Desire For Support Research Articles

Starting a cultural collective for mothers of children with disabilities: A case study

Background: Caring for children with disabilities in Tanzania involves significant challenges, including stigma, limited support and mental health risks. A cultural collective for caretakers of children with disabilities enrolled at a primary school was established to address these issues.Objectives: The study aims to explore the experiences of caregivers who started a cultural collective and to assess its impact on their lives in the short term.Method: This study used a community-based participatory research (CBPR) approach with a sequential mixed-methods design. Data were collected over a period of 8 weeks, while the participants in this study established a collective in Dar es Salaam. Quantitative data were analysed using descriptive statistics, and qualitative data were analysed using Braun and Clarke’s method for thematic analysis.Results: As assessed by a validated and normed questionnaire, Patient Health Questionnaire-9 (PHQ-9), 63% of the caregivers showed signs of depression before starting work in the collective. Economic needs, education and the desire for support were the primary motivations for joining. Starting the collective improved social support, fostered agency and began to enhance caregivers’ financial conditions.Conclusion: The collective addressed caregivers’ needs for economic improvement, social support and mental support, and the experience was vitalising for the caretakers.Contribution: This study deepens our understanding of holistic interventions for children with disabilities and their families in urban Africa. It offers valuable insights into a crucial stage of developing contextually relevant interventions for vulnerable, poverty-stricken populations. It provides a model that can be adapted for similar interventions in comparable contexts.

The dynamics of interpersonal emotion regulation: How sharers elicit desired (but not necessarily helpful) support.

When in distress, people often seek help in regulating their emotions by sharing them with others. Paradoxically, although people perceive such social sharing as beneficial, it often fails to promote emotional recovery. This may be explained by people seeking-and eliciting-emotional support, which offers only momentary relief. We hypothesized that (1) the type of support sharers seek shapes corresponding support provided by listeners, (2) the intensity of sharers' emotions increases their desire for emotional support and decreases their desire for cognitive support, and (3) listeners' empathic accuracy promotes support provision that matches sharers' desires. In 8-min interactions, participants (N = 208; data collected in 2016-2017) were randomly assigned to the role of sharer (asked to discuss an upsetting situation) or listener (instructed to respond naturally). Next, participants watched their video-recorded interaction in 20-s fragments. Sharers rated their emotional intensity and support desires, and listeners rated the sharer's emotional intensity and their own support provision. First, we found that the desire for support predicted corresponding support provision. Second, the intensity of sharers' emotions was associated with an increased desire for emotional and cognitive support. Third, the more accurately listeners judged sharers' emotional intensity, the more they fulfilled sharers' emotional (but not cognitive) support desire. These findings suggest that people have partial control over the success of their social sharing in bringing about effective interpersonal emotion regulation. People elicit the support they desire at that moment, explaining why they perceive sharing as beneficial even though it may not engender emotional recovery. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

UK practitioners' motivations and experiences of farm animal internship programmes

Background: Recruitment and retention of practicing farm animal veterinary surgeons is of growing importance in the UK. Farm animal internships are one route for early career veterinarians to pursue, and can be offered by both universities and corporate practices. Aims: This survey established the motivations, experiences and drivers for farm animal veterinary surgeons undertaking internships. Methods: An online questionnaire consisting of 14 questions of both free text and multiple-choice questions was used to evaluate the opinions of veterinarians who have undertaken farm animal internships in the UK. Findings: The main motivation for carrying out an internship was the desire for support, which was stated by 63.3% of participants. Interns who received weekly or fortnightly contact with a mentor were significantly more likely to regard this as sufficient (P<0.05) compared to interns whose support was less frequent. Conclusions: The results of this questionnaire suggest that internship programmes are well received by those undertaking them.

