Active Involvement Of People Research Articles

Successful strategies for preventing and controlling violence against people with intellectual disabilities: a scoping review

BackgroundViolence against people with intellectual disabilities is unfortunately a reality all over the world, as they are one of the populations most vulnerable to various forms of aggression. Assertive prevention and control measures are crucial to tackle and reduce this problem. The aim of this study was to map and summarize the main measures for preventing and controlling domestic violence against people with intellectual disabilities. MethodsThis was a scoping review conducted in accordance with the JBI guidelines. The databases consulted were: National Library of Medicine (PubMed); Cumulative Index to Nursing and Allied Health Literature (CINAHL), Web of Science; Excerpta Medica DataBASE (EMBASE); Latin American and Caribbean Health Sciences Literature (LILACS) and SCOPUS. Studies included in this review reported on strategies to address domestic violence against people with intellectual disabilities, published in the last ten years, in Portuguese, Spanish or English.ResultsA total of 11 studies were included in this review. Six studies had high methodological quality and five had moderate. Cognitive-behavioral intervention programs, educational technologies and/or auxiliary tools, along with the full participation of people with intellectual disabilities in domestic violence prevention measures are appropriate strategies for dealing with this issue.ConclusionDomestic violence against people with intellectual disabilities is relatively unexplored in the health-field scientific literature. Prevention and control measures should be developed with the active involvement of people with intellectual disabilities, generating engagement and knowledge. Preventive measures should be adapted to the personal context and conditions of individuals with special needs, such as those with persistent or chronic mental disorders.

Pemanfaatan fasilitas bus rapit transit (BRT) Semarang bagi penyandang disabilitas

Utilization of Bus Rapid Transit (BRT) facilities for people with disabilities is an important aspect in efforts to create public transportation that is inclusive and friendly to diverse communities. This research aims to analyze the extent to which BRT facilities can be utilized by people with disabilities and identify the challenges and opportunities faced in the utilization process. This research method involves field surveys, interviews, and qualitative data analysis. The research results show that although several BRT facilities have been designed taking into account the needs of people with disabilities, there are still obstacles in their use. Some of these obstacles include stop accessibility, bus stop designs that are not fully disability-friendly, as well as a lack of understanding and awareness on the part of BRT managers and general users regarding the needs of people with disabilities. On the other hand, this research also identified several opportunities to increase the use of BRT facilities by people with disabilities, including through the development of information and communication technology, active involvement of people with disabilities in the planning and evaluation process of facilities, as well as increasing training for BRT operators and officers in serving passengers. with special needs. It is hoped that this research can contribute to the development of more inclusive public transportation policies and planning, ensuring that BRT facilities not only meet technical standards but are truly accessible and utilized by all levels of society, including people with disabilities.

Active involvement of people with lived experience of suicide in suicide research: a Delphi consensus study

BackgroundThe importance and value of involvement of people with lived experience of suicide has been recognized in suicide research and prevention. Nonetheless, clear guidance on research collaboration and co-production is lacking. This study aimed to address this gap by developing a set of guidelines on active involvement of people with lived experience of suicide in suicide studies., i.e., conducting research with or by people with lived experience, rather than to, about or for them.MethodsThe Delphi method was used to determine statements on best practice for the active involvement of people with lived experience of suicide in suicide research. Statements were compiled through a systematic search of the scientific and grey literature, and reviewing qualitative data from a recent related study conducted by the authors. Two expert panels: people with lived experience of suicide (n = 44) and suicide researchers (n = 29) rated statements over three rounds of an online survey. Statements endorsed by at least 80% of panellists of each panel were included in the guidelines.ResultsPanellists endorsed 96 out of 126 statements in 17 sections covering the full research cycle from deciding on the research question and securing funding, to conducting research and disseminating and implementing outcomes. Overall, there was a substantial level of agreement between the two panels regarding support from research institutions, collaboration and co-production, communication and shared decision making, conducting research, self-care, acknowledgment, and dissemination and implementation. However, panels also disagreed on specific statements regarding representativeness and diversity, managing expectations, time and budgeting, training, and self-disclosure.ConclusionsThis study identified consensus recommendations on active involvement of people with lived experience of suicide in suicide research, including co-production. Support from research institutions and funders, and training on co-production for researchers and people with lived experience, are needed for successful implementation and uptake of the guidelines.

