Family-professional Collaboration Research Articles

Preparing Early Interventionists/Early Childhood Special Educators with Knowledge and Practices to Collaborate with Families: A Mixed-Methods Systematic Review

Due to the important impact family-professional collaboration has on child outcomes for infants, toddlers, children, and students with disabilities, research in special education preservice personnel preparation has evaluated the impact of higher education programs and curricula geared towards improving preservice educators’ knowledge and practices regarding family-professional collaboration in inclusive settings. The resulting literature has provided the field with insights as to instructional strategies faculty have implemented to better prepare preservice special educators to collaborate with families. The purpose of this mixed-methods systematic review was to identify and synthesize the current state of knowledge behind these instructional strategies intended to increase preservice educators’ knowledge and practices to collaborate with families. A total of 15 peer-reviewed journal articles published between 1968-2024 were included in the study. Findings indicate that various instructional strategies and outcome measures were used to measure preservice educators' knowledge and practices. Implications for future research are described.

Effectiveness of Family-Professional Collaboration on Functional Goals Achievement of Children with Cerebral Palsy and Caregivers' Quality of Life and Burden: A Randomized Comparative Study.

Background: Family-professional collaboration is important to enhance the outcomes for children with cerebral palsy and their caregivers. Aims: This study examined the effect of implementing a family-professional collaboration practice model on children with cerebral palsy and their caregivers. Materials and methods: A randomized, single-blind comparative study included 28 physical therapists, 44 children with cerebral palsy between the ages of 2 and 12 years old, and their caregivers. Physical therapists in the experimental group received training in how to implement collaboration in their therapy sessions over the course of two sessions (3 h each). The children's achievement goal-range rate was measured using the Goal Attainment Scaling, the caregivers' quality of life was assessed using the World Health Organization Quality of Life-Brief, and the caregiver burden was evaluated using the Zarit Burden Interview. Results: All children showed improvement on the Goal Attainment Scaling change rate (p = 0.002), with no significant differences between groups (p < 0.44). However, a group × time interaction was observed. The Children Goal Attainment Scaling rate decreased between the two assessment sessions for children in the control group, while the Goal Attainment Scaling change rate was steady for the experimental group. There were no main effects of time and group or interaction of time × group reported on World Health Organization Quality of Life-Brief domains and no main effect of time on the Zarit Burden Interview, but there was a main effect between groups (p = 0.03), with partial eta square = 0.11 in favor of the experimental group. Conclusions: The family-professional collaboration practice model could be a potential practice to positively improve the outcomes in children with cerebral palsy and their caregivers.

Addressing Students’ Beliefs to Enhance Family-Professional Collaboration in Early Intervention and Early Childhood Special Education Preparation

Preservice educators’ attitudes and beliefs towards families can have a profound impact on family-centered practices (FCPs) and family-professional partnerships (FPPs); unfortunately, negative beliefs about families can surface during preservice early childhood preparation and can be a challenge for faculty in higher education to address. This article shares promising instructional practices (e.g., projects, assignments, teaching methods) that have been shown to reshape preservice educators’ existing beliefs about families. In addition, these instructional practices aim to cultivate positive perspectives in preservice educators by aligning with the recent joint policy statement from the U.S. Department of Health and Human Services and the U.S Department of Education on inclusive early learning programs (2023) regarding engaging families as full partners. The purposes of this article are to: (a) briefly summarize the literature on relational FCPs and FPPs, (b) describe the connection between beliefs about families and their contribution to strengthen or hinder relational FCPs and FPPs, and (c) present instructional practices that faculty can use to support preservice EI/ECSE students’ constructive beliefs about families. Examples of instructional practices are organized and presented as: in class activities with families (e.g., guest speakers); in class activities without families (e.g., role playing); and out of class activities with families (e.g., attending an Individualized Education Program [IEP] meeting). By integrating these instructional practices, faculty can equip preservice educators with necessary skills and attitudes to build authentic connections with families, which can lead to improved outcomes for young children with disabilities and their families.

