Almost every aspect of the American health care system is changing rapidly. If there is one constant in these efforts, it is the move from expensive hospital-based care to less expensive care at home and in the community. To provide care for an aging population with multiple chronic conditions in this new environment, policy makers and health care professionals recognize the need for an expanded workforce trained in geriatrics.1 To date, workforce discussions have focused almost exclusively on expanding the pool ofwell-trained professionals and paraprofessionals. This perspective fails to fully recognize the invisible workforce of unpaid and largely untrained family caregivers (including relatives, friends, and neighbors)whoprovidemostof thecareathome. Inaddition to their more familiar roles assisting with personal care and household tasks, family caregivers provide and coordinate complex chronic care. Usingdata fromthe2011NationalHealthandAgingTrends Study and the linked National Study of Caregiving,Wolff and colleagues2 in this issueof JAMAInternalMedicinehaveadded compelling evidence toother studiesdemonstrating that family caregivers are anessential butvulnerable componentof the newhealth careworkforce.3While other national family caregiver surveys look at a broad age range of the estimated 40 to 44millionAmericans caring for adultswith chronic illnesses, the National Health and Aging Trends Study findings describe family caregiving for people 65 years and older, a particularly vulnerable population estimated in this study at 14.7 million. The study by Wolff and colleagues2 focuses on help provided by family caregivers in care coordination and medication management, two of the most common and challenging tasks in chronic care. Care coordination can include accompanying the person to physician visits and asking questions about treatments and medications. It can also include communications with a range of health care professionals, payers, and community services. Medication management may includeorganizingmultipledrugs inmany forms,making sure that the person takes them appropriately, and giving injections, infusions, and other treatments, as well as reporting adverse effects. While essential, such assistance takes a toll on caregivers. In the study by Wolff and colleagues,2 family caregiverswhoprovidedsubstantialhelp (definedasassistingwith bothcarecoordinationandmedicationmanagement)weresignificantlymore likely thanothers tobecaring for apersonwith dementia aloneordementia in conjunctionwitha severe functional disability. These caregivers were also more likely to be older, less likely to report their ownhealth as excellent or very good, and more likely to experience emotional and physical problems. Caregiving negatively affected their employment and their ability to participate in valued activities, supplementing evidence about the financial burden on families caring for people with dementia in the last 5 years of life.
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