Young onset Parkinson's disease: Biographical disruption as a repetitive process.

Abstract

Young Onset Parkinson's Disease (YOPD) is a complex condition which raises issues of interpretation and understanding of individuals' biographies. While interviewing seventeen people with YOPD from Greece, the issue of biographical disruption emerged. Parkinson's is a neurodegenerative disorder divided in five stages and has no permanent cure; based on this knowledge, individuals reconstruct their past and see their future. Under this perspective, unlike other chronic illnesses, in the case of Parkinson's disease interviewees have designated dimensions of disruption that are experienced due to continuous degeneration and while narrating their stories they designated disruptions even before diagnosis. In this article, biographical disruption is understood as a repetitive process and the latter is perceived as a continuous process caused by neurodegeneration; it never stops and is constructed through multiple dimensions: (a) bodily, (b) daily, (c) in stages and (d) biographical. These dimensions are interrelated and construct, both theoretically and analytically, the concept of disruption in daily life with a neurodegenerative disorder. Through the concept of repetitiveness, the complexity of living with PD is understood and also the need for deconstructing expected social roles.