Validation of Family Management Measure for the Brazilian culture.

Regina Szylit Bousso,Estela Regina Ferraz Bianchi,Michelle Freire Baliza,Maiara Rodrigues dos Santos,Ana Márcia Chiaradia Mendes-Castillo,Maira Deguer Misko,Carolliny Rossi de Faria Ichikawa

doi:10.1590/0034-7167-2016-0326

Abstract

To validate the Family Management Measure (FaMM) for Brazilian culture. Quantitative research excerpt, following the recommendations for validation studies. The data presented refer to the last stage of the process. The internal consistency of the items was analyzed through Cronbach's alpha of the six domains: Child's Daily Life (0.78); Condition Management Effort (0.51); Condition Management Ability (0.55); Family Life Difficulty (0.86); View of Condition Impact (0.56); and Parental Mutuality (0.80). Exploratory factorial analysis of the instrument was carried out, obtaining an acceptable adjustment, according to validation standards. The FaMM presents evidence of validation and can be used in the Brazilian culture under the name of Instrumento de Medida de Manejo Familiar, which was adjusted in eight domains, providing varied aspects of family management and a good evaluation of the fundamental aspects of family life in the context of childhood chronic conditions.

Highlights

The decline in infant mortality and concomitant increase in chronic diseases in the pediatric age group are unquestionable
The three domains that make up the original instrument
The three domains that make up the original instrument (Condition Management Effort, Condition Management Ability and View of Condition Impact) did not present a high reliability index, in the tests used for the validation they obtained a good adjustment, thereby indicating that the validation process was acceptable

Summary

Introduction

The decline in infant mortality and concomitant increase in chronic diseases in the pediatric age group are unquestionable. Among the diseases most associated with these conditions are: sickle cell anemia, bronchopulmonary dysplasia, congenital heart disease, cystic fibrosis, diabetes mellitus, epilepsy and chronic renal failure[1,2]. Such chronic conditions can affect the routine and quality of life of children and families in different ways, which in turn can influence even the prognosis of the disease. Knowing the challenges and ways in which the family handles caring for chronically ill child is a fundamental part of the planning and implementation of quality nursing care and has become a focus of researchers’ attention in the last decade[3,4,5].

Results

Discussion

Conclusion