Teacher perspectives on partnerships on families of children with autism

The success of students with disabilities in school and community largely relies on productive family professional partnerships (FPPs). The Individuals with Disabilities Education Act (IDEA, 2004) recognises the importance of family collaboration to student success by mandating that parents be involved in the Individualised Education Plan (IEP) process as full team members. While several previous studies examined the perspectives of parents of children with disabilities on partnerships with educators, less research exists on teacher perspectives on family professional collaborations. Additionally, there are even fewer studies that focus on teacher perspectives on partnerships with parents of children with autism, a disability category which continues to increase in prevalence. The present study contributes to the literature by examining teacher perspectives on factors that build and hinder positive partnerships with families of children with autism. Researchers surveyed 25 Special Education teachers and conducted additional individual interviews and open‐ended questionnaires to examine teachers' first‐hand experiences. Findings identified four common themes that educators felt helped and hindered collaborative relationships with families. Study results may lead to the development of specific family professional collaboration strategies that can be implemented and discussed in school districts, teacher trainings, pre‐service teacher education programs and family workshops.

Negotiating expectations for therapy between mothers and service providers: a narrative analysis

Purpose: To use stories about mothers and service providers negotiating expectations for therapy to illuminate processes contributing to power differences within partnerships. Methods: This narrative study presented stories from three mothers and three service providers. Stories were co-constructed between participants and researchers and analyzed using narrative analysis. Building on An and Palisano’s (2014) Model of Family-Professional Collaboration, stories were organized into the stages of goal setting, planning, and doing therapy. Results: Each story illuminated a process unique to that story that can redistribute power between mothers, service providers, and therapy environments while negotiating expectations: protecting sacred issues, facilitating knowledge exposure, filling voids/vacuums, recognizing cultural conditioning, re-discovering eclipsed roles, and connecting relay teams. We propose including three additional strategies to An and Palisano’s model to increase the readiness of mothers and service providers to negotiate expectations for therapy and collaborate fully as the model intends: 1) exploring power-sharing conversations; 2) looking for social context clues; and 3) adopting a humility stance. Conclusion: Information on the six illuminated processes can help structure a client story grounded in optimal negotiation of expectations and equal partnerships. Implications for Rehabilitation Knowledge of diverse stories about mothers and service providers negotiating expectations for therapy can be a resource to guide actions in related situations. Leaving the topic of expectations for therapy implicit or unchallenged increases the risks that negotiations remain unbalanced and unproductive. Service providers may enhance collaboration with mothers in paediatric rehabilitation by exploring power-sharing conversations, looking for social context clues, and adopting a humility stance.

A Qualitative Examination of Family and Educator Perspectives on Early Childhood Behavior Supports

Challenging behavior is an obstacle to social-emotional competence for young children. Function-based behavior support can promote positive outcomes for children and their families, and family collaboration is an important component of successful positive behavior support programs. However, little is known about how families and educators collaborate to support young children with challenging behaviors in early childhood settings. Using qualitative inquiry, we examined family members’ and early childhood educators’ experiences with the behavior support process. Focus groups were conducted with 12 family members and 11 educators to understand how they collaborate. Our findings highlight themes related to communication and building partnerships. Based on these findings, we present a model of family–professional collaboration and a discussion of technology-supported communication tools that may facilitate successful collaboration between families and educators during the behavior support process.

Statewide policies to improve early intervention services: Promising practices and preliminary results

The State of Nebraska Co-Lead agencies, who are responsible for developing statewide early intervention policies, rolled out professional development for two evidence-based strategies across several pilot sites. Implications of these strategies for child/family assessment, Individualized Family Service Plan (IFSP) development, and Early Intervention service delivery were examined utilizing family (n=30) and professional interviews (n=50), and analyses of IFSPs (n=30). The results of this mixed method study indicate widespread strategy implementation with fidelity fosters early working relationships with families and enables teams to generate, using family members’ own words, a robust group of high-quality child and family IFSP outcomes. Family engagement in planning services such as identifying service providers and setting the frequency and length of home visits was limited. In addition, further professional development is needed to strengthen use of routines-based interventions during home visits and promote family-professional collaboration to monitor child/family progress. Implications for systematic scale-up of evidence-based practices as a function of state policy implementation are reported.

