Abstract Intersex newborns, children and adolescents frequently are subjected to not clinically necessary surgeries and other non-consensual treatments. According to the UN Factsheet Intersex, “Intersex people are born with sex characteristics (including genitals, gonads and chromosome patterns) that do not fit typical binary notions of male or female bodies”. The intersex movement, international and regional human rights bodies, clinical practitioners, bioethicists and researchers have contributed reflections and recommendations related to intersex human rights, wellbeing, health and healthcare. International intersex activism demands, among other claims, the cessation of not clinically necessary surgeries and other non-consensual treatments performed on intersex newborns, children and adolescents, as well as access to clinical records, continued healthcare and psychosocial support. International and regional human rights bodies have supported these demands, calling on member states to prohibit not clinically necessary intersex-related surgeries. The discussion in the field of intersex studies includes the review of human rights and bioethical principles, clinical and research practices, as well as lived experiences, social circumstances and healthcare needs of intersex people. The workshop series “Intersex human rights and wellbeing” is structured in two parts “Part I: From frameworks to ethics and lived experiences” and “Part II: From ethics to healthcare approaches and experiences”. The first workshop in the series aims at exploring theoretical frameworks, ethical aspects in intersex research and lived experiences of intersex people. The presentations provide a review of the human rights framework (Presenter: Morgan Carpenter, Australia), the presentation of a European research project on intersex wellbeing and rights (Presenter: Dr. Surya Monro, United Kingdom), reflections on relevant ethical aspects in intersex studies (Presenters: Dr. Amets Suess Schwend and Yessica Mestre Martínez, Spain), as well as the presentation of research projects on the lived experiences of intersex youth in Aotearoa /New Zealand (Presenter: Dr. Denise Steers, Aoteearoa/New Zealand) and cultural aspects in intersex healthcare in Italy (Presenter: Marta Prandelli, Italy). Key messages The protection of intersex people’s human rights, health and wellbeing requires a critical review of current clinical and research practices. Human rights frameworks, bioethics, public health approaches and social sciences can provide relevant contributions to this discussion.
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