ENGLISH ORAL PROFICIENCY AND TOURISM ENTREPRENEURSHIP: IDENTIFYING AND OVERCOMING CHALLENGES

In this millennium era, the English language proficiency of tourism entrepreneurs must be looked into and improved. This is due to the tourism industry’s tremendous growth that requires mastery of the English language, as English is now widely acknowledged as the worldwide language of communication. In addition, due to the scope of their work that needs to interact with international tourists, it is essential for them to be able to communicate in the English Language. This study aims to discover the challenges faced by them and their way of having to learn, master the English language and overcome these challenges. This study will follow a qualitative approach where the researchers engaged in semi-structured interviews as preliminary data, interviewing two tourism entrepreneurs located in various parts of the tourist island of Langkawi. Thematic analysis was employed to interpret the collected data and generate appropriate themes and sub-themes for the study. The findings illustrated that tourism entrepreneurs operating on Langkawi Island encountered various obstacles with their English-speaking skills. These challenges included difficulties in understanding unfamiliar accents and the necessity for additional resources to effectively communicate with international tourists. The entrepreneurs expressed their desire for support in enhancing their English language proficiency. The data also revealed that these individuals overcame their difficulties by actively engaging in regular interactions with international tourists and making use of mobile applications to improve their ability to speak English.

662 Psychosocial distress and desire for support among long-term immunosuppressed patients with a history of skin cancer and at high risk for a first or subsequent skin cancers

662 Psychosocial distress and desire for support among long-term immunosuppressed patients with a history of skin cancer and at high risk for a first or subsequent skin cancers

"Keep Talking to Me": College-Attending Women's Desires for Support from Mothers, Fathers, and Friends/Peers in Healthy Sexual Decision-Making.

Emerging adulthood (ages 18-29) is a transitional life stage characterized by changes in identity and sexual development, including navigating new sexual experiences and cultures. During this transitional period, emerging adult women often continue to seek the support of their parent(s), while also increasing their reliance on friends/peers. However, little is known about what specifically college-attending emerging adult women desire from these support systems when it comes to making healthy sexual decisions. Using thematic analysis, we examined what emerging adult women (N = 192) identified as support they desire to receive from mothers, fathers, and friends/peers in making healthy sexual decisions while in college. Overall, the majority of participants reported desires to receive some form of sexual support from the majority of sources. There were four themes of desired support across sources: (1) Advice and Communication, (2) Nothing, (3) Emotional and Tangible Support, and (4) Attitude Shifts. Differences in types of desired support were also found across different sources with participants reporting desires for emotional support from their mothers, no desired support from their fathers, and direct interventions from their friends. Implications for informing sexuality educators and programs are discussed.

"Falling Through the Cracks": A Retrospective Exploration of the Barriers to Help-Seeking Among Men Convicted of Sexual Crimes.

The prevalence and impact of sexual abuse is of global concern, and the alarming rates of victimization have inspired a focus on its prevention. Whilst research has begun to explore the experiences of non-offending individuals to inform prevention initiatives, there is limited exploration of those who have struggled with their sexual interests and go on to commit sexual crime. Arguably these individuals hold key information about gaps in service provision, which may inform approaches to crime prevention. This study aimed to provide a phenomenological exploration of the pre-offense experiences of convicted individuals' beliefs about help-seeking, their desires for support, and any barriers that might have prevented them from coming forward for help. Semi-structured interviews were conducted with 14 individuals convicted of sexual offenses (n = 13 against children; n = 1 sexually motivated violence), and interpretative phenomenological analysis elicited three superordinate themes: Desperation, Barriers to Help-seeking and A Way Forward. The findings shed light on the distressing experience of living with sexual interests that are so openly rejected by society and the many ways participants attempted to cope with this, including multiple failed attempts to seek help. Implications and limitations are discussed.

Spatial capital, cultural consumption and expatriate neighbourhoods in Hanoi, Vietnam

Cities of the Global South constitute a wide band in terms of their integration into the global economy. For cities like Hanoi, the sustained influx of foreign direct investments has propelled them into playing increasingly important roles as manufacturing centres. Along with this new role is the influx of expatriate managers who watch overseas manufacturing subsidiaries. Our paper focuses on Korean expatriate neighbourhoods and their impacts on Hanoi. More specifically, we show how the presence of such communities has resulted in important changes in the host city, firstly in housing typology (such as the introduction of high‐rise mixed‐use complexes), and secondly, in cultural consumption. We argue that Korean privilege, cultural consumption practices, and the desire for support and solidarity within the Korean social network in Hanoi work to create new forms of city‐building knowledge, one that originates from the neighbourhoods of these new and rich settlers in the city. Such forms of knowledge subsequently go on to reshape the economic, cultural and social spaces in the globalising city.

