Distinct Experiences Research Articles

The unspoken experiences of systemic supervisors of color: A modified Delphi study.

Despite collective conversations about the need for more racial diversity, the field of couple/marriage and family therapy (C/MFT) continues to be occupied predominantly by White individuals. Within the C/MFT literature, several scholar-practitioners have highlighted what the lack of racial representation means for our profession and, more importantly, our clients. C/MFT scholars have also shed light on the distinctive experiences of racially minoritized students and therapists traversing a racially homogeneous discipline. However, a smaller, and often overlooked, demographic in these conversations is supervisors of color. This modified Delphi study enlisted the expert perspectives of eight supervisors of color who each have at least a decade of supervisory experience. Consensus among the panelists emphasized the unique, but often inadequate training needs for supervisors of color and the sociocultural factors that often affect the supervisory relationship. This study provides implications that are critical to fostering the professional development of systemic supervisors of color.

“The illuminating quiet”: a metaphor analysis of autobiographical descriptions of inner speech in aphasia

ABSTRACT Background Inner speech in aphasia is a rapidly expanding research area, but can be defined in numerous ways. Unlike behaviourally observable language processes such as overt word-production, inner speech is only directly available to introspection. Subjective experience thus grounds our understanding of inner speech and is a necessary starting point for investigating its definition. Descriptions of inner speech written by people with aphasia can make an important contribution to conceptual clarity in the literature. This important data source has not been systematically analysed. Our research addresses this gap. Aims This research aims to understand the subjective experience of impaired and preserved inner speech in aphasia, through analysis of the metaphors used in autobiographical accounts, and to interpret the findings in relation to the inner speech literature. Methods & Procedures This study carries out a metaphor-led discourse analysis of descriptions of inner speech in four autobiographical accounts of aphasia. Metaphorical expressions describing language processing were identified and coded, then systematic metaphors (i.e. the related concepts which are used consistently to describe a particular topic) were described. The metaphors used to describe inner speech were then analysed, with attention to patterns of use and contextual information. Results & Discussion 338 expressions made use of the main systematic metaphors which were used to describe inner speech. Two types of inner speech- Phonological Inner Speech and Dialogic Inner Speech – were described as distinct and dissociable experiences, and were described using different metaphors. Phonological Inner Speech, the internal activation of phonological representations, as used in mental repetition of a word or phrase, was described by two authors using the metaphors WORDS AS OBJECTS, MIND AS CONTAINER and INNER SPEECH AS HEARING WORDS. Dialogic Inner Speech, the use or awareness of linguistic inner reasoning or dialogue, was described by two different authors using the metaphors INNER SPEECH AS INNER VOICES/PERSONS/MONOLOGUE/DIALOGUE and APHASIA AS SILENCE/FLUID/SPIRITUAL EXPERIENCE. A double dissociation of these different definitions of inner speech is seen across two of the accounts. Different impacts on language processing and cognition were also described. Conclusions This research demonstrates that subjective accounts of inner speech can help clarify theoretical discussions and clinical implications. Although recent research within aphasiology has focused mainly on Phonological Inner Speech, we show that in these accounts the impairment of Dialogic Inner Speech was described as more salient and more explicitly as a “lack of inner voices”.

Following the lead of the child: pedagogical considerations to support responsive approaches to play-inspired and playful arts-informed research with young immigrant children

ABSTRACT Despite the proliferation of play-based and arts-informed research, an under-explored area is using both with young immigrant children to hear from them about their distinctive experiences and complexities. This paper draws on an arts-informed and play-based case study with two young immigrant children in Canada to highlight specific data collection approaches, responsive materials, and play and playful art-making pedagogies. The case study found that the use of video recordings, pedagogical improvisations, close observations, and tailored responses enhanced relational co-constructions between the children and the researcher. Responsive materials enhanced the children’s sharing of their thinking, interpretations, and communication and were effective when relevant to the child and acted as a prompt. Establishing a shared studio space for the children and the researcher was important for supporting interwoven opportunities for play and artistic representations. Illustrative examples highlight how these established considerations can be tailored to young immigrant children to help them explore and negotiate complexities including identity and culture, socially and culturally constructed roles, family and community supports, and pre-and post-migration experiences.

