Experience Of Bereavement Research Articles

My grief app for prolonged grief in bereaved parents: a randomised waitlist-controlled trial

ABSTRACT A minority of bereaved adults experiences prolonged grief disorder, depression, and/or posttraumatic stress disorder, with heightened risks observed among bereaved parents. Cognitive-behavioural therapies, both face-to-face and online, have demonstrated efficacy in treating post-loss mental health problems. Mobile phone applications potentially offer an efficient and cost-effective way to deliver self-help to bereaved adults, yet controlled effectiveness studies are lacking. Therefore, we examined the short-term efficacy of the My Grief app, based on cognitive-behavioural therapy, in 248 bereaved parents, in a randomised controlled trial (Clinicaltrials.gov, identifier: NCT04552717). Participants were randomly allocated to access to the My Grief app (n = 126) or a waitlist (n = 122). At baseline and post-assessment, symptoms of prolonged grief, posttraumatic stress, and depression, negative grief cognitions, rumination, and avoidance were assessed. Reductions in prolonged grief and posttraumatic stress symptoms and negative cognitions in the intervention group were larger than in the control group, albeit with small effect sizes. Fifteen app users reported negative experiences with the app; for example, some mentioned that it elicited painful memories and emotions related to their loss. My Grief appears to achieve modest improvements in mental health in bereaved parents. Given that it is accessible and low-cost, it is an important addition to the suite of prolonged grief interventions.

Support Experiences and Wishes of Bereaved Parents After the Loss of Their Child to Cancer.

The death of a child has a tremendous impact on parents' lives. The experience of parents who have lost a child to cancer may differ from other bereavement experiences, including other childhood and adulthood causes of death, because of the uncertainty of the prognosis, the aggressive treatment, and the potential for regret about treatment decisions. Bereavement care remains scarce, and effective interventions to meet the diverse needs of parents have not been defined. To provide insights on bereaved parents' experiences, their needs, and wishes of support following the loss of their child to cancer. We conducted 18 qualitative, in-depth, semi-structured interviews with 23 bereaved parents (seven fathers, 16 mothers), and used reflexive thematic analysis to analyze the data. Parents received both informal and professional support. Regarding informal support, parents expressed a high level of ambivalence rooted in grief illiteracy. Parents also recognized their own struggles to express what forms of informal support they would have liked to receive. Support provided by healthcare professionals, institutions, and organizations involved in the children's care or in bereavement was inconsistent due to personnel time constraints, interpersonal relationships, or disruptions due to the COVID-19 pandemic. These factors could result in parents not having access to certain forms of support or not receiving long-term support. Improving grief literacy may strengthen informal support and make discussions of grief and death less taboo. Institutional policies, training, and networking may help to ensure that support provided by healthcare professionals, institutions, and organizations is less vulnerable to inconsistencies.

Medical Decision-Making and Bereavement Experiences After Cardiac Arrest: Qualitative Insights From Surrogates.

Surrogates of incapacitated patients in the intensive care unit (ICU) face decisions related to life-sustaining treatments. Decisional conflict is understudied. To compare experiences of ICU surrogates by reported level of decisional conflict related to treatment decisions after a patient's cardiac arrest preceding death. Convergent mixed methods were used. Bereaved surrogates recruited from a single northeastern US academic medical center completed surveys including the low-literacy Decisional Conflict Scale (moderate-to-high cut point >25) and individual interviews about 1 month after the patient's death. Interview data were analyzed by directed and conventional content analysis. Surrogates were stratified by median total survey score, and interview findings were compared by decisional conflict level. Of 16 surrogates, 7 reported some decisional conflict (median survey score, 0; range, 0-25). About two-thirds decided to withdraw treatments. Three themes emerged from interviews: 2 reflecting decision-making experiences ("the ultimate act"; "the legacy of clinician communication") and 1 reflecting bereavement experiences ("I wish there was a handbook"). Surrogates reporting decisional conflict included those who first pursued but later withdrew treatments after a patient's in-hospital cardiac arrest. Surrogates with decisional conflict described suboptimal support, poor medical understanding, and lack of clarity about patients' treatment preferences. These findings provide insight into bereaved ICU surrogates' experiences. The low overall survey scores may reflect retrospective measurement. Surrogates who pursued treatment were underrepresented. Novel approaches to support bereaved surrogates are warranted.

