Existing Community Engagement Research Articles

Public Libraries Encouraged to Meet the Health Information Needs of Tribal Women in Bangladesh

A Review of: Yesmin, S., Abdul Karim, M., & Atikuzzaman, M. (2023). Community engagement of public libraries for ensuring tribal women’s health literacy in Bangladesh. IFLA Journal, 49(4), 678–693. https://doi.org/10.1177/03400352231198260 Objective – To investigate public libraries’ existing community engagement practices, explore their willingness to provide health information services to tribal communities in Bangladesh, and examine tribal women’s health information-seeking behavior and interest in obtaining health information from public libraries. Design – A cross-sectional study using online interviews and structured questionnaires. Setting – Public libraries and tribal communities in tribal regions of Bangladesh. Subjects – Public librarians (n=11) and tribal women (n=276) from three tribal districts in Bangladesh (Bandarban, Khagrachari, and Mymensingh). Methods – Interviews were conducted with librarians via Zoom in January 2023. Survey questionnaires were distributed to a convenience sample of 300 tribal women from February to March 2023. Data was analyzed in the Statistical Package for the Social Sciences (SPSS), using univariate and bi-variate measures. Main Results – All of the libraries provided print materials (books, newspapers, and periodicals) for reading and lending and offered photocopying and Internet browsing services. Other forms of resources such as microfiches and digital materials, inter-library loan services, and facilities for people with disabilities were not widely available. Most libraries (72.8%) did not provide any specific program (e.g., health-related outreach program) for tribal community engagement, although they all recognized the urgency and value of such programs. Lack of funding and bureaucratic complexities were identified as the top two barriers. Out of the 276 tribal women responding to the survey, close to two-thirds of the respondents indicated they were either moderately or very interested in receiving health information. The top three health topics the respondents sought information on were vaccinations, symptoms of disease, and nutrition. The primary health information sources for the respondents were doctors at nearby community clinics or government hospitals, and none of the respondents sought health information from public libraries. Most respondents acknowledged the importance of being informed about health issues and found it difficult to locate health information on the Internet. High costs and lack of awareness regarding health issues represented the main challenges the respondents encountered when seeking health information. Among the demographic variables, respondents’ religion and age were negatively correlated with their interest in health information, while their education status was positively correlated with it. Conclusion – Public libraries in tribal areas in Bangladesh lacked health information services but recognized the importance of providing them. Tribal women expressed interest in receiving health information, encouraging public libraries to develop and implement related services and programs. Public libraries may consider adding new job titles such as consumer health librarians and partner with other stakeholders for better community engagement. The government of Bangladesh should substantially invest in public libraries as community hubs and minimize bureaucratic hurdles that prevent public libraries from initiating new services. Professional library organizations in Bangladesh may also draw ideas from the study in establishing professional guidelines for health information services and community outreach programs.

Community engagement in research addressing infectious diseases of poverty in sub-Saharan Africa: A qualitative systematic review.

Though engaging communities in research processes has several advantages and implications, research efforts are poorly embedded in and linked with communities, especially in low- and middle-income countries (LMICs). There is also a need for more empirical evidence on effectively engaging communities in research in LMICs, specifically in Sub-Saharan Africa (SSA). Thus, there is an urgent need to synthesize existing evidence on community engagement experiences in research in SSA. Therefore, this review aimed to synthesize the existing community engagement experiences and related barriers to engaging communities in health research focusing on infectious diseases of poverty in SSA. The systematic review was conducted following the JBI methodology for qualitative systematic reviews. The review included both published and unpublished studies. A thematic analysis approach was used for data synthesis. A total of 40 studies were included in the review. Community engagement in the conceptualization of the research project, analysis, dissemination, and interpretation of the result was rare. On top of this, almost all the research projects engaged the community at a lower level of engagement (i.e., informing or consulting the community at some point in the research process), suggesting the importance of integrating communities in the entire research cycle. The lack of shared control over the research by the community was one of the significant challenges mentioned. This review uncovered that community engagement in the research process is minimal. Nevertheless, the review generated valuable evidence that can inform researchers and research stakeholders to promote effective community engagement in the research process addressing infectious diseases of poverty. Despite these, it requires rigorous primary studies to examine the applicability and usefulness of community engagement, including developing valid metrics of engagement, standardizations of reporting community engagements, and views and understandings of communities and stakeholders on the values, expectations, and concepts of community engagement in research.

