Ethics In Qualitative Research Research Articles

DIY academic archiving: mischievous disruptions of a new counter-movement

Against increasing injunctions in research governance to create open data, and knee-jerk rejections from qualitative researchers in response to such efforts, we explore a radical counter movement of academics engaged in what we term “DIY Academic Archiving,” the creation of open and accessible archives of their research materials. We turn to interviews with three DIY academic archivists, each drawing on an ethos of community archiving, as opposed to emerging open data schemes: Melissa Munn on The Gaucher/Munn Penal Press Collection,1 Eric Gonzaba’s Wearing Gay History,2 and Michael Goodman’s Victorian Illustrated Shakespeare Archive.3 We see these archives as engaged in a “politics of refusal,” which challenges both conventional methods and ethics in qualitative research as well as new moves toward open data. On the one hand, academics are tasked to “protect” their data by destroying it, under the guise of a supposed mode of “care.” On the other hand, open data makes quite contrary demands, to care for data by making it “open” for further extraction through (re)use. DIY Academic Archiving is a practice of refusal that supports a redirection away from this binary. In this article, we explore how DIY academic archivists play with coding as a form of mischievous disruption, and so are contributing to new data imaginaries. We offer insight into how DIY Academic Archiving supports researchers in their theoretical, methodological and political commitments, and at the same time, how it can enable researchers to take the care-full risk of archiving our research data.

Facilitating research ethics in qualitative research through doctoral supervision in the context of European Commission funding

The increasing need for innovative research driven by rapid global changes gives doctoral supervisors of early-stage researchers a significant role in facilitating the ethical conduct of qualitative research. In the context of European Commission funding, the demands of research ethics and integrity place a tremendous responsibility on the supervisors of early-stage researchers involved in cross-national projects. This document study seeks to illuminate the role of the supervisors in facilitating research ethics in these projects. Specifically, we describe and discuss the supervisor role associated with five approaches to doctoral supervision of qualitative research, namely those described as ‘Functional’, ‘Enculturation’, ‘Critical thinking’, ‘Emancipation’ and ‘Developing a quality relationship’. The main challenges for supervisors of cross-national research projects are the cultural and linguistic mobilisation of ethical principles in qualitative research processes and the management of the future use of open data. The results from this study have implications for planning and conducting cross-national studies within research involving human participants. These results can guide supervisors in the codification and mobilisation of ethical qualitative research in practice.

Conducting Qualitative Research in Organizations Ethically: Organizationality as a Heuristic to Identify Ethical Challenges

The consideration of research ethics to protect the research participants is a central element of empirical social research. Empirical research in organizations has certain characteristics: the research field is organized hierarchically and characterized by formal membership, specific control mechanisms, positive and negative sanctions, etc. Drawing on existing literature, we use the concept of “organizationality” to argue the characteristics of organizations lead to specific ethical challenges, for example dealing with layered field accesses, power asymmetries, and potentially strong sanctions. These challenges make it difficult to ensure confidentiality and non-maleficence and protect participants from risks. We present ethical challenges that typically arise at critical stages of the qualitative research process (planning, field access, the field, data storage, publication, and data archiving). This paper offers a heuristic to identify ethical challenges in qualitative organizational research. It extends the debate on research ethics in qualitative social research to organizational contexts, thereby bringing into focus the structural dimensions of harm.

‘Being there’ is what matters: Methodological and ethical challenges when undertaking research on the outdoor environment with older people during and beyond the COVID-19 pandemic

This paper reflects on adapting research methods and processes during the COVID-19 pandemic, drawing on our experiences of conducting research on the outdoor environment with older people (aged 50+) living in Scotland. First, we discuss the challenges to the organisation of research experienced in the context of changing government and university guidelines and managing delays to planned research timelines. The shift toward remote methods stimulated by the pandemic transformed traditional notions of the research field. We consider some of the implications of this for outdoor environment research, grounded as it is on exploring the interaction between people and the places they are embedded within. Further, despite a growth of literature highlighting the benefits of remote research, we found uses for digital and online approaches limited when working with older people. Second, we reflect on whether research with older people in the context of a pandemic can be conducted ethically. Drawing on our research we describe how developing an ‘ethics of care’ included negotiating with formal ethics processes but also the relational, situated ethics of qualitative health research that, because of the pandemic, had begun to shift in new ways. We describe the often intangible impacts of COVID-19 such as social isolation and bereavement that we uncovered as researchers entering into the lives of older people. In closing, we outline some of the key lessons learnt from conducting research on outdoor environments with older people to enable future qualitative health research during and beyond the pandemic.

