Academic Research Teams Research Articles

Co-producing evidence to inform universal health coverage implementation in Ireland: 2019-2024

Abstract Background In 2017, Ireland’s parliamentary health committee published a ten-year health reform plan, entitled Sláintecare, with the aim of delivering universal healthcare. Endorsed by government in 2018, progressing Sláintecare remains government policy in 2024. In 2019, Prof Burke was awarded public funding to co-produce knowledge for the design and implementation of the regions, a key aspect of Sláintecare. In 2020, with the arrival of COVID-19, regional reform was paused and the research pivoted to capture the learning from the COVID-19 health system response to inform Sláintecare. In 2022/3, the research returned to focus on the regions. Methods Foundations’ research resulted in 14 peer-reviewed publications between 2019 and 2023. These were mixed-methods using qualitative and quantitative data and analysis. Coproduction with health system leaders that were devising and implementing the regions and the COVID-19 health system response underpinned the research. Results There are 14 academic publications from the Foundations Research (2019-2023). At the core of co-production is trust and good working relationships. Co-producing research with senior policy makers and implementers has benefits and drawbacks. The benefits include access to resources and data and that the data and knowledge generated are more likely to be adopted. Drawbacks include control over areas researched, denial of access to data and lack of openness to research findings. Producing controversial findings, unpopular with government, minister or health system leaders can also lead to difficulties for the research team. Discussion/conclusions Details of the coproduction process with senior health system and policy leaders will be presented. It will detail specific examples of the research which were initiated by the health system and those that came from the academic research team. It will give examples of how the research influenced the policy making and implementation processes. Key messages • Co-producing research between academics and health system and policy leaders leads to better use of evidence. • Trust and good workign relationships are key to co-producing research that is used in policy making and implementation processes.

The Languages of Love Support Group: Exploring quality of life and relationship satisfaction among couples experiencing cancer.

206 Background: Based on Dr. Gary Chapman’s The Five Love Languages (5LL), love is given and received in different ways. By identifying preferences for reciprocating love, relationships are enhanced through strengthened bonds and improved communication. Study goals were to optimize quality of life and reduce pain through improved dyadic communication via support group curriculum adapted from Dr. Chapman’s work. Methods: A research collaboration was established between an academic pharmacy research team and a large community oncology practice. A group of Masters prepared Social Workers (MSWs) within the oncology practice developed a virtual 6-week, cancer specific curriculum targeting the patient-partner couple (dyad). Participants completed 5LL quiz to determine their preferred love language. In each group session facilitated by MSWs, dyads were educated on each love language meaning (words of affirmation, acts of service, receiving gifts, quality time, physical touch) and potential impact following a cancer diagnosis. Weekly sessions included collective discussion and breakout groups consisting of patients and partners separately. Participants took a researcher-designed, pre- and post-test survey. Participants shared their preferred love language and were encouraged to perform actions accordingly. Dyads were mailed infographics with application examples for each love language and received a welcome starter kit including $50 of items. Results: A pilot group of 24 dyads consisting of 3 cohorts were enrolled in the 6-week intervention. Eleven dyads completed pre- and post-tests (45.8%); 100% of dyads were married, greater than 50% more than 20 years. Greater than 80% of participants were 50 years or older, greater than 70% White; 81.8% of patients female and 63.3% of partners male. Patient relationship satisfaction increased significantly (p<0.10) while trend for improved partner relationship satisfaction was not significant. There was a trend of decreased patient depression and anxiety despite patients’ reported pain increasing significantly (p<0.10). The comments regarding intervention were overwhelmingly positive. Conclusions: Educating dyads within the 5LL virtual support group demonstrated a novel and effective way to provide emotional support and enhance intimate relationships. Through this innovative group, participants learned to identify and express partners’ love language. Pilot intervention shows how this approach is useful in improving relationship satisfaction during the cancer journey. Following group participation, patients also reported increased quality of life and decreased depression and anxiety even while reporting increased pain. Based on this evidence, a couples support group constructed from the 5LL paradigm is a promising approach to improve the quality of life of cancer patients.

