Data Management Software Research Articles

Shivering Hopes: A Qualitative Inquiry into the Experiences of Family Caregivers of Critically Ill Patients Reliant on Health Care Technology.

The aim of the study was to assess the lived experience of family caregivers of critically ill patients sustained by healthcare technologies in Benin-City, Nigeria. This study employed a hermeneutic phenomenological design. Data were collected through in-depth individual interviews with ten participants, observations, and field notes. The analysis was conducted using Paul Ricoeur's Theory of Interpretation and managed with Nvivo data management software. The study was conducted at the University of Benin Teaching Hospital (UBTH) from August 2022 to December 2023, with a sample size of 10 participants. The study's findings revealed that the majority (70%) of family caregivers were at least 30 years old, Christian, and had spent a minimum of two weeks in the intensive care unit (ICU). Ninety percent had received post-secondary education. Three themes emerged from their experiences: "Journeying into the unknown," "Technological care is an ecosystem," and "Exhibiting emotional intelligence." In addition to that, the findings also showed that upon learning of their loved one's''' transfer to the ICU, caregivers experienced mixed emotions, including palpable fear of death. This fear was linked to the high costs of management, a tense hospital environment, lack of involvement in care, institutional shortcomings, and diminished motivation due to frequent deaths in the ICU. Family caregivers must be engaged in formulating and implementing care plans to provide holistic care that meets the needs of both patients and their caregivers. Hospital administrators should take proactive steps to reduce treatment costs, making care more affordable for families. Furthermore, comprehensive programs aimed at addressing the institutional flaws identified in this study must be implemented urgently.

Exploring willingness to use adverse drug reaction reporting systems: a multicentre qualitative study in China based on the technology acceptance model and task-technology fit integration approach

BackgroundAdverse drug reaction (ADR) reporting systems are critical for monitoring and managing drug safety. However, various factors influence the willingness to use these systems. This study aimed to investigate the...

Data Management System and Software for Comprehensive Assessment of the State of the Biosphere

Data Management System and Software for Comprehensive Assessment of the State of the Biosphere

Exploring User Experiences with a Persuasive mHealth App for Breastfeeding: An Empirical Investigation

Women are increasingly turning to mHealth apps as primary sources for breastfeeding education and support. The rising prevalence of mHealth apps presents a unique opportunity to explore their impact on women’s breastfeeding experiences. Understanding user perspectives of these apps, especially focusing on their persuasive design aspects, can offer valuable insights for enhancing maternal and child health outcomes. These insights can optimize these technologies to align with user values and promote sustained healthy behaviors. This study aimed to undertake an empirical exploration of users’ experiences with the persuasive design features employed in the Milky Way mHealth app and align the findings with human values within the value-sensitive design (VSD) framework. Semi-structured interviews were conducted with a group of women who had used the Milky Way app. Interview data were analyzed using an inductive thematic approach. To provide insight into users’ values mediated by the app, a deductive analysis complemented by a data-driven inductive approach was performed. Data analysis was supported by NVivo data-management software. Findings from the study demonstrate that the persuasive design elements in the Milky Way app significantly influence users’ experiences. The analysis provided four primary themes: Informative, Easy to use, Credible, and Social connection. Overall, participants praised the app’s trustworthy educational content and support features as valuable resources for addressing breastfeeding challenges and obtaining reliable support. Participants expressed concerns about information overload and emphasized the importance of personalized support and evidence-based tailored recommendations. The results demonstrated that users’ values were expressed and embedded within the app. The analysis indicated an alignment between the app design features and the values and opinions of the users within the VSD framework. This study interprets women’s perspectives utilizing the Milky Way app and highlights the significance of its evidenced-based educational and support features. Further investigation into potential user values like privacy, remains crucial for a comprehensive user-centered app design. The empirical insights gained from this study contribute to future research, informing the development and design of ethically considerate persuasive mHealth apps to maintain their relevance in promoting positive user experiences and facilitating meaningful behavior change.