Services for young children with disabilities in China’s rural area: a case study

Purpose Recently with increased legislative support and evidence-based studies on the importance of education for children with disabilities in China, special education programs and intervention and rehabilitation services have received more and more attention. There are limited studies on special education programs for children with disabilities located in China’s rural areas. This paper aims to select one special education program in China’s northeast rural area with a special focus on its curriculum design, accommodative services and teacher qualifications. Recommendations were provided on how to modify the curriculum to meet each child’s special needs, increase social interaction among children, increase teacher qualifications and improve teacher family collaboration. Design/methodology/approach The participating program serves orphans and children with disabilities between 6 and 18 years old and provides them 9-year free education, along with free textbooks, uniforms, food and boarding. Currently, there are approximately 100 students and 40 teachers, one director and one nurse. The teacher/staff and student ratio is 1:3. Data were collected through classroom observation and interviews. Afterward, the interview data were transcribed. Data were analyzed following Braun and Clarke’s (2006) six-step approach. The researcher reviewed the collected data, then coded the data and reviewed, refined and revised the codes, and finally themes and sub-themes were identified with quotations that support each theme/sub-theme. Findings The identified themes are accommodations, education plan and curriculum and teacher qualifications. Accommodations include, but are not limited to, visual and hearing aids. National unity textbooks were adopted, along with national syllabus objectives, as a guideline for instruction and evaluation of child progress. Teachers also adjust curriculum-based students’ individual needs. All teachers hold an associate degree in special education, and those who teach specials hold a higher degree in the specialty area. Given that there is no speech language pathologist, physical therapist, or occupational therapist, teachers with rich working experiences in the related field serve as special professionals. Research limitations/implications The current research reports the program design, accommodations for children with disabilities, curriculum and syllabus, parent/guardian role and teacher qualifications in the selected school. Given that the current study focuses on only one school located in the rural area of China’s northeast, it may represent special education programs in rural China, but it is hard to be generalized to provide a big picture of China’s special education programs in more developed, metropolitan areas. Practical implications The selected school offers accommodative services to students with disabilities; adjusts its curriculum to make it developmentally appropriate; and offers educational, medical and rehabilitation services to promote student development to the maximum. The selected school should improve teacher quality, increase social interaction between children with and without disabilities, modify the curriculum to cater to individuals with different severities of disabilities and increase family professional collaboration. Originality/value There is limited study on special education programs for young children with disabilities in China’s rural area. The current study fills this gap and studies a special education school that offers services to children as young as six years old located in a small town in the northeast of China. The special focus of the study includes program curriculum, accommodations, rehabilitation and intervention services and teacher qualifications in this program.

An Investigation of Facilitated Individualized Education Program Meeting Practice: Promising Procedures That Foster Family–Professional Collaboration

There is limited research about effective Individualized Education Program (IEP) meeting practices that promote family–professional collaboration. One emerging practice, the Facilitated IEP (FIEP) meeting, has recently gained national attention for its team-based approach. In this study, the authors interview 32 FIEP participants about their experiences with the process. Findings reveal five meeting procedures that encourage active team planning, collaboration, and problem solving between families and professionals, including premeeting with families, establishing and following a meeting agenda, using meeting norms, utilizing a parking lot for off-topic issues, and visual charting for graphic support during team discussion and problem solving. In this article, the authors present the implications of these procedural practices as a promising structure for IEP meetings that can be used by professionals to collaborate and involve families throughout the IEP meeting process. Implications for future research are also discussed.

