for collecting individual perception using a questionnaire derived from HBM theory. Data were analyzed used statistical Logistic Regression test (p<0,05). Result and Analysis: People with leprosy in public health care in region of North Surabaya 83.3% had good quality of life. There was correlation between quality of life with perceived susceptibility (p = 0.013) and perceived of seriousness (p = 0.004). There is was no correlation that found between quality of life with perceived benefit (p = 0.638) and perceived barriers (p = 0.334). Perceived susceptibility and perceived seriousness could be factors that affect quality of life of people with leprosy. Discussion: It needs to do a research about quality of life of patients with leprosy based on HBM theory using questionnaire that has been tested for validation to determine factors that affect quality of life of patient with leprosy.Keywords: Leprosy, quality of life, HBM, individual perceptions

Pain and quality of life in leprosy patients in an endemic area of Northeast Brazil: a cross-sectional study.

BackgroundPain emerges as a challenge in the treatment of leprosy patients. In this study, we describe the prevalence and type of pain in patients with leprosy, and its effect on patients’ quality of life in an endemic area of Northeast Brazil.FindingsA cross-sectional survey of 260 patients attending leprosy reference centres in Sergipe, Northeast Brazil was conducted. Individuals were assessed for the presence and type of pain, skin sensory loss, peripheral nerve enlargement, touch and pinprick sensations, mechanical allodynia and nerve palpation. Participants completed the Douleur Neuropathique 4 questionnaire, and we also used the Brief Pain Inventory scale and the World Health Organization Quality of Life-BREF instrument to arrive at our results. One hundred and ninety-five (75 %) patients reported pain, mostly of the neuropathic type. Pain was moderate in 84 (43.1 %) and severe in 94 (48.2 %) participants. The presence of pain was associated with disability (p = 0.001), leprosy reactions (p = 0.004) and lower quality of life. Most patients with neuropathic pain were treated with steroids, despite their low efficacy for this type of pain.ConclusionPain is highly prevalent among leprosy patients and is associated with low quality of life. Leprosy management should include a systematic assessment of the type of pain a patient experiences in order to provide adequate treatment.Electronic supplementary materialThe online version of this article (doi:10.1186/s40249-016-0113-1) contains supplementary material, which is available to authorized users.

Psychological distress and quality of life in leprosy patients with neuropathic pain

Leprosy is widely known because of progressive damage to the peripheral nerves. In spite of multidrug therapy, some patients develop chronic neuropathic pain after bacteriological cure. Chronic pain is associated with psychological distress and is also an important predictor of poor quality of life. The aim of this study is to assess psychological distress in leprosy patients with chronic neuropathic pain, and its repercussions on their quality of life. The sample of this cross-sectional study comprised patients with chronic neuropathic pain after multidrug therapy. Neuropathic pain was confirmed by clinical examination and by the Douleur neuropathique en 4 questions questionnaire. Pain intensity was assessed using a visual analogic scale (VAS) ruler. The psychological health of the participants was measured using the 12-item General Health Questionnaire, and the WHOQOL-bref was used to assess quality of life. The mean pain intensity reported by participants on the VAS was 7.1 cm (SD = 2.9). No differences in pain intensity with respect to gender were observed. Psychological distress was present in 76.2% of participants, being higher in those with Grade 2 of disability. Patients with psychological distress had the lowest mean scores in all domains of the WHOQOL-bref. The lowest mean scores according to domain were physical (9.9; SD = 3.3), followed by environment (11.9; SD = 3.0), psychological (13.5; SD = 2.6) and social relations (14.0; SD = 3.7). In conclusion, our study identified the presence of psychological distress in most of the participants. Patients with chronic neuropathic pain who were also found to have high psychological distress levels had higher pain intensity and a poorer quality of life.

A comparative study of the quality of life, knowledge, attitude and belief about leprosy disease among leprosy patients and community members in Shantivan Leprosy Rehabilitation centre, Nere, Maharashtra, India

Background:Leprosy a chronic infectious affliction, is a communicable disease that posses a risk of permanent and progressive disability. The associated visible deformities and disabilities have contributed to the stigma and discrimination experienced by leprosy patients, even among those who have been cured.Aims and Objectives:1) To assess the knowledge, attitude and belief about leprosy in leprosy patients compared with community members. 2) To find the perceived stigma among leprosy patients. 3). To evaluate the quality of life in leprosy patients as compared to community members using WHO Quality of Life assessment questionaire (WHOQOL- BREF).Materials and Methods:A cross sectional study was conducted at Leprosy Rehabilitation Centre, Shantivan, Nere in Panvel Taluka, district Raigad from October – December 2009. A pre-designed and pre-structured questionaire was used to evaluate knowledge, attitude and perceived stigma among leprosy patients and community members. WHO Quality of life questionaire (WHOQOL-BREF) was used to assess quality of life in leprosy patients and controls. Data analysis was done with the help of SPSS package.Result:Among the cases and control, 43.13% of cases were aware that leprosy is an infectious disease compared to 20.69% of control. 68.62% of cases had knowledge of hypopigmented patches being a symptom of leprosy compared to the 25.86% in control. There was overall high level of awareness about disease, symptoms, transmission and curability in leprosy patients as compared to control. Among control group, 43.10% of population said that they would not like food to be served by leprosy patients as compared to 13.73% in study group. It was seen that the discrimination was much higher in female leprosy patients as compared to male leprosy patients. The mean quality of life scores for cases was significantly lower than those for control group in physical and psychological domain but not in the social relationship and environmental domain. The mean quality of life scores for male cases were lower in each domain as compared to male control group but the difference was not significant except in the physical and enviornmental domain. The mean quality of life scores for female cases were lower in each domain as compared to female control group and the difference was not significant except in the psychological domain.Conclusions:There was a significant difference in physical domain in male leprosy patients and psychological domain in female leprosy patients as compared with their respective gender controls. The leprosy patients were more aware about the infectious nature of the disease, symptoms, transmission, and curability than the control group. A negative attitude was seen towards the leprosy patients in the society.