Field Of Developmental Disabilities Research Articles

관계틀 이론에 대한 체계적 분석

This study aims to systematically review the global trends in developmental disability research applying Relational Frame Theory (RFT). Initially, 1,405 research articles were searched, and following the PRISMA procedure, 58 studies focusing on developmental disabilities within the context of RFT were ultimately selected for analysis. This research meticulously examined the publication year, journal name, characteristics of participants, dependent variables, independent variables, research settings, and experimental designs of the selected studies. The analysis of the global trends in RFT-based developmental disability research revealed that studies span a variety of developmental disability types, with derived relational responding and verbal operants among the primary dependent variables, and RFT-based instructional strategies frequently serving as independent variables. The research settings were predominantly in schools and therapy rooms, with most participants being children and adolescents diagnosed with Autism Spectrum Disorder. Through this study, it was confirmed that RFT provides a significant theoretical and practical foundation for supporting language and cognitive development in the field of developmental disabilities. Based on the findings, the study suggests the need for expanding the scope and deepening the theoretical exploration of RFT-related research, discussing the limitations of the current study and directions for future research.

Family-centred service in paediatric acquired brain injury rehabilitation: Bridging the gaps.

Children and adolescents who sustain an acquired brain injury (ABI) can experience acute and ongoing difficulties in a range of cognitive and functional domains, and their families often experience significant life changes and challenges. Family-centred service is therefore considered best practice in paediatric ABI rehabilitation. Despite widespread acceptance of family-centred service in this context, recent literature indicates that family needs are often unrecognised and unmet following paediatric ABI. Although family-centred service was introduced in the field of developmental disability over five decades ago, there remains a lack of clarity about how this approach is implemented in practice. Additionally, limited literature has discussed the implementation of family-centred service in paediatric ABI rehabilitation despite key differences between ABI and developmental disability, including nature and timing of onset, rehabilitation foci, and impacts on families. In this review, we aim to: (i) outline common sequelae of paediatric ABI with a focus on family outcomes; (ii) summarise paediatric rehabilitation and highlight opportunities for family support and involvement; (iii) discuss and synthesise literature across paediatric ABI rehabilitation and family-centred service to highlight gaps in knowledge and practice; and (v) identify clinical implications and future research directions. There is a clear need for greater clarity and consensus regarding the implementation of family-centred service in paediatric ABI rehabilitation. This review highlights the importance of providing professional development opportunities for clinicians to increase competency in practising in a family-centred manner, and opportunities to actively involve, empower and support families within rehabilitation. This review also emphasises the importance of services implementing relevant supports to address family needs where possible and developing clear referral pathways so that families can access further support elsewhere when needed.

Prevalence of Secondary Traumatic Stress Among Direct Support Professionals in Intellectual and Developmental Disabilities Field.

Direct support professionals (DSPs) are deemed by existing literature as vital support to persons with intellectual or developmental disabilities (IDD). They may be exposed to the traumatic experiences of people with IDD with potential psychological implications. Secondary traumatic stress (STS) has been studied among related professionals across human services, but little is known among DSPs. The current study examines the prevalence of STS in a sample of DSPs. The results suggested that DSPs are exposed to traumatic experiences, and exposure to a greater number of traumatized clients is significantly correlated with symptoms of STS. At least 12.4% of DSPs in this sample met the diagnostic criteria for experiencing post-traumatic stress disorder (PTSD) symptoms. Also, results suggest STS differences in DSPs based on demographics.

Estimating the Demand for Direct Support Professionals in the Intellectual and Developmental Disabilities Field

National residential census data from residential programs for individuals with intellectual/developmental disabilities were examined to estimate the demand for Direct Support Professionals. Publicly available data and basic residential staffing formulae were used. While the number of individuals receiving residential supports and services increased about 28% over 11 years, the demand for Direct Support Professionals increased about 33%. Smaller group homes were noted to increase about 47% in demand for Direct Support Professionals. The shortfall in terms of Direct Support Professionals was estimated to be approximately 73,000 in the United States.