Determining the optimal diagnostic and risk stratification approaches for people with hypertension in two rural populations in Kenya and The Gambia: a study protocol for IHCoR-Africa Work Package 2.

Sub-Saharan Africa (SSA) has one of the highest prevalences of hypertension worldwide. The impact of hypertension is of particular concern in rural SSA, where access to clinics and hospitals is limited. Improvements in the management of people with hypertension in rural SSA could be achieved by sharing diagnosis and care tasks between the clinic and the community. To develop such a community-centred programme we need optimal approaches to identify and risk stratify patients with elevated blood pressure. The aim of the study is to improve the evidence base for diagnosis and risk estimation for a community-centred hypertension programme in two rural settings in SSA. We will conduct a cross-sectional study of 1250 adult participants in Kilifi, Kenya and Kiang West, The Gambia. The study has five objectives which will determine the: (1) accuracy of three blood pressure (BP) measurement methods performed by community health workers in identifying people with hypertension in rural SSA, compared to the reference standard method; (2) relationship between systolic BP and cardiovascular risk factors; (3) prevalence of hypertension-mediated organ damage (HMOD); (4) accuracy of innovative point-of-care (POC) technologies to identify patients with HMOD; and (5) cost-effectiveness of different combinations of BP and HMOD measurements for directing hypertension treatment initiation. This study will determine the accuracy of three methods for community BP measurement and POC technologies for HMOD assessment. Using the optimal methods in this setting it will estimate the prevalence of hypertension and provide the best estimate to date of HMOD prevalence in SSA populations. The cost-effectiveness of decision-making approaches for initiating treatment of hypertension will be modelled. These results will inform the development of a community-centred programme to improve care for hypertensive patients living in rural SSA. Existing community engagement networks will be used to disseminated within the research setting.

Role of community engagement in advancing vaccine equity.

The COVID-19 pandemic exacerbated existing health disparities among historically and currently underserved, underresourced, and marginalized communities worldwide. These communities faced disproportionate COVID-19 morbidity and mortality and were generally less likely to receive a COVID-19 vaccine once it became widely available to the public. Community engagement is an approach that can help bridge these inequities. This community case study adapted and implemented an existing community engagement framework to tailor a statewide vaccine equity effort that addresses community-specific priorities during a public health emergency. The adapted framework includes the following key phases: (1) creating an environment for community engagement; (2) making the work relevant; (3) narrowing the focus; (4) planning and conducting the work; and (5) evaluating the work. All of these supported the successful establishment of a statewide collaboration that consisted of various partners from various sectors who shared a collective commitment to increase COVID-19 vaccine confidence and address barriers to vaccination among the diverse communities in Nevada. Ultimately, a community engagement framework can provide a roadmap to navigate the dynamic and multifaceted nature of equity-related work by paving the way for meaningful interventions to mitigate health disparities.

Resilience policing and disaster management during Australia's Black Summer bushfire crisis

Policing landscapes are being transformed by disaster risks associated with climate change. ‘Resilience policing’ is described as an emergent model of security governance that builds upon established state-based community policing traditions to support the management of these complex risks and hazards. The assumption is that established policing capabilities might be harnessed to enhance disaster resilience. Empirical research on resilience policing is lacking however, and it is unclear whether this model is truly innovative, or simply a progression of established community policing models. This article explores these questions by considering how local police contributed to disaster management activities in a remote rural community which was directly impacted by Australia's catastrophic Black Summer bushfires in 2019–20. Our qualitative, empirical case study illustrates how institutionalized learnings, organizational and systemic reforms, and everyday policing activities enhanced the absorptive and adaptive capabilities of police as emergency responders, emergency management networks, and local residents. Our analysis indicates that a resilience policing model, anchored in existing community engagement and partnership-working methods, may hold promise as a means of enhancing the adaptative capacity of police and improving alignment between policing and emergency management networks. Less optimistically, it reveals potential obstacles to adapting this template for use in complex policing environments, sustaining institutional focus and adaptive capabilities amidst poly-crises, and aligning policing roles and mandates with transformative climate adaptation agendas.