Managing human involvement in an energy community: Application to a subway station

Energy communities become increasingly diverse, as sharing mechanisms and artificial intelligence become an important component of the cooperation between people and energy systems. This cooperation can play an important role at municipality level, where transportation systems that consume huge quantities of energy (i.e. subway networks) could become more efficient and sustainable, with the active involvement of people. In this context, we propose a method to manage the involvement of people in the cooperation mechanism established between an energy community and a subway station. The method relies on a multi-objective recommendation strategy that provides the members the optimal times to commute in order to provide a positive environmental and economical impact at municipality level, while also considering human dissatisfaction. The strategy is simulated in a multi-agent model, where agents represent commuting passengers. Results show that important economical and environmental performances may still be obtained when both the system performance and human dissatisfaction are minimised.

Active Involvement of People with Disabilities in Education: A Literature Review

In recent years, a growing number of educational initiatives designed for current and future professionals have sought the active involvement of patients and users. Recent reviews have explored different aspects of these initiatives. However, they do not distinguish between the involvement of people with disabilities and that of other users. This review describes the main features of educational initiatives in the fields of education, health and social sciences that actively seek the involvement of people with disabilities. Our systematic approach identified 20 projects. We analyzed their nature, the actors involved, and their documented outcomes. This review shows that to improve professional practice and the quality of services given to people with disabilities, it is important to seek their active participation in educational initiatives targeting learners from a range of disciplines and to use a diversity of teaching strategies. Recommendations to consider when implementing such initiatives are also discussed.

Don’t Mention the Diet! A health promotion initiative to support healthy diet and lifestyle decision‐making by people with intellectual disability

Accessible summary People with intellectual disability have a right to have a say in how they want to live Information about the importance of healthy eating and drinking can be difficult to understand People with intellectual disability co‐produced an educational module around healthy eating and drinking and were actively involved in deciding what they wanted to learn about and planning how they would like to learn This project helped people with intellectual disability to understand and make choices around their diet AbstractBackgroundPeople with intellectual disability have a right to be involved in and make decisions that affect them. This paper presents a health promotion initiative that was co‐produced with people with intellectual disability called Don't Mention the Diet! Evidence suggests this group experience challenges related to health literacy. Further, health promotion materials can be inaccessible. This project demonstrates how active involvement of people with intellectual disability in the design and provision of appropriate educational supports can assist them to make informed decisions about their diets and lifestyle.MethodsA collaborative patient and public involvement approach was adopted to ensure the development of a health promotion module that addressed the specific learning needs and knowledge gaps of students with intellectual disability in relation to diet and its impact on well‐being. An 8‐month module with a double‐helix structure intertwining educational and personal development elements was designed.OutcomesStudents who completed the module enjoyed its person‐centred and interactive approach. Equipped with information about the benefits of diet, exercise and other health‐related behaviours, they were empowered to make informed decisions on whether or not to adopt a healthy lifestyle.ConclusionsThe education of students with intellectual disability was supported by tailoring the teaching methods to meet their learning abilities. Further, the inclusion of co‐designers with intellectual disability was key to ensuring the successful module design and delivery. Listening to the self‐identified health education needs and responding collaboratively resulted in an educational initiative that met student's needs.

El desarrollo social sostenible: un análisis desde la gestión enfocada en la socioformación

Currently there is no balance between social, economic and environmental progress due to the individualistic thinking of the new generations, therefore, it is essential to draw a route to potentiate social progress that seeks the balance for sustainable social development that finds well-being for all. The goals should focus on the active involvement of people, companies, and the different actors that surround us as higher education institutions. This will allow facing great challenges and efficiently preparing future professionals who are preparing in universities in order to achieve true sustainable social development in a transversal way throughout university management. Keywords: development, management, social, socioformation, sustainable.

Creating Dementia-Friendly Communities for Social Inclusion: A Scoping Review.

