Abstract
BackgroundIncreasing the quality of life with short interventions for vulnerable patients is one of the objectives of palliative care. Biographical approaches are used in a range of different interventions which may require considerable resources of staff time and energy. This study evaluated the feasibility of training hospice volunteers in biographical interviews of patients confronted with a life-limiting disease. For the purpose of this study, we evaluated resources such as time needed for training, coordination and supervision, outcome such as completion of the intervention in appropriate time and risks such as causing distress in patients or volunteers as major determinants of feasibility.MethodsNine volunteers from a hospice service attended an advanced training with an introduction to palliative care, biography work, interview techniques, transcribing and writing. Volunteers interviewed a patient and developed a written narrative from the interview. Volunteers completed a questionnaire before training and were interviewed at the end of the project. The interviews were audiotaped, transcribed, and evaluated using descriptive and qualitative content analysis.ResultsPatients provided positive feedback from the intervention. Volunteers felt that their involvement was personally rewarding and were moved by the courage and confidence of the patients. There were no systematic problems or negative experiences reported neither by volunteers nor by patients.ConclusionsWe found the use of volunteers for biography work with patients in palliative care feasible and effective in this study. Volunteers needed supervision and ongoing support in providing this intervention.
Highlights
Increasing the quality of life with short interventions for vulnerable patients is one of the objectives of palliative care
The overall aim of this study is to examine if a biographical intervention provided by skilled hospice volunteers is feasible regarding the following domains: i) resources: do we have the resources for training, coordination and supervision; ii) outcome: can the volunteers finish the intervention comprising the interview and the writing in an appropriate time, and iii) risks: are there indications for distress in patients or volunteers
Nine volunteers participated in the project and each interviewed one patient
Summary
Increasing the quality of life with short interventions for vulnerable patients is one of the objectives of palliative care. Biographical approaches are used in a range of different interventions which may require considerable resources of staff time and energy. This study evaluated the feasibility of training hospice volunteers in biographical interviews of patients confronted with a life-limiting disease. For the purpose of this study, we evaluated resources such as time needed for training, coordination and supervision, outcome such as completion of the intervention in appropriate time and risks such as causing distress in patients or volunteers as major determinants of feasibility. Diagnosis of a life-limiting disease is a disruptive experience. In consequence patients often feel that life is divided in the time before diagnosis and the time with the illness.
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