Strengthening social capital in the Sri Lankan population: A qualitative exploration of factors driving the mothers' support groups initiative during economic crisis.

Social capital is a concept that has been identified to improve health outcomes in many populations. Due to COVID-19 and many other factors, Sri Lanka faced a massive economic crisis that affected the nutrition of communities. Many community engagement initiatives have begun to promote the country's nutrition during the worst-hit years. The Mothers' Support Groups initiative is one of the existing community engagement initiatives that is well known for strengthening community social capital. This article discusses how the Mothers' Support Groups (MSG) initiative in Sri Lanka contributed to improving social capital in Sri Lanka during the economic crisis, focusing on nutrition. We conducted a case study on the activities undertaken by mothers' support groups in view of how they focused on social capital. We selected all activities presented by districts that improved social capital related to nutrition promotion captured in the YouTube video stream. We analyzed these qualitative data to identify the main themes related to social capital and nutritional promotion. Two coders transcribed the video recordings. We analyzed the data using the iterative thematic inquiry (ITI) method and initially assessed beliefs about concepts, building new beliefs through encounters with data, listing tentative themes, and evaluating themes through coding. Six major themes were identified (that social capital had been strengthened to promote nutrition): awareness creation of nutrition, home gardening promotion, promoting livestock farming, minimizing food waste, improving the home economy, and psychosocial health promotion. The most common forms of social capital encountered in these themes were bonding, bridging, and linking. Furthermore, strengthening structural social capital is more prominent than strengthening cognitive social capital. Social capital can improve nutritional status during crises. Activities that can be used to achieve this vary from simple awareness creation among communities to more advanced psychosocial health promotion. Overall, social capital contributed to the community development aspect of health promotion to a greater extent.

THE AGE-FRIENDLY DREXEL PILOT GRANT PROGRAM: A GRASSROOTS APPROACH TO THE AGE-FRIENDLY UNIVERSITY MOVEMENT

Abstract In January 2022, Drexel University’s AgeWell Collaboratory launched the Age-friendly Drexel Pilot Grant Program to catalyze university-wide knowledge about and projects that will establish our campus as a lifelong community. This suite of funded initiatives includes faculty, staff and students from seven different colleges, each focusing on different components of the 10 AFU principles. We sought out projects that: create learning environments that disrupt ageism; highlight the intersectionality of aging, race, ethnicity and health disparities; foster intergenerational connectivity; and innovate through research. Awarded projects are now increasing access to campus buildings through a design charrette; inventorying university wellness and recreational services to be offered to older community members, alumni, and retirees; developing novel intergenerational courses and experiences abroad through virtual reality, memoir writing and product design; adding older adults to existing community engagement programming; and addressing the technology divide. This presentation will cover the design, implementation, and challenges of this program.

Designing for Scale and taking scale to account: lessons from a community score card project in Uganda

