Abstract
BackgroundThe experience of having their new-borns admitted to an intensive care unit (NICU) can be extremely distressing. Subsequent risk of post-incident-adjustment difficulties are increased for parents, siblings, and affected families. Patient and next of kin satisfaction surveys provide key indicators of quality in health care. Methodically constructed and validated survey tools are in short supply and parents’ experiences of care in Neonatal Intensive Care Units is under-researched. This paper reports a validation of the Neonatal Satisfaction Survey (NSS-8) in six Norwegian NICUs.MethodsParents’ survey returns were collected using the Neonatal Satisfaction Survey (NSS-13). Data quality and psychometric properties were systematically assessed using exploratory factor analysis, tests of internal consistency, reliability, construct, convergent and discriminant validity. Each set of hospital returns were subjected to an apostasy analysis before an overall satisfaction rate was calculated.ResultsThe survey sample of 568 parents represents 45% of total eligible population for the period of the study. Missing data accounted for 1,1% of all returns. Attrition analysis shows congruence between sample and total population. Exploratory factor analysis identified eight factors of concern to parents,“Care and Treatment”, “Doctors”, “Visits”, “Information”, “Facilities”, “Parents’ Anxiety”, “Discharge” and “Sibling Visits”. All factors showed satisfactory internal consistency, good reliability (Cronbach’s alpha ranged from 0.70–0.94). For the whole scale of 51 items α 0.95. Convergent validity using Spearman’s rank between the eight factors and question measuring overall satisfaction was significant on all factors. Discriminant validity was established for all factors. Overall satisfaction rates ranged from 86 to 90% while for each of the eight factors measures of satisfaction varied between 64 and 86%.ConclusionThe NSS-8 questionnaire is a valid and reliable scale for measuring parents’ assessment of quality of care in NICU. Statistical analysis confirms the instrument’s capacity to gauge parents’ experiences of NICU. Further research is indicated to validate the survey questionnaire in other Nordic countries and beyond.
Highlights
The experience of having their new-borns admitted to an intensive care unit (NICU) can be extremely distressing
Questionnaire development In a former study [18], the Neonatal Satisfaction Survey (NSS-13) questionnaire was developed by a phased structured process intended to deliver a valid and discriminating survey tool
The level of missing data is low for the final survey, which suggests that the questionnaire is acceptable to respondents
Summary
The experience of having their new-borns admitted to an intensive care unit (NICU) can be extremely distressing. This paper reports a validation of the Neonatal Satisfaction Survey (NSS-8) in six Norwegian NICUs. Approximately 10% of all new-borns in Norway require advanced health care soon after birth [1]. The experience of having their new-born infant admitted to an intensive care unit (NICU) can be extremely distressing. A protective factor is a positive association between parent satisfaction with neonatal health care and parents ability to provide need-based care for their child(ren) [2,3,4]. By monitoring the patients’ experiences, hospital units gather data which can be used to guide changes towards improved service provision, during the inpatient phase and, by implication, after discharge [8]
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