Aims: This scoping review explores key strategies of creating inclusive dementia-friendly communities that support people with dementia and their informal caregiver. Background: Social exclusion is commonly reported by people with dementia. Dementia-friendly community has emerged as an idea with potential to contribute to cultivating social inclusion. Methods: This scoping review follows the Joanna Briggs Institute scoping review methodology and took place between April and September 2020. The review included a three-step search strategy: (1) identifying keywords from CINAHL and AgeLine; (2) conducting a second search using all identified keywords and index terms across selected databases (CINAHL, AgeLine, MEDLINE, PsycINFO, Web of Science, ProQuest, and Google); and (3) hand-searching the reference lists of all included articles and reports for additional studies. Results: Twenty-nine papers were included in the review. Content analysis identified strategies for creating dementia-friendly communities: (a) active involvement of people with dementia and caregivers (b) inclusive environmental design; (c) public education to reduce stigma and raise awareness; and (d) customized strategies informed by theory. Conclusion: This scoping review provides an overview of current evidence on strategies supporting dementia-friendly communities for social inclusion. Future efforts should apply implementation science theories to inform strategies for education, practice, policy and future research.

Creating dementia friendly community for social inclusion: A scoping review

AbstractBackgroundSocial exclusion is commonly reported by people with dementia and their families. Dementia‐friendly community has emerged as an idea that holds potential to contribute to the mitigation of social exclusion. The objective of the scoping review is to identify strategies of creating dementia‐friendly communities that support people with dementia and their informal care providers.MethodThis scoping review follows the Joanna Briggs Institute scoping review methodology and takes place between March and May, 2020. The review included studies based in community settings with participants living at home with early to late stages of dementia and their families. It included a three‐step search strategy: (1) to identify keywords from CINAHL & AgeLine; (2) to conduct a second search using all identified keywords and index terms across selected databases (CINAHL, AgeLine, MEDLINE, PsycINFO, Web of Science, ProQuest and Google); and (3) to hand‐search the reference lists of all included articles and reports for additional studies.ResultA total of 28 papers were included in the review. Content analysis identified strategies of creating dementia‐friendly communities: (a) active involvement of people with dementia and carers, (b) inclusive environmental design, (c) public education to reduce stigma and raise awareness, (d) customized strategies informed by dementia‐friendly and inclusive theories.ConclusionThis scoping review provides an overview of current evidence on strategies that support dementia‐friendly communities for social inclusion. The findings offer insights to inform strategies for education, practice, policy and future research.

Contributing to Inclusive Research Policy and Practice: A Synthesis of Four Inclusive (Health) Research Projects

AbstractThe active involvement of people with intellectual disabilities (ID) in research is expected to lead to relevant research outcomes, increased quality of life, improved healthcare, reduction of health inequities, and empowerment of people with ID. Despite the developments in inclusive health research, a lack of transparency remains with regard to how the partnership between researchers with and without ID is shaped and structural study of inclusive health research is needed. This study aims to gain insight into the experiences of inclusive research teams in practice regarding (1) reasons, (2) attributes, and (3) outcomes of inclusive health research. A structural study of four inclusive research teams was conducted in Ireland, Northern Ireland, and the Netherlands using case study methodology. Data were triangulated through documents and individual and group interviews. Data were analyzed and synthesized using domain and taxonomic analysis. Reasons for conducting inclusive research ranged from personal to practical. Having an inclusive ethos was found to be crucial in conducting inclusive research meaningfully in practice. Based on data analysis, attributes of inclusive research consist of three interrelated themes, one focusing on methodological aspects and two focusing on active involvement and partnerships. Outcomes of inclusive research across cases were found within three categories relating to research practice, inclusion itself, and interpersonal outcomes. Empowerment was found to be important. Although empowerment is not new to inclusive research, its positive effect on research quality appears to be new and needs further research. This study's results and the literature indicate that developing inclusive research policy and practice requires a realistic perspective, with a balance between maximum collaboration and using researchers' strengths. The results of this study are transferrable to inclusive research using similar methods with other groups. When the aim is to share learning in groups, a shared language is needed.

A consensus statement on how to conduct inclusive health research.

The active involvement of people with intellectual disabilities in research, or inclusive research, is relatively common. However, inclusive health research is less common, even though it is expected to lead to appropriate healthcare and increased quality of life. Inclusive health research can build upon lessons learned from inclusive research. A total of 17 experts on inclusive (health) research without intellectual disabilities and 40 experts with intellectual disabilities collaborated in this consensus statement. The consensus statement was developed in three consecutive rounds: (1) an initial feedback round; (2) a roundtable discussion at the 2016 International Association for the Scientific Study of Intellectual and Developmental Disabilities World Congress; and (3) a final feedback round. This consensus statement provides researchers with guidelines, agreed upon by experts in the field, regarding attributes, potential outcomes, reporting and publishing, and future research directions, for designing and conducting inclusive health research. Consensus was reached on how to design and conduct inclusive health research. However, this statement should be continuously adapted to incorporate recent knowledge. The focus of this consensus statement is largely on inclusive health research, but the principles can also be applied to other areas.