When the healthcare does not follow the evidence: The case of the lack of early intervention programs for psychosis in Spain

There is now sufficient evidence to support the importance of interventions in the early stages of psychosis. The delay in the detection and treatment of the first-episode psychosis is related to a lower and slower recovery, as well as a higher risk of relapse. Despite this fact, early intervention units or teams are still not regularly implemented in mental health service settings in Spain. In this opinion article, a review is presented of the main arguments for defending the need to implement these programmes and strategies in order to achieve this aim. There are a number of programmes for early intervention for psychosis currently working in other countries, with a therapeutic programme that includes pharmacological and psychosocial interventions, together with public awareness, information dissemination, and family-professional collaboration activities. Published literature on the experience of these programmes indicates that early intervention is not only effective in terms of the improvement of health status, but is also economically efficient. The main steps and recommendations needed to implement such early intervention programmes in our country are described.

When the healthcare does not follow the evidence: The case of the lack of early intervention programs for psychosis in Spain.

There is now sufficient evidence to support the importance of interventions in the early stages of psychosis. The delay in the detection and treatment of the first-episode psychosis is related to a lower and slower recovery, as well as a higher risk of relapse. Despite this fact, early intervention units or teams are still not regularly implemented in mental health service settings in Spain. In this opinion article, a review is presented of the main arguments for defending the need to implement these programs and strategies in order to achieve this aim. There are a number of programs for early intervention for psychosis currently working in other countries, with a therapeutic program that includes pharmacological and psychosocial interventions, together with public awareness, information dissemination, and family-professional collaboration activities. Published literature on the experience of these programs indicates that early intervention is not only effective in terms of the improvement of health status, but is also economically efficient. The main steps and recommendations needed to implement such early intervention programs in our country are described.

Toward 2025: Promoting Valued Outcomes for People With IDD Through National Goals 2015

Toward 2025: Promoting Valued Outcomes for People With IDD Through National Goals 2015

Family–professional collaboration in pediatric rehabilitation: a practice model

Purpose: Family--professional collaboration is essential to optimize outcomes of children with disabilities and the families. Method: The authors incorporated current knowledge to formulate principles of collaborative service delivery in pediatric rehabilitation, develop a 4-step process of implementation, and recommend strategies that professionals can use to foster a collaborative process between families and professionals. The 4-step process and key elements of each step are described in detail to illustrate application of the model to practice. Results: The model is based on three key principles of collaborative service delivery: family-identified needs, shared responsibility, and family empowerment. Collaboration involves two-way interactions through which families and professionals share knowledge and skill, make shared decisions on goals and intervention, and build capacity in order to foster family empowerment and optimize outcomes. The 4-step process involves: (1) Mutually agreed-upon goals, (2) Shared planning, (3) Shared implementation, and (4) Shared evaluation. A unique feature of the model is the inclusion of collaborative strategies facilitated by the professional including client-centered interview, visualizing a preferred future, scaling question, family routine and activity matrix. Conclusion: The model may have utility for optimizing collaboration between families and professionals to foster family empowerment and optimize child and family outcomes.Implications for RehabilitationFamily--professional collaboration is essential to optimize outcomes of children with disabilities and families.The model of collaborative service delivery is based on three key principles: family identified needs, shared responsibility, and family empowerment.The model of collaborative service delivery is implemented using a four step process: (1) mutually agreed-upon goals, (2) shared-planning, (3) shared implementation, and (4) shared-evaluation.The unique feature of the model is the integration of specific strategies and procedures for professionals to foster collaborative processes between families and professionals.

Applying the ICF‐CY to identify children's everyday life situations: A step towards participation‐focused code sets

Adolfsson M. Applying the ICF‐CY to identify children's everyday life situations: a step towards participation‐focused code setsWith the long‐term goal to create an interdisciplinary screening tool with code sets focusing on children's participation in everyday life situations (ELS), the purpose of the present study was to identify ELS for children 0–17 years. The views of professionals and parents in Sweden, South Africa and the USA were integrated based on ICF‐CY1 linkages. The chapters Self‐care and Major life areas seemed most obvious to include in ELS. At the 2nd ICF‐CY level, 11 categories emerged as ELS, with Hygiene and Recreation as the most obvious. Two sets of ELS were identified for infants/preschoolers and school‐aged children/adolescents. Professionals and parents agreed on ELS for the older age group. Findings suggest that ELS differ in context specificity depending on maturity and growing autonomy. The study has implications for the future screening tool that is intended to support children with disabilities in describing what matters most to them in intervention planning.Key Practitioner Message: •Children and parents need opportunities to express their opinions during intervention processes, but a structured family–professional collaboration model is lacking; •Using ICF‐CY‐based models, including holistic views of participation in everyday life situations, increases professionals' focus on family perspectives; •Models to connect interventions to participation in everyday life situations enhance children's motivation and support interdisciplinary assessment.

