Well-being of families of people with psychosocial disabilites in context of deinstitutionalization

Abstract

Abstract Background A large part of disabled people have psychosocial disabilities. Importance of their inclusion is stated in many strategic documents. However, this group of people still faces many barriers in societies. Currently, deinstitutionalization is carried out in Lithuania. Well-being of people with psychosocial disabilities and their family members is affected by this process. Thus, we aimed to assess changes in well-being of family members of people with psychosocial disabilities during deinstitutionalization in Lithuania. Methods Data was collected during two stages of deinstitutionalization, in 2016 and 2019. Family members living with people with psychosocial disabilities answered anonymously to questions of Lithuanian psychological well-being scale. Respectively, 334 and 391 adults participated (13.8% of males and 86.2% of females each time). T scores and levels of well-being were calculated and compared according to socio-demographics of respondents and stage of deinstitutionalization. Results Generally, distribution of the participants did not differ by level of overall well-being between the stages of deinstitutionalization (p-value more than 0.05). Differently, place of residence, younger age, higher income and employment were associated with higher well-being. In the second phase, rural, younger, employed and full-time employed respondents had higher estimates of overall well-being (p-value less than 0.05). Also, younger and employed population had higher satisfaction with physical health, income, employment and life in Lithuania (p-value less than 0.05). In most counties of Lithuania, overall well-being of family members of people with psychosocial disabilities was in line with the average level. Conclusions Although distribution of family members of people with psychosocial disabilities by level of overall well-being had not changed from 2016 to 2019, an increase in well-being among rural, younger, employed and those with higher income was observed. Key messages Generally, overal well-being of family members of people with psychosocial disabilities had not changed during the process of deinstitutionalization in Lithuania from 2016 to 2019. Living in rural areas, younger age, higher income and employment were associated with an increase in well-being of family members of people with psychosocial disabilities.