Importance Of Family Participation Research Articles

Parent Perspectives: Understanding the Postschool Concerns of Parents of Transition-Age Youth With Disabilities

Given the importance of family participation in transition planning, it is essential to understand the concerns parents have for their children with disabilities so professionals can better address family needs and develop strategies to enhance expectations and improve student outcomes. Using results from a national U.S. survey, we examined the extent of parent concern with their child’s postschool outcomes, how postschool concerns are organized, and the factors that predict increased concern. Participants were 240 parents of youth with disabilities ages 16 to 21 years. Results indicate that parent concerns are across postschool activities. Predictors of increased concerns included parent and student characteristics. Comparisons between White and non-White families showed differences in extent of postschool concerns between the groups. Paid work experiences and employing a strengths-based approach were related to decreased concerns. Limitations and implications are discussed.

Barriers to family involvement in the care of patients with chronic mental illnesses: A qualitative study.

Caregivers are patients' family members or intimate friends who take care of individuals suffering from chronic mental illnesses without being paid. Evidence has supported the role of family-centered collaborative care in the treatment of patients with chronic mental illnesses. It has also been emphasized by national policies. However, carrying out this type of care is accompanied by challenges in Iran. Considering the importance of family participation in taking care of these patients as well as the necessity to determine its effective factors, the present study aimed to assess the barriers to family involvement in the care of patients with chronic mental illnesses. A conventional content analysis was used to conduct this qualitative study. Thirty four health care providers, patients, and caregivers were interviewed unstructured in-depth face-to-face using purposive sampling. Until saturation of data, sampling and data analysis were conducted simultaneously. Graneheim and Lundman's method was used to record, transcribe, and analyze the interviews. The results showed that there were many barriers to the collaboration of family in the care of patients with chronic mental illnesses. Accordingly, four main categories and twelve subcategories were extracted from the data as follows: "family-related barriers", "treatment-related factors", "disease nature threatening care", and "mental disease-associated stigma in the society". The findings presented the barriers to family centers' collaborative care in patients with chronic mental illnesses and the necessary components of family involvement in the care to be used by healthcare managers and policymakers. The reported barriers emphasize the need for the development of structured approaches whose implementation is easy for health care providers, does not require a lot of time and resources, and can improve patient and family outcomes.

A participação da família no processo de cuidado da criança hospitalizada

O adoecimento e a hospitalização de uma criança trazem inúmeras mudanças e requer um grande suporte familiar, pois esta é considerada essencial e apresenta significativa influência durante esse período. Com isso, o presente estudo teve como objetivo analisar a participação da família no processo de cuidado da criança hospitalizada. Para realizá-lo foi utilizado uma abordagem qualitativa, com oito entrevistas semiestruturadas, aplicadas na unidade de pediatria do Hospital de Messejana Dr. Carlos Alberto Studart Gomes – HM, em Fortaleza – Ceará. A coleta de dados ocorreu entre julho a outubro de 2019. Após transcritos, os dados foram analisados e discutidos. Definiram-se três categorias de análise: Mulheres Cuidadoras; Rede de apoio familiar e A importância da família no processo de cuidado. A análise mostrou que as mulheres são as principais cuidadoras das crianças, corroborando para a discussão das relações de gênero e seus desdobramentos. Destarte, conclui-se a necessidade do fortalecimento do vínculo familiar, visto a importância da participação da família durante a hospitalização e a criação de políticas públicas voltadas para ampliação da autonomia das mulheres.

Effect of Family and Patient Centered Empowerment Program on Depression, Anxiety and Stress in Patients with Obsessive-Compulsive Disorder and Their Caregivers' Burden.

