Women with intellectual disabilities and motherhood: barriers, supports and demands

Abstract

Background For many women with intellectual disabilities, motherhood is both important and highly desired. However, barriers to, and prejudices against, their maternity still exist. Aims To explore the perceptions of a group of nine women with intellectual disabilities regarding motherhood, whether they have children or have contemplated this option, in order to identify the barriers they face or expect to face, the support they have received or think they will receive, and the demands they make in this regard. Methods and Procedures Nine women, distributed in two groups, participated in 20 focus group sessions discussing affective-sexual relationships. The subject of maternity was covered in 15 of these sessions. The focus groups were recorded, transcribed, and analysed thematically. Outcomes and Results The results are structured around four main axes: barriers, perceptions, demands, and support. Conclusions and Implications The women defended their right to decide whether to become mothers and expressed their rejection of the stigma attached to it. The barriers identified were difficulty in access to accommodation, and a lack of resources, information and training adapted to their needs. To overcome these barriers, the women suggested the formation of groups of mothers with intellectual disabilities, support in finding housing and pre- and post-natal training. Finally, the women also noted how important it was that their voices be heard, and that they be represented.