As a house call doctor in New York City caring for homebound, frail Chinese elders,1 I've had the opportunity of getting to know patients in the context of their homes and establish long-term relationships with them. Naturally, because elder care in the Chinese culture is often a family responsibility, I also work closely with family members and hired caregivers. But what I found most rewarding was being able to bring my Chinese patients and their families closer together through a series of conversations relating to the patients' goals of care and end-of-life wishes. Despite the common belief that bringing up taboo topics such as and dying could spell trouble, I have found that such exploratory conversations are often welcomed by both parties. When the health care provider initiates such conversations, patients are given permission formally to share their wishes. For family members, such conversations have helped to reduce the emotional burden related to knowing what their elder would have wanted. Knowing the patient's wishes can thus help to minimize conflict within the family. Experience has taught me that many elders, including Chinese elders, are often not afraid to discuss their end-of-life wishes. Many chronically ill elders have already begun to focus on different goals of care, that is, to focus more on improving quality of life (e.g., improving home safety, mobility, nutrition, pain control), and to focus less on prolonging life (e.g., cancer screening, and curative treatments for cancer). In one study, Chinese American elders were more likely than non-Chinese American elders to have no fear in discussing attitudes concerning death (92% vs. 78%; Crain, 1996). In a Hong Kong study involving nursing home elders, six out of eight declined cardiopulmonary resuscitation (CPR). Elders who declined CPR refused it because they had achieved a good age, wanted to avoid suffering, wanted to avoid burdening the family, and accepted their fate. One Chinese elder expressed that the discussion with the doctor relieved burden (Chu & Woo, 2004). Medical training has taught me the importance of patient autonomy-all patients have the right to make their medical decisions, including advance directives. Working with patients of different ethnic backgrounds, however, has taught me that there is more than one approach to such discussions. In the traditional Chinese culture, caregiving of elders is considered a family responsibility and a moral obligation. The term filial piety refers to the concept where the elder parents are protected from harm. For this reason, family members have legitimate decision-making authority even if the patient is fully competent. As health care providers, we are naturally patient advocates; but we must be advocates in the context of culture. MR. CHAN One of my more challenging discussions regarding advance directives involved Mr. Chan (not his real name), a 90-year-old Chinese man living in a 5-floor walk-up apartment in Chinatown, New York City. Mr. Chan had emigrated from Hong Kong in the 1960s with his wife and three sons. He worked as a chef until retirement. Mr. Chan had many chronic medical conditions, including hearing loss and near blindness because of cataracts. He had been living in the same apartment for more than 40 years and had been living alone since his wife's death 15 years ago. When I first met Mr. Chan in 2004, he had already been homebound for a year because of generalized weakness and poor vision. He had a home attendant (Medicaid-funded) who was available for only 3 hours daily to tend to his needs. Mr. Chan was found to have high blood pressure, chronic cough, and was significantly underweight. At 5 feet 8 inches, he only weighed 110 lb. Having smoked cigarettes for many years, I was concerned that he had cancer. Mr. Chan didn't mind getting a chest X-ray at home and willingly took blood pressure medications. He happily accepted more home attendant hours and an order of Ensure drinks. …
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