Ideal Collaboration Research Articles

Kapasitas Inovasi Program Dana Pembangunan Wilayah Kelurahan dalam Mendukung Percepatan dan Pemerataan Pembangunan Daerah

The Subdistrict Regional Development Fund Program (DPWK) is an innovation from the Cilegon Municipality Government which aims to improve the administrative function of subdistrict government in providing services to the community, encourage accelerated and equitable regional development and encourage the acceleration of regional poverty reduction. The aim of this research is to determine the innovation capacity of the Village Regional Development Fund Program (DPWK) in supporting accelerated and equitable development in Cilegon Municipality. This research method uses a descriptive method with a qualitative approach. Data collection was carried out through interviews, observation and documentation. The research results show that the Subdistrict Regional Development Fund Program has been running well, although there are still several problems such as limited community empowerment programs and only prioritizing regional infrastructure development programs and the low collaborative capacity of program implementers. Because the Cilegon Municipality government is paying more attention to community empowerment programs, intensive communication with the implementers of the Village Regional Development Fund (DPWK) program in Cilegon Municipality in creating ideal collaboration and prioritizing regional infrastructure development programs

Transdisciplinary Collaborations for flood impact mitigation on human health for sustainable urban development

This study assessed the impact of urbanization on human health with an emphasis on flood hazard mitigation through the lens of transdisciplinary collaborations, as a strategy for achieving sustainable urban development. In place of this, the study highlights the effects of urbanization and floods impact on health, by identifying the health consequences of flood disasters. The goal here was to put together contributions and guidance drawn from the literature on issues under study for a shared problem understanding and solutions. The methodological approach employed in this study was a desktop survey, for systematic literature search, conducted in five databases and Google Scholar from April 4th to 30th May 2018, applying inclusion and exclusion criteria, from which, 44,860 articles were returned, narrowed to 71 articles from which 26 relevant articles were selected. Findings suggest that transdisciplinary collaboration enhance shared learning for sustainable urban development governance. The study further reveals functional overlaps among the collaborating partners on a common goal due to poor coordination. The paper concludes that successful transdisciplinary collaborations for sustainable urban development require articulation and efforts that clearly define the roles of each partner in the collaboration. Succinctly, achieving sustainable urban development is not an easy task, but ideal transdisciplinary collaboration simplified it.

Collaborative Governance dalam Pembangunan Masyarakat Perbatasan di Kabupaten Merauke

The development of border areas aims to realize the border paradigm as the homeland of the Republic of Indonesia and needs to be carried out comprehensively, in the sense not only through a welfare approach but also through a security and environmental approach. For this reason, collaborative governance is one of the concepts that can be applied in developing border areas. This research was conducted using a descriptive method and a qualitative approach in Sota District, which is an area directly adjacent to Papua New Guinea. The results of the study indicate that collaborative governance in the development of the RI-PNG border area in the Sota District has not gone well. Indicators of starting conditions and intermediate outcomes have been seen from several programs such as the formation of community groups for Pokos honey entrepreneurs, eucalyptus oil processors, and ant nest tea processors. However, when viewed from the indicators of the collaborative process and institutional design, there has not been an ideal collaboration between the government, the private sector, and universities. Where it can be seen that all community empowerment activities are still dominated by the government, in this case, the Regional Border Management Agency, the Natural Resources Conservation Center, the Wasur National Park Center, and Merauke Regency. Ideally, in a collaborative process, universities and the community should be involved as implementers and balancers of the programs provided by the government in improving the welfare of the community.

A Public Health, Whole-of-Government Approach to National Suicide Prevention Strategies

A Public Health, Whole-of-Government Approach to National Suicide Prevention Strategies

Isthmic retroperitoneal cerclage via vNOTES as a potential alternative to an abdominal cerclage: First technique description.