Championing student participation in co-designing digital education resources: A student experience

The aim of this contemporary piece is to discuss the student experience of co-design and the process involved in the co-creation of developing digital educational resources. A discussion of the need for digital educational resources in the era of pre-registration nursing students being digital natives is explored and the potential benefits or barriers for nursing education and practice are outlined. The need for co-design as a methodology in nurse education which is inclusive of the student-led role is discussed and a personal account of student experience will be detailed. By focusing on the student voice this article aims to provide a first-hand experience of working alongside academic and educational research teams, whilst also promoting student participation within co-design projects further than simply tokenistic involvement, highlighting the comprehensive benefits associated for all. The importance of support, knowledge sharing, and effective communication will be detailed to allow other students to gain insight and empower them to participate in a co-designed project should it arise in their university education.

Co-designing with high-performance athletes and stakeholders: The AHEAD intervention for personal development

The overall purpose of this study was to describe the development of a personal development intervention for high-performance sport. More specifically, the primary objective of the study was to present the results of the co-design phases of the intervention development process. The academic research team initiated the process of intervention development, informed by a grounded theory and using a logic model and the Template for Intervention Description and Replication checklist for Population Health and Policy (TIDieR-PHP). During the co-design phases of intervention development, 28 participants (15 athletes, 8 coaches, 5 technical leaders) were engaged via focus groups or individual interviews. We used qualitative description methodology and analyzed data using an abductive content analysis procedure. Participant engagement helped inform the development of the intervention logo, activity bank, delivery format, scheduling, and individualized approach. By the end of the development phase, the intervention comprised five personal development strategies: self-awareness, goal setting, reflecting, perspective-taking, and evaluating.

Perceptions, expectations, and recommendations of trans adults on gender-affirming care in France: a qualitative study

Trans people have diverse life experiences which may include gender-affirming care (GAC). GAC positively impacts the quality of life of trans adults. However, they are often met with barriers to care and are particularly vulnerable within the healthcare system. The needs and expectations surrounding GAC may vary between individual patients. This article aims to analyze trans adults’ perceptions, expectations, and recommendations on GAC. Twenty-seven semi-structured interviews were conducted by a team of academic and peer researchers; transcribed interviews were then analyzed using a codebook and thematic analysis. Three main themes were identified; the liberating experience of GAC; the uneven distribution of knowledge and power between patients and providers; and the recommended practices in GAC. Additional training and research are necessary to facilitate high-quality care for trans adults accessing GAC.

Utilizing a patient advocacy-led clinical network to engage diverse, community-based sites in implementation-effectiveness research

BackgroundIncreased engagement with community-based practices is a promising strategy for increasing clinical trials access of diverse patient populations. In this study we assessed the ability to utilize a patient-advocacy organization led clinical network to engage diverse practices as field sites for clinical research.MethodsGO2 for Lung Cancer led recruitment efforts of 17 field sites from their Centers of Excellence in Lung Cancer Screening Network for participation in an implementation-effectiveness trial focused on smoking cessation integration into screening programs for lung cancer. Sites were engaged by one of three methods: 1) Pre-Grant submission of letters of support, 2) a non-targeted study information dissemination campaign to network members, and 3) proactive, targeted outreach to specific centers informed by previously submitted network member data. Detailed self-reported information on barriers to participation was collected from centers that declined to join the study.ResultsOf 17 total field sites, 16 were recruited via the targeted outreach campaign and 1 via pre-grant letter of support submission. The sites covered 13 states and 4 United States geographic regions, were varied in annual screening volumes and years of screening program experience and were predominantly community-based practices (10 of 17 sites). The most reported reason (by 33% of sites) for declining to participate as a field site was inadequate staffing bandwidth for trial activities. This was especially true in community-based programs among which it was reported by 45% as a reason for declining.ConclusionsOur results suggest that this model of field site recruitment leveraging an existing partnership between an academic research team and an informal clinical network maintained by a disease-specific patient advocacy organization can result in engagement of diverse, community-based field sites. Additionally, reported barriers to participation by sites indicate that solutions centered around providing additional resources to enable greater capacity for site staff may increase community-practice participation in research.

