Home Enteral Nutrition Registry Research Articles

Registro del grupo nadya-senpe de nutrición enteral domiciliaria en españa; años 2016 y 2017

Objective: to present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the year 2016 and 2017. Material and methods: from January 1st 2016 to December 31st 2017, the HEN registry was recorded and afterwards a further descriptive and analytical analysis was done. Results: in 2016, 4,578 active patients were recorded and prevalence was 98.33 patients per one million inhabitants; in 2017, 4,777 patients were recorded, with a prevalence of 102.57 per one million inhabitants; 50.8% were males in 2016 and 50.5% in 2017. During the period 2016-17, median age was 71.5 years (IIQ 57-83), 1,558 HEN episodes were finished and the main cause was death (793 patients, 50.89%). Adult males were younger than females (65.3 vs. 73.3 years, p-value < 0.001). The most frequent diagnosis was the neurological disorder that presents with aphagia or severe dysphagia (59%). Nasogastric tube was the most frequent administration route (48.3%) and it is the most widely used in elderly patients (p < 0.001). One hundred and twenty-six pediatric patients were registered (57.1% females). Median age at the beginning of HEN in children was four months. "Other disorders" was the most recorded diagnostic group (41.3%), followed by the group of neurological disorder that presents with aphagia or severe dysphagia. Regarding children, 57.6% were fed through gastrostomy and the younger ones were fed through nasogastric tube (p-value 0.001). Conclusions: the number of patients in the registry, as well as the number of participating centers, is progressively increasing. The main characteristics of the patients have not changed. Despite the increase in diagnostic possibilities in the pediatric population, the classification within the group of "Other pathologies" is quite significant.

Spanish home enteral nutrition registry of the year 2014 and 2015 from the NADYA-SENPE Group

Objective: To present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the years 2014 and 2015. Methods: From January 1st 2014 to December 31st 2015 the HEN registry was recorded and afterwards a further descriptive and analytical analysis was done. Results: In 2014, 3749 patients were recorded, and 4202 in 2015; prevalence was 80.58 patients/one million inhabitants in Spain in 2014 and 90.51 in 2015. There were 49.9% females in 2014 and 50.3% in 2015. Median age was 73 years (IQI 59-83) in 2014 as well as in 2015. 684 episodes finished in 2014 and 631 in 2015, with death as the main cause, in 54.9% and 50.4%, respectively. The ones who were fed through nasogastric tube had a mean age higher than the ones fed by any other route (p-value < 0.001). Sisty-seven paediatric patients were recorded in 2014 (56.7% females) and 77 in 2015 (55.8% females). Median age at the beginning of HEN among children was 5 months in 2014 and 5 months in 2015. The main route of administration was gastrostomy, in 52.5% in 2014 and nasogastric tube in 50.8% in 2015. 7 episodes finished in 2014 and 13 in 2015, having death as the main cause (57.1% in 2014 and 38.5% in 2015). It was found that were younger children the ones who were mainly fed by nasogastric tubes (p-value 0.004 vs. 0.002). Among paediatric patients as well as adults, the main diagnosis leading to HEN was neurological disease which gives aphagia or severe dysphagia. Conclusions: There has been an increase in the number of patients in the registry as well as the participating centers and the number of patients per center, without any significant change in the characteristics of the patients other than longer duration of the episodes.

A home enteral nutrition (HEN); spanish registry of NADYA-SENPE group; for the year 2013.

To present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the year 2013. From January 1st to December 31st 2013 data was recorded for the HEN registry and further descriptive and analytical analysis was done. In this period 3 223 patients (50.6% men) and a total of 3 272 episodes of HEN were registered in 33 Spanish hospitals. The rate of prevalence was of 67,11 patients/million habitants/ year 2013. A high percentage of patients (98,24%) were older than 14 years. Adult's mean age was 69,14 years (sd 17,64) and men were younger than women p-value <0,001. Children mean age was 2,38 years (sd 4,35). The most frequent indication for HEN was neurological disease for children (49,1%). and for adults (60,6%). Gastrostomy was the most used administration route for children (51%) while younger ones were fed with NGT (p-value 0,003) also older adults (48%) were fed with this type of tube (p-value <0,001). The most frequent reasons for cessation of treatment was death, 44,4% were children and 54,7% were adults. The number of patients and hospitals registered increased in the last years while the other variables maintain steady. The registry developed allowing contrasted analysis of data in order to get more information.