Voicing TYA festival’s audiences: reception of the Haifa International Children’s Theatre Festival

ABSTRACT The Haifa International Children's Theatre Festival is an annual family theatre festival held in Haifa. This qualitative reception study focuses on young audiences and the adults accompanying them. Considering the festival as a comprehensive theatrical event, this study explores how it is perceived by Israeli children and parents. Drawing on the interviews, our analysis explores the reception process, involving a sequence of actions undertaken by parents and children that result in a distinctive family experience. These actions include: choosing plays to attend; mediating theatrical knowledge; participating in performances; celebrating the festival as a theatrical event, and reviewing performances they attended.

A qualitative study on the experiences of autologous haematopoietic stem cell transplant for Multiple Sclerosis

AimAutologous haematopoietic stem cell transplant (HSCT) is an effective treatment for people with highly-active relapsing multiple sclerosis (MS), who are not adequately responding to disease-modifying therapies. To date, research has predominantly focused on disease-specific outcome measures. There is a lack of research exploring patient experiences of this complex treatment. The study aims to explore the experience of considering and receiving HSCT treatment for MS. MethodsSemi-structured interviews were conducted online with 12 adults with MS who had undergone HSCT treatment. Interview topics covered the experience of deciding on the treatment, the HSCT process itself, and the patient-reported outcomes following HSCT. Interviews were audio-recorded and transcribed verbatim. A thematic analysis approach was employed. ResultsThree main themes were identified: (1) Balancing hope and fear explores the decision-making experience when considering HSCT as a treatment; (2) Distinct emotional experience, highlights the unique challenges faced on all stages of the treatment journey; and (3) Adjusting to outcomes, explores how participants make sense of the aftermath of the treatment, including managing the ongoing uncertainty of MS and complications arising from HSCT. DiscussionHSCT is a complex treatment, both physically and psychologically for pwMS. A comprehensive and holistic care pathway is required to support people with MS at all stages of the treatment process, to ensure patient-centred planning and care.

Decolonizing IS through tecnologia social: Fostering epistemic plurality in the design of solidarity cryptocurrency in Latin America

AbstractWesternised paradigms dominate the information systems (IS) field, often overshadowing alternative epistemologies. This study challenges the prevailing hegemonic view and contributes to the decolonization of IS research and practice by proposing a Latin American and decolonial approach to technological development that emphasises community centrality and epistemic justice through recognition of local knowledges and Indigenous traditions. Using design ethnography, we follow the development of a solidarity cryptocurrency in a Brazilian favela. Our paper offers two key contributions. By introducing tecnologia social, an underrepresented perspective in IS, we highlight ecology of knowledges, centrality of the local and decolonial reconfiguration as principles that can enrich the understanding of IS projects from a decolonial perspective. In addition, we propose a new concept—epistemic dialogical tension—as a process wherein different epistemologies coexist and accommodate each other, encouraging a dynamic interplay of distinct human experiences and worldviews. It offers new paths to IS scholars and practitioners in navigating the complexities of epistemic plurality. We argue that tecnologia social and epistemic dialogical tension provide fertile ground for developing reimagined, decolonized approaches where multiple epistemologies can coexist, favouring the often‐silenced communities they are intended to benefit.

STEM ATTITUDE DISPARITY: THE IMPACT OF LEARNING EXPERIENCES IN VOCATIONALLY-ORIENTED POLYTECHNIC AND UNIVERSITY ON STUDENTS’ SELF-EFFICACY, EXPECTANCY-VALUE, AND CAREER INTEREST