BackgroundPlanning for the implementation of community scorecards (CSC) is an important, though seldom documented process. Makerere University School of Public Health (MakSPH) and Future Health Systems Consortium set out to develop and test a sustainable and scalable CSC model. This paper documents the process of planning and adapting the design of the CSC, incorporating key domains of the scalable model such as embeddedness, legitimacy, feasibility and ownership, challenges encountered in this process and how they were mitigated.MethodsThe CSC intervention comprised of five rounds of scoring in five sub counties and one town council of Kibuku district. Data was drawn from ten focus group discussions, seven key informant interviews with local and sub national leaders, and one reflection meeting with the project team from MakSPH. More data was abstracted from notes of six quarterly stakeholder meetings and six quarterly project meetings. Data was analyzed using a thematic approach, drawing constructs outlined in the project’s theory of change.ResultsEmbeddedness, legitimacy and ownership were promoted through aligning the model with existing processes and systems as well as the meaningful and strategic involvement of stakeholders and leaders at local and sub national level. The challenges encountered included limited technical capacity of stakeholders facilitating the CSC, poor functionality of existing community engagement platforms, and difficulty in promoting community participation without financial incentives. However, these challenges were mitigated through adjustments to the intervention design based on the feedback received.ConclusionGovernments seeking to scale up CSCs and to take scale to account should keenly adapt existing models to the local implementation context with strategic and meaningful involvement of key legitimate local and sub national leaders in decision making during the design and implementation process. However, they should watch out for elite capture and develop mitigating strategies. Social accountability practitioners should document their planning and adaptive design efforts to share good practices and lessons learned. Enhancing local capacity to implement CSCs should be ensured through use of existing local structures and provision of technical support by external or local partners familiar with the skill until the local partners are competent.

An Approach for Incorporating Community-Engaged Learning in Intensive Online Classes: Sustainability and Lean User Experience

ABSTRACT Based on two user experience (UX) classes, this article describes an approach for incorporating community-engaged learning into intensive online classes. This approach relies on (1) sustainability for creating a flexible and meaningful thematic context with potential for an existing community engagement infrastructure and (2) the lean UX framework for serving as a foundation of the course structure. This approach showed promising results for students, community stakeholders, and faculty and is transferrable to various institutional contexts.

Abstract PO-040: Florida-California CaRE2 Health Equity Center Citizen Scientist Training Program: Going virtual in response to COVID-19

Abstract INTRODUCTION Citizen scientists are an essential part of research. After a successful pilot in 2019, the Florida-California Cancer Research Education and Engagement (CaRE2) Health Equity Center held a full CaRE2 Cancer Citizen Scientist Training Program in 2020. However, COVID-19 forced a program reliant on in-lab experiences to develop a cadre of citizen scientists to drive cancer health disparity research in Black and Latinx communities, to maintain meaningful, bi-directional communication between advocates and cancer scientist in a virtual environment. The program is open to cancer survivors and advocates. METHODS The CaRE2 Cancer Citizen Scientist training program builds on the pilot, as well as collaboration techniques used by the bi-costal CaRE2 Center on a regular basis. Selection of trainees was through a competitive application process. Multiple training techniques were employed, including independent learning, lectures, in depth discussion between research stakeholders, and implementation of research advocacy. The CaRE2 Center Planning and Evaluation Core conducted the evaluation for the program to foster continuous improvement. RESULTS Three applications were received and accepted for the program. All program activities were held over a virtual conference platform. The training program focused on Research Ethics, Social Determinants of Health, Community Engagement, Biobanking, Cancer Epidemiology, and Omics. The trainees participated in a three-part curriculum: (1) Two weeks of lectures by expert mentors, supplemented with a virtual reader of learning materials in a variety of digital formats. (2) Sessions with each of the CaRE2 research project to evaluate projects’ existing community engagement efforts. (3) Implementation of an outreach project that addresses needs found in the evaluation sessions. A student ambassador from the C-ReTOOL Program funded by NCI also participated to support outreach activities as needed. A virtual symposium held on July 30, culminates the program and includes a webinar presentation of the Citizen Scientists’ advocacy project. A mean responses to a midpoint program impact evaluation on a four-point scale (Strongly Disagree 1, Strongly Agree=4), about the self-learning materials (3.67), expert mentors (3.33), the advocacy project (3.33), and the program structure (3.33) show that overall participants agree that the program has a positive impact. CONCLUSION Continuing this work in a rapidly changing landscape is a credit to the collaborative infrastructure and resources of NCI CPACHE programs, such as the CaRE2 Health Equity Center for the training of Citizen Scientists. This model has successfully continued access to outstanding cancer scientists and advocates, who are well experienced in developing research education programs as well as mentoring minority trainees. The development of these virtual tools sustains crucial work in the current environment, and open doors for enrichment to the in person model for future, bi-costal cohorts. Citation Format: Nissa Askins, Fern J. Webb, Linda Behar-Horenstein, Lourdes Baezconde-Garbanati, Sandra Suther, Diana J. Wilkie, Folakemi T. Odedina. Florida-California CaRE2 Health Equity Center Citizen Scientist Training Program: Going virtual in response to COVID-19 [abstract]. In: Proceedings of the AACR Virtual Conference: Thirteenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2020 Oct 2-4. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2020;29(12 Suppl):Abstract nr PO-040.