INNV-10. OVERCOMING CHALLENGES AND OPTIMIZING PATIENT OUTCOMES WITH TUMOR TREATING FIELDS (TTFIELDS) THERAPY

Abstract BACKGROUND Tumor Treating Fields therapy (TTFields; 200 kHz) is a noninvasive, locoregional, antimitotic treatment approved for newly diagnosed glioblastoma (ndGBM), recurrent GBM, and malignant pleural mesothelioma, and is being investigated in a range of solid tumors. METHODS Healthcare professionals (HCPs) specializing in radiation oncology, neuro-oncology, and medical oncology as well as patients with GBM and caregivers were asked to complete online surveys between October–December 2021 (HCPs) and July–September 2021 (patients/caregivers). RESULTS Overall, n=130 HCPs and n=50 patients/caregivers responded to the surveys. The majority (68%) of HCPs considered TTFields therapy + temozolomide a standard of care for ndGBM, yet only 35% of HCPs report strongly recommending it as a treatment option. Barriers to recommendation of TTFields therapy included the need for additional patient services and practice support with training, prescription process etc., and guidance on insurance coverage (31% for each), the need to increase patient awareness (20%), and lack of patient testimonials (20%). HCP perceptions of patient barriers were often higher than reported by patients themselves; time wearing device (46% vs 35%); treatment visibility (37% vs 24%), concerns with shaving head (37% vs 18%), and concerns with carrying device (34% vs 18%). Awareness of resources provided by the device manufacturer was relatively low (HCP: peer-peer knowledge exchange program [25%], TTFields therapy product brochures [16%–30%]; patient: webcasts [15%], patient website [23%], educational videos [25%–26%], educational brochures [26%–27%], buddy program [29%], and dedicated support service information [32%]), despite the desire for support. CONCLUSION Increasing awareness of existing HCP and patient support programs and resources continues to be critical in overcoming barriers to TTFields therapy initiation to optimize patient outcomes.

Understanding the symptom experience and self-management strategies of adult hematopoietic stem cell transplantation patients during hospitalization: findings from a qualitative longitudinal study.

The aim of this study was to explore the symptom experience and self-management strategies of adult hematopoietic stem cell transplantation patients during hospitalization. This was a qualitative descriptive study. A heterogeneous sample of 19 patients who underwent hematopoietic stem cell transplantation from May to October 2021 were enrolled in the study. Semi-structured interviews were conducted at four time points during hospitalization, providing a total of 64 interview datasets. Four themes and 11 subthemes reflecting the symptom experience and self-management strategies of adult hematopoietic stem cell transplantation patients during hospitalization were observed. The four themes were (1) unexpected symptom burden: dynamic, disturbing, co-occurring, and correlative; (2) emotional complexity at different periods; (3) internal predicament: ineffectiveness of symptom management; and (4) external strength: desire for support from multiple sources. Hematopoietic stem cell transplantation patients experienced a complex and dynamic array of symptoms from admission to discharge, and they experienced the dual forces of internal predicament and external strength in symptom self-management during hospitalization. The findings of this study emphasize the need for a deeper understanding and precise management of the symptom experience of adult hematopoietic stem cell transplantation patients during hospitalization. Hematopoietic stem cell transplantation nurses need to assess symptoms on an ongoing basis; educate patients on ways to perceive, express, and self-manage multiple symptoms; and develop patients' self-symptom management skills to enhance their symptom relief and quality of life.

The burden of COVID-19 infection on medical doctors in the first year of the pandemic in Ghana.

To quantify and describe the burden of COVID-19 infection amongst doctors in Ghana. A quantitative and qualitative analysis of cross-sectional data was performed. All 16 regions in Ghana. Participants were medical doctors diagnosed with COVID-19 between March 2020 and March 2021. Data sources were Ghana Medical Association and Ministry of Health records. Demographics and workplace data included age, gender, the rank of the doctor, and location and type of current facility. Characteristics of the COVID-19 infection included the likely source, clinical and recovery status, and place of management. Doctors reported their desire for a general checkup and psychological support and described the challenges encountered. The prevalence of COVID-19 infection was 88.9 cases per 1000 doctor-population. Of 544 infected doctors, 59.2% were stable but symptomatic, and 1.7% were in critical condition, with a case fatality rate of 1.7%. Overall, 31.6% had recovered from their COVID-19 infection, and the majority (82.4%) were managed at home in self-isolation. Compared to medical officers, house officers (OR 1.36, p=0.03), senior house officers (OR 7.60, p<0.001), and consultants (OR 2.94, p=0.001) were more likely to have a COVID-19 infection. Desire for support was varied, with 13.0% desiring someone to check on them and 9.7% desiring psychological support. The majority (75.3%) reported facing a challenge, including difficulty obtaining needed vitamins and medications, and accessing daily necessities like groceries. In Ghana, COVID-19 infections greatly burden medical doctors. None declared.