БРИТАНСЬКИЙ ДОСВІД СОЦІАЛЬНО-ПСИХОЛОГІЧНОЇ РЕАБІЛІТАЦІЇ ЛЮДЕЙ З ІНВАЛІДНІСТЮ

The article is devoted to the study of the UK experience with the system of social and psychological rehabilitation of people with disabilities. The legislation analyzes the protection and support of people with disabilities in the UK, which enables them to maximize their potential, live a full and active life in their families, communities and society as a whole. The content of the concept of "rehabilitation", defined in normative documents, is disclosed as a personalized, interactive and collaborative process that reflects a person as a whole, enabling her to maximize their potential, to live a full and active life in their family, community, educational activities, and the workplace where it is needed. The goals of social rehabilitation of people with disabilities in the UK are considered, namely the orientation towards the person, its needs, and not the diagnosis; active involvement process, not passive care; integration of specialized and universal services; maximizing the potential of personality; work in partnership etc. The model of socio-psychological rehabilitation of people with disabilities in Great Britain, based on a multidisciplinary approach, is presented. The principles and stages of this model are described, aimed at implementation of complex, individually oriented approaches and active involvement of people with disabilities in different spheres of activity according to their needs and possibilities. The experience of British organizations that implement innovative technologies of physical, financial, informational support of people with disabilities is studied and described, in particular: the system of "contactless physiotherapy", independent personal payments, special online applications for various events of soplife, etc. The model of employment support for people with disabilities is presented in detail, which involves finding a job in accordance with the client's capabilities, training and adaptation to the workplace, and the general support of the work program for 2 years.

The woes of Swedish private archival institutions

PurposeThe purpose of this paper is to highlight the long-term preservation challenges that the Swedish private archives are faced with. In as much as they offer a complement to the public archives and hence offer a nuanced national narrative, they lack both financial and human resources to effectively deal with the digital information management environment.Design/methodology/approachParticipatory Action Research (PAR) was used to identify the challenges of long-term preservation together with the six private archives institutions that were involved in the collaboration. The collaboration was financially facilitated by the Södertörn University. PAR is defined as a systematic investigation, with the collaboration of those affected by the issue being studied, for the purposes of education and taking action or effecting social change. What is distinctive of PAR is the active involvement of people whose lives are affected by the phenomenon under study.FindingsThe private archival institutions face long-term preservation challenges such as lack of a digital repository that would facilitate the capture, organization and management of digital records that are of different formats and in a dispersed environment. There are no stringent legal requirements to facilitate the creation and management of the records in a standardized way and the institutions fear that imposing such requirements might deter their clients from depositing archival materials with them. The institutions will also need to espouse the business-oriented archival descriptions where private organizations are concerned to identify relevant archival materials and to promote participatory archival descriptions that would allow the creators to tag their records with metadata. Digital information requires a proactive approach, that is, planning for the long-term preservation of the information before it is created. Private archives need to invest in education packages that will facilitate their clientele’s understanding of the challenges of digital long-term preservation.Research limitations/implicationsThe findings cannot be generalized to all private archival institutions, as it was only six institutions that participated, but the issues discussed are relevant to most archival institutions.Practical implicationsA lot of research has been carried out in the area of long-term preservation, but researchers have not paid enough attention to the woes of the private archives. To sustain a nuanced national narrative, the private archives need all the support to be able to live up to their mission of preserving archives of the private sector that are not captured by the public archival institutions. This is important in a pluralistic society such as Sweden. Highlighting the challenges might enable the institutions to work towards finding common challenges.Social implicationsThe private archives are part of Sweden’s national heritage. Their preservation matters to the society as a whole and to enhancing the voices of the underrepresented.Originality/valueThe literature review revealed that not much research has paid attention to the challenges being faced by the private archives. This paper, therefore, contributes to this knowledge gap.