Learning experiences are widely recognized as crucial in developing students’ attitudes towards science, technology, engineering and mathematics. Vocationally-oriented polytechnics and universities provide distinct learning experiences that may significantly influence students’ STEM self-efficacy, expectancy-value and career interest. The study explores how the unique learning experiences shape students' STEM attitudes among 487 students during their fourth semester at vocationally-oriented polytechnic and university. The S-STEM survey was adopted as the measurement instrument. The result showed that university students displayed a more favorable overall STEM attitude compared to students enrolled in vocational-oriented polytechnic. University students demonstrated greater STEM self-efficacy than polytechnic students, but no significant difference in STEM expectancy-value was detected between the two groups. From the perspective of inter-group comparison, university education consistently fostered students a heightened sense of STEM self-efficacy, expectancy-value and career interest in science, whereas vocationally-oriented polytechnic education boasted its unique strengths in cultivating robust attitudes and career interests towards science and engineering/technology. However, students in both institutions exhibited a relatively less positive attitude towards learning mathematics. The findings highlight the importance of learning experiences in shaping students' STEM attitudes and career interests. Keywords: career interest, expectancy-value, learning experiences, self-efficacy, STEM attitude

Patterns of early childhood adversity and neighborhood deprivation predict unique challenges in adolescence: A UK birth cohort study.

This study applies a comprehensive bioecological perspective to address a significant gap in the childhood adversity literature by employing latent profile analysis to examine the impact of diverse combinations of early childhood adversities and protective factors on adolescent psychosocial and behavioral outcomes. Drawing from the United Kingdom's Millennium Cohort Study (N = 19,444), we identified eight unique profiles of early childhood adversity and protective factors. These profiles provide a nuanced understanding of adversity combinations and allow for differentiation between groups with similar profiles. Latent profile membership was a significant predictor of all adolescent outcome variables, indicating that profiles differed significantly from one another on psychosocial and behavioral outcomes (Wald values ranged from 10.10-623.22; p < .001). Some findings support the cumulative risk model, indicating that exposure to multiple early adversities increases the likelihood of adverse outcomes. However, we also found that specific adversities, such as parental psychopathology, parental alcohol use, and neighborhood deprivation, uniquely impact adolescent outcomes. This study highlights the necessity for tailored interventions and policies to support children with distinct early life experiences, emphasizing the importance of addressing both cumulative and specific adversities at multiple levels to prevent psychosocial and behavioral problems in adolescence.

‘Where is the diversity in this facility?’ Experiences of emergency care among visible minority individuals in Kingston, Ontario

ABSTRACT Introduction Visible minorities, a growing segment of Canada's population, have voiced concerns about experiencing racism while receiving care in the emergency department (ED). Understanding the ED care experiences of visible minorities is crucial to improving care and reducing health disparities. Methods From June to August 2021, we collected data from participants in Kingston, Ontario using a sensemaking approach. Individuals who had accessed emergency care or accompanied someone else to the ED in the prior 24 months were eligible to participate. After sharing a brief narrative about their care experience, participants interpreted the experience by plotting their perspectives on a variety of pre-determined questions. Here, we conducted a thematic analysis of narratives involving patients who identified as visible minorities and complemented it with quantitative analysis of the participants’ interpretative responses. This mixed-methods approach highlighted the distinct experiences of visible minority participants in relation to a comparison group. Results Of the 1973 unique participants, 117 identified as a visible minority and 949 participants did not identify with an equity-deserving group (comparison group). Visible minority participants were more likely to report that too little attention was paid to their identity and more likely to express a desire for a balance between receiving the best medical care and being treated with kindness and respect. Visible minorities’ ED experiences were also more likely to be impacted by how emergency staff behaved. Qualitative analysis revealed negative experiences of feeling uninformed and disempowered, facing judgement and discrimination, and experiencing language barriers. Positive experiences of receiving compassionate care from staff also emerged. Conclusion Visible minority perceptions of ED care were often negative and mainly focused on staff treatment. Cultural competency and language translation services are key areas for improvement to make ED care more accessible and equitable.

Experiences of clinical nurses with medication interruption: A systematic review and qualitative meta-synthesis.

