Australian Parents Of Children Research Articles

Exploring the support needs of Australian parents of young children with Usher syndrome: a qualitative thematic analysis

BackgroundAdvancements in genetic testing have led to Usher syndrome now being diagnosed at a much earlier age than in the past, enabling the provision of early intervention and support to children and families. Despite these developments, anecdotal reports suggest there are substantial gaps in the services and supports provided to parents of children with Usher syndrome. The current study investigated the support needs of parents of children with Usher syndrome Type 1 when their child was aged 0 to 5 years.MethodPurposive sampling was used, and six semi-structured interviews were conducted with Australian parents of children with Usher syndrome, Type 1. Data was analysed using modified reflexive thematic analysis.ResultsFour key themes were identified as being central to the support needs of parents of children with Usher syndrome aged 0 to 5 years. (1) Social Needs referred to parents’ need for various sources of social support, (2) Informational Needs described the lack of information parents received regarding Usher syndrome from treating professionals, (3) Practical Needs included supports needed to assist parents in managing the day-to-day tasks of caring for a child with a disability, and (4) Emotional Needs represented the emotional support (both formal and informal) that parents needed to be a positive support to their child.ConclusionsFindings provide rich information for relevant support groups, policy makers, individual healthcare professionals, and professional governing bodies regarding the education of stakeholders and the development and implementation of best-practice treatment guidelines.

Parent help-seeking behaviour: Examining the impact of parent beliefs on professional help-seeking for child emotional and behavioural difficulties

For children experiencing emotional and behavioural difficulties, parents are key gatekeepers to treatment access. However, despite the substantial prevalence of child mental health problems in Australia, there remains a significant disparity between the rate of children requiring treatment and the rate of parents actively seeking professional help for their child. Therefore, an understanding of factors impacting on parents’ help-seeking behaviour is crucial. The current study presents exploratory research examining the impact of parent beliefs on help-seeking behaviour. Specifically, this study aims to explore parent beliefs about (a) barriers to help-seeking (b) parenting ability, and (c) the causes and nature of child difficulties. Participants in this study were a sample of 399 Australian parents of children aged from 4 to 14 years, with each parent completing a series of four structured questionnaires. Results indicated that parents who had not sought help for their child perceived significantly more barriers to help seeking and held significantly stronger beliefs that child emotional and behavioural difficulties are intentional. Results also indicated that as parents’ sense of competence increased, perceived barriers to help seeking decreased. Perceived barriers to help seeking also decreased as parent beliefs that child difficulties are stable decreased. The present study presents several implications for informing effective engagement strategies to improve service utilisation, highlighting directions for future hypothesis-driven research.

Factors Mediating Dysphoric Moods and Help Seeking Behaviour Among Australian Parents of Children with Autism.

This study compared levels of state affect, dysphoric mood, and parenting sense of competence in Australian parents of children with or without autism. The effects of personality and location on the parents' experience were also examined, while controlling for current affect. Possible relationships among personality, location factors and help-seeking behavior were also explored in parents of children with autism. Prior findings of higher dysphoric mood levels in parents of children with autism were supported, as was the positive correlation between dysphoric moods and Neuroticism levels. Parenting Sense of Competence did not differ across locations, and there were no parent type by location interactions. Access to services among parents of a child with autism did not moderate dysphoria levels.

Delivering a very early nutrition intervention for cancer patients at home using technology: A pilot randomised trial

Delivering a very early nutrition intervention for cancer patients at home using technology: A pilot randomised trial