Ethics, Equity, and English-Language Learners: A Decision-Making Framework

Ethics, Equity, and English-Language Learners: A Decision-Making Framework

Cross-Cultural Assessment of Young Children's Language and Literacy Development

Abstract Speech-language pathologists are faced with an increasing demand to conduct language and literacy assessments for children who are from cultures different from their own. Cross-cultural assessment is challenging. This article outlines the conditions necessary for successful implementation of culturally appropriate models of assessment. Alternative approaches to assessment are proposed that will guide speech-language pathologists about where, when, and how to assess children. Embedded approaches, authentic approaches, mediated approaches, and comprehensive models offer the speech-language pathologist the option of using assessment activities which can be adapted to match the needs of the child being assessed. And finally, ideas for family-professional collaboration in the assessment of young children's language and literacy development are provided.

Developing Reflective Thought in Preservice Educators: Utilizing Role-Plays and Digital Video

This study was designed to investigate the role of video in the growth of written reflective responses between two groups of preservice teachers. Fifty-four students enrolled in four sections of a required special education course that focused on family-professional collaboration participated. Subjects included candidates seeking general and special education certification and a teaching endorsement in special education. Participants were divided into two groups. Group 1 students participated in three role-plays, reflected on their actions, and then wrote reflections after each role-play. Group 2 students participated in three role-plays that were recorded with digital videotape and placed on a streaming server. Students watched each video, reflected on their actions, and then wrote reflections. A developmental coding rubric was used to score students' written reflections following the role-plays. Analysis of the written responses and follow-up focus discussions demonstrated an increase in reflective thought in the written reflections of the students who used video. Findings also showed positive attitudes about the use of technology for personal reflection. Implications for future practice and the use of digital video technologies are discussed.

Resources Within Reason

Each issue will review resources that cost $50 or less on a different aspect of early intervention. This issue features materials that promote family-professional collaboration in daily practice.

Shared Expertise

Family-professional and interprofessional collaboration have been increasingly emphasized in children's mental health since the advent of federal legislation requiring parent participation in planning services for children with disabilities and the Child and Adolescent Service System Program. However, professional training programs have been slow to incorporate attention to such collaboration. In this article we report findings from a survey of 51 university and agency-based interprofessional training programs. The purpose of the survey was to learn about interprofessional education programs that prepare professionals to work in interagency, interprofessional environments and to collaborate with families. Family member involvement in the planning, implementation, and evaluation of interprofessional training and curricular attention to family-professional collaboration were found to be present in a small number of interprofessional education training programs. These findings are presented, along with recommendations for increased attention to family-professional collaboration in professional training.

The Impact of Culture and Socioeconomic Status on Family-Professional Collaboration: Challenges and Solutions

In this study, challenges to family-professional collaboration related to cultural diversity and socioeconomic status (SES) were identified by 26 professionals from early intervention programs through the use of an interview guide and case vignettes. The guide included structured and open-ended questions, and two case vignettes were used to identify solutions to problem situations. Professionals reported that they spend more time with families from different cultural backgrounds in eliciting concerns, in attempting to understand their needs and customs, and in explaining the Individualized Family Service Plan (IFSP) process. They also reported that families from lower SES and educational backgrounds were often concerned with basic survival needs, such as housing, and, consequently, tended to (a) defer to professionals' judgments when setting IFSP goals, (b) have difficulty in identifying their child's needs, and (c) show reluctance in sharing information. Although this study needs replication with larger samples of professionals, the findings provide important insights into how professionals view the impact of cultural diversity and SES on family-professional collaboration.