Negotiating Research Participant Consent With, for and by Adults With Developmental Disabilities in Interaction With Their Third-Party Consent Providers

We illuminate third-party research participant consent with, for, and by adults with developmental disabilities by examining consent as an iterative, ongoing process. We use an instrumental case study of three adults with developmental disabilities who, together with their third-party consent providing parents, participated in a broader conversation and video analysis study of how family members are part of decision-making by adults with developmental disabilities. Adults with developmental disabilities comprising our case demonstrated discomfort that left us with questions about the relational nature of third-party consent. We performed a directed content analysis of transcripts and video data corresponding to moments of discomfort, resulting in categories of one- distress, two- non-disclosure, and three- evasion. Our findings illustrate ambiguities where consent was at stake and where there appeared to be no ultimate “Yes” or “No” interpretation. We conclude that expressions of resistance to research participation by adults with developmental disabilities displayed in our data were assertions of autonomy that occurred in relation, yet ran counter to, the agendas of researchers and third-party consent providing parents. We offer recommendations for researchers in the developmental disability field and for qualitative researchers more broadly who might encounter similar ambiguities amidst the relational workings of consent. Greater analytic attention to the relational dynamics of consent has potential to expand ethical commitments of qualitative researchers beyond the limited range of meanings offered in ethics board approvals and signed consent forms.

Commentary on the 12th Edition of Intellectual Disability: Definition, Diagnosis, Classification, and Systems of Supports

Commentary on the 12th Edition of <i>Intellectual Disability: Definition, Diagnosis, Classification, and Systems of Supports</i>

Effectiveness of Interdisciplinary Leadership Training for Early Career Professionals in the Field of Developmental Disabilities

The purpose of this paper is to describe the curriculum and self-reported outcomes on measures of interdisciplinary leadership skills for work within the field of developmental disabilities from trainees in one interprofessional training program. The paper highlights one program's curriculum and strategy for capturing self-report survey measures from trainees in cohorts from 2014-2018 (n = 86) on two surveys (Interdisciplinary Attitudes and Skills and Leadership Self-Evaluation Form) and three time points across the training year: before training (T1), mid-year (T2), and after training (T3). Data from 86 trainees are reported including demographics (nearly 80% white, 92% female), non-descriptive statistics due to non-normative samples, and tertiles demonstrating changes between time points. Significant differences between medians are reported between T1-T3 specifically related to utilizing interdisciplinary skills and gains in leadership competencies. Specific utilization of skills was reported to be 'Greatly' attributable to the LEND program related to sharing ideas and asking for help across disciplines. Trainees' self-report from before training to after training indicates an increase in competence and utilization of interdisciplinary skills to be expected from participation in the curriculum. Self-report measures are.

Goal Attainment Scaling: A Framework for Research and Practice in the Intellectual and Developmental Disabilities Field.

Goal setting and attainment is often a targeted outcome in the intellectual and developmental disabilities field; however, standardizing the measurement of attainment of individualized goals is challenging. The purpose of this article is to introduce a four-domain framework that provides a series of questions to research and evaluation teams in planning for the use of goal attainment scaling (GAS) as an outcome measure at the individual or aggregate level. We intend to stimulate discussion and ongoing work to further systematize how GAS is used in (a) intervention research to establish evidence-based practices and (b) practice to assess the extent to which interventions and supports lead to intended outcomes. The goal is to promote a clear planning process to inform data collection on individualized goal attainment outcomes that are rooted in goals and outcomes valued by people with intellectual and developmental disabilities.

Understanding and addressing pseudoscientific practices in the treatment of neurodevelopmental disorders: Considerations for applied behavior analysis practitioners

AbstractPseudoscientific practices are commonly used and promoted in the field of developmental disabilities. Behavior analysts should anticipate encountering such treatments in practice and understand their ethical obligations with regard to these practices. Thoughts on why pseudoscientific practices are frequently sought are presented for context in understanding this complex issue. This discussion will serve to prepare behavior analysts for how to address situations in which clients may ask behavior analysts to use pseudoscientific practices. Additionally, this discussion covers arguments for the dangers of using pseudoscientific practices, a guide to resources for information on evidence‐based practice and ethics, and ideas on how to handle a situation in which a parent or caregiver asks the behavior analyst to integrate a pseudoscientific approach into the treatment of a child with a neurodevelopmental disorder.