Qualitative health research and procedural ethics: An interview study to investigate researchers’ ways of navigating the demands of medical research ethics committees in Germany

This study explores how qualitative health researchers navigate the demands of medical research ethics committees in Germany where qualitative research is subject to approval only when it is conducted in medical contexts. We present the results of a grounded theory study to investigate qualitative health researchers’ experiences with procedural ethics and the strategies they adopt to navigate its demands. Our analysis revealed six dimensions of experience and three strategies adopted by researchers to navigate the demands of medical research ethics committees. All participants agreed that research ethics is of high importance in qualitative health research, but strategies to navigate the demands of medical research ethics committees ranged from avoiding, and adapting, to transforming the procedures of ethics review. Based on our findings, we provide recommendations for improving the ethics review of qualitative health research.

Ethics of qualitative research in substance use disorders

Ethics in substance use disorder research has evolved through the years into two distinct school of thoughts, including neuro-ethics and social ethics. Qualitative methods of conducting studies provide rich descriptive knowledge of underlying processes in use of substances, although their governing ethical principles and decision-making are fairly blurred. By incorporating case studies, in-depth interviews, focus groups or visual methods, substance use disorder research can be considerably enhanced. The present paper examines features of conducting qualitative research among substance users and the ethical frameworks that one needs to be mindful of. Understanding potential dilemmas, pitfalls, and challenges in conducting qualitative research among individuals with substance use disorders would be a useful way to build on the body of qualitative research.

Culturally responsive research ethics: How the socio-ethical norms of Arr-nar/Kreng-jai inform research participation at the Thai-Myanmar border.

Despite advances, international research ethics guidelines still tend to consist of high-level ethical principles reflecting residual influence from North American and European traditions of ethics. Local ethics committees and community advisory boards can offer more culturally-sensitive approaches to training but most institutions lack substantive practical ethics guidance to engage rich moral understandings in day-to-day research practice in diverse cultural contexts. To address this gap, we conducted an international series of qualitative research ethics case studies, linked prospectively to active research programs in diverse settings. Here, we share findings from two case studies with a research team working on malaria and hepatitis B prevention with pregnant women in clinics serving migrants along the Thai-Myanmar border. In this sociocultural ethical analysis, we consider how core ethical requirements of voluntary participation, provision of fair benefits, and understandings of research risks and burdens are shaped, enriched, and in some instances challenged, by deep-seated and widespread Burmese, Karen and Thai cultural norms known as Arr-nar (in Burmese and Karen) or Kreng-jai (in Thai), encompassing multiple meanings including consideration for others and graciousness. We offer a model illustrating how one might map ethically significant sociocultural influences across the research practice pathway and close with lessons for developing a more culturally responsive research ethics practice in other international settings.

Learning from Buddhist Teachings and Ethical Practices in Qualitative Research

This paper aims at conceptualizing research ethics in qualitative research with Buddhist teachings. As a Buddhist, I first introduce how Buddhism came to be central in my life and eventually influenced me as a qualitative researcher. I exemplify how the concepts of all-beings-are-equal, karma, the five precepts, and repentance might inspire a qualitative practice that centers ethics and informs a researcher’s interactions with participants. I suggest that researchers not only work on reflecting on their body (actions), speech (talk), and mind (thoughts) but more importantly, move beyond just reflection and reflexivity to facing and resolving “unwholesome” moments that may arise during the research process. I thus demonstrate how to repent in regard to one’s research-related actions, speech, and thoughts, with a particular focus on doing-no-harm and truthfulness. To illustrate, I offer an example from my own research that highlights how Buddhist teachings might be relevant in practice. My arguments aim to contribute to the literature on research ethics by introducing repentance by the researchers, alongside the Buddhist precepts, as central to ethical qualitative research practice.

Methods and Ethics in Qualitative Research Exploring Young Children’s Voice: A Systematic Review

Young children have rights; they are agents and active constructors of their social worlds. Despite well-established theoretical foundations, the ‘methods’ and ‘ethics’ of qualitative research to elicit young children’s voice require further exploration to ensure young children are central to our research endeavors. This systematic review examined studies that sought to capture young children’s (3–6 years) voice in Early Childhood Education and Care settings. Fifty-eight studies met the inclusion criteria. Interview was found to be the most common strategy; this is often coupled with other child-friendly methods. Findings suggest that young children are increasingly listened to; however, there appears to be a need to further promote children’s agency and the inclusion of assent-seeking as an ongoing process. Gaps in methods supporting the inclusion of children with additional needs and Indigenous children are also evident. In addition, advancing non-permanent methods of meaning making to support children’s participation appears ripe for methodological innovation.