ObjectiveTo describe a new technique for performing an isthmic retroperitoneal cerclage via vaginal Natural Orifice Transluminal Endoscopic Surgery (vNOTES). DesignStepwise explanation of the surgical technique using original video footage. This study was exempted from requiring hospital IRB. SettingDepartment of Obstetrics and Gynaecology, Imelda Hospital, Belgium. InterventionA circumferential vaginal incision is made around the cervix after infiltration of the tissue with local anaesthetic and adrenaline. The bladder is deflected from the cervix up to the level of the isthmus but the peritoneum is not opened. The rectum is deflected from the cervix up to the level of the isthmus but the peritoneum is not opened. A Gelpoint vPath (9.5 cm) (Applied Medical, Rancho Santa Margarita) is used as a vNOTES port. The inner ring of the Alexis is inserted into the retroperitoneal dissection space around the cervix, covering the bladder anteriorly and the rectum posteriorly. An insufflation stabilization bag (ISB) is connected to the Gelseal cap to minimize pressure fluctuations within the confines of the retroperitoneal operative space. The paracervical space is opened just inferior to the uterine artery. A paracervical tunnel is made from the anterior to the posterior retroperitoneal space just lateral to the cervix and just inferior to the uterine artery. This procedure is performed bilaterally. A vessel loop is inserted from anterior to posterior through the paracervical tunnel on each side of the cervix. The Gelseal cap is removed and an Ethibond-2 suture is tied to the vessel loop. The Gelseal cap is placed again. By pulling on the vessel loop, it is replaced by the Ethibond suture. The Ethibond suture is now tied endoscopically to complete the cerclage; alternatively the suture could be tied vaginally without endoscopic instruments to the surgeon's preference. The vNOTES port is removed and the vaginal mucosa is sutured to the cervix again using a resorbable suture. DiscussionAbdominal cerclage is the preferred approach to treat patients with refractory cervical insufficiency [1]. Over the last 20 years this technique increasingly gets performed laparoscopically with similar success rates [2]. The new transvaginal approach demonstrated in this video article may help reduce the invasivess even more by avoiding abdominal incisions and opening the peritoneum, while still benefiting from the vNOTES endoscopic visualization and minimally invasive instruments [3]. The cerclage is placed permanently at the level of the isthmus, similar to an abdominal cerclage. It is placed more cranially than a McDonald or Shirodkar cerclage and leaves no non-resorbable sutures in the vagina [4]. It can be an alternative to a conventional transvaginal cervicoisthmic cerclage [5,6] in patients with a narrow vagina and without uterine descensus. Following the guidelines of the IDEAL collaboration we present this technique to be peer reviewed in its early developmental phase before starting further studies [7]. ConclusionThis is a first feasibility and technique description report on performing a retroperitoneal isthmic cervical via vNOTES. This technique should be considered new, not to be performed on pregnant patients or outside of clinical trials, and only in carefully counselled patients.

Efek Bahan Ajar Sains Berbasis Inkuiri Terbimbing Pada Keterampilan Proses Sains dan Hasil Belajar Peserta Didik: Suatu Meta Analisis

The learning orientation of the industrial era 4.0 is centered on collaboration between students and teachers. This orientation departs from the paradigm that students are active subjects both individually and collectively and must be under the guidance of the teacher. Teaching materials are essential and important learning resources needed to encourage teacher efficiency and improve student performance so that an ideal collaboration occurs between students and teachers. The guided inquiry learning model provides opportunities to build knowledge through discovery. The use of the guided inquiry learning model is very effective in developing science process skills and learning outcomes for school students. This research was conducted to see the effect of Guided Inquiry teaching materials in science learning on science process skills and student learning outcomes. This research method uses effect size analysis from 20 national-scale journals. The analysis is based on the category of education level, types of teaching materials and types of science subjects at school. The results showed that the use of guided inquiry teaching materials in learning had a significant effect on science process skills and student learning outcomes.

MTV: Visual Analytics for Detecting, Investigating, and Annotating Anomalies in Multivariate Time Series

Detecting anomalies in time-varying multivariate data is crucial in various industries for the predictive maintenance of equipment. Numerous machine learning (ML) algorithms have been proposed to support automated anomaly identification. However, a significant amount of human knowledge is still required to interpret, analyze, and calibrate the results of automated analysis. This paper investigates current practices used to detect and investigate anomalies in time series data in industrial contexts and identifies corresponding needs. Through iterative design and working with nine experts from two industry domains (aerospace and energy), we characterize six design elements required for a successful visualization system that supports effective detection, investigation, and annotation of time series anomalies. We summarize an ideal human-AI collaboration workflow that streamlines the process and supports efficient and collaborative analysis. We introduce MTV (MultivariateTime SeriesVisualization), a visual analytics system to support such workflow. The system incorporates a set of novel visualization and interaction designs to support multi-faceted time series exploration, efficient in-situ anomaly annotation, and insight communication. Two user studies, one with 6 spacecraft experts (with routine anomaly analysis tasks) and one with 25 general end-users (without such tasks), are conducted to demonstrate the effectiveness and usefulness of MTV.