Panchayat (Extension to Scheduled Areas) Act 1996: A Remedy for Rising Naxalism

India is the largest democracy in the world. However, the survival of democracy depends on the active involvement of people in public life. Accordingly, provisions have been made in the Indian constitution that no one can remain away from the main stream or feel marginalized. As scheduled castes and scheduled tribes (SCs and STs) constitute a significant part of Indian population and are the most deprived and vulnerable sections of the society since ages, positive discrimination has been made by the state in their favour. Parts IV, VI, IX and XVI of the Indian Constitution make adequate provisions not only to curb atrocities and violence against them but also to empower them in all respects. The tribes constitute about 8 per cent of India's population and are the most backward and exploited section of the society spreading over two-dozen states in 94 districts; hence, it was felt necessary to pay attention to their problems and prospects so that their resources and energy can be properly utilized and channelized for national development. To meet these goals, the Government of India enacted the Panchayat (Extension to Scheduled Areas) Act (PESA Act) 1996 to decentralize powers and strengthen democracy at the grassroots level. As about one-third of the PESA districts are disturbed and many more are going into the clutches of ultras, such as Nationalist Socialist Council of Nagaland (NSCN), United Liberation Front of Assam (ULFA), Maoist or other extremist movements like People's War Group (PWG); therefore, the PESA Act seems to be a viable solution to tackle the problem. It provides wide opportunities to tribal people in decision-making and development process at the grassroots level and eliminates the feeling of apathy or isolation prevailing among these sections due to intruders, encroachment of their areas and resources as well as their deprivation from their traditional means of livelihood or inaccessibility to their resources. As the PESA Act is in operation for more than one-and-a-half decade and the government has earmarked special funds and grants for these areas under the 12th plan on the recommendation of second Administrative Reforms Commission (ARC; see Administrative Reforms Commission, 2007), it becomes pertinent to evaluate its impact on tribal people particularly in terms of self-governance and empowerment. The main constraints with enforcing the PESA Act have been highlighted with some remedial steps to make it more viable and pragmatic.

Consuming Symbolic Goods: Identity & Commitment – Introduction

Only in recent times is attention from economists moving to the topic of consumption, even as Adam Smith claimed in his Wealth of Nations that consumption is the sole end of production. One reason for this increased attention may be that consumption patterns become increasingly fickle. Further, and in contrast to the intuition of economists, considerations about price, given people's budget constraints, seem to play a minor role for consumers in making decisions about what to buy. This seems especially true for what might be called goods, goods that people define themselves in terms of, goods the consumption and use of which helps constitute people's identity, goods that communicate the kinds of commitments people have. Archaeologists and anthropologists claim that the use of symbols for purposes of communication with others indicates that complex use of language and (more) sophisticated thinking emerged in man, but they bicker about the exact timing for this emergence. What is important in terms of this special issue on the consumption of symbolic goods is that insights from outside of economic theory proper become increasingly relevant to properly understand such behavior. Social and Institutional economics, for which the Review of Social Economy is among the most influential outlets, is in a position to shed light on what it is that makes people consume. Ideas and concepts that are central in such analyses are the identity of individuals, and commitment to that identity. The active involvement of people in the things they consume is most evident when they consume what might be called goods. Symbolic goods may be defined as goods that people buy to signal their identity with. Obvious examples are clothes, cars and music, but food often is a symbolic good as well. A bone of contention in the analysis of consumption that a focus on identity and commitment uncovers is if and how the social environment influences people in their consumption behavior. Contributors to this issue take different positions on this, as will be apparent when one studies the subsequent articles. What are the elements in the social environment that affect people's consumption behavior, and how should one understand the interaction between the individual and the environment? Some contributions in this special issue approach this matter in a more fundamental, almost philosophical way than others who focus more on empirical phenomena seemingly do. …

Psychology, Social Policy and Social Development

The 1995 UN World Summitfor Social Development emphasised the importance of insuring human security and the active involvement ofpeople at the grass-roots level in the effort to solve worldwide problems of poverty, employment and social integration. This paper discusses ways in which psychologists can contribute to achieving these goals. Reference is made to psychologists'potential contributions of concepts and methodological approaches as well as their relevant knowledge and skills. Examples are included to illustrate past and potential contributions to attaining these objectives of (a) psychologically based programmes which are transculturally sensitive, and (b) psychologists' social and individual change expertise.

A Model of Quality of Work Life as a Developmental Process

Quality of Work Life (QWL) is both a goal and an on‐going process for achieving it. As a goal, QWL is the commitment of any organization to work improvement — the creation of more involving, satisfying and effective jobs and work environment for people at all levels of the organization. As a process, QWL calls for efforts to realise this goal through the active involvement of people throughout the organization.