Utilization of Special Services among Children and Youth with Special Healthcare Needs: A Time-to-Event Analysis of the National Survey of Children’s Health Data, 2016-2022

Abstract

BackgroundSpecial services including physical, occupational, speech, or behavioral therapies are associated with enhanced long-term functioning and well-being of children and youth with special healthcare needs (CYSHCN). Yet, there is a lack of recent evidence on the utilization of these services, and the age at which CYSHCN first receive them. ObjectiveThis study assessed the distribution, timing, and determinants of special services utilization across different types of special healthcare needs. MethodsData from 63,734 caregivers of CYSHCN aged 0-17 years from the 2016-2022 National Survey of Children’s Health were analyzed using Rao-Scott Chi-Square, Log-rank, and Cox proportional hazard tests. ResultsOverall, 41.9% of CYSHCN ever received special services, including 91.4%, 90.3%, 88.0, and 34.1% of children and youth with Down syndrome, cerebral palsy, autism, and other special healthcare needs (OSHCN), respectively. Children with Down syndrome and cerebral palsy received special services earlier than those with autism or OSHCN. Utilization of special services was higher among male children and youth (aHR 1.41; 95% CI: 1.33-1.49), aged 0-5 years (aHR: 4.70; 95% CI: 4.32-5.11), second or later born children (aHR: 1.18; 95% CI: 1.10-1.26), from families with low-income (aHR: 1.14; 95% CI: 1.04-1.24), living with married parents (aHR: 1.11; 95% CI: 1.04-1.19), consistently insured (aHR: 1.24; 95% CI: 1.08-1.42), and with a more complex health condition (aHR: 3.40; 95% CI: 3.13-3.70) compared to their counterparts. ConclusionsThese findings highlight the necessity of adopting tailored approaches for children with different special healthcare needs to optimize and sustain the utilization of special services.