Taking on the elephant in the room-postoperative atrial fibrillation: a clinical program management perspective

Postoperative atrial fibrillation (POAF) is the most common complication after cardiac surgery, yet there is no consistent cardiothoracic professional society-based definition of new-onset POAF, nor a broadly accepted consensus on how to prevent or treat it. Importantly, there is an ever-growing body of evidence that new-onset POAF is associated with worse patient outcomes. Given the lack of evidence-based guidelines, detection and treatment of POAF, in addition to understanding how POAF is related to these worse outcomes, represents an unaddressed quality of care concern. In the United States, the annual cardiac surgical POAF patient costs are estimated at ~$1 billion. The entire US Medicare annual budget has been reported at ~$141.2 billion for all hospital-related care; thus, the administrative challenges uniquely posed by POAF have been exposed for the first time. Mapping future tactics, this Vessel Plus special atrial fibrillation publication, swings the pendulum from impromptu observations towards action. A new strategic framework is proposed to begin the tedious but necessary task of taking on this elephant in the room. With ideal collaboration between clinical providers, health care systems, professional societies and insurers, a five-step approach is proposed to overcome these POAF patient care challenges.

Renewable energy policy and governance in West Sumatera Province: an overview

West Sumatera Province is the province with the highest renewable energy mix target in Indonesia. To realize this target, the Province of West Sumatera has designed a policy and institutional or governance strategy. Therefore, the purpose of this paper is to see the policies and forms of governance in the development of renewable energy in West Sumatera Province descriptively. The research was conducted in a descriptive qualitative way using 2 (two) data collection techniques: Interview and Documentation Review. Policy planning that targets 1) Formulation of the legal basis for development and utilization; 2) Development of utilization areas in the form of power plants (solar cell, garbage, wind, biomass, micro-hydro, mini-hydro, water, geothermal); and 3) Empowerment of local communities to support the success of energy sustainability in renewable energy installations. However, the wide-scale of energy development requires institutional forms that involve multi-stakeholders: government bodies and non-government bodies. However, unfortunately, in its implementation, the involvement of these stakeholders in an ideal collaboration forum never happened. Stakeholder involvement is limited to official formalities. We have again found the “magical word”: the tasks, principals, and functions that hinder the movement of the bureaucracy in Indonesia.

1165 Reporting Patient Selection in Robotic Cholecystectomy: Less than IDEAL? A Systematic Review

Abstract Introduction Laparoscopic cholecystectomy is the gold standard definitive treatment option for benign biliary disease. There has been increasing interest in novel robotic surgical techniques; robotic cholecystectomy (RC) represents the most recent innovation in the management of gallstones. The IDEAL Collaboration has provided guidance for the rigorous and comprehensive reporting of surgical innovations, despite this, transparency in patient selection has been limited. We aimed to assess the reporting of patient selection in studies reporting RC. Method A collaborative, systematic review was conducted in accordance with the PRISMA guidance to identify all published studies reporting RC. Study specific inclusion and exclusion criteria were detailed in a protocol. Results Searches identified 1425 abstracts; 90 papers were included for data extraction. Inclusion criteria were reported in 38 (42%) studies. The most frequently cited were age (20%), aetiology (20%), presence of symptoms (16%) and comorbidities (10%). Forty-nine (54%) studies reported exclusion criteria. Numerous and variably reported exclusion criteria were reported; acute cholecystitis (26%), previous abdominal surgery (25%), comorbidity (17%), pregnancy (13%), common bile duct stones (13%) and pancreatitis (10%) among others. Seven reported no exclusion criteria. Three reported numbers of patients who declined RC. Conclusions Patient selection criteria were inconsistently reported and when present lacked standardisation. Concern persists around patients being “cherry picked” for inclusion in studies reporting innovative robotic surgical procedures, making interpretation and applicability of results impossible. Standardised inclusion criteria are needed to enable greater transparency and reproducibility to ensure the safe adoption of new technologies into clinical practice.