Empowering emerging adults with type 1 diabetes: crafting a financial and health insurance toolkit through community-based participatory action research

BackgroundEmerging adults aged 18–30 years face challenges during life transitions, with an added burden of navigating the health care system and additional costs associated with diabetes. This stress is compounded by overall low levels of health insurance literacy in this population, as people may not know about available financial and health care resources to minimize suboptimal diabetes outcomes. This study aimed to tailor a financial and health insurance toolkit to emerging adults with type 1 diabetes, including racially, ethnically diverse, and Medicaid-insured individuals, through community-based participatory action research.MethodsAn academic research team and community members from a national organization held six online community advisory board (CAB) content-creation meetings to understand how to tailor a financial and health insurance Toolkit. The CAB was comprised of six racially and insurance-diverse emerging adults with type 1 diabetes and four content experts (clinical, financial, and insurance). Six 60-minute online CAB meetings were held via University Hospitals (UH)-encrypted Zoom over five months. Pre-reading materials were emailed to CAB members before the meetings. A moderator established the purpose of each meeting and briefly discussed meeting rules before each meeting commenced. During the meetings, the moderator guided the discussions and provided the CAB members opportunities to respond and build on one another’s feedback. A deductive thematic qualitative analysis was utilized. Three researchers independently coded the cross-referenced and de-identified CAB meeting transcripts and then convened to reach a group consensus. Two CAB members performed member-checking.ResultsThe following key themes emerged to tailor the Toolkit: ensuring that content covers empowerment and self-advocacy, including genuine stories and multimedia visuals for aesthetics, addressing clinician bias, acknowledging racial and ethnic disparities in care, incorporating cultural representation, and demystifying Medicaid stigma.ConclusionsBy successfully partnering with the CAB and a community organization through a community-based participatory action research approach, we will develop a financial and health insurance Toolkit tailored to the needs of racially and ethnically diverse and Medicaid-insured emerging adults with type 1 diabetes.

Reflections from members of a collaborative social work practitioner–academic research team investigating the career progression experiences of black social workers

This article shares the reflections of members of a collaborative practitioner–academic research team in social work. The team investigated the career progression experiences of black social workers working in statutory social work services in South-East London. Our intention in this article is to share our experience of researching a subject that holds emotional and political resonance. We do so by offering individual perspectives from different team members on how their project involvement affected them both personally and professionally. We also discuss some of the general themes identified in our reflections. These include practitioners growing in research confidence, the need to create a safe emotional space for stories of researcher discomfort and uncertainty to be heard, the effects of undertaking research on professional social work identity, and curiosity about whether our research endeavours can change social work career progression policies and practices for black social work colleagues. We caution that a safe emotional container is required when researching personally and professionally sensitive, subjects such as racism and discrimination in social work. We hope that our article inspires social work practitioners to become involved in research activities.

Sustainability accounting reporting: issues for the automobile industry

PurposeThe purpose of this research is to highlight the imperative need for an internationally accepted standard for sustainability accounting reporting, not exclusive to the analyzed sector but across all industries.Design/methodology/approachThis paper uses an enhanced analysis of existing empirical literature on accounting reporting for sustainability efforts in corporate practices. The study uses two statistical techniques: multiple linear regression analysis and structural equations modeling, focusing on a sample drawn from the Newsweek Green Rankings within the automobile industry. Specifically, the analysis is conducted on data spanning from 2014 to 2016, covering three years and comprises 25 corporations from the Global Fortune 500 list.FindingsThe empirical analysis reveals a significant gap in sustainable reporting practices, highlighting the challenges of nonstandardized managerial accounting across the globe. This research portrays key benefits including enhanced data accessibility and the adoption of sustainable practices across industries. Furthermore, assisting in academic research.Research limitations/implicationsThe study addresses challenges in researching sustainability constraints across various dimensions. The obtained empirical data could inform stakeholders, including accounting setters and managers in the automobile industry, about the pressing need to set uniform sustainability constraints comprehensively and to implement global reporting standards to foster transparency and accountability.Practical implicationsThe sustainability accounting setters, such as Sustainability Accounting Standards Board and International Financial Reporting Standards Foundation, face the challenge of adopting globally accepted accounting standards for sustainability reporting. The statistical evidence correlates sustainable variables with three profitability margins (earnings before interest and taxes, earnings before interest taxes, depreciation and amortization and pretax), providing empirical proof of the degree of correlation among them.Social implicationsThis paper aims to collaborate with the Meditari Accountancy Research Journal in bridging the gap in international standards for sustainability accounting reporting. It emphasizes the global significance of achieving a standardized approach to reporting for sustainability and its potential positive impact on corporations, governments, academic research teams and society.Originality/valueDiverse societal stakeholders have advocated for the implementation of a more sustainable world. Currently, there is no international agreement on how to report for sustainability efforts. This paper evidences this gap, which if persistent would not allow for an accurate evaluation of progress and fulfillment of goals, causing a subpar performance without standard measures.

