Abstract

BackgroundCharacteristics of an individual’s social network have been important factors in understanding infectious disease transmission patterns. Social network data collection is generally time and resource intensive, yet it is crucial to our understanding of the complex epidemiologic landscape of human behaviors among stigmatized social groups.ObjectiveWe sought to evaluate the feasibility and acceptability of a self-administered social network data collection tool, Network Canvas, among Black men who have sex with men (BMSM) and transgender persons using the think-aloud method, which is a robust and flexible research technique used to perform usability testing.MethodsWe piloted a self-administered network interview within the Network Canvas Software Suite. Participants aged 18 years and older were recruited through a community-based organization in Atlanta, GA, and were included based upon their willingness to share information on sexual behaviors and drug use for themselves and their social networks. A semistructured interview guide was used to document cognitive decision-making processes while using the tool. Recorded interviews were transcribed verbatim, and thematic analyses were performed.ResultsAmong 7 BMSM and transgender participants, three main themes were identified from cognitive processes: (1) the utility, (2) navigation, and (3) intuitive design of Network Canvas. Overall, Network Canvas was described as “easy to use,” with suggestions mainly directed toward improving navigation tools and implementing an initial tutorial on the program prior to use. Participants were willing to use Network Canvas to document their social networks and characteristics. In general, observed verbal responses from participants matched their behavior, although there were some discrepancies between verbal affirmations of use and understanding versus external observation.ConclusionsWe found Network Canvas to be a useful new tool to capture social network data. Self-administration allowed participants the opportunity to provide sensitive information about themselves and their social networks. Furthermore, automated name generation and visualization of an individuals’ social network in the app has the potential to reduce cognitive burden during data collection. More efficient methods of social network data collection have the potential to provide epidemiologic information to guide prevention efforts for populations with stigmatized health conditions or behaviors.

Highlights

  • Social networks are understood as patterns of stable interactions among people [1,2] that can be categorized as instrumental, supportive, disruptive, burdensome, or neutral

  • The purpose of this study is to evaluate the feasibility and acceptability of a self-administered social network data collection inventory on Network Canvas among Black men who have sex with men (MSM) (BMSM) and transgender persons using the think-aloud method

  • Cognitive processes of participants were captured while navigating through the Network Canvas application, and close attention was paid towards participants’ processes using the application’s features and tools

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Summary

Introduction

Social networks are understood as patterns of stable interactions among people [1,2] that can be categorized as instrumental, supportive, disruptive, burdensome, or neutral. Infectious disease transmission, such as HIV transmission, requires interactions between at least two individuals. Social network inventories have mainly been collected using standard data collection methods that ask research participants to list people within their networks during a specified period and to provide potentially extensive information about each alter’s demographics, perceived behaviors, and health outcomes [11]. Social network data collection is generally time and resource intensive, yet it is crucial to our understanding of the complex epidemiologic landscape of human behaviors among stigmatized social groups

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