The psychological burden of bereavement in the general population of UK and Ireland

This study examined the experiences of loss among bereaved adults, and the association between loss-related factors and mental health outcomes. Participants were 2023 bereaved adults from the United Kingdom and Ireland who completed measures of their bereavement experiences and symptoms of depression, anxiety, and somatization. The highest proportion of participants and those at greatest risk of meeting criteria for all disorders were those with less time since loss, who were in contact with the deceased every day or not at all in the year prior to their death, experienced sudden unnatural death, and those who lost a partner/spouse or a child. Age of the deceased was negatively correlated with meeting criteria for depression, anxiety, and somatization. Overall, depression, anxiety, and somatization were common in the bereaved population. Identifying key loss-related variables—such as time since bereavement and nature of death—will help target those needing urgent psychological support.

The bereavement experience: Dreams and waking experiences of the deceased.

The bereavement experience: Dreams and waking experiences of the deceased.

Qualitative Exploration of Pet Bereavement Experience among Indonesian Pet-Bereaved Individuals

Qualitative Exploration of Pet Bereavement Experience among Indonesian Pet-Bereaved Individuals

The bereavement experience of those who have recovered from the corona virus during the corona epidemic period: a qualitative study

The bereavement experience of those who have recovered from the corona virus during the corona epidemic period: a qualitative study

The Vitalistic Ecology of Death: An Autoethnographic Journey Through Bereavement and Loss

With this autoethnography, it is my intention to explore experiences of bereavement and loss through the diffractive lenses of cultural intra-actions with literary texts, narratives, and sensory affordances. Bringing my own biographic experience of grief into these pages allows me, as a researcher, to make sense of death and its rituals, fundamental for healing purposes. I wonder: What does the affective materiality of bereaving do? My lived experience helps me to connect empathically and compassionately to events by looking at how society went through the impossibility of delivering care to the dead and their families during COVID-19 lockdowns and by questioning the “crisis of care.” To conclude, I reflect on how autoethnography can be a sensemaking process, leading to healing, opening to reflexivity, and reaching out to socially relevant questions about practices and ethics of care.

Siblings and the Bereaved Self: Identity (Re)Construction Following the Death of a Brother or Sister

Having and being a sibling can be vital in shaping one’s identity. Using data from a qualitative study exploring experiences of sibling bereavement over the life course, this article questions how the death and subsequent loss of a brother or sister impacts upon the way that surviving siblings (continue to) construct their sense of self. It explores how people re-assess the established similarities and differences they shared with living siblings and re-negotiate their positioning within the chronological sibling birth order. In doing so, this article emphasises the sociological importance of lateral kinship ties with siblings, demonstrating that being and having a sibling can have lasting implications for the way that people perceive and present themselves, even after death. As such, the article concludes that the dead can continue to maintain an important and influential, albeit liminal, position in the webs of relationships in which people are embedded.

Sibling Bereavement Among Young Indian Adults.

This qualitative study explores the bereavement experiences of 12 surviving siblings in India, focusing on familial, societal, and cultural influences. Six themes emerged: "The Demanding Familial Role," "Isolation That Accompanies the Grief," "Damaging Impact of Society," "Positive Role of Friends and Family," "Support Systems," and "Continuing Bonds." Participants often felt the burden of supporting their parents, leading to personal grief suppression and isolation, exacerbated by societal stigmas. Conversely, empathetic friends, supportive extended family, and professional resources like therapy provided crucial coping mechanisms. Continuing bonds with the deceased offered comfort and connection. The study highlights the need for comprehensive support systems tailored to cultural and societal contexts. It emphasizes the importance of public awareness and education to foster a supportive response to bereavement. Further research with larger, more diverse samples is recommended.

