Voluntary abstinence from food and fluid. The relatives' perspective: An integrative review

Abstract

Voluntary abstinence from food and fluid. The relatives' perspective: An integrative review Abstract. Background: Unbearable states of suffering can cause a premature wish to die. Voluntary stopping of eating and drinking (VSED) offers a way to autonomously realize this wish. Relatives play a significant role in the process of realizing VESD. So far, it is unclear how relatives experience the supporting process. Aim: This review intends to systematically record experiences of accompanying relatives. Method: Within the framework of an integrative review, we conducted research in MEDLINE®, CINAHL® and PsychINFO®, as well as supplementary research. The selection was based on defined inclusion and exclusion criteria. For the synthesis, we used a thematic model. Results: From the four included studies, it emerged that the accompanying relatives accepted the family members' wish to die. They defended the realization of this wish with responsibility and advocacy until the death of the person wishing to die. As a result of their caring commitment, they neglected their own needs. Most relatives assessed the accompaniment as peaceful and dignified. Conclusion: Accompanying the VSED process represents an emotional tightrope walk with unfamiliar challenges for relatives. The results can contribute to a deeper understanding of relatives' needs. In this way, the findings can stimulate the derivation of suitable support offers.