1028 How Has the Learning Curve Been Measured in Robotic Gastrointestinal Surgery?

Abstract Aim Robotic surgery is increasingly being adopted by gastrointestinal surgeons. The IDEAL Collaboration has recommended evaluation of the learning curve (LC) for such surgical innovations. It is not known how learning curves have been reported for robotic gastrointestinal procedures. The aim of this study was to summarise how the LCs were measured for three robotic gastrointestinal procedures: cholecystectomy, oesophagectomy and Roux-en-Y gastric bypass (RYGB). Method Three systematic reviews conducted by the trainee led RoboSurg Collaborative identified primary clinical research involving robotic cholecystectomy, oesophagectomy and RYGB. Articles were screened in duplicate by title, abstract and then full text. References to the LC were extracted and coded. The techniques used to measure the LC were summarised using descriptive statistics. Results 259 articles were identified, of which 56 (22%) actively measured the LC. The commonest surrogate marker for performance was operative time (N = 34, 63%). Several evaluated performances using the cumulative sum of the operative times (N = 8, 14%). Complications (N = 5, 8%) and time to complete a specific surgical step (N = 4, 7%) were also used. Some authors used multiple markers (N = 4, 7%). Cases were reported individually in 48 (81%) of the LCs, whereas they were grouped in 11 (19%). 19 authors (34%) provided graphical representation of the LC. Conclusions The reporting of LCs for robotic gastrointestinal surgery was heterogeneous and lacked standardisation. There was variation in choice of surrogate markers for performance, individual versus grouped case reporting, and graphical representations. To improve the utility of LC reports, the recommendations of the IDEAL Collaboration should be implemented.

Working toward the ideal situation: A pragmatic Epi-Psy approach for the diagnosis and treatment of psychogenic nonepileptic seizures

Medical international guidelines recommend regular psychiatric consultations for patients with epilepsy, in order to detect comorbidities. However, there is a lack of guidance about PNES that constitute both a differential diagnosis and a comorbidity of epilepsy. While waiting for the ideal collaboration between neurologists and psychiatrists, we develop a pragmatic approach. Wrong diagnosis between epilepsy and Psychogenic nonepileptic seizures (PNES) is frequent and may lead to iatrogenic consequences for patients. To limit the risk of misdiagnosis, psychiatrists and neurologists should collaborate and be more trained about epilepsy, PNES, and their comorbidities. We illustrate the aim of this collaboration through the case of a patient, initially diagnosed with epilepsy, then with PNES only and finally with comorbid epilepsy and PNES. The correct final diagnosis would not have been performed without the collaboration of psychiatrists and neurologists, trained in “Epi-Psy” approach.

P102 Reporting of innovations in surgery: a systematic review of robotic liver resections

IntroductionLiver resections are most commonly performed for either primary or secondary cancers. Consensus guidelines recommend that minor liver resections should be attempted laparoscopically, however this technique has limitations. These include difficulties with surgical access, ergonomics and visualization. Consequently, there has been increasing interest in innovative solutions such as robotic surgery. The IDEAL Collaboration has provided guidance for the reporting of surgical innovations, but it is not known how robotic liver resections have been reported. The aim of this study is to summarize technique descriptions and governance procedures, and understand which clinical outcomes have been reported.MethodsA systematic review is being conducted in accordance with the PRISMA guideline. A search of Embase, Ovid Medline, the Cochrane Library and Web of Science was performed, using search concepts of “robotic” and “liver resection”. Articles will be screened to select primary research reporting outcomes of robotic liver resections. Data will be extracted on the reporting of study characteristics, governance and ethical arrangements, mitigations of harm, techniques and modifications, and outcomes. A descriptive summary of the data will be produced. The results will be critiqued in relation to guidance from the IDEAL Collaboration.ResultsThe search returned 3063 articles, with 2385 remaining after de-duplication. An interim descriptive analysis of the data will be presented, summarizing how robotic liver resections have been reported. A critique of the available results in the context of IDEAL guidance will be provided.ConclusionThis systematic review will describe how robotic liver resections have been reported as surgical innovations.

P106 Robotic Roux-en-Y gastric bypass: A systematic review to examine reporting of a surgical innovation

Abstract Introduction Roux-en-Y gastric bypass (RYGB) is one of the most commonly performed bariatric procedures, and robotic methods are increasingly used. Perceived benefits of robotic surgery include improved visualisation and ergonomics, fewer complications, and shorter hospital stay. Rigorous processes that facilitate the safe transition of surgical innovations such as robotic RYGB into clinical practice are currently lacking. This may place patients at risk, and lead to research waste. The IDEAL Collaboration has produced guidance on the reporting of surgical innovations, but it is not known how robotic RYGB has been reported. This project aims to summarise technique description, governance arrangements and outcome reporting in robotic RYGB. Methods A systematic review is being conducted, using PRISMA guidance. A search of Embase, Ovid Medline, the Cochrane Library and Web of Science was performed to identify primary studies reporting outcomes of robotic RYGB. Data will be extracted on study characteristics, governance and ethical arrangements, descriptions of technique, and outcomes. The data will be evaluated in relation to IDEAL principles. Results The literature search yielded 1012 studies; 754 remained after de-duplication. Following screening by abstract, 229 full texts were screened. 67 studies will undergo extraction of data. A descriptive summary of the data will be presented, with a critique of the findings. Conclusion This study will summarise and appraise how robotic RYGB has been reported. This will contribute towards the development of a standardised and methodical process for the introduction of surgical innovation into clinical practice.