Family Experiences of Loss and Bereavement in Palliative Care Units during the COVID-19 Pandemic: An Interpretative Phenomenological Study.

The COVID-19 pandemic significantly interrupted the grieving experiences of bereaved families and drastically changed their ways of dealing with loss. Our study aims to gain an in-depth understanding of the experience of bereaved relatives of patients who died in palliative care units during the COVID-19 pandemic. The phenomenological research design included sixteen family members of hospitalized palliative patients who died from November 2021 to June 2022. The study involved conducting qualitative in-depth semi-structured interviews with family members 12-24 months after the death of their loved ones. The interviews aimed to gather information about the experiences of the families both before and after the death. The COREQ guidelines were applied in the study. Participants were mainly female (n = 13) with a mean age of 47.25 (SD = 12.58). Data were analysed using the Interpretative Phenomenology Analysis (IPA). The following three categories were identified: (1) navigating loved ones' final weeks and days (troubled deaths); (2) the last farewell was robbed; (3) looking for adjustment after loss. One overall main theme emerged, which was as follows: "Struggling between stolen moments and painful losses to get back into the flow of life". This study provides novel insights into end-of-life care and bereavement from the perspectives of family. Our findings suggest that developing and promoting family-centred culture can lead to compassionate palliative care focused on a myriad ways of affirming that their loved one matters.

„Miręs asmeniniame gyvenime tampu išmintingesnis pagalboje kitam“: psichoterapeutų artimųjų netekčių patyrimo reikšmė darbe su psichoterapijos klientais

The article presents the significance of the experience of bereavement for psychotherapists in their therapeutic work. This issue has not been studied much in the world and has not been raised in Lithuania yet. Paradoxically, the „psychotherapist working on his/her own“ has not been an interesting object of research so far, and so far researchers are mainly interested in the effectiveness of the psychotherapy, the question how psychotherapist feels after the crisis experience and how it affects his/her work remains in the shadows. Thus, the aim of the research presented in this paper is to uncover and systematically describe the implications of psychotherapists’ experience of bereavement for their work with psychotherapy clients. A qualitative research strategy was chosen for the study, data were collected using in-depth semistructured interviews, and analysed using Thematic Analysis. Seven psychotherapists who had experienced the loss of a loved one during the course of their psychotherapeutic work participated in the study. Three themes and seven subthemes were identified in the study, revealing the multilayered nature of experiences in their psychotherapeutic work. Although all the psychotherapists had integrated the loss of a loved one in one way or another and felt personally grown up, this had undoubtedly left traces in their therapeutic work and was experienced as a personal and professional challenge.

Correlates of public stigma towards prolonged grief disorder

BackgroundPublic stigma for grief may reduce the social support provided to bereaved persons and increase bereavement-related distress. The general public reports more stigmatizing responses towards bereaved persons with prolonged grief disorder (PGD) than towards persons experiencing non-clinical grief. No studies to date have investigated whether personal characteristics of the general public relate to public stigma towards PGD. The present study examined whether participants’ socio-demographic characteristics and personal bereavement experiences are associated with stigmatizing responses towards PGD. MethodWe combined data of three previously published vignette experiments to conduct a secondary analysis. All studies presented members of the general public (N = 452) with a description of a male bereaved person with PGD symptoms and a PGD diagnosis. Participants rated three indicators of public stigma - negative attributes (competence, warmth), emotional reactions (fear, anger), and preferred social distance. First, we examined whether gender, age, and educational level related to public stigma towards PGD. Second, we examined the association of participants’ personal bereavement experiences with public stigma. ResultsRegression analyses demonstrated that participants’ socio-demographic characteristics explained a significant amount of variance for warmth (ΔR² = .03; p < .05) and anger (ΔR² = .05; p < .01): Male participants rated the person in the vignette as less warm (β = -.13, p < .05). Being older related to lower ratings of warmth (β = -.12, p < .05) and higher ratings of anger (β = .18, p < .01). Participants’ educational level was not associated with stigma. Participants’ bereavement experiences explained a significant amount of variance for preferred social distance (ΔR² = .11; p <. 05): Participants reporting higher personal grief severity preferred less social distance from a person with PGD (β = -.29, p < .05). A higher number of experienced losses, the recency of the bereavement, and the cause of death (natural vs. unnatural) did not relate to public stigma. ConclusionsMale and older persons are more likely to demonstrate public stigma towards PGD. Experiencing severe grief oneself is associated with less preferred social distance from a person with PGD. Anti-stigma interventions may advance the public's knowledge about grief and PGD and address specific target groups (men and older persons).

