Whose Decision is it? Organ Donation Attitudes Among Young UK South Asians

Abstract

A questionnaire study examined organ donor card holding rates and attitudes to organ donation among young adult British South Asians and Whites attending institutions of higher education in the UK. There were 382 respondents (166 male, 216 female, average age 21.8 years): 107 Indian (Hindu or Sikh), 104 Pakistani/Bangladeshi (Muslim) and 171 White (Christian or of no religion). Overall, 33% of White but only 9% of South Asian respondents had a donor card. Among Whites, only 6% thought their parents would find it emotionally very upsetting to discuss organ donation, and of the White card holders 70% had told their parents that they had a card. In contrast 18% of Indians and 52% of Pakistanis/Bangladeshis thought that their parents would find it emotionally very upsetting to discuss organ donation, and only 39% of South Asian card holders had told their parents that they had a card. Finally, 41% of White, 54% of Indian and 91% of Pakistanis/Bangladeshi respondents doubted that they would take steps to obtain an organ donor card. White respondents proffered inertia as the main explanation for their not being likely to get a card. The factors underlying South Asian respondents not planning to obtain a card were more varied and included disinterest, emotional distaste, family opposition and religion. These reasons can be interpreted as relating to an interdependent conception of self and donor decisions being a family as well as an individual matter.