Dimensions of Researcher Vulnerability in Qualitative Health Research and Recommendations for Future Practice

Vulnerability has typically been addressed in the context of research ethics from the point of view of participants, with a focus on how to prevent the potential or exacerbation of existing harm caused by the power and role asymmetries between researchers and participants. However, more recent approaches to research ethics question whether researchers are, by definition, located in a privileged position during the research process and safe from any kind of vulnerability. In line with this, we reflect on the dimensions of researcher vulnerability specific to studies using a qualitative methodology in health research. Our argument is that participants and researchers should be on the receiving end of efforts to implement ethical procedures and protection from harm. Based on the autoethnographic analysis of our experiences as qualitative health researchers, this paper aims to identify dimensions of researcher vulnerability, and draw out relevant recommendations for practice. The reflections upon which this paper is based emerged during a spring school focusing on research ethics in qualitative health research, during which we discussed situations from our own research experience which left us feeling vulnerable. We identify four dimensions related to the experience of vulnerability (reciprocity; emotional labor; application of ethical standards; reversed power asymmetries) and five crosscutting aspects relating to these dimensions (researching sensitive topics; researching in contexts of vulnerability, poverty and structural violence; being a novice; lacking adequate support; insufficient time and space for ethical reflexivity). Our recommendations address particular challenges for these dimensions, and center on the role of reflexivity, as one of the cornerstones for enabling ethical qualitative research practice, requiring us to acknowledge and address our own vulnerability and positionality. Autoethnographic exercises are particularly useful for zooming in on ethically important moments in research related to researcher vulnerability and fruitful for identifying resources to respond to such challenges in the future.

Review of “Food Allergy Advocacy: Parenting and the Politics of Care”

Food Allergy Advocacy: Parenting and the Politics of Care brings together a dynamic study of medicine, social movements and family life to illuminate the unique features of “allergy mom” advocacy. Anthropologist Danya Glabau shows that this activism reinforces the notion that white middle-class mothers in nuclear families are ideal allergy advocates. Mothers are understood as naturally responsible for protecting children from allergens and legitimized by gendered and racialized norms of family life. “Mother-blame” is a salient theme. Breastfeeding practices, foodwork, cleaning, and medical decision-making are implicated as potentially causing children’s food allergies, with hygiene and safety closely associated with social class and race. The book explores family life from an anthropological perspective, with its final chapters examining the study’s central focus: food advocacy politics. I’m a sociologist who studies parenting and family life, and I have a keen interest in qualitative methods and research ethics in particular; I evaluated the book from this perspective.

Contagious Sapiosexuality: Dreaming Conference Seduction as Ethics of Qualitative Research

In this paper we engage Baudrillard’s (1979/1990) writings on seduction to ‘dream up’ seduction as an ethical and generative-destructive force of qualitative research. Beginning with a dreamy conference seduction, we argue that seduction keeps us qualitative researchers thinking, moving, risking, and being passionate about our work and each other. As a playful, sometimes frivolous, yet deeply terrifying process, seduction moves us beyond ourselves and into theoretical unknowns; enables us to risk ourselves in ethically listening to others’ truths. We show and argue that conferences can be ripe spaces for the spread of contagious sapiosexuality and urge qualitative researchers to experiment and play with conference seductions.

The ethics of facing the Other in suicide.

Despite a plethora of existing literature on the topic of suicide, very little attention has been given to research ethics in practice in research on suicide. When suicide research does pay attention to the ethical issues researchers are likely to face, the focus is on the roles institutional human ethics review committees fulfil to ensure ethical conduct in all stages of research. In response to this problem, this article focuses on the philosophical relationship between qualitative methodology and research ethics in the context of researching queer youth suicide. In so doing, I draw on my experiences of interviewing gender-and sexually diverse young people about their familiarity with suicide. These experiences are based on a qualitative pilot study I conducted on queer youth suicide, which used the unstructured interview technique to collect data. Drawing on the works of Emmanuel Levinas and Judith Butler, I examine what it means to face the alterity of the suicidal 'Other', and what this facing entails in terms of research ethics as relational. I argue that facing reveals not only myself as more vulnerable than I anticipated, but also the suicidal 'Other' as agentic instead of only vulnerable and at-risk of suicide.

Review on Ethics in Qualitative Research

Review on Ethics in Qualitative Research

The afterlife of interviews: explicit ethics and subtle ethics in sensitive or distressing qualitative research

When conducting interviews about sensitive subject matter such as family life, powerful emotions may arise. The kinds of unexpected distress that can surface in interviews concerning topics laden with personal significance are different to the readily anticipated trauma that accompanies interviews in post-crisis or post-conflict situation. This article analyses the ethical considerations that accompany such research, drawing upon literature from oral history and qualitative sociology. The article traces ethical issues during the temporal phases of qualitative research – before, during and after an interview – before proposing three strategies that interviewers can adopt to help protect narrators from ongoing harm or distress after an interview. Such ethical safeguards include the self-interview, the post-interview follow-up with the narrator, and adopting an ethics of reciprocity that allows the narrator to feel that they are contributing to a larger purpose through involvement in research.