Designing the Food and Lifestyle Information Program (FLIP) culinary nutrition intervention for adults with mild-to-moderate intellectual disability.

People with intellectual disability have diverse needs and experience higher rates of diet-related chronic disease such as type 2 diabetes compared to people without disability. However, they are infrequently included in development and implementation of interventions to address diet-related chronic disease. The present study describes the process to plan, develop and refine the Food and Lifestyle Information Program (FLIP) culinary nutrition intervention for adults with mild-to-moderate intellectual disability. The project was initiated by a disability service provider and was guided by the Cook-Ed™ model and inclusive research principles. Initially the disability service provider and academic research team members co-designed pre-program consultation and pilot studies, and draft program resources. Pre-program consultation explored paid disability support worker (n = 10) perceptions of cooking and food skills, nutrition priorities and optimal program format, which guided further program drafting. Program resources and pilot study design were further developed and refined with co-researchers with lived experience of intellectual disability who attended a pre-pilot and then pilot study sessions as remunerated co-facilitators. Key characteristics of the FLIP intervention arising from pre-program consultation included providing cooking task instruction in small steps, enabling participant choice in program activities, promoting an inclusive and social atmosphere, and providing paper-based resources. FLIP intervention co-design was enabled through ongoing input from the disability service provider and people with lived experience of intellectual disability. Evaluation of FLIP feasibility, acceptability and preliminary effectiveness to improve diet-related health is underway.

Knowledge-oriented leadership and learning in academic research teams

PurposeThis paper analyzes knowledge-oriented leadership (KOL) and its impact on the learning achieved by the members of academic research teams. We study the influence of KOL on learning, both directly and indirectly, through the knowledge sharing that takes place within the team.Design/methodology/approachFor this purpose, we conducted a survey of 477 researchers belonging to academic research teams. Through partial least squares structural equation modeling (PLS-SEM), our findings show that KOL positively affects both knowledge sharing and learning and that knowledge sharing also enhances learning.FindingsOur results reveal the existence of a direct and indirect effect of KOL on learning, both significant and in the same positive direction, with a complementary partial mediation of knowledge sharing.Research limitations/implicationsThis paper contributes to the literature in that it provides evidence in the academic context of how team leader behavior can influence knowledge sharing and learning.Originality/valueThis is one of the fewer studies that analyzed KOL on academic research teams and the first contribution that empirically shows how the effect of KOL on learning takes place.

Not for all: Barriers to universal accessibility in nature-based tourism and recreation spaces across British Columbia, Canada