Supporting the Installation of Comprehensive, Integrated, Three-Tiered Models of Prevention: Educator Perspectives

We provide results from a district-wide survey of 253 certified educators to determine (a) the degree to which they reported implementing components of their school’s comprehensive, integrated, three-tiered (Ci3T) model of prevention in the current year and (b) the areas in which educators might benefit from continued professional learning. The purpose of this study was to develop a data informed professional learning plan to continue to support implementation at the conclusion of an Institute for Education Sciences (IES) -funded practitioner-researcher partnership grant. At least half of educators reported a high level of implementation for all Tier 1 features. Tier 2 and Tier 3 behavioral and social supports for students were reported as less fully implemented than academic interventions, yet still well-above the scale midpoint. For every component, elementary educators indicated statistically significantly higher levels of implementation relative to secondary educators. Over half of respondents indicated a high level of implementation of eight of 20 research-based practices and supports examined, with a statistically significant relation between ratings of currently implemented practices and the desire for support in four practices: small-group self-determination instruction, peer-mediated support strategies, check-in/check-out, and strategies for internalizing behaviors. In terms of preferred professional development avenues, educators rated in-district during-school workshops, courses for college credit (on-line), and brief “good practice” guides most favorably. We close with a discussion of implications, limitations, and future directions.

Validation of the psychometric properties of a "Modified Version of the Hornheider Screening Instrument" (HSI-MV) using a sample of outpatient and inpatient skin tumor patients.

The basis for adequate psycho-oncological care is the identification of patients with psychosocial support needs. The German Working Group for Psychooncology also recommends the Hornheider Screening Instrument (HSI) for this purpose. The question, "Is anyone in your family particularly burdened by the hospital stay?" is intended to capture disease-related family stress. But is this item equally suitable for outpatients and inpatients? The study objective was to examine how replacing the original item affects the test performance of this modified version of the HSI and the frequency of psychosocial stress. 92 outpatients and 98 inpatients with skin tumors assessed their psychosocial situation using different questionnaires. Compared to inpatients, less than half as many outpatients answered the item in the affirmative. If the question was replaced by: "Is someone in your family particularly burdened by your disease or the course of the disease?" this setting-related difference did not arise. The "Alternative item" and the "Modified version of the HIS" (HSI-MV) proved to be superior to the original item and the original HSI with regard to all examined criteria. The HSI-MV can be used as a reliable and valid instrument for the systematic assessment of psychosocial care needs in outpatient and inpatient settings. Depending on care capacity, a threshold of ≥5 or ≥4 is appropriate. In addition to screening, the desire for support should be enquired.

Second victim experience and support desire among nurses working at regional levels in China.

The aim of this study was to describe and analyse the degree of second victim syndrome and the desire for supports among nurses working in regional hospitals in China. The evidence on the prevalence of second victim among health care workers remains inconsistent and has rarely focused on the regional level. A quantitative, descriptive, survey-based, online, cross-sectional study was conducted among 1,194 nurses in three regional hospitals. A total of 918 (76.88%) nurses, who reported have had experienced patient safety incidents, were selected for the final analysis. The mean score for the Chinese version of the Second Victim Experience and Support Tool (C-SVEST) was (65.58 ± 10.05). Psychological distress (15.91 ± 2.99) and practice distress (15.26 ± 4.32) had the highest score. The mean score for the desired form of support was (4.29 ± 0.614). The option 'the opportunity to get guidance and suggestions for future work' was rated the most desired. Nurses working at the regional level reported a similar degree of second victim experience and support desire, while the prevalence was much higher. The second victim phenomenon has become increasingly complex and challenging and deserves more attention. Not only Safety-I but also Safety-II approaches are suggested to integrated to patient safety.

