Évaluation de la transition pédiatrie-gastroentérologie d’adultes des enfants atteints de maladie inflammatoire cryptogénique intestinale

Abstract

Assess the transition of children followed for inflammatory bowel disease (IBD) to the adult gastroenterology care unit and the development of joint medical visits (JMVs). This study was conducted at the Rennes University Hospital (Brittany, France). All patients with IBD and relayed to an adult gastroenterologist (GE) between 2000and 2014were included. The following medical data were collected: age, gender, clinical status, disease activity, type of follow-up (freelance or at hospital), medical history, disease locations, and treatments received. Patients who were relayed in the same hospital attended a JMV with both the pediatric and adult gastroenterologists. Patients and parents were interviewed with a questionnaire sent by mail. They were asked how they had perceived the transition with questionnaires containing specific items about the JMV. The answers of the patients who attended JMVs were compared to those who did not attend. Eighty-two patients were included. The patient response rate was 56% (parents, 59%). The average age at transition was 18±0.8years. Fifty patients were relayed in the same hospital with 30attending a JMV. These patients suffered from more severe disease than other patients. Thirty-nine patients felt ready to transition (87%). The JMV was deemed beneficial or very beneficial (74%) for both follow-up and the benefits of the GE's knowledge of the medical file. The parents' responses did not differ from the patients'. Development of the JMV enables a successful transition for pediatric patients with IBD. It could be improved by developing specific therapeutic education sessions based on transition training.