Private sector business interactions with bereaved people: UK Commission on Bereavement secondary analysis

ObjectivesEvidence suggests that 61% of adults who were bereaved in the past 5 years had difficulties with at least one practical or administrative task following bereavement. We aimed to explore...

Exploring the grief journey of bereaved spouses: Insights into the impact of sedation within palliative care

ABSTRACT Despite being the most susceptible to psychopathological consequences, bereaved cancer spouses remain a vastly understudied group. Addressing this gap, a dedicated French research team comprising clinical psychologists, philosophers, and physicians is conducting an ongoing study focused on the emotional and affective complexities experienced by bereaved spouses after the loss of a loved one due to oncological diseases within the realm of palliative care and Continuous Deep Sedation until Death (CDSD). The preliminary data presented below concern the analysis of nine semi-directed interviews analyzed using ALCESTE software, a tool for statistical analysis of textual data based on word co-occurrences. Analysis and comparison of the thematic categories that emerged showed that social support, deep loneliness, and the preservation of memories emerged as central elements of the marital bereavement experience. In addition, the study highlights the critical role of comprehensive palliative care in France and the delicate nature of sedation experiences, revealing intense emotions such as helplessness and anger. Clear communication and active family participation in end-of-life decisions emerged as crucial factors in alleviating the grieving process in spouses. These findings provide valuable insights for healthcare professionals and counselors and underscore the critical need for further research focused on sedation.

Hurricane-Force Grief: A Mirror of Fathers' Love.

A child's death is a traumatic experience that profoundly impacts parents' psychological, physical, and social wellbeing. The literature describes gender differences in grief response associated with child loss, yet less is known about fathers' grief in comparison that of mothers due to fathers' underrepresentation in bereavement research. There is a need for scholarly exploration to advance understanding of fathers' grief. This article presents selected findings on fathers' grief responses that emerged from a larger qualitative study, which aimed to describe fathers' lived experience of bereavement after a child's death. Profound grief emerged as one essential theme of fathers' bereavement experience. Participants described the meaning of their grief, their multidimensional grief responses, their grief triggers, and their grief intensity. Findings deepen understanding of fathers' grief associated with child loss and advance the body of parental bereavement literature.

가족 사별과 중노년기의 삶의 만족도 및 우울감

This study aims to examine the association of family bereavement with life satisfaction and depressive symptoms among middle-agedand older adults, in terms of (1) experience of family bereavement, (2) experience of different types of family bereavement, and (3) the cumulative number of family losses. We analyzed data from the 1st (2006; N = 9,687; all family losses experienced until 2006) and 8th (2020; N = 5,236; recent family losses experienced in the past four years) waves of the Korean Longitudinal Study of Ageing. First, recent family bereavement was negatively associated with life satisfaction, while family bereavement across the life span was not significant for life satisfaction and depressive symptoms. Second, among losses across the life span, father and spouse deaths were significant for life satisfaction and depressive symptoms; among recent losses, only spousal bereavement was associated with life satisfaction and depressive symptoms. Finally, the cumulative number of family losses across the life span (including father, mother, and spouse) was significant for life satisfaction and depressive symptoms, whereas the cumulative number of recent family losses (including father, mother, siblings, children,and spouse) was not significant. These findings underscore the importance of examining both exposure and cumulative effects of family bereavement.

Quality of Care during the COVID-19 Pandemic: A Qualitative Exploration of Bereaved Caregivers' Experiences at a Hospice Residence.