The health and well-being benefits of nature contact are inequitably distributed. Among other communities, persons with a disability have fewer opportunities to engage in nature contact in a self-determining way due to the presence of interlocking physical, informational, service, policy, and attitudinal barriers. The purpose of this project was to utilize accepted accessibility standards to document the state of accessibility in nature based tourism and recreation spaces across British Columbia. Following community-based research practices, a team of academic researchers and experts working in accessibility practice collected over 6,700 unique measurements documenting potential barriers across 124 outdoor tourism and recreation sites. Of the 974 infrastructure elements and features assessed, fewer than five percent met all required standards. This paper shares evidence about the categories of infrastructure that are most problematic from an access and inclusion perspective, as well as those that are comparable brightspots. Results demonstrate a considerable gap between Canada's policy goal to become barrier free by 2040 and the present state of accessibility in outdoor spaces across the nature continuum. Management ImplicationsOrganizations managing outdoor tourism and recreation spaces across the nature continuum in British Columbia, Canada are not meeting interrelated moral, legislative, and social demands for equitable access to nature. Management agencies should invest in data collection completed in partnership with the disability community to reveal the full suite of barriers that prevent access across the province. New capital investment programs are required to upgrade legacy infrastructure and realize new features and amenities that provide meaningful opportunities to all. To ensure accessibility does not diminish over time, changes in management practices like incorporating accessibility requirements into operational contracting, hiring for lived experience, and building accessibility monitoring into maintenance planning and operations are needed.

The Birth of a New BIM Standard: From PED 2018 to 2023, New Parameters and Workflows "Going Live" for Everyone

Building Information Modelling (BIM) has become the de facto standard for the digital representation of buildings. However, from the pedestrian dynamics perspective, BIM Industry Foundation Classes (IFC) schema specification do not fully support data properties required for two-way data sharing with pedestrian modelling tools. An international team of academic and industry researchers, supported by buildingSMART International (bSI), is developing an Occupant Movement Analysis (OMA) standard. The project is focused on expanding the IFC schema specification to support workflows for pedestrian simulation tools and is close to completion. So far, multiple process maps and a list of data properties synchronised with several representative pedestrian modelling tools have been produced. This list of data properties was then converted into bSI's recommended flexible and machine interpretable Information Delivery Specification (IDS) format for specifying data exchange requirements and to add clarity. Currently, this is undergoing testing and review by the project team. Once completed, it will be submitted to bSI’s committees for review. Also, to support this work, a prototype open-source Add-in has been developed to demonstrate a two-way integrated data sharing between BIM authoring tools and pedestrian simulation tools. This standard will enhance data sharing between BIM authoring and pedestrian modelling tools by facilitating the capturing of the required data and addressing friction in multiple design iterations and reassessment.

Towards sharing tools and artefacts for reusable simulations in healthcare

ABSTRACT Discrete-event simulation (DES) is a widely used computational method in health services and health economic studies. Despite increasing recognition of the advantages of open, reusable DES models for both healthcare practitioners and simulation researchers, in practice very few authors share their model code alongside a published paper. In the context of Free and Open Source Software (FOSS), this paper presents a pilot framework called STARS: Sharing Tools and Artefacts for Reusable Simulations to begin to address the challenges and leverage the opportunities of sharing DES models in healthcare. STARS aligns with existing guidelines and documentation, including reproducibility initiatives, and enables computer models to be shared with users of differing technical abilities. We demonstrate the feasibility and applicability of STARS with three applied DES examples using Python. Our framework supports the development of open, reusable DES models which can enable partner healthcare organisations to preview, validate, and use models. Academic research teams can benefit from knowledge exchange, enhanced recognition and scrutiny of their work, and long-term archiving of models.

Now Is the Time to Strengthen Government-Academic Data Infrastructures to Jump-Start Future Public Health Crisis Response.

During public health crises, the significance of rapid data sharing cannot be overstated. In attempts to accelerate COVID-19 pandemic responses, discussions within society and scholarly research have focused on data sharing among health care providers, across government departments at different levels, and on an international scale. A lesser-addressed yet equally important approach to sharing data during the COVID-19 pandemic and other crises involves cross-sector collaboration between government entities and academic researchers. Specifically, this refers to dedicated projects in which a government entity shares public health data with an academic research team for data analysis to receive data insights to inform policy. In this viewpoint, we identify and outline documented data sharing challenges in the context of COVID-19 and other public health crises, as well as broader crisis scenarios encompassing natural disasters and humanitarian emergencies. We then argue that government-academic data collaborations have the potential to alleviate these challenges, which should place them at the forefront of future research attention. In particular, for researchers, data collaborations with government entities should be considered part of the social infrastructure that bolsters their research efforts toward public health crisis response. Looking ahead, we propose a shift from ad hoc, intermittent collaborations to cultivating robust and enduring partnerships. Thus, we need to move beyond viewing government-academic data interactions as 1-time sharing events. Additionally, given the scarcity of scholarly exploration in this domain, we advocate for further investigation into the real-world practices and experiences related to sharing data from government sources with researchers during public health crises.

