Abstract
Data from biomedical research are more broadly available to the research community today than in the past. Technical developments, such as web-based databases, have played a role in this transition, but so has a fundamental shift in the view of who “owns” research data. The model of the investigator owning data has been increasingly replaced by one in which society owns data. Scientific and cultural forces have converged in the past decade to foster this new model. Numerous examples of broad data sharing, ranging from the Human Genome Project, to the Framingham Heart Study, to the myriad genome-wide association studies deposited in the dbGaP database of the National Institutes of Health (NIH) (see www.ncbi.nlm.nih.gov/sites/entrez?Db=gap), offer compelling testimony to how broad …
Sign-in/Register to access full text options 
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
