Abstract

BackgroundIn the context of an ageing population and an increase in the appearance of chronic diseases, the commitment of caregivers makes it possible for people confronted with disease to remain at home. Over time, they need support to overcome their difficulties. They also show a need for recognition for their participation in the economic maintenance of the health system. To promote this support, so-called “win/win” partnerships are envisaged. Research is needed to identify the building blocks of an innovative intervention.MethodsA cross-sectional descriptive study was carried out with health institutions in the canton of Geneva to identify the proportion of institutions with a positive opinion on partnership with caregivers. It has also identified potential partnerships with caregivers of people facing dementia and possible compensation in exchange for the provision of their skills. Descriptive statistics are presented according to their frequencies and relative percentages (categorical variables), as well as by their mean, standard deviation and median (continuous variables). Logistic regression models were used to assess the factors associated with a favorable opinion towards win/win partnerships.ResultsThe proportion of executives of health-related institutions with a positive opinion of partnership with caregivers is high: 74.7% (95% CI: 64.8–83.1%). Several types of potential partnerships have been identified between health institutions and caregivers. Areas in which certain activities have been identified as being able to be carried out by caregivers include governance, care, provision of services, accompaniment and support, training and research. Types of compensation for caregivers have also been highlighted.ConclusionThis study shows that some areas activities of health facilities in the canton of Geneva could be the subject of win-win partnerships with caregivers of people with dementia. Positive view of health executives on partnership with caregivers is encouraging. In the future, innovative projects can emerge to meet the needs of each party.

Highlights

  • In the context of an ageing population and an increase in the appearance of chronic diseases, the commitment of caregivers makes it possible for people confronted with disease to remain at home

  • In the context of a shortage of health personnel announced by the World Health Organization (WHO) (12.9 million by 2035) [1] and demographic changes that favour an increase in the incidence of chronic

  • The objectives of this study were to find out what percentages of executives in health-related institutions are favourable to establishing partnership projects with caregivers, as well as which activities related to the functioning of health-related institutions could be entrusted to caregivers in exchange for a free respite device

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Summary

Introduction

In the context of an ageing population and an increase in the appearance of chronic diseases, the commitment of caregivers makes it possible for people confronted with disease to remain at home. Over time, they need support to overcome their difficulties. The feeling of burden is defined as “all the physical, psychological, emotional, social and financial consequences borne by carers” [7] Faced with this situation, caregivers’ needs are based on information, training, recognition, coordination of care and mainly, respite [8, 9]. Health institutions are commissioned by the political authorities to set up relevant and effective support mechanisms to help caregivers

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