Abstract
BackgroundAlthough the prevalence of mental illness among young people with asthma is known to be twice the rate of the wider population, none of the asthma apps reported have acknowledged or attempted to include psychological support features. This is perhaps because user involvement in the development of asthma apps has been scarce. User involvement, facilitated by participatory design methods, can begin to address these issues while contributing insights to our understanding of the psychological experience associated with asthma and how technology might improve quality of life.ObjectiveThe goal of this participatory user research study was to explore the experience, needs, and ideas of young people with asthma while allowing them to define requirements for an asthma app that would be engaging and effective at improving their well-being.MethodsYoung people aged 15-24 years with doctor-diagnosed asthma were invited to participate in a participatory workshop and to complete a workbook designed to elicit their thoughts and ideas about living with asthma, technology use, and the design of an app. Participants generated a number of artifacts (including collages, concept maps, and paper prototypes) designed to reify their ideas, tacit knowledge, and experience.ResultsA total of 20 participants (mean age 17.8 years; 60%, 12/20 female) representing a range from inadequately to well-controlled asthma completed a workbook and 13 of these also took part in a workshop (four workshops were held in total), resulting in 102 participant-generated artifacts. Theoretical thematic analysis resulted in a set of personal needs, feature ideas, and app characteristics considered relevant by young people for an asthma support app. The data revealed that psychological factors such as anxiety, and impediments to autonomy, competence, and relatedness (as consistent with self-determination theory [SDT]), were considered major influences on quality of life by young people with asthma. Furthermore, the incorporation of features pertaining to psychological experience was particularly valued by participants.ConclusionsIn addition to practical features for asthma management, an app for young people with asthma should include support for the mental health factors associated with lived experience (ie, anxiety, lack of autonomy, and social disconnectedness). We show how support for these factors can be translated into design features of an app for asthma. In addition to informing the development of asthma-support technologies for young people, these findings could have implications for technologies designed to support people with chronic illness more generally.
Highlights
Asthma Prevalence and Psychological ComorbiditiesAsthma is considered the 14th most important disorder in the world in terms of the extent and duration of disability, affecting over 300 million people [1]
Theoretical thematic analysis resulted in a set of personal needs, feature ideas, and app characteristics considered relevant by young people for an asthma support app
The data revealed that psychological factors such as anxiety, and impediments to autonomy, competence, and relatedness, were considered major influences on quality of life by young people with asthma
Summary
Asthma Prevalence and Psychological ComorbiditiesAsthma is considered the 14th most important disorder in the world in terms of the extent and duration of disability, affecting over 300 million people [1]. On the basis of the severity of asthma and its psychological comorbidities, and in light of survey data showing a desire among young people for mobile-based asthma support, Blanchard et al have called on researchers to “develop tailored Web-based and mobile apps to support the wellbeing of young people with asthma, targeting asthma control, mental health, and general wellbeing side-by-side.”. The prevalence of mental illness among young people with asthma is known to be twice the rate of the wider population, none of the asthma apps reported have acknowledged or attempted to include psychological support features. This is perhaps because user involvement in the development of asthma apps has been scarce.
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