Identity and the Neoclassical Ideal in Martha Graham and Carlos Chávez'sDark Meadow

AbstractIf the ideal artistic collaboration is one of shared vision, open communication, and exquisite professionalism then Martha Graham and Carlos Chávez strayed far from it in the making ofDark Meadow(1946). As this article documents, their relationship was full of antagonism, misunderstanding, disdainful gossip, and regret on both sides. Three sources of conflict are examined: 1) a misunderstanding between the two collaborators on the meaning and utility of Greek allusions in art created conflicting aesthetic expectations for a dance with a plot derived from Greek mythology; 2) both artists defied the modernist community's expectations about how each of them should perform their gender identity as artists; and 3) similarly, the press's consistent Othering of Chávez in racist, nationalist terms was contagious, influencing Graham's beliefs about what Mexican music could or should be. Despite significant obstacles, Chávez and Graham produced a work that continues to represent the mid-century Modernist aesthetic.

Parents\u2019 and nurses\u2019 ideal collaboration in treatment-centered and home-like care of hospitalized preschool children \u2013 a qualitative study

BackgroundThe hospitalization of children requires collaboration between parents and nurses in partnerships. This study examines parents’ and nurses’ experiences of ideal collaboration in treatment-centered and home-like care of hospitalized preschool children.MethodsThis qualitative study is part of a larger study of 12 parents and 17 nurses who were responsible for 11 hospitalized children. Data collection took place at a Norwegian general paediatric unit, and the data were gathered from observations of and qualitative interviews with the parents and nurses. The analysis was conducted in six steps, in alignment with Braun and Clarke.ResultsTwo essential themes emerged from the analysis. (1) Treatment-centered care focuses on the following tasks in building relationships – gaining trust, securing – gaining voluntariness, distracting and comforting, and securing and gaining voluntariness. The purpose of treatment-centered care is to perform diagnostic procedures and offer treatment. (2) Home-like care, the purpose of which is to manage a child’s everyday situations in an unfamiliar environment, focuses on the following tasks: making familiar meals, maintaining normal sleeping patterns, adjusting to washing and dressing in new situations, and normalizing the time in between. From this pattern, we chose two narratives that capture the essence of ideal collaboration between parents and nurses.ConclusionThe ideal collaboration between nurses and parents is characterized by flexibility and reciprocity, and is based on verbal and action dialogues. In treatment-centered care, parent-nurse collaboration was successful in its flow and dynamic, securing the children’s best interests. Meanwhile, the achievement of the children’s best interest within home-like care varied according to the level of collaboration, which in turn was related to the complexity of the children’s everyday situations.

A protocol for a nationwide multicentre, prospective surveillance cohort and nested-consented cohort to determine the incidence and clinical outcomes of slipped capital femoral epiphysis.

AimsSlipped capital femoral epiphysis (SCFE) is one of the most common hip diseases of adolescence that can cause marked disability, yet there is little robust evidence to guide treatment. Fundamental aspects of the disease, such as frequency, are unknown and consequently the desire of clinicians to undertake robust intervention studies is somewhat prohibited by a lack of fundamental knowledge.MethodsThe study is an anonymized nationwide comprehensive cohort study with nested consented within the mechanism of the British Orthopaedic Surgery Surveillance (BOSS) Study. All relevant hospitals treating SCFE in England, Scotland, and Wales will contribute anonymized case details. Potential missing cases will be cross-checked against two independent external sources of data (the national administrative data and independent trainee data). Patients will be invited to enrich the data collected by supplementing anonymized case data with patient-reported outcome measures. In line with recommendations of the IDEAL Collaboration, the study will primarily seek to determine incidence, describe case mix and variations in surgical interventions, and explore the relationships between baseline factors (patients and types of interventions) and two-year outcomes.DiscussionThis is the first disease to be investigated using the BOSS Study infrastructure. It provides a robust method to determine the disease frequency, and a large unbiased sample of cases from which treatment strategies can be investigated. It may form the basis for definitive robust intervention studies or, where these are demonstrated not to be feasible, this may be the most robust cohort study.