Coping mechanisms and strategies adopted to improve the quality and timeliness of immunization data among lower-level private-for-profit service providers in Kampala Capital City, Uganda.

Lower-level urban private-for-profit health service providers are actively engaged in the delivery of immunization services. However, not much is known about their everyday endeavours to improve data quality and ensure the submitted data meets the quality and timeliness requirements as per established guidelines. The objective of this paper was to examine the coping mechanisms and strategies adopted to improve the quality and timeliness of immunization data among lower-level private-for-profit service providers in Kampala Capital City, Uganda. A qualitative study design was adopted with in-depth interviews (n = 17) and key informant interviews (n = 8) completed among frontline health workers, district health managers and immunization implementing partners. Analysis followed a thematic approach with coding conducted using Atlas. ti, a qualitative data management software. Overall, coping mechanisms and strategies adopted to improve the data quality among lower-level urban private-for-profit immunization service providers included; Experiential attachment for practical skills acquisition in data management, data quality peer-to-peer learning among private-for-profit immunization service providers, registration using cohort system for easy tracking of records during subsequent visits, separation of visiting service user records from regular attendants, service delivery modifications such as reward for better performance, engagement of Village Health Teams (VHTs) in outreaches and data completion, and data quality checks through review of monitoring charts to identify gaps in data quality. Within the urban context, the delivery of immunization services by lower-level private-for-profit services faces data quality challenges some of which stem from the implementation context. Different coping strategies focusing on frontline health worker skills, enhanced experience sharing through peer-to-peer learning, modifications to registration and routine review of monitoring charts. However, these efforts were often faced with chronic barriers such as the high staff turnover calling for dedicated efforts to optimize the available implementation opportunities like guidelines mandating the public health facilities to supervise the lower-level private immunization service providers within their catchment areas to respond to the identified gaps.

Changes in the Johne’s disease situation in GB dairy herds over 10 years, as revealed by regular milk ELISA data

Effective management of cattle infected with Johne’s Disease (JD) is crucial to minimizing transmission and within-herd prevalence. Within Great Britain (GB), the voluntary National Johne’s Management Plan (NJMP) requires farmers and a certified vet to conduct a risk assessment to determine the herd risk, examine the herd JD status and formulate a management plan. Individual milk ELISA tests for JD antibodies are widely used to monitor infection. The JD Tracker application, available within the dairy data management software InterHerd+ and other web-based environments, is being used by farmers and veterinarians to facilitate the practical use of milk ELISA data to aid JD-related management decisions. The JD Tracker application uses a herd’s milk ELISA data to calculate a collection of ‘JD parameters’ that are indicative of the current JD status of the herd alongside contemporary and retrospective drivers linked to transmission and maintenance of infection. Herein, we use milk ELISA data from 154 regularly testing herds to review the temporal trends in JD parameters from 2013 to 2022. Since 2015, JD Tracker parameters have improved in these herds, most notably average test value (ATV) and within-herd prevalence (%Pos30). Trends in driver parameters suggest that farmers are progressively less likely to serve repeat test-positive (J5) cows and are more readily removing them. The data also reveal that the burden of JD is disproportionately greater in herds with higher ATV. In 2022, the 25 % of herds with the highest ATVs accounted for 42 % of positive tests and 42 % of repeat ELISA positive (J5) cows. Retrospectively, it is not possible to identify with certainty factors that directly contributed to the trends in JD parameters, but it is notable that the introduction of the NJMP was coincided with the improving JD situation. In 2019, participation in the NJMP or an equivalent scheme became mandatory for dairy farms to be compliant with the food and farms standards assurance scheme Red Tractor, with the result that JD management plans are now completed by 95 % of UK dairy farms. As far as we know, the UK is unique in its development of a tool (the JD Tracker) which adds utility to milk ELISA data using specifically designed JD parameters. Anticipated further work includes the development of a national database of JD testing herds and application of the JD Tracker at national scale to enable more comprehensive industry-level monitoring of JD within GB dairy farms.

Do school Water, Sanitation, and Hygiene facilities affect students' health status, attendance, and educational achievements? A qualitative study in Nepal.