Managing medication interruptions is considered one of the biggest dilemmas for nurses in clinical settings. To improve medication safety, it was imperative to conduct a systematic review to get a deeper understanding of nurses' experiences with medication interruptions. A systematic review and qualitative meta-synthesis aimed to explore clinical nurses' experiences of interruption during medication in hospitals. Systematic searches were conducted in PubMed, CINAHL, Ovid Medline, Embase, Web of Science, and The Cochrane Library from inception to January 2024. The search strategy included four groups of keywords: (1) qualitative research, (2) nurses, (3) medication interruption, and (4) experience. Critical Appraisal Skills Programme was used to assess the quality of the studies. Meta-ethnography was utilized to synthesize the findings of the included studies. Nine articles published between 2012 and 2023 were included; the number of participants varied from 5 to 40, aged 20-68 years, and the majority were female. Four synthesized findings were identified as follows: (1) an inevitable part of the routine, (2) a decision-making process, (3) working in a minefield, and (4) coping with interruption. Nurses embraced interruptions as an inherent component of clinical care. Previous experience and nursing culture, encompassing personal and professional aspects, significantly influence nurses' attitudes toward medication interruptions. It is crucial to incorporate the distinctive work experiences of nurses into techniques aimed at efficiently handling interruptions in future research. The registration number in PROSPERO is CRD42023470276.

Social contexts are associated with higher emotional awareness than nonsocial contexts: Evidence in a sample of people with and without major depressive disorder.

Growing evidence suggests that social contexts may prompt qualitatively distinct experiences of emotions than nonsocial contexts. In this study of people's naturalistic daily emotional experiences, we examined in adults with and without major depressive disorder (MDD) whether experiencing emotions in a social context (with others) versus nonsocial context (without others) was associated with greater emotional clarity and attention to one's emotional experience (i.e., emotional awareness). Based on evidence that social stimuli are highly salient to social species, we predicted that interactions with social others-and especially close social others-would be associated with greater emotional awareness. We furthermore expected that individuals with MDD, who tend to have diminished emotional clarity and social deficits, might experience less emotional awareness in social settings than healthy controls. Across a 2-week experience sampling study that concluded in 2019, we assessed emotional awareness when people were interacting with others (vs. not) and interacting with close (vs. nonclose) others among adults with current MDD (n = 53), remitted MDD (n = 80), and healthy controls (n = 87). As expected, attention to emotion and emotional clarity were higher in social versus nonsocial contexts and when interacting with close versus nonclose others. Contrary to expectations that these effects would be weaker among those with current MDD, the current MDD group showed enhanced emotional clarity in social versus nonsocial settings compared to the other two groups. Insofar as emotional clarity is beneficial to well-being, these findings suggest those with MDD may especially benefit from social contexts. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

Ecotherapy for Adolescents Experiencing Mental Health Challenges: Qualitative Exploration of Perspectives of Adolescents and Parents

ABSTRACT Different forms of eco-therapeutic interventions have positively impacted the physical, psychological and social wellbeing status of service users across a range of age groups. However, there has been little evidence exploring the experience and perceived impact of an ecotherapy program for adolescents in the UK. This study explored perceptions of adolescents and their parents of an ecotherapy program targeting improved mental health and wellbeing. This study involved semi-structured interviews with adolescents and their parents. Interviews took place shortly after the program ended (adolescents and parents) and six weeks after (adolescents only). Interviews from the two groups were initially analyzed separately before being triangulated. Eight adolescents and seven parents were interviewed in total. Three themes were generated: building connections, learning and exposure, and comparing and constructing with prior services accessed. Perceived improvements across adolescents included reduced negative emotions and anxiety, and greater self-esteem, confidence, and social skills. For the latter theme, there were reported distinctive experiences of attending this ecotherapy program compared with professional mental health support services. Exploring nature brought adolescents together with benefits of engaging in support services that varied from the norm. Future research should examine the feasibility of using ecotherapy as an alternative treatment to traditional therapy in supporting mental health, and evaluate the economic viability of such a program for non-clinical support provision.

The uncanniness of interactive photography: Exploring spatial perception in virtual tours and structure from motion

Photography has always been associated with the physical activity of the human body: capturing, editing and viewing photos are all activities that involve the user’s spatial interaction with the technology used. With conventional photography, one aspect of spatial relation with technology is the viewer’s ability to recognize the camera’s location in the photographic scene through visual indications, such as the relative location of objects in the frame to the camera’s point of view, combined with a basic familiarity with the functionality of conventional cameras, relating to the notions of ‘in-front’ and ‘behind’ the camera. Some instances of interactive photography, such as 360-degree imagery and three-dimensional photogrammetry, challenge the spatial connection between the photographer (represented by the camera location) and the viewer due to unique usability and innovative interactions, such as the viewer’s ability to ‘move’ freely in all directions of the three-dimensional, photographic space. The technological affordances of interactive photography create a distinct corporeal experience that challenges the traditional associations between the photographer, the viewer and the photographic imagery, evoking with the viewers the notion of technological uncanniness and, consequently, questioning some of the traditional preconceptions regarding the prime characteristics of the photographic medium.