Home enteral nutrition in Spain: NADYA registry in 2010

To describe the results of the home enteral nutrition (HEN) registry of the NADYA-SENPE group in 2010. We retrieved the data of the patients recorded from January 1st to December 31st 2010. We registered 6,591 patients (51% males) with 6,688 episodes of HEN, from 32 hospitals. Mean age in those younger than 14 yr (4%) was 1 ± 2 yrs (m ± SD) and 69,9 ± 17,8 yrs in those older than 14 yr. The length of HEN was longer than 2 yrs in 76% of the patients. The most frequent underlying disease was neurological disorders 42%, followed by cancer 28% (mostly head and neck cancer 18%). We had information related to the enteral access route in only 626 cases (9,4%), 51% of them used nasogastric tubes, 27% gastrostomies, 10% oral route and 3% jejunostomies. Only 251 episodes were closed during the year, mostly due to patient death 57% and progress to oral diet 14%. The activity level was limited in 29% of the patients and 39% of them were bed- or chairridden. Total or partial help was needed by 68% of the patients. The hospitals and the private pharmacies delivered the enteral formula in 63% and 34% of the cases, respectively. The hospitals and the primary care centres delivered the disposables in 83% and 16% of the cases, respectively. The results of the 2010 HEN registry are similar to those published in previous years regarding the number and characteristics of the patients. We continue finding problems in the entrance of data referred to the enteral access route and the closing of the episodes.

Surgical jejunostomy as digestive tube access in the long-term

Home enteral nutrition (HEN) is the choice for patients who can not mantain oral intake but have a functioning gastrointestinal tract when it isn't justify keeping the patient in the hospital. The results of the HEN registry of the NADYA group in 2010 shows information related to the enteral acces route: 51% of the cases used nasogastric tubes, 27% gastrostomies, 10% oral route and 3% jejunostomies. Placement of a needle catheter jejunostomy is recommended for candidates for enteral nutrition undergoing major abdominal surgery, but publications about long-term use of this acces are scarce. We report same cases of patients whom the selected enteral acces was surgical jejunostomy. They represents the 1,14% of our patients with HEN at this moment, with a mean dwelling time of 210 ± 222 days. There has been frequent complications, but they were sligh.

Establishing a NSW HEN registry

G. Pang, W. Andrews, C. Clarkson, J. Dwyer, M. Holyday, H. Jackson, H. Kepreotes, K. Lambert, M. Paton, K. Robertson, B. Scott, E. Stradling, P. Talbot, S. Wagner, K. Ward, GMCT HEN Group Greater Metropolitan Clinical Taskforce, Sydney, NSW, Australia. Home enteral nutrition (HEN) is the provision of nutrition support therapy either by mouth or by feeding tube into the gastrointestinal tract in the home setting. The use of HEN is growing rapidly in Australia and worldwide. Currently, little is known about HEN patients and HEN services in NSW. The Home Enteral Nutrition (HEN) Project is funded by the Greater Metropolitan Clinical Taskforce (GMCT), NSW Health with the aim of achieving equitable funding and access to HEN services for all patients across NSW. A state-wide data collection and reporting system for NSW HEN patients (NSW HEN Register) has been established to monitor trends in HEN therapy in NSW. A minimum dataset was identified and used to collect data for a one-month audit of new and existing HEN patients treated in NSW public healthcare facilities. From the audit it was estimated that approximately 8,000-10,000 patients receive HEN therapy in NSW. The NSW HEN register uses Teleform technology. Fax forms enable data to be digitally processed into the NSW HEN Register Database. The database will be managed centrally by GMCT HEN and will provide data back to reporting sites on their HEN patients. This data collection will assist in planning for future HEN services in NSW. At present this is the only large HEN population registry in Australia. This model could be used to establish a national HEN register or audit of HEN patients nationally.