Access to safe and sufficient drinking Water, Sanitation, and good Hygiene (WASH) facilities in schools play a crucial role in preventing students from numerous Neglected Tropical Diseases, improving the learning environment in schools, and creating resilient communities living in a healthy environment. This study aims to explore the impact of combining WASH facilities on students' health status, school attendance, and educational achievements. Four schools, two with improved and two without improved WASH facilities, were selected purposively from Dhanusha and Chitwan districts of Nepal. A total of 24 participants, 16 students, and eight teachers were also purposively selected based on the Theory of Data Saturation. The participants were interviewed face-to-face using study guidelines; Key Informants Interview for teachers and In-depth Interview for students. The data were audio recorded and analyzed thematically using Dedoose 9.0.17 qualitative data management and analysis software. School WASH facilities have a significant impact on students' health and well-being. Poor school-WASH facilities hindered students' school attendance, particularly for menstruating girls. School without separate toilets for girls, including menstruation hygiene facilities, lack of water and soap, sanitary pad, and secure toilet's door often have higher rates of absenteeism among girls. Poor teacher and students' relationships, students' low interest in education, household chores, and participation in social customs also contribute to students' absence from school and low educational performance. It is important to note that inadequate WASH facilities affect not only students, but also teachers in the same school. The lack of safe and sufficient drinking water, unimproved sanitation, and poor hygiene facilities were seen by students and teachers as reducing their health and well-being, school attendance, and academic performance. Thus, schools need prioritize and promote the provision of improved WASH facilities for the betterment of students' health, attendance, and educational proficiency.

Level of option B plus drug adherence for preventing mother-to-child transmission of HIV and associated factors among HIV-positive women in the awi zone, amhara region, northwest Ethiopia,2020

IntroductionAdherence to Option B+ antiretroviral medication (ART) is essential for the successful implementation of the Prevention of Mother-to-Child Transmission (PMTCT) program. However, poor adherence to Option B + PMTCT drugs among women results in increased viral load and mother-to-child transmission and reduces immunological and clinical outcomes. ObjectiveThe objective of the study was to assess the level of Option B plus drug adherence for preventing mother-to-child transmission of HIV and associated factors among HIV positive women in selected government health facilities of Awi zone, Amhara region, Northwest Ethiopia,2020. MethodsThis institutional-based cross-sectional study was conducted from March 1 to April 30 among 358 HIV-positive women (pregnant and lactating mothers). A multistage sampling procedure was used to select the study participants. Data were collected using a structured questionnaire through interviews. The collected data were entered into EPI Data 3.1 statistical software for data management and analyzed using SPSS version 25 statistical package. The associations between variables were analyzed using bivariate and multivariable logistic regression models. A p-value ≤0.05 at the 95 % confidence interval was considered statistically significant. ResultsOut of the 358 participants, adherence to Option B + PMTCT was 83.24 %. The study revealed that counselling [AOR = 4.4, 95 % CI: 1.60–12.29], partner support involvement [AOR = 3.0, 95 % CI: 1.17–7.92], and time taken to reach from home to the facility [AOR = 3.1, 95 % CI: 1.51–6.52] were significantly associated with the level of adherence to Option B + PMTCT. ConclusionThis study showed that the level of Option B + PMTCT drug adherence was lower than the nationally recommended adherence level. Good counselling, partner support, and reduced travel time from home to the facility were associated with adherence to Option B + PMTCT drugs. Therefore, counselling is crucial for increasing adherence to Option B + PMTCT drugs. Accessible health facilities reduce travel burdens, encourage regular clinic visits, and enhance adherence to PMTCT drugs. Partners can provide reminders, attend appointments, offer emotional support, and explore alternatives such as mobile clinics or medication delivery services.

