Voices of Strength: Narrative of Resilience from Parents Having Trisomy 21 Child

Abstract

This narrative inquiry dives into the resilience and strength of parents raising children with Trisomy 21. The metaphoric framework of building a house illustrates the progressive and complex experiences of parents with Trisomy 21 child. This study is based on eight purposively selected participants, initially grappling with shock and denial is akin to laying a foundation, followed by understanding genetic and societal implications as the house structure rises. Coping strategies and adapting to care needs represent building walls and installing a roof. Within this metaphorical house, evolving acceptance and support networks shape family dynamics and social interactions. The narrative not only captures personal growth and deeper family bonds but also reflects broader societal shifts toward inclusion. This metaphor for home building not only builds up a narrative inquiry but also highlights the progressive development of resilience and deeper family bonds, which is illustrated by significant personal growth and societal shifts towards inclusion.