553 Creating an In-Person Workshop Series Addressing Core Team Science Principles for Early Career Investigators

OBJECTIVES/GOALS: A barrier to the proliferation of team science is that academicians are often trained in disciplinary silos where “independent” research contributions are lauded. To tackle some of the most pressing scientific challenges, dismantling silos and increasing team science training efforts that focus on early career investigators is a must. METHODS/STUDY POPULATION: A team science training workshop for early career investigators from varied disciplinary backgrounds was informed by a 20-item needs assessment that addressed essential team science competencies and was completed by early career investigators participating in federally funded professional development programs on our campus. During the workshop, the benefits of cross-disciplinary teaming was discussed. Strategies including team formation, team effectiveness and/or dysfunction, diagnosing team strengths and weaknesses, and teaming in community settings were discussed. Instructional methods included short presentations, video clips, case studies, group discussions, pair and share activities, and panel discussions with expert role models encouraged active learning. RESULTS/ANTICIPATED RESULTS: The impact and value of the workshop series to participant’s professional development and knowledge of team science concepts will be evaluated before and after the workshop. Multiple Likert-scale items focused on team science competencies (e.g., confidence in your ability to carry out responsibilities specific to your role on a team, recognize when the team is not functioning well; engage team science practices in on-going research), and open-ended questions (e.g., importance of engaging community partners in academic research teams, vision of what factors contribute to an effective team science collaboration) will be completed by program participants before and after completing the workshop. DISCUSSION/SIGNIFICANCE: Effective collaboration among scientists with expertise in different disciplines is needed to address and solve complex scientific problems. We believe our interactive approach to team competency training sessions would work in a variety of settings and improve team skills.

Patient and public involvement in the development of the digital tool MyBoT to support communication between young people with a chronic condition and care providers.

To guide good practices in patient and public involvement (PPI), several calls have been made to share detailed accounts of practical experiences. We describe our collaboration with young people with a chronic condition (YPCC) in the development, testing and implementation of the digital communication tool MyBoT (Map your Burden of Treatment). MyBoT was developed by a team of academic researchers, some of whom were practising care providers, YPCC and designers. In addition to the two co-researchers in the research team, various groups of YPCC were involved in decision-making through participation in a design session, workshops and a dialogue session. The Involvement Matrix was used to reflect on the PPI of all YPCC. Initially, the two co-researchers were involved in the roles of informer and co-thinker, but their decision-making power within the study increased over time. In the final stages of the study, the co-researchers and researchers became partners. The other YPCC who participated in the different sessions and workshops were co-thinkers in all stages of the study. The PPI of two YPCCsas co-researchers within the research team ensured continuous involvement, whereas the PPI of various groups of YPCCsguaranteed a representative and inclusive approach. Researchers play an essential role in bringing all perspectives together, integrating them within the technical and financial constraints and ultimately building a tool that is tailored to its users' needs. YPCC played a significant role in the present study. Two YPCC-who are also co-authors of this paper-were involved in all stages of this project as members of the research team. In addition, various YPCCswere involved in the development, testing and implementation stage of MyBoT by organizing design sessions, workshops and a dialogue session.

Testimonios on participatory action research as a critical race approach to studying Southeast Asian american Refugee subjects

AbstractInstead of being agents of inquiry and change, Southeast Asian American (SEAA; Viet, Hmong, Lao, Cambodian) refugee subjects are often objectified and essentialized by researchers in the social sciences. In this article, we document our collaborative journeys to unlearn colonial and racist ways of thinking about and conducting research on marginalized communities, including our own SEAA communities. Specifically, we present participatory action research (PAR) and testimonios—two examples of counter‐storytelling—as promising critical race methodologies. Using PAR, our team of academic researchers and participant‐researchers collaborated on research to create change in our communities. To assess our experiences with PAR, we used testimonios to share our self‐reflections and stories on the research process and the training relationship. We end by offering suggestions for using PAR and testimonios to engage in anti‐colonial and anti‐racist research.