La felicidad social como fundamento en el diseño de políticas públicas :Una revisión sistemática

This paper examines the literature on social happiness as a basis for designing public policies. The systematic review initiated with a Scopus search using Boolean criteria, covering the period from 2013 to 2023. 49 out of 943 articles were selected through inclusion and exclusion criteria using RAYYAN software for data management and extraction, and the PRISMA model as a guide to ensure the replicability of the research. The descriptive findings reveal that most publications are from Latin America, showing a consistent increase in scientific output over the years, with 2021 being the peak year for related publications. This paper identifies debates on the viability of using happiness as a foundation in public policy design, importance of impact evaluation, and experimental methods. The document categorizes the macroeconomic, institutional and governmental, sociodemographic, psychological, and environmental and sustainability variables that interrelate with happiness, including factors such as income, economic stability, wealth distribution, state intervention, among other relevant factors. The literature reveals gaps, such as the lack of a universally accepted definition of social happiness and a shortage of longitudinal and experimental studies. Recommendations include a multidimensional approach, consideration of cultural and socioeconomic context, use of experimental methodologies, citizen participation, and incorporating happiness into the political agenda. Final reflections underscore transformative potential of integrating subjective well-being into the government agenda and the associated challenges, such as resistance to change and the lack of consensus on how to define and measure social happiness.

Healthcare Personnel Interactions with Floors and Pathogen Transmission in Long-Term Care: A Qualitative Exploration

Background: We know relatively little about how healthcare personnel (HCP) in long-term care facilities (LTCFs) integrate hand hygiene (HH) and personal protective equipment (PPE; e.g., gloves) use into their care processes. To address this gap, we are examining HH and PPE adherence at critical and contaminating moments in LTCFs. Methods: We conducted ethnographic observations of HCP’s processes of care in 2 LTCFs in Iowa to examine HH and PPE adherence during contaminating tasks in resident care sequences. We captured care observations and additional data on topics related to our study focus (e.g., unit/room layouts, PPE storage, facility policies/procedures) in field notes. We transcribed and imported fieldnotes into MAXQDA qualitative data management software and analyzed the data using a combined deductive-inductive coding approach. Results: Between 1/2023-7/2023, we observed 60 (30 per facility) care episodes. Most observations included toileting activities and perineal care during which HCP would be expected to use gloves and/or do HH. Most HCP appropriately donned/doffed gloves and practiced HH at key moments (e.g., before clean/aseptic procedures, after perineal care), but were less compliant before/after touching residents’ clothing or bare skin during these activities. In addition, some held soiled items next to their scrubs between tasks, which could contaminate their clothing and arms and could facilitate transmission of pathogens to other residents. Moreover, HCP’s interactions with floors emerged inductively as a topic of interest during our observations and preliminary analyses. We observed HCP interact with the floor during these activities in ways that could increase risk of pathogen transmission. HCP frequently dropped soiled towels or wipes used in perineal care onto the floor during tasks for later pick up. HCP also moved or placed trash bags containing soiled or contaminated items on the floor. HCP routinely knelt on, sat on, or touched their hands on the same floor when talking with residents, helping residents change clothes or diapers, changing bedding, or adjusting wheelchair footpads. In one case, the HCP picked up clean towels that fell to the floor near soiled towels and then used the “clean towels” in resident perineal care. Conclusion: Despite practicing HH and appropriate PPE use, HCP in LTCFs may increase the risk of pathogen transmission unintentionally through their interactions with soiled items and the environment, including floors. Given the nature of resident care in LTCFs, HCP in LTCF may be more likely than HCP in acute care settings to interact with contaminated floors.

Research Data Management in Simulation Science: Infrastructure, Tools, and Applications

Research Data Management (RDM) has gained significant traction in recent years, being essential to allowing research data to be, e.g., findable, accessible, interoperable, and reproducible (FAIR), thereby fostering collaboration or accelerating scientific findings. We present solutions for RDM developed within the DFG-Funded Cluster of Excellence EXC2075 Data-Integrated Simulation Science (SimTech). After an introduction to the scientific context and challenges faced by simulation scientists, we outline the general data management infrastructure and present tools that address these challenges. Exemplary domain applications demonstrate the use and benefits of the proposed data management software solutions. These are complemented by additional measures for enablement and dissemination to foster the adoption of these techniques.

