Abstract
The term 'inborn errors of metabolism' (IEM), also referred to as congenital metabolic diseases, is described as the hereditary deficiency of enzymes or alteration in protein structure and function resulting in metabolic derangement that may have pathologic consequences.
Highlights
I believe that Virtual Academic Units or their equivalent are an extremely cost effective means of augmenting research capacity in areas which previously would not have been done and bringing in new voices, from healthcare professionals, and from patients and carers which would otherwise have not been heard
As a UK paediatrician, I was deeply surprised that the 2018 Royal College of Paediatrics and Child Health ‘Turning the tide 5 years on’ does not mention ‘virtual Biomedical Research Units and Centres’ and further was not mentioned in a recent review of child health research [1,2]
Among the articles published through the Virtual Academic Unit (VAU) there is ‘Ethical Research Involving Children’. (2013) UNICEF, which predates the College own Children’s and Young People’s Child Health Research Charter [5]
Summary
I believe that Virtual Academic Units or their equivalent are an extremely cost effective means of augmenting research capacity in areas which previously would not have been done and bringing in new voices, from healthcare professionals, and from patients and carers which would otherwise have not been heard. Virtual Academic Units within UK Infrastructure for Research that Benefits Infants, Children and Young People Virtual Academic Unit, Northampton General Hospital, Northampton, UK
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