ETHICS AND VALIDITY AS CORE ISSUES IN QUALITATIVE RESEARCH: A REVIEW PAPER


 
 Qualitative research is criticized for having issues validity, reliability, and ethics. This review paper focuses on two core issues involved in qualitative research generally and in educational research more specifically. Firstly, this review sheds light on ethical issues involved in qualitative research. It also discusses issues of validity in qualitative research. In this study, narrative review method has been adopted. The secondary sources or previous research studies have been reviewed in order to suggest some research directions regarding the issues of validity and ethics in qualitative research. It was found that researcher plays a central role in assuring both validity and ethics in qualitative research. Researcher are recommended to have command on research techniques required for conducting qualitative studies. Moreover, researchers are recommended to adopt ethically appropriate practices by conducting honestly robust qualitative studies.
 
 
 
 

Conducting Research in Authoritarian Bureaucracies: Researcher Positionality, Access, Negotiation, Cooperation, Trepidation, and Avoiding the Influence of the Gatekeepers

During Islam Karimov’s presidency in Uzbekistan, between 1991 and 2016, the government had a complex, repressive, and paradoxical relationship with Islam. Widespread persecution, fabricated crimes, and unfair treatment of Muslims were common. Therefore, investigating the relationship between the state and Islam involves significant political risk, which has an intimidating effect on both gatekeepers and participants. Based on the field research I conducted, this paper offers insights about what to expect when conducting research in strictly controlled states like Uzbekistan. Identifying the right gatekeepers who can grant or deny access to research sites, obtaining qualifying permissions, and negotiating and collaborating with gatekeepers are important to gain access to and remain in the relevant research sites for the study. This paper contributes to the literature on conducting qualitative research in authoritarian states. The researcher positionality and their role as an insider or outsider are important parts of such research; however, they also present challenges for researchers. The discussions of reflexivity and the reflexivity of discomfort can guide researchers who face similar challenges in the field. This paper also contributes to the understanding of the importance of considering gatekeeping structures in an effort to advance qualitative research methods and research ethics.

When people matter: The ethics of qualitative research in the health and social sciences.

When research involves people, ethics are fundamental. In the health and social sciences, when qualitative methodologies are used, in addition to ensuring an ethical process approved by the ethics review board, it is also necessary to guarantee an ethical practice capable of responding adequately to the complex questions and dilemmas which arise as the study progresses. This theoretical article analyses some of the most sensitive issues involved in qualitative research and discusses the following questions: (a) How should ethics be approached when working with vulnerable groups? (b) Is informed consent enough? (c) Should we rethink anonymity? (d) What is the difference between confidentiality and anonymity? (e) What exactly do we mean by relational ethics? (f) How can we avoid hurting people, yet remain honest? In the conclusions, we discuss some basic aspects for ensuring ethical studies. This paper, therefore, may be of interest to all health and social researchers concerned about ensuring that their studies comply with ethical principles which recognise, protect and respect participants' rights.

Qualitative migration research ethics: a roadmap for migration scholars

PurposeThis article aims to set a roadmap for an ethical programme, which we call “qualitative migration research ethics” (QMRE). It is a scoping review that maps current ethical challenges that migration scholars often face and provide guidance, while acknowledging the fact that many researchers deal with ethical issues on a case-by-case basis.Design/methodology/approachBy connecting three lines of debates – ethics in social sciences, in qualitative research and in migration studies – this article addresses the following core questions: What are the particular ethical dilemmas in qualitative migration research (QMR)? How do migration researchers deal with these ethical dilemmas? What is the role of universal ethical codes of conduct and case-by-case ethical considerations in dealing with particular situations?FindingsThis review demonstrates that special aspects of migration research context, e.g. participants' mobility, potential vulnerability and migration as a politicized issue as well as the flexible and exploratory nature of qualitative research require particular ethical awareness that cannot be sufficiently addressed by standardized guidelines.Originality/valueIt proposes that efforts to raise ethical awareness must go beyond researchers' ethical confessions or blind adherence to pre-fixed guidance. Researchers must have critical “ethical radar” before, during and after their fieldwork; not only while working on extreme and vulnerable cases but also while doing all kind of research regardless of the level of vulnerability. Last but not least, this article claims the need for including critical ethical consciousness substantially in higher education programmes at the very beginning of the research career.

Ethics in commercial qualitative research – anybody seen them? On the ethical dilemmas of researchers involved in commissioned research

The article reflects on problems of an ethical nature faced by researchers utilising qualitative methodology in privately funded research – social and political opinion polls, or market research projects. The commissioning entity is at the same time an evaluator of the research project, its recipient, and a client, which may affect the research process. Utilising source literature, in the article I will present analyses carried out for a project concerning the patterns of professional careers of researchers who work in private research agencies (market and opinion polling researchers) which was the basis for my PhD thesis and examples from my own long-standing research practice. I hope this article represents a valuable contribution to a further discussion on this topic.