Year-end Sale % OFF 
Abstract
BackgroundBiobanking is a relatively new concept in Egypt. Building a good relationship with different stakeholders is essential for the social sustainability of biobanks. To establish this relationship, it is necessary to assess the attitude of different groups towards this concept. The objective of this work is to assess the knowledge, attitude, and opinions of Egyptian patients towards biobanking issues.MethodsWe designed a structured survey to be administered to patients coming to the outpatient clinics in 3 university hospitals in Egypt. The survey included questions estimating the level of knowledge about the term “Biobank”, together with questions about the attitudes and opinions about related issues.ResultsTwo hundred and fifty-nine patients participated in the survey. Eighty-one percent of participants reported that they never heard about the term before. About 85% expressed that they would be willing to donate their samples for research and about 87% thought that sample donation did not contradict their religious beliefs. Fifty eight percent were willing to participate in a genetic research project, 27.8% supported sharing their sample with pharmaceutical companies, and 32.4% agreed to share their samples with institutions abroad.ConclusionAlthough there is limited knowledge about biobanking among Egyptian patients, many had a positive attitude towards sample donation and didn’t show religious concerns against it. However, they showed concerns regarding participation in genetic research and with sharing their samples across borders or with pharmaceutical companies. Public education about biobanking is possible, taking into consideration the specific cultural and legal framework in Egypt.
Highlights
Biobanking is a relatively new concept in Egypt
There was no such association between knowledge of biobanks and age (p = 0.203), or religious affiliation (p = 0.371)
Conclusion and recommendations there is limited knowledge about biobanking among Egyptians, there is a general positive attitude towards sample donation and no specific cultural or religious barriers against it according to our findings
Summary
Biobanking is a relatively new concept in Egypt. Building a good relationship with different stakeholders is essential for the social sustainability of biobanks. Advances in research on biological sampling have led to the development of several diagnostic and therapeutic agents Such advances have helped in the identification of genetic mutations that may be associated with the increased risk of certain diseases [3]. The process of collecting and storing of harmonized high quality biospecimens and the careful recording of demographic, clinical, genetic and other data facilitate the identification of biomarkers associated with certain cancers, cardiovascular diseases, and neurological disorders [4, 5].
Sign-in/Register to view highlights & summary Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
