Abstract
Background Women known to carry a BRCA1/2 mutation have to make complex decisions regarding the management of their increased cancer risk, such as whether or not to undergo risk-reducing surgery and how to communicate this risk information to family members. These women may face a unique set of supportive care needs, although unlike the situation for breast and other cancer patients, few supportive care services for mutation carriers exist outside the Familial Cancer Centres. The aim of this presentation is to describe the unmet support needs of women with a known BRCA 1/2 mutation volunteering for a randomised control trial (RCT) testing the effectiveness of a telephone based peer support program.
Highlights
Women known to carry a BRCA1/2 mutation have to make complex decisions regarding the management of their increased cancer risk, such as whether or not to undergo risk-reducing surgery and how to communicate this risk information to family members
These women may face a unique set of supportive care needs, unlike the situation for breast and other cancer patients, few supportive care services for mutation carriers exist outside the Familial Cancer Centres
Women between the ages of 18-70, who tested positive for a BRCA1/2 mutation within the last 4 years were eligible for participation in the study
Summary
Women known to carry a BRCA1/2 mutation have to make complex decisions regarding the management of their increased cancer risk, such as whether or not to undergo risk-reducing surgery and how to communicate this risk information to family members. These women may face a unique set of supportive care needs, unlike the situation for breast and other cancer patients, few supportive care services for mutation carriers exist outside the Familial Cancer Centres. The aim of this presentation is to describe the unmet support needs of women with a known BRCA 1/2 mutation volunteering for a randomised control trial (RCT) testing the effectiveness of a telephone based peer support program
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