Decreased patient discharges on weekends: part 2-what do the ward nurses tell us?

Hospital and emergency department (ED) crowding is exacerbated on Mondays because fewer in-patients are discharged during the weekend. We evaluated the experiences and attitudes of in-patient ward nurses to better understand the challenges they face when considering the weekend discharge of their patients. We conducted a qualitative study of in-patient ward nurses, using the theoretical domains framework (TDF), at two campuses of a major academic health sciences centre. The interview guides consisted of, first, a series of questions to explore the typical processes involved for safe patient discharges and, second, exploration of the influence of the 14 TDF domains. All interviews were audio-recorded, transcribed verbatim, and anonymized and then imported into NVivo qualitative software for data management and analysis. Analysis was conducted in three stages (coding, generation of specific beliefs, identification of relevant and nonrelevant domains). The 28 interviewed nurses represented a variety of medical, surgical and other wards, and reported being acutely aware of the pressures to discharge patients on weekends (knowledge). They believed that increasing weekend discharges would improve hospital flow and aid in decanting the ED (beliefs about consequences). However, they also acknowledged that the weekend discharge pressures might result in patients being discharged prematurely and bouncing back to the hospital (beliefs about consequences). Overall, the nurses reported that as a hospital culture, discharging patients was not much of a priority (goals; environmental context and resources). We know there are much fewer discharges on weekends, and this is associated with significant hospital and ED crowding on Mondays. This study has illuminated the many challenges faced by in-patient ward nurses when considering the discharge of admitted patients on weekends. In order to decrease ED and hospital crowding related to decreased weekend discharges, hospitals will need to effect a culture change amongst all staff.

Cultivating Comfort: Examining Participant Satisfaction with Hypnotic Communication Training in Pain Management.

One in four Canadians experiences chronic pain, yet insufficient services and restrictions surrounding prevailing treatments result in inadequate management and significant negative consequences for these individuals. Previous work indicates that hypnotic communication represents a promising complementary treatment; however, training protocols for healthcare professionals are underdeveloped and understudied. To evaluate the level of satisfaction for a training program on hypnotic communication in pain management clinics. Qualitative study. Six health professionals who first completed the hypnotic communication training participated in 30 minutes virtual semi-structured interviews. These testimonials allowed them to elaborate on their user experience and potential areas for improvement. Thematic analysis using qualitative data management software NVIVO was conducted on the interview data. Two themes emerged from the interviews. 1) Satisfaction: Participants expressed satisfaction on various structural aspects of the training, including the provided materials, atmosphere, training structure, presentation modalities, practical workshops, acquired knowledge, trainer quality, and training duration. 2) Areas for Improvement: Five main improvement suggestions were identified (providing more material; more practical workshops, more concrete and adapted; testimonials from former patients; follow-up training meeting; and continuing education). The results improved the training program to help minimized inherent biases related to this technique, cut associated costs, and identify reasons that would explain its underutilization among medical professionals in Quebec. Our work highlights that healthcare professionals in chronic pain management clinics (eg, respiratory therapists, nurses) can incorporate this simple hypnotic communication technique into their usual care and contribute to the well-being of patients. This study aimed to address the lack of training protocols for healthcare professionals, that are underdeveloped and understudied. The main findings on participant' satisfaction and the areas of improvement for the training will help the refinement of the training to better suit healthcare professional's needs in hospitals and chronic pain facilities.

Factors influencing referral to maternity models of care in Australian general practice.

