Young Children with Respiratory Problems and Assistive Technology Needs: A Nursing Care Perspective

Abstract

An examination was conducted of the technology needs of 33 children with respiratory problems ages 0-5 years as part of a larger survey of persons with disabilities. Unmet technology needs were reported for these children in all areas of life functioning. Children's needs for assistive technology exceeded their usage of equipment and devices in two thirds of the identified areas of functioning. Technology needs were critical particularly in the areas of taking care of the home; using a telephone; using a computer; talking with others; and use of specialized cars, vans, and buses. It was reported for most children that evaluations preceded the provision of assistive technology, and that families were satisfied with technology services received. More than three fourths of the families reported not having had the opportunity to purchase technology on a credit plan, with two thirds of the families showing that such an option would have been helpful to them. Also, more than one half of the children could not try their technology before it was purchased. A need for more information about assistive technology and services was reported for more than one half of these children. Lack of transportation services were reported for most children, with families of almost two thirds of the children indicating travel exceeding 50 miles to receive technology and services. Implications for nurses involved in comprehensive service delivery to these children are discussed.