Abstract
Objectives 1. Discuss the scope of cultural considerations among staff and families. 2. Discuss two strategies for integrating cultural considerations in communication with families. 3. Describe the role of pediatric palliative care in facilitating care for families from disparate backgrounds. We will present the story of a newborn baby girl who is born to parents newly arrived in the US from India and who is diagnosed with Spinal Muscular Atrophy Type I. Through discussion of this family’s story, we will first explore our own cultural identities and how this affects the care we provide. We will then discuss cultural considerations in diagnostic, prognostic, and genetic disclosure and how they impact decision-making and advanced care planning. Further, we will discuss ‘‘ideal’’ pediatric palliative care outcomes from differing perspectives, both within and between families and healthcare communities.
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