In the Australian maternity system, general practitioners play a vital role in advising and directing prospective parents to maternity models of care. Optimising model of care discussions and the decision-making process avoids misaligning women with over or under specialised care, reduces the potential for disruptive care transitions and unnecessary healthcare costs, and is critical in ensuring consumer satisfaction. Current literature overwhelmingly focusses on women's decision-making around model of care discussions and neglects the gatekeeping role of the General Practitioner (GP). This study aimed to explore and describe the factors influencing Australian GPs decision-making when referring pregnant women to maternity models of care. This study used a qualitative descriptive approach. General practitioners (N = 12) with experience referring women to maternity models of care in Australia participated in a semi-structured interview. Interviews occurred between October and November 2021 by telephone or videoconference. Reflexive thematic analysis was facilitated by NVivo-12 data management software to codify and interpret themes from the data. Two broad themes were interpreted from the data. The first theme entitled 'GP Factors', incorporated three associated sub-themes including '1) GPs Previous Model of Care Experience', '2) Gaps in GP Knowledge' and '3) GP Perception of Models of Care'. The second theme, entitled 'Woman's Factors', encapsulated two associated sub-themes including the '4) Woman's Preferences' and '5) Access to Models'. This study provides novel evidence regarding general practitioner perspectives of the factors influencing model of care decision-making and referral. Predominant findings suggest that gaps in GP knowledge regarding the available models of care are present and are largely informed by prior personal and professional experience. Most GPs described referring to models of care they perceive positively and centring their model of care discussions on the woman's preferences and accessibility. The exploration and description of factors influencing model of care decisions provide unique insight into the ways that all stakeholders can experience access to a broader range of models of care including midwifery-led continuity of care models aligned with consumer-demand. In addition, the role of national primary health networks is outlined as a means to achieving this.

Assessment Methodology for Physical Vulnerability of Vernacular Architecture in Areas Affected by Depopulation: The Case of Comunidad Valenciana, Spain

The intensity with which the phenomenon of depopulation has affected rural municipalities in Spain between 1950 and 2022 has led to a loss in the intergenerational transmission of traditional knowledge, values and customs. Sociocultural loss entails associated physical risks: the abandonment, demolition, and loss of vernacular architecture. This research analyzes the evolution of this type of architecture in a period of acute depopulation and its current state of conservation. A total of 180 case studies in the region of Comunidad Valenciana are analyzed through four factors affecting the physical vulnerability of dwellings: year of construction, state of conservation, type of use, and a combination of all three. Data management software is used to combine all the information and produce the results in a tabular and graphical format, while the Geographic Information System is used to draw up risk maps showing the results. These results are then divided into analysis groups created according to the degree of depopulation observed in the years mentioned. This made it possible to identify the relationship between depopulation and the conservation of vernacular architecture, showing the risk level for each case study, and thus creating an analysis methodology applicable in other territories affected by depopulation at a national and international level.