Background:Considering the importance of family participation in patients' treatment and the positive effects of simultaneous patient and family education, this study was conducted to determine the effect of a family and patient-oriented empowerment program on depression, anxiety, and stress in patients with Obsessive-Compulsive Disorder (OCD) and their caregivers' burden.Materials and Methods:This quasi-experimental study was conducted on 50 OCD patients along with their primary caregivers. The intervention group participated in eight sessions of training, each lasting from 60 to 90 min (twice a week), and the control group received the usual treatment. The Depression, Anxiety and Stress Scale, Maudsley's Obsessive-Compulsive Inventory, Goldberg's General Health Questionnaire, and Zarit's Burden Inventory were used to collect the data before, immediately after and 1 month after the intervention, and then the gathered data were analyzed with t-test and analysis of variance using the Statistical Package for the Social Sciences software, version 21.Results:The changes in the mean scores of depression (F2,48= 21.02, p < 0.001), anxiety (F2,48= 29.72, p < 0.001), and stress (F2,48= 16.52, p < 0.001) of the patients in the intervention group showed significant decrease over time; however, in the control group, there was no significant decrease in the mean scores of depression (F2,48= 1.69, p = 0.19), anxiety (F2,48= 0.47, p = 0.62), and stress (F2,48= 1.09, p = 0.34) over time. The changes in the caregiver's burden score in both groups indicated a significant decrease over time in the intervention group (F2,48= 24.70, p < 0.001) and the control group (F2,48= 33. 30, p < 0.001).Conclusions:The findings of this study revealed that concurrently training the patients and caregivers could reduce the negative emotions of the patients and their caregivers' burden.

Family-school partnership in the Spanish education system

The benefits of positive, active relationships between families, schools, and the community (not only in the academic outcomes of the children, but also in the family’s and school’s wellbeing) have, up to now, had plenty of supportive evidence. Nevertheless, experience shows that there are many difficulties involved in making participation a reality. Education regulation acknowledges the importance of family participation at school, but neither implementation methods nor the concept of participation are clearly defined. Spanish initial teacher education curriculum programmes include, only in a marginal form, competences and skills that would prepare teachers to become involved in a collaborative relationship with families and the community. This article addresses the training of professionals in education from the perspective of the competences, skills, and knowledge demanded to engage in collaborative work with families and the community. It was conducted through a comparative analysis of the curriculum programmes of Spanish Universities, with a special focus on curriculum content and competences, and on the formal organisation of the initial training of pre-service teachers.

A aprendizagem sob a ótica dos professores: um estudo a partir da relação família e escola

The proposition of actions that can be developed in the schools for better integration between school and family aims at obtaining relevant learning and full development of the human being. For this purpose, the clarification and further analysis of issues addressing the child's learning, childhood's conceptions, school’s educative function and the distinction between the respective roles of school and family, historical and organization of the Brazilian families and of the world families, contribute for the opening and expansion of the family effective involvement in the school. This paper argues that the representations of educators from a municipal public education system on the importance of family participation in the children educational process, showing that schools do not carry out sufficient and effective activities to bring family to school. The family participation in learning can also be defined in the monitoring of school tasks, in learning evaluation and attendance, when requested or in special events. The educators' belief in the idea that the children's success in school is directly related to the family effective participation is a fact that by itself points to the need to promote an innovation in the relationship between school and family.

Decision-making preferences of advanced cancer Hispanic patients from the United States and Latin America.

9063 Background: To determine whether preferences in frequency of passive decision making differ between Hispanic patients from Latin America (HLA) and Hispanic-American (HA) patients. Methods: We conducted a survey of advanced cancer Hispanic patients referred to outpatient palliative care clinics in the U.S, Chile, Argentina, and Guatemala. Information on demographic variables, PS,andMarin Acculturation Assessment Tool (only U.S. patients) was collected. Decision-making preference was evaluated by the decision-making assessment tool. Results: A total of 387 patients with advanced cancer were surveyed: 91 (24%) in the US, 100 (26%) in Chile, 94 (25%) in Guatemala, and 99 (26%) in Argentina. Median age was 59 years, and 61% were female. HLA preferred passive decision-making strategies significantly more frequently with regard to involvement of the family (24% versus 10%, p=0.009) or the physician (35% versus 26%, p&lt;0.001), even after controlling for age and education (OR 3.8, p&lt;0.001 for physician and 2.4, p=0.03 for family) (Table 1). 76/91 HA (83.5%), and 242/293 HLA (82%) preferred family involvement in decision-making (p=NS). No differences were found in decision-making preferences between low- and highly acculturated U.S. Hispanics. Conclusions: HA prefer more active decision-making as compared to HLA. Among HA, acculturation did not seem to play a role in decision-making preference determination. Our findings in this study confirm the importance of family participation in decision making in both HA and HLA. However, HA patients were much less likely to want family members or physicians to make decisions on their behalf. [Table: see text] [Table: see text]