Facilitating engagement and belonging for students with disabilities: Using expressive arts

Four volunteer participants who used the services of the Office of Accessibility Services (OAS) on our campus attended three sessions where they were interviewed about inclusivity and (a) taught an art technique; (b) taught to do the technique with a partner; and (c) used the technique with a guest whom they identified as having impacted their inclusivity on campus. The qualitative method of phenomenology was used to analyze transcripts from the interviews and the art sessions. The information the participants provided revealed the essential themes of (a) The desire for support beyond academic accommodations; (b) The benefits of an expressive arts program; and (c) The meaning of inclusivity and the desire for engagement and belonging. We detail the thematic findings of the study and make recommendations for how OASs can expand the services they provide. We advocate for creating expressive arts programing to facilitate engagement and belonging for students with disabilities.

P12.06 Unmet needs and wish for support of informal caregivers of primary brain tumour patients

Abstract BACKGROUND Most primary brain tumour patients rely on informal caregivers (i.e. family members or friends) for practical and emotional support. While caregiving can be rewarding, it also commonly leads to significant burden. In developing support for caregivers, it is vital to distinguish between caregivers’ unmet needs, and their actual wish for support to resolve unmet needs. We aimed to 1) identify the presence and magnitude of unmet needs; 2) examine associations between unmet needs and desire for support; 3) evaluate perceived usefulness of caregiver needs screening in clinical practice. MATERIAL AND METHODS Family caregivers of patients with primary brain tumours were recruited and asked to complete an adapted version of the Caregiver Needs Screen (CNS). This covered the level of distress resulting from 33 common issues in neuro-oncology caregiving (scale 0–10), and wish for information or support for any issue (yes/no). In addition, participants were asked to rank (0–7) their experience of using the CNS based on items covering ‘ease of us’, ‘usefulness’ and ‘satisfaction’. Descriptive and correlational analyses were applied. RESULTS Caregivers (N=79) reported between 1–33 unmet needs (M=17.20, sd=7.98) but did not always wish for support for each need (range 0–28, M=4.71, sd=6.63). Most distressing items were patient’s fatigue (M=5.58), recognising signs of disease progression (M=5.23), changes in patients’ thinking or behaviour (M=5.04), patient distress or sadness (M=4.68), and changes in caregivers’ own emotional health (M=4.44). A weak correlation was found between the total number of unmet needs and the desire for support (r=0.296, p=0.014). Caregivers most often desired support with recognising disease progression (N=24), managing medications and side-effects (N=18), and least often with managing spiritual issues (N=0), communication with (grand)children (N=2) and communication with family members and friends (N=3). Caregivers evaluated the CNS tool positively (mean item scores ranging 4.19–6.21 out of 7). CONCLUSION Family caregivers of brain tumour patients experience distress resulting from many neuro-oncology specific needs, but this is not directly related to a wish for support or information. Caregiver needs screening could be useful to tailor support or information to suit caregivers’ preferences in clinical practice.

Project ENHANCE: Assessing Professional Learning Needs for Implementing Comprehensive, Integrated, Three-Tiered (Ci3T) Models of Prevention.

We report findings from a multistate survey of 720 faculty and staff from 25 elementary schools in five districts across three states and geographic regions participating in an IES Network grant examining integrated tiered systems. In this preregistered study, we replicated and extended previous inquiry examining educators’ views of (1) implementation of core components of their school’s Comprehensive, Integrated, Three-Tiered (Ci3T) model of prevention; and (2) preference for professional learning (content and avenue). Results indicated more than half of respondents indicated high levels of implementation of core features of Ci3T across Tiers 1, 2, and 3. Educators reported high levels of implementation for 10 out of 19 research-based educational practices used within tiered systems with a statistically significant relation between ratings of implemented practices and the desire for support with most practices. Respondents identified their top three areas for professional development needed in the coming year as behavior deescalation techniques, small-group social skills instruction, and strategies for supporting students with internalizing behavior patterns. For potential professional learning avenues, respondents’ top ratings were in-district, during-school workshops, course for college credit on-line, teacher collaboratives/networks, and one-to-one coaching or mentoring. There were many similarities among educators’ ratings across implementation year and state. Low levels of implementation across many core Ci3T and common educational practices were reported by educators working within the most experienced schools. We conclude with a discussion of implications, limitations, and future directions.Supplementary InformationThe online version contains supplementary material available at 10.1007/s43494-021-00049-z.