Abstract PO4-10-09: MBC Community Barriers and Patient Navigation Training Needs

Abstract Background Komen’s mission is to save lives by meeting the most critical needs in our communities and investing in breakthrough research to prevent and cure breast cancer. One method to achieve our mission is through patient navigation. Evidence supports the role of patient navigation in improving breast health outcomes. Patient navigators identify and address barriers to equitable cancer care delivery in a fragmented healthcare system and work to ease the burdens that patients diagnosed with breast cancer experience. As a valued member of a patient’s health care team, patient navigators contribute to improving the quality of cancer care and eliminating barriers throughout the continuum of care. However, not all breast cancer patients experience the same barriers. Metastatic breast cancer (MBC) is the most advanced stage of breast cancer, and there is some evidence that suggests those diagnosed with MBC have unique experiences and needs that often determine and/or contribute to their disease trajectory. Despite this, little in-depth systematic work has been done to understand the unique challenges faced by those diagnosed with MBC or to explore strategies to address those challenges, and there have been no known efforts to equip patient navigators to specifically address the unique barriers of those diagnosed with MBC. Methods Susan G. Komen®’s Center for Applied Research (CfAR) designed the MBC Patient Navigation Training research study to improve the health outcomes of those diagnosed with MBC through patient navigation. The study design includes 4 phases of qualitative methodology with MBC and patient navigator communities to accomplish the following objectives: Examine the needs and barriers of MBC patients (Phase 1) Identify what needs and barriers MBC patients face that can be addressed through patient navigation (Phase 2) Assess the gaps in Komen's Patient Navigation Training Programs' ability to prepare navigators across the United States to address the identified needs/barriers of MBC patients (Phase 3) Design a new module to fill the gaps in Komen's Patient Navigation Training Program to support patient navigators serving MBC communities across the U.S. (Phase 4) Participants were recruited through a grassroots approach to community engagement, with members of the study team, Komen staff, and other breast health advocates contacting individuals and organizations across the U.S. Individuals were invited to attend a virtual introductory call to meet study staff and each other before consenting to participate in the virtual focus groups. Results Participants diagnosed with MBC (n=17) attended one of four virtual focus groups held May 2023 to share their lived experiences. The focus groups were recorded, the recordings were transcribed and checked for accuracy, and study staff analyzed data using a constant comparison approach to qualitative data analysis with NVivo data management software. Those diagnosed with MBC identified challenges of their diagnosis, barriers within the healthcare system, financial toxicity, lack of support, and health inequities as factors limiting their access to care. These participants also identified the role patient navigators could serve to help address these challenges. Next Steps In Phase 2, the study team will examine to what extent patient navigators feel prepared to address the barriers of MBC communities. Based on the findings from this study, the team will identify areas where more training is needed (Phase 3) and design a training module for Komen’s Patient Navigation Training Program (Phase 4) to better prepare patient navigators across the U.S. to meet the needs of MBC communities and improve health outcomes and cancer care delivery. Citation Format: Stephanie McCoy, Kyandra Fox, Kasey Volpe, Toni Lee, Janet Okamoto, Julie McMahon, Kari Wojtanik. MBC Community Barriers and Patient Navigation Training Needs [abstract]. In: Proceedings of the 2023 San Antonio Breast Cancer Symposium; 2023 Dec 5-9; San Antonio, TX. Philadelphia (PA): AACR; Cancer Res 2024;84(9 Suppl):Abstract nr PO4-10-09.

ANALISIS PRODUKSI DODOL KENTANG DI KECAMATAN SIULAK KABUPATEN KERINCI

The purpose of this study was to determine and analyze the effect of venture capital, labor and raw materials on the production value of potato dodol in Siulak District, Kerinci Regency.. This study used a population consisting of 62 respondents of potato dodol SMEs business actors. Hypothesis testing was carried out using the F test and t test, with a significant (α) 5%. Data analysis using statistical data management software, namely SPSS 22.00 for windows. Based on the results of the study, it showed that the variables of working capital, labor and raw materials simultaneously affected the production value of potato dodol in Siulak District, Kerinci Regency. While the partial effect is that the variables of labor and raw materials have a significant effect on the production value of potato dodol in Siulak District, Kerinci Regency, while business capital has no significant effect on the production value of potato dodol in Siulak District, Kerinci Regency.

Exploring primary care physicians' challenges in using home blood pressure monitoring to manage hypertension in Singapore: a qualitative study.

Hypertension guidelines recommend using home blood pressure (HBP) to diagnose, treat and monitor hypertension. This study aimed to explore the challenges primary care physicians (PCPs) face in using HBP to manage patients with hypertension. A qualitative study was conducted in 2022 at five primary care clinics in Singapore. An experienced qualitative researcher conducted individual in-depth interviews with 17 PCPs using a semi-structured interview guide. PCPs were purposively recruited based on their clinical roles and seniority until data saturation. The interviews were audio-recorded, transcribed verbatim and managed using NVivo qualitative data management software. Analysis was performed using thematic analysis. PCPs identified variations in patients' HBP monitoring practices and inconsistencies in recording them. Access to HBP records relied on patients bringing their records to the clinic visit. A lack of seamless transfer of HBP records to the EMR resulted in an inconsistency in documentation and additional workload for PCPs. PCPs struggled to interpret the HBP readings, especially when there were BP fluctuations; this made treatment decisions difficult. Despite strong recommendations to use HBP to inform hypertension management, PCPs still faced challenges accessing and interpreting HBP readings; this makes clinical decision-making difficult. Future research should explore effective ways to enhance patient self-efficacy in HBP monitoring and support healthcare providers in documenting and interpreting HBP.