From Exile to Integration: Immigration Patterns and Cultural Identity of Chinese and Jewish Communities in the United States

The Chinese immigration experience began in the mid-19th century, driven by economic opportunities and marked by significant challenges. In contrast, Jewish immigration, primarily occurring in the late 19th and early 20th centuries, was driven by severe religious and racial persecution in Europe. Jewish immigrants sought refuge from violence and the Holocaust, finding a relatively open environment in the U.S. to maintain their religious and cultural traditions. This paper examines the immigration patterns and cultural identities of the Chinese and Jewish communities in the United States, highlighting their distinct historical backgrounds and experiences. This study applies theoretical frameworks from sociology and anthropology, including Everett Lee’s “Push-Pull Theory,” Stuart Hall’s cultural identity theory, and Anthony Giddens’ theory of modernity, to analyze how these communities’ immigration patterns have influenced their cultural identities. The study compares the Chinese community’s economic-driven integration and the Jewish community’s diverse approach to cultural preservation. The findings provide insights into the complexities of cultural identity within the U.S. multicultural landscape and highlight the varied strategies adopted by different immigrant groups. Limitations of this study include its focus on Chinese and Jewish communities, which may not fully represent other immigrant experiences. Future research should consider a broader range of immigrant groups to enhance understanding of cultural integration and identity.

Designing museum experiences for eudaimonic or hedonic well-being: insights from interviews with museum visitors

ABSTRACT Lately, museums are trying to transform into spaces prioritizing enrichment and well-being. This paper investigates how the design of museum experiences is associated with the visitors’ well-being, drawing on psychological theories of hedonic and eudaimonic well-being. Through structured interviews conducted at a hedonicly designed museum (Museum of Chocolate, N = 10) and an eudaimonicly designed museum (Museum of Broken Relationships, N = 10), we explored the impact of different design approaches on visitors’ experiences and their hedonic and eudaimonic well-being. Thematic coding showed distinct experiences. The hedonic museum, characterized by sensory engagement and personal enjoyment, stimulated mindfulness, restoration, and positive affect associated with visitors’ hedonic well-being. In comparison, the eudaimonic museum, emphasizing personal enrichment and reflection, promoted escapism, contemplation, and mixed affect, which was associated with visitors’ eudaimonic well-being. These insights carry significant implications for museum experience design, offering guidance on creating enriching experiences that prioritize visitors’ well-being in different ways.

The Emergence of "Terroir" Cosmetics: Catalysts for Territorial Marketing and Regional Identity

The marketing of products based on local resources and traditional know-how, commonly referred to as "terroir" cosmetics, plays an essential role in regional marketing. These products serve to reinforce regional identity and boost the local economy. Such products, situated within the context of their place of provenance, serve to accentuate the distinctive cultural and natural attributes of a region, thereby facilitating the formation of a robust brand image. Such products respond to the growing consumer demand for authentic, natural and environmentally-friendly products, while supporting the local economy by creating jobs and developing regional businesses. Furthermore, these products attract tourists by offering an immersive and distinctive experience, linked to the discovery of local traditions and artisanal manufacturing processes. However, their success depends on a well-planned strategy to overcome the challenges of distribution, regulation and competition. In conclusion, " terroir" cosmetics are a powerful tool for promoting a region, but their implementation requires careful attention to ensure their long-term positive impact.

