Abstract
Abstract Objective: To report a finding of a severe lack of social support with potential for serious harm during the course of a pediatric advanced care planning study. Method: A longitudinal, single-blinded, multisite randomized controlled trial, conducted in six pediatric hospital-based HIV-clinics, located in high HIV mortality cities. Results: Between July 2010 and June 2014, 366 adolescents aged 14 to 21 years with HIV/AIDS were approached for participation. From among 125 ineligible adolescents living with HIV/AIDS, 62 (50%) were ineligible because they could not identify a surrogate decision-maker they trusted enough to make end-of-life decisions for them, if they were unable to do so for themselves. Conclusion: Healthy People 2020's goal of increasing the proportion of adolescents connected to a trusted adult with whom they can talk about serious problems is unmet among adolescents living with a serious illness. Discussion: Ethical concerns for justice, dignity, and access to health services are ...
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