Abstract B043: The caregiver burden of patients with Glioblastoma multiforme (GBM) and feeling of regret for treatment decisions associated with GBM standard of care using qualitative analysis

Abstract The purpose of this study was to identify areas where caregivers of patients with Glioblastoma multiforme (GBM) experienced feelings of regret in association to the treatment decisions related to standard of care. The standard of care for GBM consists of maximal surgical resection, chemotherapy, and radiation. This often leads to physical, cognitive, and physiological deficits. Due to the rapid onset and disease progression, patients and their caregivers must quickly make medical decisions regarding whether to pursue treatment and to what extent to continue treatment. The study sample included 101 letters written by female caregivers belonging to a Facebook group, “We are the wives of GBM and this is our story.” Members of the Facebook group were recruited to write letters to GBM healthcare providers describing their experiences as caregivers for spouses/partners of patients with GBM. This study was a secondary analysis of the narratives in the letters (UNCW IRB 22-0103) focusing on treatment decision-making. The research approach used in this study was Reflexive Thematic Analysis using NVivo qualitative data management software. Team members individually and collaboratively completed the six phases of reflexive thematic analysis: 1) data familiarization, 2) systematic data coding, 3) generating initial themes, 4) developing and reviewing themes, 5) refining and naming themes, and 6) writing the report to provide insight into study participants’ experiences. Six main themes were identified: 1) communication with different providers, 2) disease trajectory communication, 3) involvement with palliative care, 4) reliance on peer-to-peer communication, 5) description of side effects, 6) reflection on treatment decisions. Of 101 letters analyzed, 7 caregiver/patient dyads decided against treatment and 10 caregivers expressed regret in pursuing treatment. Nearly 40% of the letters indicated struggles by caregivers when communicating with health care team members about the disease, treatments, and their anticipated side effects. Nineteen caregivers relied on information from other caregivers (peer-to-peer communication) likely due to difficulties in getting information directly from health care providers. When describing care teams, only 20% of the letters mentioned palliative care as part of care teams. These caregivers struggled to obtain proper disease trajectory information, information about side effects of treatment options, and expressed patterns of miscommunication or low communication with providers. The lack information by providers about the GBM disease trajectory, its impacts on the patient and their families, and the fact that caregivers relied on peer-peer communication suggests the caregivers did not receive adequate information about the GBM disease trajectory and progression from their health care team which limited their understanding. This data suggests caregivers may have advocated for different treatment decisions and options if they had received adequate information from the health care team. Citation Format: Marlee S. Wallace, Megan P. Chard, Elizabeth A. James, Barbara J. Lutz, Laurie A. Minns. The caregiver burden of patients with Glioblastoma multiforme (GBM) and feeling of regret for treatment decisions associated with GBM standard of care using qualitative analysis [abstract]. In: Proceedings of the AACR Special Conference on Brain Cancer; 2023 Oct 19-22; Minneapolis, Minnesota. Philadelphia (PA): AACR; Cancer Res 2024;84(5 Suppl_1):Abstract nr B043.

DOMAS: a data management software framework for advanced light sources.

In recent years, China's advanced light sources have entered a period of rapid construction and development. As modern X-ray detectors and data acquisition technologies advance, these facilities are expected to generate massive volumes of data annually, presenting significant challenges in data management and utilization. These challenges encompass data storage, metadata handling, data transfer and user data access. In response, the Data Organization Management Access Software (DOMAS) has been designed as a framework to address these issues. DOMAS encapsulates four fundamental modules of data management software, including metadata catalogue, metadata acquisition, data transfer and data service. For light source facilities, building a data management system only requires parameter configuration and minimal code development within DOMAS. This paper firstly discusses the development of advanced light sources in China and the associated demands and challenges in data management, prompting a reconsideration of data management software framework design. It then outlines the architecture of the framework, detailing its components and functions. Lastly, it highlights the application progress and effectiveness of DOMAS when deployed for the High Energy Photon Source (HEPS) and Beijing Synchrotron Radiation Facility (BSRF).