Abstract

Although advance care planning (ACP) can lead to more patient-centered care, the communication around it can be challenging in acute care hospitals, where saving a life or shortening hospitalization is important priorities. Our qualitative study in an acute care hospital in Japan revealed when specifically physicians and nurses start communication to facilitate ACP. Seven physicians and 19 nurses responded to an interview request, explaining when ACP communication was initiated with 32 patients aged 65 or older. Our qualitative approach employed descriptive analysis to identify major themes, which included “initiation by patients” and “initiation by healthcare professionals.” In the latter case, seven specific triggers were identified: (1) when the patients’ medical condition changed in terms of symptom relief, (2) when the patients’ medical condition changed in terms of prognostic prediction, (3) when serious events occurred, (4) when a choice of treatment was presented, (5) when the location for end-of-life care was chosen, (6) when the patients’ cognitive function deteriorated, and (7) when serious events settled down. Within this group of healthcare professionals, physicians were more focused on changes in their patients’ medical condition, whereas nurses focused more on their patients’ desire for a long-term perspective. Nurses encouraged patients to consider ACP themselves, which developed into an approach to respect patients’ autonomy. In acute care hospitals, it appeared to be desirable to have an early discussion where patients could understand the significance ACP, which would matter even after their discharge from the hospital.

Highlights

  • Advance care planning (ACP) has been conceptualized on the ethical basis of respect for patients’ autonomy (Johnstone and Kanitsaki 2009; Fahner et al 2018) and is expected to improve the quality of medical treatment and care and realize the goal of patient-centered care

  • This study aimed to present when physicians and nurses in acute care hospitals in Japan start ACP communication using case studies of elderly patients, in order to help facilitate practices of ACP

  • Which type of initiation of ACP communication should be recommended as the principle one in acute care hospitals? From an ethical standpoint, it appeared evident that “when patients expressed their thoughts leading to ACP” should not be missed in any setting, not to mention in acute care hospitals

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Summary

Introduction

Advance care planning (ACP) has been conceptualized on the ethical basis of respect for patients’ autonomy (Johnstone and Kanitsaki 2009; Fahner et al 2018) and is expected to improve the quality of medical treatment and care and realize the goal of patient-centered care. It has been defined as the process through which patients discuss their wishes and preferences regarding their medical treatment, end of life care, and often the location of those, with their family, those dear to them, and medical staff, in advance of a potential decline in mental capacity. Most of these studies tended to focus on AD completion and few studies in acute care hospitals have focused on the communication process (Solis et al 2018)

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