Using Community-Based Participatory Research to Develop a Series of Core Competency Trainings Within a Developmental Disability Program

ABSTRACTThe New York State Talent Development Consortium at the Office for People with Developmental Disabilities (OPWDD) mandated developmental disability programs to train and evaluate direct service providers (DSPs) on seven core competencies. Utilizing community-based participatory research (CPBR) – an approach where clients, providers, and researchers share their knowledge and experience to identify study areas, formulate research questions, and use results to improve practice – a needs assessment was conducted by a New York-based developmental disability program to inform a training curriculum. Six focus groups were conducted from a purposive sample of 14 DSPs, and 19 managers/supervisors. Staff identified skills that corresponded with six out of seven competencies. Staff recommended hands-on training on: appropriate communication to deal with individuals with severe disabilities; professionalism; person-centered care; and education on terminology in behavioral health plans, medication, and mental health illnesses. Empowering DSPs through CBPR allows for a training curriculum catered toward staff needs, which may be well-received and utilized. The CBPR process employed may be beneficial to other agencies within the intellectual and developmental disabilities field, particularly at a time when the demand for nonlicensure providers such as DSPs is increasing, and there is a need to train them to render quality and effective services.

Appraisal of comparative single-case experimental designs for instructional interventions with non-reversible target behaviors: Introducing the CSCEDARS (“Cedars”)

Evidence-based practice as a process requires the appraisal of research as a critical step. In the field of developmental disabilities, single-case experimental designs (SCEDs) figure prominently as a means for evaluating the effectiveness of non-reversible instructional interventions. Comparative SCEDs contrast two or more instructional interventions to document their relative effectiveness and efficiency. As such, these designs have great potential to inform evidence-based decision-making. To harness this potential, however, interventionists and authors of systematic reviews need tools to appraise the evidence generated by these designs. Our literature review revealed that existing tools do not adequately address the specific methodological considerations of comparative SCEDs that aim to compare instructional interventions of non-reversible target behaviors. The purpose of this paper is to introduce the Comparative Single-Case Experimental Design Rating System (CSCEDARS, “cedars”) as a tool for appraising the internal validity of comparative SCEDs of two or more non-reversible instructional interventions. Pertinent literature will be reviewed to establish the need for this tool and to underpin the rationales for individual rating items. Initial reliability information will be provided as well. Finally, directions for instrument validation will be proposed.

Review on Psychosocial Interventions for Siblings of Children with Autism Spectrum Disorder (ASD)

Children with autism spectrum disorder (ASD) have unique characteristics such as impairments in communication and social interaction. The impact of these characteristics constitutes a challenge to other children in the family. Most of the researchers in the field of developmental disability have focused on the parents and not on the siblings. The purpose of this article is to review the current literature related to psychosocial interventions for siblings of children with ASD. The primary electronic data search was carried out in PubMed database, Scopus, Google scholar, ProQuest, EBSCOhost, and Psych NET. All the searches yielded a total of 891 titles. After screening for necessary inclusion criteria, eight studies were included in the final review. All studies reported positive impacts on sibling relationship quality, understanding about autism. Furthermore, these effects were maintained from post intervention to follow-up. Review findings imply that there was a significantly positive impact on target children after participating intervention program. Implications for both research and practice are discussed.

An Item Analysis of the French Version of the Test for Reception of Grammar Among Children and Adolescents With Down Syndrome or Intellectual Disability of Undifferentiated Etiology.

An item analysis of Bishop's (1983) Test for Reception of Grammar (TROG) in its French version (F-TROG; Lecocq, 1996) was conducted to determine whether the difficulty of items is similar for participants with or without intellectual disability (ID). In Study 1, responses to the 92 F-TROG items by 55 participants with Down syndrome (DS), 55 with ID of undifferentiated etiology (UND), and 55 typical children (TYP) matched on their F-TROG total score were compared using the transformed item difficulties method, a statistical approach designed to detect differential item functioning (DIF) between groups. In Study 2, an additional comparison involving 526 TYP participants and 526 participants with UND was conducted to increase the statistical power of the analysis. The difficulty of items was highly similar whatever the sample size or clinical status of participants. Fewer than 3.5% of the items were flagged as showing DIF. Tests such as the TROG can be used with confidence in clinical practice as well as in research studies comparing participants with or without ID. Methods designed for investigating potential internal test bias-such as done here-should be more regularly employed in the developmental disability field to affirm the absence of DIF.

A Delphi Study on Staff Bereavement Training in the Intellectual and Developmental Disabilities Field.

The Delphi technique was used to obtain expert panel consensus to prioritize content areas and delivery methods for developing staff grief and bereavement curriculum training in the intellectual and developmental disabilities (IDD) field. The Delphi technique was conducted with a panel of 18 experts from formal and informal disability caregiving, nursing, and hospice and bereavement service provision. Results showed that training should help staff identify and support service users experiencing grief. Importantly, staff also needs help in managing their own grief. Organizational policies and resources should be instituted to support the grief processes of both service users and staff. Practice-based applications are discussed, and research implications are presented for training evaluation.