Queering COVID-19: A Synergistic Approach to Theorizing Pandemic Inequalities

COVID-19 has amplified social, economic, racial, gendered and sexual inequalities from its earliest days, yet distinct contemporary experiences of COVID-related inequalities around the globe warrant further analysis. Social scientists have theorized COVID-19 and its stratifications through various analytic axes, including critical race theory, decolonial thought and queer theory, and have identified the disparate impact of COVID-19 on LGBTQ+ communities in varied global contexts. However, the ‘queering’ of COVID-19 remains a timely project. In this article, we assess how the production and (re)production of discourses and practices that further pathologize people outside the hetero-patriarchal norm is an integral part of the ways in which a queering of COVID should be conceptualized. We understand queering COVID-19 as a theoretical stance that de-centres heteronormative and binary-gendered social structures and brings a critical eye to the normative political, biomedical and economic projects therein.

Navigating the long journey of heart failure-experiences of Māori and Pacific peoples.

Māori and Pacific peoples in Aotearoa New Zealand experience significant inequities in heart failure rates, treatment and outcomes compared to NZ Europeans. We aimed to understand the experiences of Māori and Pacific people living with heart failure as they navigated care across primary and secondary settings. This research involved a secondary analysis of data collected in a wider qualitative study investigating evidence-practice gaps of cardiovascular care experienced by Māori and Pacific people. From the wider pool of semi-structured interviews, we identified 24 people (seven Māori and 17 Pacific peoples, 23 from the North Island) living with heart failure, and applied template and framework analysis to explore their distinct experiences. Two major themes identified related to participants: 1) Condition-need for more support to understand and self-manage their heart failure condition, and 2) Journey-desire to feel well-connected to the health system in their heart failure journey. Addressing heart failure inequities for Māori and Pacific peoples requires that providers engage in clear and meaningful communication to support patient self-management. Strengthening pathways for Māori and Pacific patients and whānau (families) between primary and secondary services is required to reduce their likelihood of becoming disconnected from care.

Islanding as a vernacular creative response to crisis: Emotional geographies of pandemic musicianship

Emotional geographies of creativity during disruptive crises have received scant attention yet are deeply entwined with unfolding spatial reconfigurations. Drawing upon ethnographic research on the shifting geographies of creative work in the post-pandemic city, we highlight and discuss one distinctive emotional-geographic experience: what Wakefield (2021) calls ‘islanding’, a ‘retreat’ among creative workers to home spaces, consolidating activities and finding ways to inhabit upheaval. Describing the case of four male musicians who play together regularly in Sydney, Australia, we show how, in response to forced lockdowns, collaboration shifted from dispersed networks to home spaces of rehearsal, composition, production and performance. Within these reworked home spaces, creativity and sociality were reassembled. The emotional dimensions of music-making, support from family and friends, gender nuances, and bonds of collective creativity, acquired heightened significance. Pandemic upheaval afforded unforeseen opportunities to experiment, while ‘islanded’ spaces proved vital, socially, as the musicians faced multiple health, employment, and psychological challenges. Transcending masculine tropes, gathering at home to play music proved an avenue to perform care work, share the joys of music, express love and admit vulnerability. We conclude that emotional, gendered, and spatial dimensions must figure more prominently within analyses of creative responses to crisis, including post-pandemic discussions of the creative sectors.

Transitions across borders: Migration aspirations of young people from Kinmen, Taiwan

AbstractThis paper examines the migration aspirations of young people from the remote border area of Kinmen, Taiwan and their migratory trajectories—internal migration to the main island of Taiwan and cross‐border migration to China. Located between Taiwan and China, Kinmen is an offshore island with a long history of migration. Based on multi‐site ethnographic data from 30 young people, this paper explores their migratory trajectories and aspirations concerning the instability of socio‐political context and the growing social and cultural inequalities of today's globalised world, China's rise in particular. It contributes to the population geography literature by using migration aspiration as a critical lens to analyse how young people negotiate their borderland identity through mobility under the changing cross‐strait political economy. The paper emphasises the importance of considering the transformation of regional economy and culture when analysing youth migration experiences. In recognising the socially grounded aspects of migration aspiration, it highlights the fluid and transformative nature of migration to enrich our knowledge of how marginalised youth form subjectivities and negotiate complex identities through migration. The distinctive experiences of peripheral youth shed new light on the conceptualisation of border crossing, place and desires under the sway of globalisation.