Background: An essential component of residential hospice care is the provision of high quality palliative care. The perspectives of quality of care from palliative care patients and bereaved caregivers have increasingly been studied to guide quality improvements. Aim: The study aimed to explore the experiences and perceptions of bereaved caregivers of patients who died in residential hospice during the coronavirus disease-19 (COVID-19) pandemic to determine perceptions of quality of care, caregiver grief and bereavement, and the impact of the COVID-19 pandemic. Design: Qualitative exploratory study using secure, web-based semistructured interviews. Data were analyzed using thematic analysis. Setting/Participants: A total of 15 bereaved caregiver participants were recruited from two residential hospice sites in Ottawa, Ontario. Results: Participants identified several factors that impacted the quality of care in residential hospice, including the impact of the COVID-19 pandemic itself. The findings are presented in three main themes: (1) quality of residential hospice end-of-life care; (2) caregiver perceptions of their grief and bereavement; and (3) impact of the COVID-19 pandemic on hospice quality of care and caregiver bereavement. Conclusions: The COVID-19 pandemic had a significant impact on the patient and caregivers experience of hospice, including perception of quality of care and caregiver experience of grief and bereavement.

The Impact of Voluntary Assisted Dying on Grief and Bereavement for Family Members and Carers in the Australian State of Victoria: A Qualitative Study

Prior to its introduction in Australia, many people opposed euthanasia—or voluntary assisted dying as it is known—because of its potentially detrimental impact on grief and bereavement outcomes for family members and carers. We examine the novel experiences of grief and bereavement of VAD for family members and carers who were going through, had gone through, or were contemplating VAD, juxtaposing the international literature on grief and bereavement. As such, 42 semistructured interviews with family members and carers were undertaken in the state of Victoria, which was the first jurisdiction to legislate in favour of VAD. Interviews explored many themes around end-of-life decision-making in order to ascertain the ways in which VAD helped or hindered grief and bereavement processes. A thematic analysis of the interview data was undertaken using QSR NVivo software. Four key themes were identified: values and meaning-making, expression of a continuing bond, anticipatory grief, and the burden of care associated with supporting loved ones going through VAD. These themes were juxtaposed with the key literature on grief and bereavement to demonstrate how VAD presents novel challenges for carers. We argue that while VAD deaths share similar characteristics to other deaths; in some respects, grief and bereavement outcomes for family members and carers are unique. For family members and carers helping a loved one go through VAD, they were able to derive a sense of meaning from fulfilling their wishes and striving for them to have a “good death”; they were able to maintain a bond with them through advocacy of VAD and unique rituals; and they were able to plan and prepare effectively by knowing the exact time of death. Family members and carers also noted that VAD presents some significant challenges for grief and bereavement, especially in terms of the impact of VAD on familial relationships and burdens associated with moral predicaments. Nonetheless, VAD was generally viewed positively by family members and carers, who expressed gratitude for mitigating their loved one’s suffering.

Exploring bereavement processes among BLACK adolescent male CO-VICTIMS of homicide

Black adolescent males are disproportionally impacted by violence exposure and violent loss. The primary aim of this study was to explore the bereavement experiences of Black adolescent males who have lost a friend or family member to murder. Participants were Black adolescent males between the ages of 14–19 years. This was a purposive sample recruited from a community-based study that took place in urban neighborhoods in Pittsburgh, Pennsylvania. Participants who completed their final survey for the parent study were recruited from January to June 2017. Participants completed a brief computerized survey and those who responded affirmatively to a screening question about losing a friend or family member to murder were invited to a qualitative interview. Interviews were audio recorded, transcribed, and coded to identify key themes. Among the 31 youth interviewed, 30 had lost more than one person to murder. Four primary themes emerged from their narratives: (1) self-preservation through isolation, (2) finding sanctuary through shared narratives of loss, (3) freedom from the mind, and (4) post-traumatic growth (i.e., motivation, healing, resilience). Findings suggest that interventions that provide sanctuary for youth that are culturally relevant and create opportunities for youth to process violent loss may aid in promoting opportunities for youth to grieve and heal from violent loss.