Map your Burden of Treatment (MyBoT): an arts-based digital communication aid for young people with a chronic condition and their care providers

Background: Young people with a chronic somatic condition receive treatment to reduce symptoms, but treatment can pose a heavy burden and affect their quality of life. Despite this, they rarely discuss this so-called treatment burden with care providers. Discussing treatment burden can help to identify treatment barriers and personalize care. We developed the digital tool MyBoT to improve communication about treatment burden.
 Methods: MyBoT was developed for young people (aged 16-25) who undergo treatment for a chronic condition and their care providers. It was designed and developed by a team of academic researchers, care providers, young people with a chronic condition and a design studio. Additionally, other young people and care providers were invited to advise during the project. The development took place in four stages. The first consisted of a literature study, a design session with young people with a chronic condition and an interview with a care provider. Based on this, the team designed a paper prototype – an initial design of the tool on paper. In the second stage, this prototype was digitalized. This was an iterative process in which team members provided feedback on several versions. During the third stage, a demo version of the tool was applied in six workshops with young people with a chronic condition. Based on their experiences the tool was finalized. In the fourth stage, a dialogue session with young people with a chronic condition and care providers was organized to discuss implementation.
 Results: In MyBoT, young people portray their treatment burden by making a 'body map'. This is an image of a body, in which users indicate the impact of treatment on their lives and wellbeing with photos, icons and text. A chatbot asks questions about how they are doing, what they like to do and the impact of treatment on this. Users can print their body map and discuss it with their care provider. Users reported positive experiences with MyBoT. They considered it a useful visual aid to discuss treatment-related topics that are difficult to express in words, such as future planning and non-adherence. Users noted that the tool helps to take control and introduce topics that matter to them during consultations with care providers, because it results in a tangible product (a body map) they can show. They appreciated that the chatbot in the tool treated them as a person rather than a patient, because it covered topics like hobbies, friends and dreams.
 Conclusion: Digital body mapping exercises can be a valuable aid in discussing treatment burden. It helps young people with a chronic condition to tell their stories, as they can visualize and show their experiences before they discuss them. This is especially helpful in discussing sensitive topics.
 Next steps: MyBoT is being used in a rehabilitation center and other options for implementation are currently explored. Because of the positive experiences, we are now also developing an arts-based digital communication aid for young people with a mental chronic condition.

A scoping review to map evidence regarding key domains and questions in the management of non-traumatic wrist disorders.

Non-traumatic wrist disorders (NTWD) are commonly encountered yet sparse resources exist to aid management. This study aimed to produce a literature map regarding diagnosis, management, pathways of care and outcome measures for NTWDs in the United Kingdom. An interdisciplinary team of clinicians and academic researchers used Joanna Briggs Institute guidelines and the PRISMA ScR checklist in this scoping review. A mixed stakeholder group of patients and healthcare professionals identified 16 questions of importance to which the literature was mapped. An a-priori search strategy of both published and non-published material from five electronic databases and grey literature resources identified records. Two reviewers independently screened records for inclusion using explicit eligibility criteria with oversight from a third. Data extraction through narrative synthesis, charting and summary was performed independently by two reviewers. Of 185 studies meeting eligibility criteria, diagnoses of wrist pain, De Quervain's syndrome and ulna-sided pain were encountered most frequently, with uncontrolled non-randomised trial or cohort study being the most frequently used methodology. Diagnostic methods used included subjective questioning, self-reported pain, palpation and special tests. Best practice guidelines were found from three sources for two NTWD conditions. Seventeen types of conservative management, and 20 different patient-reported outcome measures were suggested for NTWD. Substantial gaps in evidence exist in all parts of the patient journey for NTWD when mapped against an analytic framework (AF). Opportunities exist for future rigorous primary studies to address these gaps and the preliminary concerns about the quality of the literature regarding NTWD.