O doente em tratamento de tuberculose no município de Itaboraí, Rio de Janeiro - participação da família

Este estudo objetivou analisar o enfoque dado pelo profissional de saúde à família do paciente em tratamento de tuberculose no município de Itaboraí, no Rio de Janeiro. A coleta de dados foi feita por meio da entrevista de 100 usuários do Programa de Controle da Tuberculose. Os critérios de inclusão neste estudo foram: doentes de tuberculose em tratamento há mais de um mês e concluintes do tratamento até seis meses antes do início da coleta de dados. Os principais achados foram: a importância da participação da família para obtenção de êxito no tratamentoda tuberculose e o comprometimento do profissional de saúde com as condições de vida, saúde e moradia dos familiares dos usuários.

Experiences of counselling in the emergency department during the waiting period: importance of family participation

To describe patients' experiences of counselling, defined as information giving and advice by nursing staff, in the emergency department. A particular focus was on the waiting period and on the importance of family participation in counselling. Counselling is a widely studied topic in nursing. Too little is known about counselling in emergency departments and especially about participation of family members and suitability of counselling for the patient's life situation. Descriptive quantitative study. Data were collected by questionnaires from patients (n = 107) visiting a hospital emergency department. The data were subjected to statistical analysis. Forty-two per cent of patients arrived at the emergency department with a family member: spouse or cohabiting partner, mother, father or daughter. Patients were fairly satisfied with the counselling. The presence of a family member was important to the majority of patients (75%). About half of the patients wanted information concerning their illness, condition and treatment to be given to their family members. Those visiting the department with a family member were more satisfied with counselling and felt that it promoted their participation in care. It is to encourage patients' family members to participate in counselling situations in emergency departments. However, the type of information passed on to family members should be carefully discussed and prepared. Patients' family members seem to be important partners in counselling situations. The presence of family members supports patients in the emergency department during the waiting period and helps them orientate in their situation. When family members are present, issues which patients wish to discuss should be carefully planned. Family presence should be encouraged in emergency departments.

Opinion of nursing students on mental disease and care in the area

The authors aim at investigating the knowledge on mental diseases and treatments among nursing students that are entering the job market. In This descriptive study A Likert-like scale of opinion measurement, with 56 statements related to the topic of the study was applied. The responses of the 38 students who participated were analyzed and grouped in four categories:--Patient, family and care,--Psychiatric policies and care,--Conceptions on the disease and the patient,--Nursing care and treatments. Results showed that the subjects believe that not all social problems and diseases have to be treated at the psychiatric institutions since there are other alternatives to solute these problems. They also pointed out the importance of family participation and professionals' development in order to improve the quality of the care.

Voice rehabilitation of laryngectomized patients: cultural characteristics in the process

The objective of this study was to identify the characteristics of the process of vocal rehabilitation among laryngectomees focusing on culture. The study included four laryngectomees who attend the GARPO-Laryngectomees (Support Group For The Rehabilitation of Ostomized Patients--Laryngectomees) and communicate with esophageal or pharyngeal voice. The theme that emerged from the data was "to be born again", in agreement with the cultural value of the voice in our society. The study revealed as well the difficulties of the process, the importance of family participation and the stigma of the altered body image.