Community engagement for COVID-19 prevention and control: a rapid evidence synthesis

IntroductionCommunity engagement has been considered a fundamental component of past outbreaks, such as Ebola. However, there is concern over the lack of involvement of communities and ‘bottom-up’ approaches used within...

Enhancing translational researchers' ability to collaborate with community stakeholders: Lessons from the Community Engagement Studio.

Community engagement is considered essential to effectively translate research into practice and is increasingly recognized as a key to successful clinical trial recruitment. Challenges to engaging community stakeholders in research persist and new methods are needed to facilitate meaningful stakeholder involvement. The Community Engagement Studio (CE Studio), a consultative model, has been used at every stage of the research process. Best practices drawn from the model could inform other methods of engagement. Using a mixed-methods approach that included evaluation surveys, impact surveys and interviews, we assessed the CE Studio program. We analyzed data from 75 CE Studios; 65 researchers and 591 community members completed surveys and 10 researchers completed interviews. Surveys indicate that 100% of researchers would request a CE Studio in the future, and 99.3% of community members would participate in a CE Studio again. We identified 6 practices to enhance community engagement in clinical and translational research: early input, researcher coaching, researcher humility, balancing power, neutral facilitator, and preparation of community stakeholders. These best practices may enhance the quality of existing community engagement approaches and improve the effectiveness of translational researchers' efforts to engage community stakeholders in their work.

Developing and Sequencing Community Engagement and Experiential Education: A Case Study of Urban Geography Teaching and Research

Community engagement curricula and course design can provide substantial experiences for both community members and participating students. Using a case study approach, this research focuses on four steps in this process: initial community relationship forming, engaging in community service, transitioning to civic engagement, and developing a community-based research program. Narrative examples from student course evaluations position these community-based experiences as transformative for multiple parties. Institutional structures are presented as helpful entrees to engagement for students, while noting that community relationships provide contextualized, powerful, and meaningful relationships, supporting recommendations for emerging and existing community engagement programs.

Design Patterns for Integrating Digitally Augmented Pop-ups with Community Engagement

This article explores the opportunities of translating existing community engagement techniques into digitally augmented pop-up interventions, for on-the-spot feedback around infrastructure within the built environment. Pop-up interventions allow for more inclusive forms of community engagement through the combination of digital and physical media. The paper draws on Alexander et al.'s idea of pattern languages to put forward a set of design patterns for integrating digitally augmented pop-ups into community engagement activities. The patterns are based on a review and analysis of existing community engagement techniques, digital technologies used in urban environments, data from our own field studies and a focus group with engagement professionals. The aim of the patterns is to: (1) capture collective wisdom; (2) reuse and extend ideas; and (3) converge on designs that work for communities.