Does therapy always need touch? A cross-sectional study among Switzerland-based occupational therapists and midwives regarding their experience with health care at a distance during the COVID-19 pandemic in spring 2020

BackgroundThe COVID-19 pandemic impedes therapy and care activities. Tele-health, i.e., the provision of health care at a distance (HCD), is a promising way to fill the supply gap. However, facilitators and barriers influence the use and experience of HCD for occupational therapists (OTs) and midwives.We identified use of services and appraisal of experiences of Switzerland-based OTs and midwives regarding the provision of HCD during the lockdown as it pertains to the COVID-19 pandemic in spring 2020. 1. Hypothesis: Profession, age in years, and area of work have a significant and meaningful influence over whether HCD is provided. 2. Hypothesis: Profession, age in years, area of work, possibility of reimbursement by health insurance, and application used have a significant and meaningful influence on the experience of HCD.MethodsIn a cross-sectional survey, 5755 OTs and midwives were contacted to fill out an online questionnaire with 13 questions regarding demographic information, use of HCD, and experiences while providing the service. Eleven potential facilitators and barriers and areas where there was desire for support were identified.ResultsThe questionnaire was completed by 1269 health professionals (response rate 22.5%). 73.4% of responding OTs (n = 431) and midwives (n = 501) provided HCD during the COVID-19 pandemic lockdown. Profession and area of work had a significant influence on whether HCD was provided. Age only had a significant influence on the use of videotelephony, SMS, and chat services.OTs experienced HCD significantly more positively than midwives (log odds = 1.3; p ≤ .01). Video-telephony (log odds = 1.1; p ≤ .01) and use of phone (log odds = 0.8; p = .01) were positive predictors for positive experience, while use of SMS (log odds = − 0.33; p = .02) was a negative predictor.Among OTs, 67.5% experienced HCD as positive or mostly positive, while 27.0% experienced it as negative or mostly negative. Among midwives, 39.5% experienced it as positive or mostly positive, while 57.5% experienced it as negative or mostly negative. Most respondents desired support concerning reimbursement by health insurance (70.8%), followed by law and data protection (60.4%).ConclusionsHCD during the early COVID-19 pandemic was generally perceived as positive by OTs and midwives. There is need for training opportunities in connection with HCD during the COVID-19 pandemic.

Attitudes and practices about fertility preservation discussions among young adults with cancer treated at a comprehensive cancer center: patient and oncologist perspectives.

Young adults (YAs, ages 18-39) diagnosed with cancer face multiple challenges that affect their health-related quality of life, including the potential for cancer-related infertility. Providing information about the risk of infertility and options to maintain fertility is critical for YAs who are newly diagnosed. However, barriers to effective communication exist for oncologists and their patients. The purpose of this study was to interview medical oncologists and YAs from the same cancer center to examine attitudes and practices about fertility preservation. Semi-structured interviews were conducted with medical oncologists (N=12) and YAs within 2 years post-treatment (N=24), representing the most common cancers affecting YAs. Interviews were audio-recorded, transcribed, and coded using qualitative methodologies with the analysis software NVivo 10. Twelve oncologists (50% female, 67% <50 years) and 24 YAs (67% female, M=29 years) completed interviews. Common themes across oncologist and YA interviews were the roles of cancer type or stage and patient interest or parity in influencing the decision. The most important factor for YAs was to receive accurate, in-depth information. Unique themes for oncologists focused on clinical aspects of their patient's disease. For YAs, they shared about the emotional impact of cancer-related infertility and desire for support from trusted others. Results provide a better understanding of the attitudes and practices about fertility preservation discussions among YAs. Given the common factors affecting fertility preservation decisions, models of shared decision-making may be ideal for YAs and oncologists. Future interventions should explore tailored applications of this approach for YAs newly diagnosed with cancer.

Where the System Failed: The COVID-19 Pandemic’s Impact on Pregnancy and Birth Care

The COVID-19 pandemic created a massive shift in health care systems, including within pregnancy and birth care. To explore how experiences of pregnancy and birth were impacted, 15 patient participants and 14 nurse participants were interviewed and transcripts analyzed using critical thematic analysis. Patients highlighted how adaptations to care were inadequate to meet their needs, a desire for support in response to stress, and the impact of COVID on patients’ experiences. Nurses identified how inconsistencies in policies impacted nurses’ ability to care for patients, the impact on nurses from hospital actions, and the impact on patients from hospital actions. Both groups discussed how system changes had disparate impacts on marginalized communities, leading to racially-biased care. This pandemic will continue to have lasting impact on pregnant and birthing families, and the nurses who care for them, and it is imperative that hospitals examine their role and any potential impacts.