Behavioural phenotypes in translation

Behavioural phenotypes in translation

Before itard: intellectual disability and the enlightened voice of Daniel Defoe.

Although positive regard for the needs of people with disabilities was apparently uncommon by many accounts prior to the 20(th) century, this may be a misconception of history. There were likely many people who responded to the needs of their family members and others in need of assistance because of their disablities, and their physical and emotional proximity. This, however, if so, is not easily discernable in historical records. Few and rare voices raised that endeavored to inform and inspire others toward humane treatment and educational interventions for people with disabilities have been documented. This rarity was particulary true for those considered to have an intellectual disability. Evidence of advocacy in disbility history are difficult to find. When found they have been embraced as critical to understanding the development of the field of developmental disabilities. A famous example is the work of Jean Itard. The proposals of the well-known author, Daniel Defoe, however, are also notable for his forward-thinking writing as it related to how society should respond to the needs of people with disabilities. A review of his work provides important examples of a philosophy of advocacy and education that preceded the work of Itard by approximately 75 years but that has rarely been acknowledged. This manuscript highlights and discusses several of these important works and provides a context for Defoe's contributions.

Depression and mood disorders among persons with autism spectrum disorders.

In the past decade, Autism Spectrum Disorders (ASD) have both risen in prevalence and become a critical area of research in the field of developmental disabilities. As the body of knowledge about ASD has grown, the overlap of ASD with other problems has also become a rapidly emerging area of study. One of the most studied of these topics is comorbid psychopathology, with depression and mood disorders emerging as one of the more troublesome of these co-occurring conditions. A great deal of research is still needed to determine how best to assess and treat these disorders within the context of ASD. This manuscript reviews current trends and topics relative to this area of study.

Dete sa autizmom u inkluzivnom vaspitnom kontekstu

The paper examines the possibility of including children with autistic spectrum disorders in mainstream groups in kindergartens, but from the perspective of preschool educators in inclusive educational groups, examining their attitudes to the problem concerned, and knowledge of the basic aspects of the disorder and effective methodological solutions, which were used in their work. The research conducted in Preschool institution 'Nata Veljkovic' in Krusevac, on a sample of 36 preschool teachers selected randomly, with the request to have more than five years of working experience, has shown that most teachers expressed concern and fear of the inclusion of children with autism and that there was a need for additional education in the field of developmental disabilities, that would make them better equipped to work and give them more confidence.

Intellectual disability in India: Charity to right based.

Byline: B. Chavan, Abhijit. Rozatkar According to the Census 2001, [sup][1] there are 21 million people with disabilities in India who constitute 2.13% of the total population. In contrast, the National Sample Survey Organization (NSSO) estimated that the number of persons with disabilities in India is 1.8% of the Indian population; [sup][2] of which 75% of persons with disabilities live in rural areas, 49% of them are literate and only 34% are employed. Both the surveys included the persons with visual, hearing, speech, locomotor, and mental disabilities, but the distribution in each category according to the two surveys differs drastically. However, experts working in the field of developmental disabilities feel that prevalence of mental disability is much higher. [sup][3] Intellectual disability (ID) is characterized by significant impairment in cognitive and adaptive behavior. The term used to describe this condition has gone under constant change over the years due to social and political compulsions. The main reason to search for a new term is to find a least stigmatizing terminology. Thus, mental retardation, which was in use world over till late 20 [sup]th century, has now been replaced with ID in most English speaking countries. Diagnostic and Statistical Manual 5 [sup]th Revision (DSM-V) has replaced it with ID and the much anticipated 11 [sup]th revision of International Classification of Disease is likely to do so. [sup][4],[5] The history of ID has passed through a very turbulent phase and can be briefly summarized under: i) Pre-industrialization phase: From the dawn of civilization to the beginning of industrialization period, people born with "abnormal" physiognomy were treated with fear or ridicule (and perhaps continue to do so in many societies). ii) Industrialization phase: Although industrial revolution is associated with increasing wealth and productivity, it also brought in many ill effects. Migration to bigger cities led to development of slums, poverty, diseases, and crimes. Families started valuing those with vocational ability and started neglecting members who were not able to work. The individual who had low intelligence were left out and were labeled as feeble-minded, degrading, and stigmatizing. iii) Humanitarian approach: In 1846, Dr Samuel Gridley Howe from Boston persuaded Massachusetts Legislature to appoint a commission to inquire into the condition of 'idiots'. After survey and close study, he for the first time observed, "These are the proper subjects of education, they can be taught to do some kind of labor and they can be made self-sufficient". [sup][6] It led to many state run schools for these persons. However, these schools were a failure because Howe and his fellows (Sequin and Wilbur) were too optimistic, unrealistic in expectations as they expected to restore all 'idiots' to normal functioning. iv) Demonology of the defectives: The scientific developments of Darwinism, sociological approach, Mendelian theory of genetics, and Binet psychometric tests advocated, directly or indirectly that feeble minded individuals, who could be easily identified and quantified, are risk to the society. Thus, the society started thinking ways to prevent feeble mindedness from occurring and working on ways how to control those in whom it did occur. The segregation seemed to be the best method where feeble minded could be cheaply and wisely cared for along with prevention and societal protection. v) Period of John F Kennedy: In 1963, based on recommendations of President's Panel on Mental Retardation, JF Kennedy made a speech to the Congress of United States and asked for new resources to address the needs for people with mental retardation. Soon, virtually every state launched special educational programs for these persons. [sup][6] Currently, the term ID is being used instead of mental retardation. This transition in terminology is supported by organization like the American Association on Intellectual and Developmental Disabilities (AAIDD), International Association for the Scientific Study of Intellectual Disabilities (IASSID), and President's Committee for People with Intellectual Disabilities. …

