Abstract
AIMS: Through Community Voices in Research (CVR), a community powered registry, the National Hemophilia Foundation (NHF) is conducting a longitudinal survey-based study designed to provide a 360°-view of what it is like to live with an inherited bleeding disorder (IBD). Despite evolving standards of care, pain consistently impacts quality of life for this population. This analysis evaluated relationships between pain limitations and 1) family history of IBD, social determinants, depression/anxiety scores and 2) use of marijuana, opioids and other medications, anxiety, and depression.
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