Abstract

The fields of Pediatric Cardiology and Pediatric Cardiac Surgery continue to successfully prolong the lives of children born with congenital heart disease (CHD). The medical home for these children usually centers on a primary care provider who has the responsibility for their overall health and well-being. Much has been learned regarding the neurodevelopment of these patients. In fact, specific guidelines have been published by the American Heart Association (2012) targeting the identification and management of developmental disorders in children with CHD. The goal of these guidelines was to optimize the care of children within their medical home by identifying those who are at the highest risk of developmental abnormalities. So how are we doing? In this volume of The Journal, Knutson et al show that an opportunity exists to improve the use of these guidelines in the primary care setting. The pediatric community is not aware of the American Heart Association's guidelines and, therefore, does not use them as a tool to screen or refer children who would potentially benefit from testing and/or intervention. This report reviews barriers that inhibit the use of these guidelines, as well as presents easy suggestions that would facilitate putting the guidelines in the hands of primary care providers. Communication between the cardiology and the primary care communities needs to improve so that the overall well-being of these children is optimized. Article page 135 ▶ Implementation of Developmental Screening Guidelines for Children with Congenital Heart DiseaseThe Journal of PediatricsVol. 176PreviewTo assess awareness and implementation among pediatric primary care providers of the 2012 American Heart Association (AHA) guidelines for the evaluation and management of developmental abnormalities in children with congenital heart disease (CHD). We hypothesized that children with CHD are not being provided neurodevelopmental screening and support according to the AHA guidelines. Full-Text PDF

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