Identifying causation: the role of the clinical expert

One of the most frustrating realities facing both service providers and researchers in the field of developmental disability is how to establish a clear connection between a putative ‘cause’ and an outcome or ‘effect’. The daily challenges of our clinical work concern, among many other dilemmas, how to identify what causes a condition and how to assess whether an intervention works (i.e. causes the intended effects). When a change is anticipated after intervention (or indeed over time) we need to be prepared to speculate – before the fact – about what we think are the active ingredients that are likely to ‘cause’ any improvements we observe. It is a longstanding truism in clinical epidemiology that association is not causation.1 We have been taught that cross-sectional studies that identify correlations among variables can at best illustrate the possible interrelationships among those factors, but (usually) not the temporal relationship, let alone the mechanisms that might link those elements. Furthermore – and we too seldom recognize this reality – even the elements that we initially choose to measure and correlate in cross-sectional studies reflect – consciously or implicitly – our ideas about the possible mechanisms that cause the association and lead us to choose the variables on which we focus our attention. A classic example from the field of childhood disability is the destructive but once popular belief that ‘refrigerator mothers’ caused their children to become autistic. In the climate of beliefs about psychodynamic causality popular in the 1950s and 60s it was easy to make the leap – from the observation regarding puzzled and apparently ineffectual parents of children with autism spectrum disorders (ASDs) – to the causal inference that impaired parenting was the active ingredient in the genesis of these impairments. With the benefit of advances in our understanding of the underlying neuroimpairments in people with ASDs, and our recognition of the transactional nature of child-parent development, these old ideas are now clearly recognized to be rather bizarre. However, they serve as an important illustration that how we think determines what we see, and especially how we see it! In a recent issue of DMCN, the commentary by La Bastide-Van Gemert and van den Heuvel2 (on the paper by Faebo Larsen et al.3) made the argument that advanced statistical methods such as causal graphs may allow researchers to take a step beyond the caution about causal inferences to which most of us have been exposed. The arguments are interesting, if rather complex, and the references cited are even less accessible to the non-expert than is the commentary. It is worth noting, however, that even with the most experienced biostatistical expertise there remains an obligation on the part of clinical researchers to lead the charge. Whatever causal pathways one might explore statistically need to be guided and informed by the best of our current understanding of possible pathways and temporal relationships among the factors (variables) being correlated. Returning to refrigerator mothers, one might expect that using today's statistical methods and 1960s concepts a strong relationship between measures of mothering and the presence of ASD might have been observed. It seems equally likely that, were these same imagined data explored with today's understanding of the nature of ASDs the pathways between the variables would be drawn differently – as would the conclusions emerging from the statistical analysis. These comments are in no way meant to diminish the incredibly useful role that biostatistical colleagues and their advanced methods play in enabling clinical researchers to delve more deeply than ever before into the data. They are simply a reminder that clinical research depends, first and foremost, on the articulation of a clear research question, supported by arguments about both the rationale for that question and some a priori commitment regarding how the relationships being studied might work. Under those conditions the findings are likely to be more interpretable and perhaps less susceptible to the post hoc ‘Ahas!’ that so easily can creep into our thinking and bolster what we already believed.