The BOSS Study. Determining the incidence and clinical outcomes of uncommon conditions and events in orthopaedic surgery

Introduction There is widespread variation in the management of rare orthopaedic disease, in a large part owing to uncertainty. No individual surgeon or hospital is typically equipped to amass sufficient numbers of cases to draw robust conclusions from the information available to them. The programme of research will establish the British Orthopaedic Surgery Surveillance (BOSS) Study; a nationwide reporting structure for rare disease in orthopaedic surgery. Methods The BOSS Study is a series of nationwide observational cohort studies of pre-specified orthopaedic disease. All relevant hospitals treating the disease are invited to contribute anonymised case details. Data will be collected digitally through REDCap, with an additional bespoke software solution used to regularly confirm case ascertainment, prompt follow-up reminders and identify potential missing cases from external sources of information (i.e. national administrative data). With their consent, patients will be invited to enrich the data collected by supplementing anonymised case data with patient reported outcomes. The study will primarily seek to calculate the incidence of the rare diseases under investigation, with 95% confidence intervals. Descriptive statistics will be used to describe the case mix, treatment variations and outcomes. Inferential statistical analysis may be used to analyze associations between presentation factors and outcomes. Types of analyses will be contingent on the disease under investigation. Discussion This study builds upon other national rare disease supporting structures, particularly those in obstetrics and paediatric surgery. It is particularly focused on addressing the evidence base for quality and safety of surgery, and the design is influenced by the specifications of the IDEAL collaboration for the development of surgical research.

A protocol for a nationwide multicentre, prospective surveillance cohort and nested-consented cohort to determine the incidence and clinical outcomes of slipped capital femoral epiphysis

Aims Slipped capital femoral epiphysis (SCFE) is one of the most common hip diseases of adolescence that can cause marked disability, yet there is little robust evidence to guide treatment. Fundamental aspects of the disease, such as frequency, are unknown and consequently the desire of clinicians to undertake robust intervention studies is somewhat prohibited by a lack of fundamental knowledge. Methods The study is an anonymized nationwide comprehensive cohort study with nested consented within the mechanism of the British Orthopaedic Surgery Surveillance (BOSS) Study. All relevant hospitals treating SCFE in England, Scotland, and Wales will contribute anonymized case details. Potential missing cases will be cross-checked against two independent external sources of data (the national administrative data and independent trainee data). Patients will be invited to enrich the data collected by supplementing anonymized case data with patient-reported outcome measures. In line with recommendations of the IDEAL Collaboration, the study will primarily seek to determine incidence, describe case mix and variations in surgical interventions, and explore the relationships between baseline factors (patients and types of interventions) and two-year outcomes. Discussion This is the first disease to be investigated using the BOSS Study infrastructure. It provides a robust method to determine the disease frequency, and a large unbiased sample of cases from which treatment strategies can be investigated. It may form the basis for definitive robust intervention studies or, where these are demonstrated not to be feasible, this may be the most robust cohort study.

The BOSS Study. Determining the incidence and clinical outcomes of uncommon conditions and events in orthopaedic surgery.

IntroductionThere is widespread variation in the management of rare orthopaedic disease, in a large part owing to uncertainty. No individual surgeon or hospital is typically equipped to amass sufficient numbers of cases to draw robust conclusions from the information available to them. The programme of research will establish the British Orthopaedic Surgery Surveillance (BOSS) Study; a nationwide reporting structure for rare disease in orthopaedic surgery.MethodsThe BOSS Study is a series of nationwide observational cohort studies of pre-specified orthopaedic disease. All relevant hospitals treating the disease are invited to contribute anonymised case details. Data will be collected digitally through REDCap, with an additional bespoke software solution used to regularly confirm case ascertainment, prompt follow-up reminders and identify potential missing cases from external sources of information (i.e. national administrative data). With their consent, patients will be invited to enrich the data collected by supplementing anonymised case data with patient reported outcomes.The study will primarily seek to calculate the incidence of the rare diseases under investigation, with 95% confidence intervals. Descriptive statistics will be used to describe the case mix, treatment variations and outcomes. Inferential statistical analysis may be used to analyze associations between presentation factors and outcomes. Types of analyses will be contingent on the disease under investigation.DiscussionThis study builds upon other national rare disease supporting structures, particularly those in obstetrics and paediatric surgery. It is particularly focused on addressing the evidence base for quality and safety of surgery, and the design is influenced by the specifications of the IDEAL collaboration for the development of surgical research.