Community-Level Engagement in Public Housing Redevelopment

Community-level engagement of public housing residents and their neighbors may help prepare them for the redevelopment of their neighborhood. The mixed-methods design included a resident survey ( n = 386) and in-depth resident interviews ( n = 25). Readiness for transit-oriented mixed-income redevelopment (TOMIR) was predicted by neighbor cohesion, organizational collective efficacy, and possessing a transition and/or relocation plan. Resident involvement in local neighborhood organizations was predicted by awareness of neighborhood problems and involvement in activism. As involvement in neighborhood organizations goes up, readiness for TOMIR also goes up. The study structural equation model had adequate model fit (comparative fit index [CFI] = .90, root mean square error of approximation [RMSEA] = .02, Tucker–Lewis index [TLI] = .90). The study developed three new measures that can be used in TOMIR contexts with existing community engagement measures. The study adds to the evidence base for community-level interventions preparing public housing residents for the redevelopment.

Engaging communities in tuberculosis research

According to a growing consensus among biomedical researchers, community engagement can improve the ethics and outcomes of clinical trials. Although successful efforts to develop community engagement practices in HIV/AIDS research have been reported, little attention has been given to engagement with the community in tuberculosis research. This article aims to draw attention to some existing community engagement initiatives in tuberculosis research and to resources that might help tuberculosis researchers to establish and implement community engagement programmes for their trials. One of these resources-the good participatory practice guidelines for tuberculosis drug trials-offers a conceptual framework and practical guidance for community engagement in tuberculosis research. To build momentum and to improve community engagement, lessons need to be shared, and formal assessment strategies for community engagement initiatives need to be developed. To build successfully on the promising activities described in this personal view, research funders and sponsors should show leadership in allocation of resources for the implementation and assessment of community engagement programmes in tuberculosis trials.

Dissemination and implementation of comparative effectiveness evidence: key informant interviews with Clinical and Translational Science Award institutions

To identify ongoing practices and opportunities for improving national comparative effectiveness research (CER) translation through dissemination and implementation (D&I) via NIH-funded Clinical and Translational Science Award (CTSA) institutions. Key informant interviews were conducted with 18 CTSA grantees sampled to represent a range of D&I efforts. The institutional representatives endorsed fostering CER translation nationally via the CTSA Consortium. However, five themes emerged from the interviews as barriers to CER D&I: lack of institutional awareness, insufficient capacity, lack of established D&I methods, confusion among stakeholders about what CER actually is and limited funding opportunities. Interviewees offered two key recommendations to improve CER translation: development of a centralized clearing house to facilitate the diffusion of CER D&I resources and methods across CTSA institutions; and formalization of the national CTSA network to leverage existing community engagement relationships and resources for the purpose of adapting and disseminating robust CER evidence locally with providers, patients and healthcare systems.

Low serum cholesterol and serotonin metabolism

<h3>Introduction</h3> Community engagement has been considered a fundamental component of past outbreaks, such as Ebola. However, there is concern over the lack of involvement of communities and ‘bottom-up’ approaches used within COVID-19 responses thus far. Identifying how community engagement approaches have been used in past epidemics may support more robust implementation within the COVID-19 response. <h3>Methodology</h3> A rapid evidence review was conducted to identify how community engagement is used for infectious disease prevention and control during epidemics. Three databases were searched in addition to extensive snowballing for grey literature. Previous epidemics were limited to Ebola, Zika, SARS, Middle East respiratory syndromeand H1N1 since 2000. No restrictions were applied to study design or language. <h3>Results</h3> From 1112 references identified, 32 articles met our inclusion criteria, which detail 37 initiatives. Six main community engagement actors were identified: local leaders, community and faith-based organisations, community groups, health facility committees, individuals and key stakeholders. These worked on different functions: designing and planning, community entry and trust building, social and behaviour change communication, risk communication, surveillance and tracing, and logistics and administration. <h3>Conclusion</h3> COVID-19’s global presence and social transmission pathways require social and community responses. This may be particularly important to reach marginalised populations and to support equity-informed responses. Aligning previous community engagement experience with current COVID-19 community-based strategy recommendations highlights how communities can play important and active roles in prevention and control. Countries worldwide are encouraged to assess existing community engagement structures and use community engagement approaches to support contextually specific, acceptable and appropriate COVID-19 prevention and control measures.